Maastricht sdm 2011

2,756 views
2,680 views

Published on

My presentation for the keynote lecture on the conference of the International Society of Shared Decision Making (#ISDM2001) in Maastricht (june 20th, 2011)

Published in: Health & Medicine
0 Comments
0 Likes
Statistics
Notes
  • Be the first to comment

  • Be the first to like this

No Downloads
Views
Total views
2,756
On SlideShare
0
From Embeds
0
Number of Embeds
2
Actions
Shares
0
Downloads
9
Comments
0
Likes
0
Embeds 0
No embeds

No notes for slide

Maastricht sdm 2011

  1. 1. The power of The Individual Formerly Known As Patient (TIFKAP)<br />Jan A.M. Kremer, gynaecologist<br />Radboud University Nijmegen Medical Centre <br />@JKNL #ISDM2011 j.kremer@obgyn.umcn.nl<br />Maastricht, June 20th, 2011<br />
  2. 2. Inspiration<br />
  3. 3. Inspiration 1: ClaytonChristensen<br /><ul><li>Sustaining innovations make good things better
  4. 4. Disruptive innovations make things more affordable and simple
  5. 5. Disruptive innovations are not good for current organizations, but are good for mankind</li></li></ul><li>Inspiration 2: ClayShirky<br /><ul><li>The power of organizing without organizations
  6. 6. Spectacular developments of internet 2.0 and its social consequences
  7. 7. Web 2.0 is a platform of virtual communication & participation
  8. 8. Consumers are the new producers in agile and fluent networks</li></li></ul><li>Inspiration 3: Prince<br /><ul><li>The Artist Formerly Known As Prince (TAFKAP)
  9. 9. Patient comes from the Latin word Patientia: patience, suffering, endurance
  10. 10. The Individual Formerly Known As Patient (TIFKAP)</li></li></ul><li>How did I get involved?<br /><ul><li>Gynaecologist (1996)
  11. 11. ReproductiveMedicine
  12. 12. Head of the IVF team
  13. 13. 1 of 6 couples
  14. 14. 16.000 IVF treatments
  15. 15. 1 of 38 children</li></li></ul><li>HeyendaelCastle, 2001<br />
  16. 16. What do youthink of our IVF care?<br />
  17. 17. Patient power<br />
  18. 18. Fromparadigm shift todream<br />
  19. 19. 1. Digital IVF Clinic<br />General information 1.0<br />interviews, education leaflets, PDA <br />Personal Health Record (PHR)<br />test results, pictures, letters, reports<br />Communication<br />chat and forum (P2D & P2P)<br />
  20. 20.
  21. 21. Evaluation<br /><ul><li>8 years successfully online
  22. 22. Almost 4000 patients,
  23. 23. > 100.000 forum items
  24. 24. Patients are the motor of this innovation
  25. 25. More trust, less complaints, better culture
  26. 26. Less consultations, marketing benefits, prizes </li></li></ul><li>2. Patients & Guidelineimplementation<br />
  27. 27. 3. PatientCentredness Questionnaire<br />
  28. 28. 4. Patients & Guidelinedevelopement<br />
  29. 29. 5. Patients & Educationdevelopement<br />HELP US!<br />In our community, youfind wiki’s with information aboutyourfertilitytreatments. This information is not complete sinceyourknowledge & experiences are stilllacking. <br />Please help us. It is a verysimple:<br />1. Go toourmijnzorgnet.nl<br />2. Go to the wiki<br />3. Addyour information<br />
  30. 30. 6. Decisionaidfor 1 or 2 embryos<br />IVF: <br /><ul><li>Single embryo transfer: prevention of twins
  31. 31. Double embryo transfer: higher pregnancy rate</li></li></ul><li>Nijmegen decisionaid<br />Information about:<br /><ul><li>Chances
  32. 32. Risks of twins
  33. 33. How to make the choice</li></ul>van Peperstraten et al, Patient EducCouns, 2009<br />
  34. 34. Patients make the betterandcheaperchoice<br />
  35. 35. 7. Next step: Health communities<br />We have organized Healthcare from the institution of the provider<br />We should organize Healthcare from the network of the patient<br />MijnZorgNet (MyCareNet) is a provider of Health Communities<br />
  36. 36. Three kinds of communities<br />Public Health Communities<br />Dutch Community for Infertility<br />Private Health Communities<br />Nijmegen IVF centre<br />Personal Health Communities<br />Health community of Jan Kremer<br />
  37. 37. The timesthey are a-changin’<br />The new doctor:<br /><ul><li>from boss to servant
  38. 38. from god to guide
  39. 39. from host to guest (Don Berwick)</li></ul>The new patient:<br /><ul><li>from passive object to active subject
  40. 40. from patient to person (TIFKAP)</li></ul>The new healthcare organization:<br /><ul><li>from physical institution to virtual network
  41. 41. from better & expensive, to simple and affordable</li>

×