Karen WatchmanTrainer and Consultant
 Different perspectives of ageing witha learning disability:◦ People with a learning disability◦ Carers◦ Service provider...
 Vision and hearing Longer lifeexpectancy Menopause Depression Cancer Epilepsy Mental health Obesity Dementia Ko...
 Assumption thatsupport will alreadybe there Resistance to adapthome environments Lack of clarity overaccommodation Ba...
 Awareness that manyunknown to services Awareness of impactof environment Models of care beingdeveloped More health sc...
 Accommodation Previous experienceof services Perception of ageing= unmet need©Karen Watchman
 Fear of the future Lack of futureplanning Experience of oldercarers©Karen Watchman
 General or specialist services Appropriate accommodation ‘Retirement’ from day-time activities Staff training©Karen W...
 Importance of pictorialcommunication/visualcue/non-verbal Life story work Individual preferences Too much, or sudden,...
Pre telecareIntroducingImplementingReviewingKerr, B. et al., 2010©Karen Watchman
 What is the area of difficulty and who for? What are we trying to achieve – what is the desiredimpact or change and who...
 Communication Staff role – need to understand and explain risk/benefit Consent – using consistent communicating method...
 Clear and understandable for all Clear channels of communication One intervention at a time Maintain companionship an...
 Regular reviews Keep records – how do we store or presentdata, including unintended outcomes? What worked and what did...
 Telecare and Telehealthshould not be in isolation Based on each individual need Not to replace staff, day ornight Fam...
 Share examples: what worked and didn’twork – how do you know? What was used? Telecare, Telehealth or both? Who collate...
@karenwatchmanwww.learningdisabilityanddementia.orgkarenwatchman@hotmail.comKaren Watchman
 Innes A, McCabe, L., Watchman, K. (2012). Caring for olderpeople with an intellectual disability: A systematic review.Ma...
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Telecare and Telehealth - Supporting people ageing with a learning disability: what to consider when developing services

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Presentation for Scottish Centre for Telecare and Telehealth conference 'Supporting Transition, Integration and Innovation'

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Telecare and Telehealth - Supporting people ageing with a learning disability: what to consider when developing services

  1. 1. Karen WatchmanTrainer and Consultant
  2. 2.  Different perspectives of ageing witha learning disability:◦ People with a learning disability◦ Carers◦ Service providers Staged introduction of Telehealth andTelecare◦ Pre telecare◦ Introduction◦ Implementing◦ Reviewing Implications for service development©Karen Watchman
  3. 3.  Vision and hearing Longer lifeexpectancy Menopause Depression Cancer Epilepsy Mental health Obesity Dementia Korsakoffs?©Karen Watchman
  4. 4.  Assumption thatsupport will alreadybe there Resistance to adapthome environments Lack of clarity overaccommodation Baseline assessmentand screening lesscommon No consensus onsharing diagnosis Need for stafftraining Need informationfor family carers Lack of statistics More reactive thanproactive No mention oftelecare©Karen WatchmanWatchman, K. 2003
  5. 5.  Awareness that manyunknown to services Awareness of impactof environment Models of care beingdeveloped More health screeningand baselineassessments More informationavailable No consensus onsharing dementiadiagnosis – moreliterature aroundcancer Staff training evident Awareness that weneed statistics Services starting to beproactive Telecare introduced©Karen WatchmanInnes, A. et al., 2012
  6. 6.  Accommodation Previous experienceof services Perception of ageing= unmet need©Karen Watchman
  7. 7.  Fear of the future Lack of futureplanning Experience of oldercarers©Karen Watchman
  8. 8.  General or specialist services Appropriate accommodation ‘Retirement’ from day-time activities Staff training©Karen Watchman
  9. 9.  Importance of pictorialcommunication/visualcue/non-verbal Life story work Individual preferences Too much, or sudden,noise can be distressing Beware of under or overestimating ability Hear the voice? Environmental impact Needs may changequickly Lack of shareddiagnosis orinformation aboutchanges = no futureplanning Increased interventionand support needed,contrary to usuallearning disabilityapproach Still reactive ratherthan proactive©Karen Watchman
  10. 10. Pre telecareIntroducingImplementingReviewingKerr, B. et al., 2010©Karen Watchman
  11. 11.  What is the area of difficulty and who for? What are we trying to achieve – what is the desiredimpact or change and who for? Communication with the individual – knowpreferences and fears Non technological adaptations Social intervention Assessment©Karen Watchman
  12. 12.  Communication Staff role – need to understand and explain risk/benefit Consent – using consistent communicating methods Agree what, where and who will implement and review Ethics issues – does it restrict freedom Clarity over values and legal requirements (same as other issues) Integration into health and social care approach Who pays?©Karen Watchman
  13. 13.  Clear and understandable for all Clear channels of communication One intervention at a time Maintain companionship and social contact if‘checking’ visits reduced Consider risk and consent©Karen Watchman
  14. 14.  Regular reviews Keep records – how do we store or presentdata, including unintended outcomes? What worked and what didn’t? Stop if itdoesnt work Where is the impact seen and how is itmeasured?©Karen Watchman
  15. 15.  Telecare and Telehealthshould not be in isolation Based on each individual need Not to replace staff, day ornight Family carer fears Support for staff Person’s age is relevant Give greater choice? Different perspectives offamily, person with learningdisability and staff/serviceprovider Differing attitudes to risk Assessment essential Reduce unnecessary moves? Enable independence in ownhome for longer? Improve quality of life? Ongoing communication©Karen Watchman
  16. 16.  Share examples: what worked and didn’twork – how do you know? What was used? Telecare, Telehealth or both? Who collates evidence and data? Long term proactive planning foroutcomes versus reactive response? How do we link to frameworks orpriorities? What issues should be considered whenintroducing Telecare or Telehealth as partof developing services for people ageingwith a learning disability?©Karen Watchman
  17. 17. @karenwatchmanwww.learningdisabilityanddementia.orgkarenwatchman@hotmail.comKaren Watchman
  18. 18.  Innes A, McCabe, L., Watchman, K. (2012). Caring for olderpeople with an intellectual disability: A systematic review.Maturitas, 72 (4) 286-295. Kerr, B, Cunningham, C., Martin, S. & Watchman, K. (2010).Telecare and learning disability: using telecare effectively inthe support of people with learning disabilities, DementiaServices Development Centre/Scottish Government JointImprovement Team. Watchman, K. (2003). Critical issues for service planners andproviders of care for people with Downs syndrome anddementia. British Journal of Learning Disabilities. Vol. 31 (2)81-86.

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