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What happens when you combine the participatory design research approach and a patient engagement company for a mHealth study?
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What happens when you combine the participatory design research approach and a patient engagement company for a mHealth study?


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Panel of @KevinClauson, @DanaMLewis, and @BorisGlants from Stanford Medicine X 2012:

Panel of @KevinClauson, @DanaMLewis, and @BorisGlants from Stanford Medicine X 2012:

Published in: Health & Medicine

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  • 1. What Happens When You Combine… Patient Engagement Company Participatory Mobile Design Health Research Study Approach Kevin A. Clauson Dana M. Lewis Boris Glants
  • 2. MobileHealthStudy Kevin A. Clauson, PharmD @kevinclauson
  • 3. ResolvingMedicationIssues forNon-adherence inDiabetes
  • 4. Help our patients with type 2 diabetes put themselves in a better position to manage their disease
  • 5. Target low-hanging fruit
  • 6. oot causes of medication non- adherenceforgetfulness
  • 7. The mostubiquitous deviceon the planet
  • 8. Textus interruptus Retrevo Gadgetology Report 2010
  • 9. Adhere to me.Not the other way around.
  • 10. The most accessiblehealthcare professional
  • 11. Actual patient perspective Means to engage patientsMissing pieces of the puzzle
  • 12. Groups in theReMIND study N=162
  • 13. The control group does notreceive any short message service (SMS) (aka text messages)
  • 14. The passive group receivesunidirectional SMS (uSMS)
  • 15. The active group participates via bidirectional SMS (bSMS)
  • 16. Measuring our outcomes of interest  Knowledge of disease  Health literacy  Engagement  Medication adherence  Clinical marker
  • 17. RESEARCH STUDY FOR PATIENTS WITH DIABETES Nova Southeastern University is conducting research to see if texting can help people remember to take their diabetes medicine Who can participate? If you are an adult diagnosed with type 2 diabetes mellitus and:  Read English  Take diabetic medications by mouth or injection (like insulin)  Own a cell phone that can send and receive text messages What would I receive if I was in the research study?  Free blood glucose (Hemoglobin A1C) testing  $20 worth of Publix gift cards If you are interested in learning more about this 6 month study, please contact Dr. Kevin Clauson at 754-300-TEXT (8398)
  • 18. Lessons learned 1. Impact of involvement of patient on front end on ethics/IRB/IC 2. Research participants versus research subjects 3. Technology has potential to reduce clinician and patient burden IRB=institutional review board, IC= informed consent
  • 19. Participatory Design Approach (Integrating a patient perspective) @DanaMLewis
  • 20. Patient perspective: snapshots
  • 21. (Other background: @DanaMLewis)#hcsm
  • 22. Approached toparticipate…..
  • 23. “Non-compliant diabetic”
  • 24. The future is bright forparticipatory design
  • 25. The elephant in the room (the patient)
  • 26. Researchers: rememberpatients are new to this.
  • 27. Lessons Learned 1. As patients, we have a valuable role, but it is different. 2. Don’t let yourself be inhibited from fully participating in the design process.
  • 28. Patient Engagement Company @BorisGlants
  • 29. What is Tonic?
  • 30. Role in ReMIND Study  Engage the patient  Simplify data collection  Easily extract insights
  • 31. The Art of Engaging Patients Contextually relevant images boost understanding and meaning Patients can’t wait to see what we are going to ask them next
  • 32. The Art of Engaging PatientsOnly serve up onequestion per pageto sharpenrespondent focus
  • 33. The Art of Engaging PatientsIncrease perceived— and actual —speed by providingrobust skip logicand broad range of“tapable” answerconstructs (ratherthan free text)
  • 34. A picture is worth… 40% more data Boris Glants
  • 35. Lessons Learned1. Engagement is iterative2. There are many opportunities to leverage patient engagement technology in research
  • 36. It’s time to work together to improve patient outcomes
  • 37. Acknowledgments Alexandra Perez, PharmD Goar Alvarez, PharmD Naushira Pandya, MD Joshua Caballero, PharmD Andrea Fass, PharmD Sydney Kchao, PharmDCand
  • 38. Images•••••• Images without citations are licensed and/or rights are held by the presenter
  • 39. Questions? Kevin Clauson, PharmD @kevinclauson Dana M. Lewis @danamlewis Boris Glants