The Individual Formerly Known As Patient                             TIFKAP       Prof dr Jan A.M. Kremer, Radboud Univers...
Inspiration
Inspiration 1: Clayton Christensen• Sustaining innovations make good  things better• Disruptive innovations make things  m...
Inspiration 2: Clay Shirky• The power of organizing without  organizations• Spectacular developments of internet  2.0 and ...
Inspiration 3: Prince• The Artist Formerly Known As Prince  (TAFKAP)• Patient comes from the Latin word  Patientia: patien...
How did I get involved? • Gynaecologist (1996) • Reproductive Medicine • IVF team Nijmegen • 1 of 6 couples • 16.000 IVF t...
Heyendael Castle, 2001
What do you think of our IVF care?
Patientcentredness
From paradigm shift to dream
Patient-centredness  • Being respectful of and responsive to individual patient    preferences, needs and values; and ensu...
Patient-centredness research in Nijmegen   •   Stress and IVF                         Chris Verhaak, Jesper Smeenk   •   O...
Virtual IVF Clinic1. General information 1.0      interviews, education leaflets, PDA2. Personal Health Record (PHR)      ...
Evaluation Virtual IVF Clinic  •   9 years successful  •   > 4000 patients online,  •   > 100.000 forum items  •   Patient...
Next step: Health Social Networks • We have organized Healthcare from   the institution of the provider • We should organi...
Connect patients and professionals  1. Private health communities     Communities of a professional team with their     pa...
Modern medicine The new doctor: • from god to guide • from host to guest (Don Berwick) The new patient: • from passive obj...
In conclusion • Modern patients are changing from passive objectives to   active subjects. • Helped by the new possibiliti...
We are quite disappointed     …how static & top-down.     in your website: no         As modern care     blogs, no wikis, ...
The Individual Formerly Known As Patient                             TIFKAP       Prof dr Jan A.M. Kremer, Radboud Univers...
Berlin tifkap 2012
Berlin tifkap 2012
Berlin tifkap 2012
Berlin tifkap 2012
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Berlin tifkap 2012

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Berlin tifkap 2012

  1. 1. The Individual Formerly Known As Patient TIFKAP Prof dr Jan A.M. Kremer, Radboud University Nijmegen Medical Centre @JKNL #IVFworldwide j.kremer@obgyn.umcn.nl
  2. 2. Inspiration
  3. 3. Inspiration 1: Clayton Christensen• Sustaining innovations make good things better• Disruptive innovations make things more affordable and simple• Disruptive innovations are not good for current organizations, but are good for mankind
  4. 4. Inspiration 2: Clay Shirky• The power of organizing without organizations• Spectacular developments of internet 2.0 and its social consequences• Web 2.0 is a platform of virtual communication & participation• Consumers are the new producers in agile and fluent networks
  5. 5. Inspiration 3: Prince• The Artist Formerly Known As Prince (TAFKAP)• Patient comes from the Latin word Patientia: patience, suffering, endurance• The Individual Formerly Known As Patient (TIFKAP)
  6. 6. How did I get involved? • Gynaecologist (1996) • Reproductive Medicine • IVF team Nijmegen • 1 of 6 couples • 16.000 IVF treatments • 1 of 38 children
  7. 7. Heyendael Castle, 2001
  8. 8. What do you think of our IVF care?
  9. 9. Patientcentredness
  10. 10. From paradigm shift to dream
  11. 11. Patient-centredness • Being respectful of and responsive to individual patient preferences, needs and values; and ensuring that patient values guide all clinical decisions. (Institute of Medicine, 2001) • One of the dimensions of Quality of Care: 1. Safety 4. Timeliness 2. Effectiveness 5. Equity of access 3. Efficiency 6. Patient centeredness
  12. 12. Patient-centredness research in Nijmegen • Stress and IVF Chris Verhaak, Jesper Smeenk • Online prevention of stress/anxiety Angelique van Dongen • Shared decision making in SET/DET Arno van Peperstraten • Guideline implementation Selma Mourad • Guideline development Elvira den Breejen • Patient education via wiki’s Tom van de Belt • Patient-centredness questionnaire NL Inge van Empel • Patient-centredness questionnaire EU Eline Dancet • Patient-centredness improvement Dana Huppelschoten • Virtual IVF Clinic Wouter Tuil • Health Communities Annemijn Aarts
  13. 13. Virtual IVF Clinic1. General information 1.0 interviews, education leaflets, PDA2. Personal Health Record (PHR) test results, pictures, letters, reports3. Communication chat and forum (P2D & P2P)
  14. 14. Evaluation Virtual IVF Clinic • 9 years successful • > 4000 patients online, • > 100.000 forum items • Patients are the motor of this innovation • More trust, less complaints, better culture • Less consultations, marketing benefits, prizes
  15. 15. Next step: Health Social Networks • We have organized Healthcare from the institution of the provider • We should organize Healthcare from the network of the patient • MijnZorgNet (MyCareNet): the social network of Dutch healthcare
  16. 16. Connect patients and professionals 1. Private health communities Communities of a professional team with their patients (members-only) 1. Personal health commuties Community of the patient (personal information and communication about this information)
  17. 17. Modern medicine The new doctor: • from god to guide • from host to guest (Don Berwick) The new patient: • from passive object to active subject • from patient to person (TIFKAP) The Individual Formerly Known As Patient The new healthcare organization: • from better/expensive, to simple/affordable • from physical centre to virtual community
  18. 18. In conclusion • Modern patients are changing from passive objectives to active subjects. • Helped by the new possibilities of Web 2.0, they grow into the role of co-producers of their own care. • We should anticipate on these developments and invest in web tools that can really help these TIFKAP’s.
  19. 19. We are quite disappointed …how static & top-down. in your website: no As modern care blogs, no wikis, no consumers, we want moretwitter, no PHR, no HC, no than just being treated! PHC…
  20. 20. The Individual Formerly Known As Patient TIFKAP Prof dr Jan A.M. Kremer, Radboud University Nijmegen Medical Centre @JKNL #IVFworldwide j.kremer@obgyn.umcn.nl

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