Transcript of "The programme of the international conference on child disability issues"
The world of equal opportunities – for every child! Innovative approaches to working with children with disabilities and their families: Kyrgyzstan and international experience. Focus – children with intellectual disabilities. Bishkek, Kyrgyz Republic, 1-3 March 2011Tuesday, 1 March09.00-09.45 Registration.10.00-11.00 OPENING SESSION Chair: Marina Sokolova, Handicap International Russia Roza Otunbaeva, President of the Kyrgyz Republic Aigul Ryskulova, Minister of Social Protection Valerie Amato, HealthProm CEO Kumar Bekbolotov, Soros Foundation – Kyrgyzstan executive director Dr. Kurt Vagner, GIZ (German Society for International Cooperation) regional director Violeta Dimoska, PORAKA general secretary Children with disabilities. Personal view. Aigerim Bohobekova, young member of ARDI, Kyrgyzstan11.00-11.45 PLENARY SESSION 1 Current situation with child disability issues in Kyrgyzstan, government policies and systems Chair: Marina Sokolova, Handicap International Russia Protecting rights of disabled people - Kyrgyz legislation Dastan Bekeshev, Member of KG Parliament Education and child disability in Kyrgyzstan Saltanat Mambetova, Ministry of Education and Science, KG Social protection of children with disabilities and their families in KG Aigul Ryskulova, Minister of Social Protection, KG Q&A11.45-13.00 PLENARY SESSION 2 Current situation with child disability issues in Kyrgyzstan and Central Asia, research and practice Chair: Gulnara Derbisheva, Institute for Social Politics, Kyrgyzstan Working in partnership to improve health and well-being of vulnerable children and women in Central Asia Tanya Buynovskaya, HealthProm, UK Early development of children with disabilities in day care centre and at home, experience of ARDI and Shoola Kol Day Centres in Bishkek and in Bokonbaevo Tamara Balkibekova, ARDI, Bishkek, Kyrgyzstan Antonina Lee, Shoola Kol, Bokonbaevo, Kyrgyzstan Access to basic services for children with intellectual disabilities in Kyrgyzstan Edward Winter, Eurasia Foundation Central Asia Overview of education policy towards children with special needs. Valentin Deichman, Soros Foundation Kyrgyzstan Children with disabilities in Kyrgyz closed institutions Youth Advocacy Group, Kyrgyzstan 1www.kelechek.kg
Q&A13.00-14.00 LUNCH14.00-15.30 PLENARY SESSION 3 Good practices in countries Chair: Jonathan Watkins, HealthProm, UK Role of the NGO sector in supporting families of children with disabilities Dr Vasilka Dimoska, PORAKA, Macedonia Implementation of early intervention programmes in post-Soviet countries - methodology and practice Ineta Kursietе, Latvian Portage Association, Latvia Kazakhstan model of providing complex services of children with intellectual disabilities Maira Suleeva, “Kenes”, Kazkhstan The introduction of family-centred model of early intervention in the state system of support for disabled children in Russia and the CIS: the activities of Downside Up, Russia Natalia Rigina, Downside Up, Moscow, Russia Listening to what parents want and need. Tajikistan Experience Rachel Tainsh, HealthProm, Tajikistan-UK Q&A15.30-16.00 Coffee break16.00-17.30 SMALL GROUP SESSION 1 Section 1. Inclusive Education (in the conference hall) Kyle Zimmerly, Crosslink International, Kyrgyzstan Galina Bosikova, Yrayim boarding school, Kyrgyzstan Iva Boneva, Centre for Inclusive Education, Bulgaria Cholpon Eralieva, Special needs school No 30, Bishkek, Kyrgyzstan Section 2. Role of NGOs in supporting families (in the conference hall) Dr Vasilka Dimoska, PORAKA, Macedonia Ineta Kursiete, Latvian Portage Association, Latvia Anara Ismailova, ICCO, Kyrgyzstan nd Section 3. Focus on Intellectual Disabilities (yellow room, 2 floor) Lola Nasredinova, Kishti day centre, Tajikistan Natalia Rigina, Downside Up, Russia Kanat Mambetaliev, Special Olympic, Kyrgyzstan Section 4. Community based services and support to families of children with nd disabilities (blue room, 2 floor) Irina Oganesyan, Armenia Vlado Krstovski, PORAKA, Macedonia Chynara Bakova17.30- 18.00 SMALL GROUP FEEDBACK 2www.kelechek.kg
Wednesday, 2 March09.00-10.30 PLENARY SESSION 4 Supporting families Chair: Dr.Vasilka Dimoska, PORAKA, Macedonia Child disability and social exclusion in CIS countries- mechanisms and instruments for change. Alfredas Zabieta, GIZ, Germany Small Steps Forward. From first diagnosis to writing a book: one parent’s experience of helping children with special needs. Sarah Newman, Author, UK Network as an instrument of protecting rights and interests of children with disabilities and their families. Yuri Kats, Inter-regional association "Dostoinstvo i Pravo", Russia The organization of psycho-pedagogical and medico-social support for persons with severe and multiple disabilities in Pskov. Andrey Tsaryov, Centre for Curative Pedagogics, Russia Integrated approaches to resolving disability issues. Handicap Intl experience in providing support to persons with intellectual and multiple disabilities in Russia. Marina Sokolova, Handicap International Q&A10.30-10.45 Coffee break10.45-12.00 SMALL GROUP SESSION 2 Section 1. De-institutionalisation of children with disabilities and creating alternative community based services. (in the conference hall) Nasiba Inoyatova, Kishti Centre, Tajikistan Miryana Tsvetanova, De Passerel, Bulgaria Elisabeth Harden, STLI, Kyrgyzstan Section 2. Advocacy, lobbying and awareness building work. (in the conference hall) Ashot Mkrtchyan, “Skarp rehabilitation centre”, Armenia Rakhat Shakirova, Blagodat, Kyrgyzstan Amanda Merritt, STLI, Kyrgyzstan Section 3. Developing effective networks to protect the rights of children with nd disabilities. (yellow room, 2 floor) Juri Kats, “Dostoinstvo i Pravo”, Russia PORAKA, Macedonia People with disabilities protection network, Kyrgyzstan Section 4. Day centre for children with disabilities as a mechanism to provide better nd support to families. (blue room, 2 floor) Cecile Roland, Handicap International, Tajikistan Kamka Zhasanova, Association of disabled children of Astana, Kazakhstan Igor Shelike, Umut-Nadezhda, Kyrgyzstan Zhyldyz Turdugulova, Nur Bala, Beknuru, Tenir Koldo, Kyrgyzstan12.00- 13.00 LUNCH13.00-15.30 SMALL GROUP SESSION 3 Master classes and practical presentations 13.00 – 14.20 14.30 – 15.30 International experiences Kyrgyzstan experience 3www.kelechek.kg
Section 1. (in the conference hall) Section 1/2. (in the conference hall) Strategies for helping your childs Art Therapy for users of psychiatric services development in the home. and their carers Sarah Newman, SCARF, UK Aigul Kyzalakova, Kyrgyzstan Section 2. (in the conference hall) Section 2/2. (in the conference hall) Prevention of childhood Individual approach and using BoardMaker disability and social orphans: the Plus in development of children with contribution of non-governmental (icl.intellectual) disabilities sector in an interdisciplinary approach Saltanat Torobekova, ARDI, Kyrgyzstan to providing health and social services. Natalia Rigina, Downside Up, Russia nd nd Section 3. (yellow room, 2 floor) Section 3/2. (yellow room, 2 floor) The method of forward and backward Computer technology for teaching children chain for teaching children with with disabilities. intellectual disabilities how to self- Larisa Kuznetsova, Smail.kg, service and communication Kyrgyzstan system through images exchange. Lola Nasretdinova, Kishti, Tajikistan nd nd Section 4. (blue room, 2 floor) Section 4/2. (blue room, 2 floor) The organization of psycho- Model of Integrated multidisciplinary pedagogical and medico-social approach to children with mental and support for persons with severe and learning disabilities in KG multiple disabilities in Pskov. Tamara Topilskaya, Psycho technology Andrey Tsaryov, Centre for centre, Bishkek Curative Pedagogics, Russia15.30-16.00 Coffee-break16.00-17.00 SMALL GROUP SESSION 4 Master Classes and presentations. Section 1. (in the conference hall) The effect of infant massage for neurological and intellectual development of babies. Cornelia Hewitt, Project on disabled children in KR, Switzerland Section 2. (in the conference hall) New media in promoting NGOs. How to open own blog. Bektour Iskender, Kloop.kg, and Door media, Kyrgyzstan nd Section 3. (yellow room, 2 floor) 1) Sensory Room, 2) Issyk-Kul – the shore of hope 1) Gulnara Amakulova, Bishkek City Rehabilitation Centre, Kyrgyzstan 2) Olga Djabrailova, Obereg rehabilitation centre, Kyrgyzstan nd Section 4. (blue room, 2 floor) Income generating activities and sustainability Eurasia Foundation CA, Kyrgyzstan Suren Magakyan, PAROS, Armenia Larisa Kuznetsova, Smail.kg, Kyrgyzstan (Social taxi)17.00-18.00 SMALL GROUP FEEDBACK Suggesting topics for discussion for next day small group sessions. 4www.kelechek.kg
Thursday, 3 March09.00-10.00 PLENARY SESSION 5 Children with disabilities issues: moving forward Chair: Marina Sokolova, Handicap International Business and NGOs. Ways of cooperation. Kubanychbek Sheyitov, Rotary Club President Bermet Omurkanova, Rotary Club manager UN convention on the rights of persons with disabilities. Why is it needed for KR? Tolkunbek Isakov, local council MP, "Providing legal help to persons with disabilities" NGO Legal mechanisms of protecting children with disabilities and their families. Seinep Dyikanbaeva, ARDI, Kyrgyzstan Supporting children with intellectual disabilities through empowering parent-led NGOs in Talas oblast. Azat Israilov, HealthProm Kyrgyzstan Joint working and parent support (establishing support mechanisms). Amanda Merritt, STLI, Kyrgyzstan Forming Network of parent-led organizations in Kyrgyzstan Tamara Zhumabekova, ARDI Q&A10.00-11.00 SMALL GROUP SESSION 5 Small Group Discussions Section 1. (in the conference hall) (Topic to be defined at the end of the second day) Section 2. (in the conference hall) (Topic to be defined at the end of the second day) nd Section 3. (yellow room, 2 floor) (Topic to be defined at the end of the second day) nd Section 4. (blue room, 2 floor) Recommendations by the previous conferences: mechanisms of control and implementation. EFCA, Persons with disabilities protection network, Soros Foundation - Kyrgyzstan11.00- 11.30 Coffee break11.30-12.30 PRESENTATIONS OF RECOMMENDATIONS/ DISCUSSIONS FEEDBACK RECOMMENDATIONS12.30-13.00 SUMMING UP Chair – Marina Sokolova, Handicap International13.00-13.20 CLOSING CEREMONY HealthProm Soros Foundation – Kyrgyzstan The Ministry of Social Protection Government Agencies and NGOs Concert by ARDI, Shoola Kol and “Umut-Nadezhda” children GENERAL PHOTO14.00 Lunch 5www.kelechek.kg