Social Media in the NICU2011 New England Association of Neonatologists/Griffin Symposium Marlboro, MA September 23, 2011 CLARA SONG, MD, FAAP Assistant Professor of Pediatrics Neonatal-Perinatal Medicine The Children’s Hospital at OU Medical Center The University of Oklahoma Health Sciences Center
DISCLOSURE• SPEAKER: Clara Song, MD• I have no relevant financial relationships with the manufacturers of any commercial products and/or provider of commercial services discussed in this CME activity.• I do not intend to discuss an unapproved or investigative use of commercial products or devices.
OBJECTIVES• Understand the evolution of social media and its impact on healthcare• Classify the current available web-based tools in an effort to facilitate collaboration between health professionals• Identify and prevent negative consequences associated with social media use
Social media has taken over… … porn as the #1 activity on the web.Source: Social Media Revolution from Socialnomics.net
Years to Reach 50 Million Users….. RADIO: 38 TELEVISION: 13 INTERNET: 4 IPOD: 3Source: Social Media Revolution by Socialnomics.net
Years to add 50 million Facebook accounts? Facebook added 200 million users in less than 1 year!Source: Social Media Revolution 2 by Socialnomics.net
Everyday….. … approximately 2 Billion Google searches occur.Source: Social Media Revolution by Socialnomics.net
Interestingly….. Facebook TOPS Google for weekly traffic in the U.S.!Source: Social Media Revolution 2 from Socialnomics.net
In 2010, GenerationY outnumber babyboomersOver 50% of theworld’s populationis under 30 yearsold One in five Americans uses a social media96% join a social networking service.network (Pew Internet & American Life Project) Source: Social Media Revolution by Socialnomics.net, Beyond.com Poll
Saying it simply…Many people are on the web… AND on the web to utilize social media tools.
“Social media is NOT a fad…“…it’s a fundamental shift in the way we communicate.”Source: solcomhouse.com
Web 1.0Source: www.jeffc.me/web-10-and-web-20-visual-differences
Web 2.0Source: www.jeffc.me/ web-10-and-web20-visual-differences
• Social media is a “group of Internet-basedSocial applications…that build on theMedia foundations of Web 2.0, and that allow the creation and exchange user-generated content.” • Social media uses Internet and web-based1. Concept technologies to transform broadcast media monologues (one to many) into social2. Media media dialogues (many to many). It supports the democratization of3. Social knowledge and information, transforming interface people from content consumers into content producers. Source: http://en.wikipedia.org/wiki/Social_media
Social Media is about…. Reaching out and having a conversation.Source: www.telegraph.co.uk
Social Media is Changing Our Lives• Shift in communication to focus on honesty and transparency.• Social media sites, like Facebook and Twitter, are becoming trusted sources of information and communication.• New relationships are being created and old ones maintained.• Average citizens have the opportunity to influence public opinion and policies.• New possibilities have been opened for those launching and/or promoting a business. Source: mashable.com/2009/10/16/social-media-changing-lives/
Hospitals in the United States 2009 441 use social media 241 have Facebook pages 323 have Twitter accounts 213 have YouTube channels Source: Found In Cache, Social Media resources for healthcare professionals from Ed Bennett.
Hospitals in the United States 2011 906 use social media 719 have Facebook pages 674 have Twitter accounts 448 have YouTube channelsSource: Found In Cache, Social Media resources for healthcare professionals from Ed Bennett.
HealthCare.gov• “Take healthcare into your own hands…. Your healthcare explained.”• A federal government website managed by the US Department of Health & Human Services• “Stay Connected” email updates, twitter, Facebook, YouTube, RSS
We are e-Patients• “equipped, electronic, enabled, educated, empowered, engaged, equals, emancipated…… expert??”• Seek online guidance for their own conditions or for their loved ones• 2 effects “better health information and services and different (but not always better) relationships with their doctors” Source: http://enwikipedia.org/wiki/E-Patient
SmartBlog on Social Media• November, 12, 2010: – Patients and their families benefit from the community support by connecting through social media before, during and after a hospital stay Source: sbne.ws/r/68Vj
“If our patientsare Health 2.0patients, thenwe have to beHealth 2.0docs.”Dr. Gwenn SchurgrinO’Keefe, MD, FAAP Source: Schurgrin O’Keefe. MDNGnetguide 2009, bitstrategist.files.wordpress.com
We are e-Doctors • 99% of U.S. physicians are online • 85% of offices have broadband • 83% consider the Internet essential to their practice • 91% use Google for medical and pharmaceutical queries • The web and Blackberrys are replacing textbooks, drug references and conferences. • ….“e-Doctor”… all the “e’s” and then some (empathetic, eloquent, encouraging,…..expert”Source: pharma2blog.com/2008/07/03/taking-the-pulse of-the-physician
HITECH • $27 billion over 10 years in incentive paymentsAct for supporting the adoption and use of EHRsSecurity of Health IT • December 18, 2009: $60 million available toPatient-Centered support the development of Strategic Health ITCognitive Support Advanced Research Projects (SHARP).Healthcare Application • Feb 8, 2010: $375.2 million for 32 regional extensionand Network Platform centers (REC).ArchitectureSecondary Use of • April 6, 2010: $267.6 million for 28 additional RECs to complete network of 60 centersElectronic HealthRecord (EHR) Data Source: http://healthit.hhs.gov
“Early Innovator” Grants• February 16, 2011: The U.S. Department of Health & Human Services announced the awarding of $241 million to help seven states design and implement the IT infrastructure needed to launch state health insurance exchanges.• Kansas: Kansas Insurance Department, $31,537,465 • Maryland: Maryland Department of Health and Mental Hygiene, $6,227,454 • Multi-State Consortia: University of Massachusetts Medical School, $35,591,333 • New York: New York Department of Health, $27,431,432 • Oklahoma: Oklahoma Health Care Authority, $54,582,269 • Oregon: Oregon Health Authority, $48,096,307 • Wisconsin: Wisconsin Department of Health Services, $37,757,266Source: healthcare.gov
ElectronicHealth Primary PhysicianRecord(EHR)Initiated and Specialist Patient Networkmaintained by an EMRinstitution SystemIn an ideal world, Laboratory/ Pharmacyan national EHR= RadiologyPHR (PersonalHealth Record)
PHR Use Motivates Consumers• 1 in 14 uses a PHR• 56% learned more about their health• 32% took specific action to improve their health• 60% of low income & 40% of chronically ill felt more connected to their physician• 40% asked a question they otherwise wouldn’t have• 58% would use PHR from PMD, 50% from insurer, 25% from private tech company• Increased interest in PHR use if their physician uses EHR (50% vs 41%)• 68% concerned about privacy Source: www.chcf.org/media
myPHR.comThe American Health Personal Health Record:Information initiated and maintained byManagement Association the patient Downloadable PHR forms inWhat is a PHR? English and SpanishWhy should you keep aPHR? Authorization FormsHow to create a PHR? Emergency PHR FormsChoose a PHR? Links, Tools, Resources
Personal HealthRecords (PHR)Google HealthMicrosoft Health VaultMy Doclopedia PHRMediCompassMedic AlertMedsfile.comWebMD Images: microsoftfeed.com, doclopedia.com, medfiles.eu, medicalert.co.za
Information: resourcesHealth 2.0 and sharing Medical education Collaboration and practice Disease management Research & data sharing Professional Development & Networking Source: health20.org/wiki/ Health_2.0_Definition
There are over 300 waysto bookmark and shareinformation! Source: Social Media Revolution from Socialnomics.net
Diigo2collabCiteULikeConnoteaRedditTechnoratiGoogle Chrome: AddThisSlashDotStumbleUpon Social BookmarkingDigg and News Aggregates Source: doublejdesign.co.uk
MEDIA & SLIDE SHARING You Tube rrripple Flickr Daily Motion Vimeo Google Video Yahoo Video Slide Share Google Docs Scribd 280 Slides“Try not. Do or do not. There is no try.”-Yoda SlideRocket SlideSource: sethpickens.files.wordpress.com/2009/02/luke-yoda
YouTube: the world’s 2 nd largest search engine As of October 2009, YouTube reached one billion views per day.Source: youtube-global.blogspot.com/2009/10/y000000000utube.html
EVERY minute on YouTube…. 20 hours of video are uploaded…. Source: youtube.com/t/fact_sheet
RSS is “a family of web feedformats used to publishfrequently updated works-such as blog entries, newsheadlines, audio, and video-in a standardized format.”RSS feeds “benefit readerswho want to subscribe totimely updates from favoredwebsites or to aggregatefeeds from many sites RSS= “Really Simpleinto one place.” Syndication” Source: http://en.wikipedia.org/wiki/Rss
Trends, Tags, and Alerts in Medicine• Google Alerts (Google Scholar)• PubMed Save Search function• PubMed Reader• PeRSSonalized Medicine from Webicinia.com• BioWizard• AllTop• WatchThatPage• DailyMe• TweepBeep Source:
Overheard….“We no longer search fornews, the news finds us.”
SocialNetworking SitesFacebookMySpaceFriendsterLinkedInNingHi5BeboMocoSpaceMyLife Source: emarketer.com, June 2009
Facebook• More than 550 million active users• 50% of active users are logged on in any given day• Fastest growing demographic is age 35 and older; second is 55-65 year olds (Fastest growing segment is 55-65 year old females)• Median user age: 33• Average user has 130 friends, creates 90 pieces of content/month• Worldwide, more than 8 billion minutes a day spent on Facebook, yielding over 60 million status updates each day• Most popular site to share photos (comScore 2009)• More than 100 million photos uploaded each day• 3rd most popular site to view online video (Nielson VideoCensus, Nov 2009)Source: www.facebook.com/press/info.php?statistics
FACEBOOKFun, casualMeet old friends, makenew friendsJoin interest groups,communitiesLearnShare storiesMake professionalconnectionsIt’s a party! Source: facebook.com
But, not this kind of party…Source: glamourvanity.com
Neonatologists on Facebook Public pages/groups Neonatology page Neonatology group Neonatology UK Neonatology Review AAP Perinatal FB Page Private groups AAP Perinatal FB Group AAP Perinatal Trainees FB Group
If Facebook was a country…. … it would be the 3rd largest in population.Source: Social Media Revolution 2 from Socialnomics.net
LinkedIn• Global network with over 85 million experienced professional in 150 industries in over 200 countries• Average age is 41 years• Over 50% users have income >$100,000• Over-representation of those who attended graduate school, compared to all internet users• 64% male• 34% own a Smartphone/PDA• 95% of companies use LinkedIn as their primary tool to find new employees (80% of companies use social media for recruitment)• Searchable by Google Source: www.linkedstrategies.com/blog/tag/linkedin-statistics
LinkedIn: Business Lunch • Neonatologists on LinkedIn – Neonatal-Perinatal Medicine Group
Twitter is a service for friends, family, and co- “Share and discover what’s happeningworkers to communicate and stay connectedthrough the exchange of quick frequent answers right now, anywhere in the world.”to one simple question: What are you doing? Source: twitter.com
Twitter • unique visitors increased by 1,382% in a year – 475,000 in Feb 2008 7 million in Feb 2009 • As of Feb 2010, largest Twitter group 35-44 year olds, 64% aged 35 or older, & the median user age: 39 • Twitter.com primarily visited from work – 62% assess from work only – 35% assess from home only • As of January 2011, 175 million registered users • 55 millions tweets a day • 600 million search queries a day via Twitter’s search engine • 37% of active users are mobileSource: http://blog.nielson.com/nielsonwire/online_mobile/twitters-tweet-smell-of-success/, denverpost.com/business/
Tweets are short and sweet….. Casual conversation, like at the water cooler or coffee house No one stays too long or says too much If you don’t stop by, you’ll miss itImage Source: nydailynews.com
Does your organization/hospital have asocial media policy? 68% (17 votes) Yes, and active social media 4% users 4% 8% (2 votes) No, and active social media 16% users 16% (4 votes) Working on it, and active social 8% media users 4% (1 vote) Yes, but not 68% made it into the social world 4% (1 vote) No, but not make it into the social worldSource: @reedsmith, Twtpoll Oct 2010
• February 2009 • Surgeons at Henry Ford Hospital, Detroit, MichiganforREAL- • “To let people know that a tumor can be removedTIME without taking out the entire kidney,” said Craig Rogers,Updates MD, lead surgeon, to CNN.
• Tissue recruitment• Epidemiological survey• Disaster alerting and response• Supportive care for patients and family members• Diabetes management• Alarming silent codes (security incidents)• Augmenting telemedicine• Amber alerts
• Healthcare professionals • Harvard Med, Harvard• AAP, Healthy Children, Health, HarvardNeo AAP News, PediaLink, AAP • HealthSocMed NCE • HHS gov, AIDS gov, NIH• AMA Library• MDchat • Red Cross• RNchat • CDC, NIH• NICUchat
• Gulf Oil Spill• Haiti Earthquake• Pakistan Floods• Chilean Miners Rescue• Chavez Tas Ponchao
• Lady Gaga • Justin Bieber • Britney Spears • Barack Obama • Kim KardashianSource: www.blog.newwave.net.au/?p=76
Friday, April 2,2010:Columbia University and MixedInk in New Yorkidentified 52,000 Tweets mentioning antibiotics during a4 ½ month period in 2009.Approximately 700 of those tweets included incorrectinformation. Source: www.healthday.com/Article.asp?AID=637674
• “No one physician is as knowledgeable as physicians working together.”• Largest online physician community• Over 110,000 community members• 68 specialties, 50 states• Free to practicing physicians• Free of advertising• Facebook, Twitter and monthly Sermo Blog Source: www.sermo.com/node/11/
AAP in • Website • Discussion BoardSocial – YP Connection – AAP Perinatal TraineesMedia • Twitter – AAPperinatal – AAP news – NCE – PedialinkSection on • Facebook groups – AAP Perinatal – AAP Perinatal TraineesPerinatal • Facebook pages o AAP Perinatal o NeoReviewsPediatrics o AAP Pediatrics • Blog by AAP President, Judith Palfrey • 12/15/09 AAP SmartBrief
“Be who you are and say what you feel ….....because those who matterdon’t mind and who mind don’t matter.” Dr. Seuss
Potential Risks• Social networking is online= Public domain, no longer private• Posting online is permanent; can be deleted, but may be archived• Professional liability risks (violations of medical code of ethics, HIPAA, employer or medical staff policy)Source: Armon, Keller. Who is Dr. Wiki and Why You Need to Know. Unique Opportun. 2009.
Minimize Risks• Use common sense. – “The least common thing in the world is common sense.” – overheard from Istvan Seri• Review the terms of service of the online communities.• Review your professional liability policy.• Review your employment agreement.• Be aware that you may not remain anonymous.• Include a disclaimer.• Review before you post. (Think, pause, then post.) Source: Armon, Keller. Who is Dr. Wiki and Why You Need to Know. Unique Opportun. 2009.
Social Do’s and Don’t• DO: – Identify yourself with yourself employer if appropriate, but emphasize that you do not represent your employer’s views – Engage in discussion with your peers and colleagues – Think, pause, then post.• DON’T: – Use for personal reasons during work time) – Post personal identifiable OR protected health information – Use or post profane, defamatory, illegal language or material
AMA Policy: Professionalism in the Use of Social Media• Standards of patient privacy and confidentiality• Privacy settings• Appropriate boundaries of patient-physician relationship• Professional boundaries• Ethical responsibility to report unprofessionalism• Possibility of negative consequences
Ohio StateMedicalAssociationSocial Networkingand the MedicalPractice: Guidelinesfor Physicians,Office Staff andPatients“It is only a right to write.” Source: osma.org
Philosophy:Individuals have the right and responsibility to advocate for their own health,and that is our responsibility to help them use social media tools to get the bestinformation, connect… and inspire….We intend to lead the health carecommunity… to spread knowledge and encourage collaboration… improvinghealthcare everywhere.Mission of the Center:Lead the social media revolution in health care, contributing to health and wellbeing for people everywhere.Vision for the Center:Mayo Clinic will be the authentic voice for patients and health careprofessional, building relationships through the revolutionary power of socialmedia.Source: socialmedia.mayoclinic.org
Social Media Policies Source: socialmediagovernance.com
Evolution of the Internet Source: radarnetworks.com
2011: Web 3.0??Source: ahi.cl/blog/category/ uncategorized/2009/10/ socialmediacampaign1
Use web tools withconfidence tostreamlineEffectivecommunicationMore “expert-generated” contentalongside usercontentEthicalconsiderations? Why bother???
“Social media is like voting…You may not like the system, but unless you vote, you don’t have a right to complain about the outcome.”
“If you askme anything I don’t email@example.com know……. I’m not going to answer.”- Yogi Berra
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