Gayna Hart Presentation - Personalised Healthcare Revolution

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BEN Event - 8th October - Personalised Healthcare Revolution

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Gayna Hart Presentation - Personalised Healthcare Revolution

  1. 1. The IT Challenges of Healthcare Personalisation Gayna Hart, Quicksilva © Copyright Quicksilva 2009
  2. 2. Speaking of IT in Health… 1999 OCT • Quicksilva incorporated • National Programme for IT initiated by the DoH 2002 DEC 2003 • Consultancy to NHS CFH NPfIT JAN 2004 • NHS HL7 Toolkit created, NHS Naked Prescriber MAY delivered, NHS Choose & Book Unplugged developed 2005 JUN • Spinal Tap® launched 2006 • Spine-in-a-Box® launched NOV 2007 • Compliance-in-a-Box® service launched NOV 2008 • National Institute for Health Research AUG SharePoint site 2008 SEP • Managed Support service launched 2008 OCT • Gloucestershire Hospitals diabetic retinopathy screening programme SharePoint site 2 © Copyright Quicksilva 2009 IT Challenges
  3. 3. Possible IT Challenges • moving and storing data » between sites » on the move • alerts and triggers • sharing knowledge • informatics, predictive modelling • procuring IT, contracting for IT, buying IT 3 © Copyright Quicksilva 2009 IT Challenges
  4. 4. Possible IT Challenges • moving and storing data » between sites » on the move • alerts and triggers • sharing knowledge • informatics, predictive modelling • procuring IT, contracting for IT, buying IT 4 © Copyright Quicksilva 2009 IT Challenges
  5. 5. Challenges? – it’s all about… • DATA – the challenge to IT is to deliver it • Capacity • Security • Information • Knowledge • Ownership 5 © Copyright Quicksilva 2009 IT Challenges
  6. 6. What data are we talking about here? • We call it “patient data” » but is it the patient’s? » or is it the NHS’s? • Who uses it? » frontline staff » secondary uses • Where is it stored? » across the NHS domain » private sector 6 © Copyright Quicksilva 2009 IT Challenges
  7. 7. The Spine Debate • National Care Records debate » single centralised source » agreement sought since 2003 » consultation…or lack of it » privacy issues » cost over-runs » still raging… • 10 Aug 2009 – Tory plans » “dismantle central architecture” » contract buy-out » alternatives…Google Health? 7 © Copyright Quicksilva 2009 IT Challenges
  8. 8. NHS Spine • National Care Record System » Summary Care Record • Spine Services » Personal Demographics » Choose and Book » Electronic Prescriptions » Laboratory » Common Assessment So…do we kill off the Spine? 8 © Copyright Quicksilva 2009 IT Challenges
  9. 9. Data – Capacity • Can the Spine cope? » traffic capacity » Service Level Agreements • Local networks » Images – been around for a while • Beyond? » Europe » cross-sector 9 © Copyright Quicksilva 2009 IT Challenges
  10. 10. Data - Security • Legitimate Relationship » is this my patient? • Role Based Access Control » what you have and what you know » Smartcard plus PIN • Sealed Envelope » whole or partial file » emergency access » implications of breaking seal 10 © Copyright Quicksilva 2009 IT Challenges
  11. 11. Data – Information • Needed at the point of delivery » GP » A&E » Out-of-Hours » Mobile • Information Technology is there to deliver… » …information » at what price? » evolution/reuse 11 © Copyright Quicksilva 2009 IT Challenges
  12. 12. Data - Knowledge • Data sharing across domains » Health » Social Care » Justice • Predictive modelling » e Prescribing » drug development » epidemiology » patients at risk » “cross-selling” 12 © Copyright Quicksilva 2009 IT Challenges
  13. 13. What data are we talking about here…again? • We call it “patient data” » but is it the patient’s? » or is it the NHS’s? • Who uses it? » frontline staff » secondary uses • Where is it stored? » across the NHS domain » private sector 13 © Copyright Quicksilva 2009 IT Challenges
  14. 14. Data - Ownership • Who owns the data? » Patient? » NHS? » Pharmacists? » Suppliers? » Service providers? » Collection agencies? data pseudonymised for secondary uses 14 © Copyright Quicksilva 2009 IT Challenges
  15. 15. Joined-Up…thinking? • Sharing information to build knowledge » within the NHS » cross-sector » from private sector » with private sector • Can we be open enough while still protecting the individual? • …and can we afford it? 15 © Copyright Quicksilva 2009 IT Challenges

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