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CLAN (The National Association of Laryngectomee Clubs Newsletter) Issue No. 118 (September 2011) Edited by Ian Honeysett

CLAN (The National Association of Laryngectomee Clubs Newsletter) Issue No. 118 (September 2011) Edited by Ian Honeysett

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CLAN September 2011 Document Transcript

  • 1. THE NATIONAL ASSOCIATION OF LARYNGECTOMEE CLUBS NEWSLETTERIssue No. 118 September 2011Inside this issue Nothing To Pay ...................3 Baseplate Not Sticking? ..........5 No Flight Problems ............... 3 News from the Club ......... 6–8Macmillan Centenary Gala ......2 Plus lots of other news, thoughts, Wine Tastes Like Brillo Pads .....4An Alarming Walk ...............2 poems, letters and views Confidentiality ....................4 All Vegetable Soup Here’s another recipe from the Soups & Puddings book produced by THANCS Group (The Head & Neck Cancer Support Group for EXOTIC PLACES Hereford & Worcester). Copies can You may well have had your holidays by the time you read this. be obtained for a minimum We had ours – a cruise to the Baltic – over two weeks in June/ donation of £2.00. You can contact July. The weather was perfect and the sea was calm. The food them at: THANCS Group, was delicious and seemingly unending (though we did spot a Hawthorne Suite, Worcestershire period of about an hour one Thursday when there was no Royal Hospital, Charles Hastings meal scheduled!) We visited so many places that were just Way, Worcester WR5 1DD. exotic names before – like Copenhagen, Helsinki and St A nutritional soup that is quick & Petersburgh. But there is always a price to pay. In my case it easy to make. You can use this was about half a stone! So, why not write and tell us about recipe as the basis for any your holidays? With photos, of course. vegetable soup, substituting any Time for a Verse vegetables you have in the And the summer seems to have inspired you to write some poetry. We feature several fridge/cupboard. poems in this issue. These are always great fun. Maybe you will be inspired to verse. If Ingredients so, send them in. Because: 2 large onions – peeled & chopped We like poems 2 carrots – peeled & chopped Even if they don’t rhyme. 2 small leeks – chopped And maybe 2 to 3 sticks of celery – chopped They will, next time! 1 small butternut squash – peeled & chopped Ian Honeysett (Editor) 1 large potato – peeled & chopped 1 red pepper – seeds removed & For all items for Clan: chopped Ian Honeysett (Editor), 53 Combe Road, Farncombe, Godalming, Surrey GU7 3SL 2 pints of chicken stock email: Honeysett@btinternet.com Salt & pepper – to taste For all other matters (including requests to be added to or removed from the mailing list): Vivien Reed (Association Secretary), NALC, Lower Ground Floor, 152 Buckingham Palace Road, Method London SW1W 9TR Tel: 020 7730 8585 Fax: 020 7730 8584 Website: www.laryngectomy.org.uk Place all ingredients, except the The views expressed by the contributors are not necessarily those of the Editor or NALC. Great care has seasoning, in a large saucepan. been taken to ensure accuracy but NALC cannot accept responsibility for errors or omissions. Bring to the boil and simmer for 20 minutes. Liquidise or rub the soup Deadline for issue No. 119: 1 November 2011 through a sieve. Season to taste. Return to the pan and reheat. Ian and Rose Browse
  • 2. The Macmillan Centenary Gala An Alarming Walk Monday 28 November Clifford Hughes gave an update on the Chinwags Club of Kircaldy at the NALCThis year, Macmillan Cancer Support celebrates its centenary. To mark this occasion, they AGM which included the followingare holding a special evening of musical entertainment from the past 100 years. To account of an alarming walk he’d made:purchase your tickets call Macmillan on 020 7840 4747. Lines are open 9am to 5pm, Recently, Alistair Lawson, representing theMonday to Friday. Scottish Rights of Way Society, gave an illustrated talk entitled Walk a little, talk aTicket prices: £325 for a ticket to the show little to encourage us to explore theand the pre and post show party; £225 for beautiful Scottish Countryside using thea ticket to the show and the post show comprehensive, well-maintained, clearlyparty; £35 - £65 for a ticket to the show marked network of footpaths.only. Our first corporate effort will be not on aHosted by Graham Norton and featuring footpath but a towpath. There are bargesstars of stage and screen, this gala event available, free of charge to disabledtakes place at the capital’s most famous people, which move along the canal fromtheatre, the London Palladium. They’ve already got Miranda Hart, Jimmy Osmond, Ratho on the western edge of Edinburgh.Fearne Cotton, Liz Hurley, Edith Bowman, Rufus Hound and Donna Air on the guest list. We could sit in the barge going out, andWill you be in on the evening of a lifetime? All performers are generously donating their walk back along the towpath totime to appear at the gala. refreshment at Ratho Inn. We’ve enjoyed a number of fund-raising raffles and 50/50s which provide funds to which concluded that at the end of 2008Four In Ten there were two million cancer survivors in supply helpful aids for larys… SOS Talisman Bracelets – a pre-recordedThe following was featured in the the UK and that the figure was rising every message SOS capsule a mini dictaphonePlymouth Club Newsletter and is by Adam year. Macmillan also looked at recent which speaks for you if you are unable toBrimelow, BBC News: Rising cancer rates cancer incidence and mortality statistics speak for yourself.mean four in ten people in the UK get the for the UK, indicating that 310,000 people This reminds me of a predicament indisease at some point in their lives, were diagnosed with cancer in 2008. which I found myself on a walk withMacmillan Cancer Support says. The Alistair. The viability of the track fromfigure has risen significantly in the past About 157,000 people died from the Callander to Comrie needed to bedecade and poses a ‘massive challenge’ disease, and 89,000 who had been assessed. We parked the car halfway. Ifor the NHS. Ministers in England say they diagnosed with cancer died from other would walk downhill to Comrie and set upare working to improve cancer survival causes, making a total of 246,000 who the first round in the pub. Alistair wouldrates and the quality of life after diagnosis died ‘with‘ cancer. do the more arduous leg to Callander,and treatment. The charity says this accounted for 42% of return for the car and join me.Macmillan Cancer Support says a decade total deaths in the UK... which stood at Unfortunately my track disappeared inago about a third of people, or 33%, 580,000. Macmillan says the increase is some soggy woodland where I thrasheddeveloped cancer at some point in their partly down to an ageing population... and splashed about in ferns and bracken older people are more likely to develop up to my ears! I passed a dead sheep.lives. The charity says that figure has risen cancer. It says lifestyle factors, such as diet The water Ruchill, which drains Glento more than 40%. The estimates are Artney and runs into Loch Eavn, was in fulldrawn from projections published two and exercise, and improved diagnosis flood and a twenty foot drop on my right.years ago in the British Journal of Cancer, have also contributed to the rise. I splodged gloopily around. Ooops! There’s that dead sheep again. I was getting anxious. I couldn’t call for help. AsThe Wish List a neck-breather I can’t whistle. There was no signal on the mobile. And then, withWeb Whispers (www.webwhispers.org/news/aug2011.asp) have asked readers huge relief, I heard chattering female"What would you like to do, within the next 5, or even 10, years?" Here are some voices approaching. Angels of mercy?brief extracts from the responses they received (with the date of their laryngectomy). Well, actually a ladies walking club. Six ofWhy not tell us about your Wish List? them. They caught up with me, sustained me with some high-octane water, and,Jim Harris - 2008 most importantly, traced the track out of theI would like to live the next 10 years. I recently had a surgery and they told me I had wood into the open. Alistair, on his way toabout 4 years. I got out of the hospital, ordered an electro-larynx, and went back to effect my resce, met me smiling from ear towork as a drilling consultant. I love life and I love my work. I havent given up much of ear escorted by my female entourage.anything except trying to order food through the outdoor drive up mike. I am one of In the pub, over a pint or so, I explainedthe most efficient consultants in the field and my boss likes me and my work ethic. my predicament. My fear – the potential danger to one who is unable to makeMike McQuade - 2008 himself heard. “Right,” he said. “Next timeSoon to be 72 – I get up and sing Karaoke and I swim and dive under but before my you carry a rape alarm!”time comes I would like to SKY DIVE! Clifford Hughes, Chinwags Kirkcaldy , Fife2
  • 3. Nothing To Pay No Flight ProblemsYou all know Len Hynds – our said that he would start work on it The following letter from Greg Josslaryngectomee poet. He used to be a immediately. When he asked how she appeared in Still Talking – the NSWpoliceman and has sent CLAN this was going to continue the journey, I told Newsletter: It may reassure thosestory from the ‘old days’… him that we would take her, and after a contemplating a long flight. discussion with the other P.C.s as I had theI had been doing traffic point duty at the For those larys interested in travel, I am best car (an old Wolseley), it would be me.Oval, when on being relieved, I was called delighted to report that I had no flight He said that it was a round trip of aboutto an accident outside The Horns Public problems. I had my laryngectomy end of six hundred miles, and after working outHouse, where a car had driven into the July last year. Up until only a week ago, I how much the trip would cost with petrolrear of a lorry. A young mum in her mid was still having problems with stenosis terribly dear at half a crown (15p) a gallontwenties, driving the car with her two small of my stoma if I slept without a trachy (4 litres), he insisted I took the petrolchildren in the back, was not injured, but tube fitted. Over the last week, I have not money from him, as he guessed I hadthe car was smashed in at the front, worn a tube except for 20 minutes some already emptied my pockets.headlamps, wings and radiator, and the mornings to check size andcar undrivable. Fighting back the tears and So we set out at about mid-day and they conformation only to find that it insertstrying to be brave, she told me that the were all soon asleep in the back. There nicely, is loose and easily huffed out. Iprevious evening, at her isolated cottage were no main roads in those days, and am now sleeping many hours withoutoutside Ripon in North Yorkshire, she had motorways were unheard of, so it was the previously usual need to rise everyreceived a visit by a P.C. from Ripon station, winding narrow country lanes all the way few hours in order to clear out and cleanto inform her that her husband, a travelling to Cornwall, which took nearly nine hours the stoma. As a result, I have had somesalesman, had been involved in an and the Bodmin police opened up the mucus crusting around the stoma rimaccident in Cornwall, but had died before mortuary for us, and I stayed with the which I clear with a wet cotton bud.reaching hospital. The police in Cornwall children outside whilst she went in toneeded somebody to identify the body identify him. It was 10pm when we set off As Good As Could Bewhich was now in Bodmin Mortuary. back again on that long journey, with her I was anticipating some problems in in the back cuddling the children telling flight with humidification etc butShe had no relatives who could do this for effectively had no problems at all. We them that their daddy had been such aher, and in her isolated cottage no-one to flew 14 hours to Abu Dhabi; had a good man that he was now with Jesus.leave the children with. So she had set out seven hour stopover during which we There was a lot of crying in that car, butin this very old car, with the children in the did a return trip to Dubai in the Etihad they all eventually fell asleep.back, with only enough money for petrol shuttle bus; 1.5 hours each way; then sixeach way, and some snacks for the We arrived back in the station yard at hours to Heathrow (where the passportchildren. To say she was distraught would 7am, and Charlie had just delivered the control queues were horrendous!).be to put it mildly, and now she was car, and all were standing around itstranded in London, and just didn’t know looking at his handiwork. He had worked We found the flight, seating, food andwhat to do. I had her car towed into his on it all the previous day, and all night service with Etihad as good as could begarage by Charlie Valiant of Sutherland non-stop. I am sure that he had done expected on an economy ticket andSquare, and the station van to take us into extra things without telling anybody, such would be happy to use them again. Ithe station, where they were comforted by as brake linings, and adjustments. After booked the flight less than a month agoour wonderful old matron, and had a wash George took them into the matron’s room wanting my stoma to stabilise beforeand tidy up in her room. George Howard for a morning wash, he bought them all committing to an extended trip. Afterwas Station Sergeant, and he took them all breakfast again, and eventually they were booking, I immediately became quitedown into the canteen and bought them back in their car ready for the long journey anxious about my ability to cope. Thisbreakfast. I phoned Charlie Valiant, and he northwards. We all stood around the car was somewhat assuaged by a flight totold me how much all the replacement saying goodbye to the children in the back Cairns and an eight day stay with a oldparts would cost, and I said that she had no when, from the driving seat, she said to friend near Bramstom Beach, an hour’smoney and explained the circumstances, Charlie, "You know I cant pay you now, drive south of Cairns. The fading of theand that I would try and raise the money but let me have the bill so I can send it to stenosis also helped my confidence.through the lads on duty. Charlie you." "Nothing to pay love, it’s all been I was well prepared with the usual laryimmediately said, "See what you can do, taken care of," Charlie replied paraphernalia, medications etc butLen, I won’t charge anything to do it." have not needed more than a good She looked amazed, and then anotherRaised Enough Sergeant stepped forward and put a supply of tissues and drinking water. IWithin half an hour by seeing everybody in brown envelope on the seat beside her. did find that the anti-swelling pressurethe station, I had raised enough for "That’s for petrol and food on the way travel socks that my wife bought meCharlie to purchase a new radiator, wings, back home." I saw her eyes fill with tears, and insisted I wear worked beautifully. Ifront bumper, headlamps and side lights, and then she wept openly, and looking at had had significant problems withwith everybody contributing from the Chief this hard bitten bunch around the car, she swollen and weeping legs during myInspector downwards. With P.C.s’ wages said, "You are all such kind wonderful hospitalisation but arrived in Londonthen about £10 a week, I knew that many men." I have often wondered how that without any swelling. So I am happy tohad completely emptied their pockets. I poor young woman got through that report that my laryngectomy has so fartook the money round to Charlie, and he difficult time. Life can be so hard for some. continued on page 5 3
  • 4. Wine Tastes Like Brillo PadsThe Daily Mail recently featured an article Does his throaton Radio Celebrity Danny Baker who has hurt? “No, not atjust announced he is clear of cancer of the all. It‘s healedmouth and throat. Here are some tremendouslyexcerpts: well. Feel myPre-cancer, Baker would have celebrated neck.“ Hethe end of each show with a couple of directs my handbottles of wine, but not now. “White wine to it. “Justtastes like Brillo pads. I managed four generally howspoonfuls of lasagne today,“ he says soft it is,triumphantly. Off air, he speaks faster, with because all themore of a Cockney accent. Its amazing radiationhow he keeps going, without the saliva. makes your skin slough off.“There are very few things I can eat,“ he It melts. You getsays. “Anybody who‘s had that kind of up and think,cancer is suddenly made aware of the I‘m all wet. Andmachinations of your mouth. You think, it‘s not blood,well, I must be able to eat that if my and you think,appetite‘s still up, and you put it in your ‘Oh God . . . Youmouth and it just turns to stone. Your radiate yourtongue is pulverised, all the muscles are having fun. You know, I‘ve had head and everything goes – your tastedry, you can‘t swallow, you can‘t tremendous fun for the last 30 years.‘ He buds, saliva glands, everything is clearedmanoeuvre things in your mouth, and says, “It is an enormously absurd way to out. Boom!“you‘re rushing to bins to spit it out.” earn a living and you can never lose sightBefore he was ill, his life pretty much “Anyway,“ he says, “enough with all the of that. And when you get cancer for eightrevolved around food. “God, my wife is miserable stuff. Now its time to get on months, it‘s a drag, but all you want to doone of the great gourmet cooks,“ says with living, dreaming up more crackpot is get back to the goofy wonderland inBaker. “She‘s got seven sisters and themes for his phone-in shows and which you rattle around.“they‘re all like that.“ ConfidentialityNever Smoked The basic aim of our Laryngectomy Clubs and/or Head & Neck Cancer Clubs should, inWhen I think of throat cancer, I say, I think my opinion, be to provide a support for our fellow patients. To support each other inof John Diamond (Nigella Lawson‘s writer whatever way we can. The social side of our clubs and the entertainment they providehusband who died of the disease). “Well, does form part of that support. However I believe that our primary support to each otheryeah, you can say that, but there are should be in the form of listening, encouraging, morale boosting and confidencemany less publicised cases of people building, without being overpowering!who‘ve survived. John was a lifelongsmoker, too. I‘ve never smoked in my life, I am not talking about professional counselling here but simple fellow support! And yes, Iso there‘s no rhyme or reason to it. It just am aware that Macmillan Cancer Support provides training for those who wish to dighappens. And your mind can race to deeper into the subject.horror stories, but I ain‘t built like that. It It would seem, however, that sometimes our hands are tied by Confidentiality. This is onewas a horrible time, but it was bound to of those modern-day terms riding on the back of the Health & Safety at Work Act and thebe. I didn‘t find it life changing. I‘ve had no Data Protection Act and all sorts of other Acts! Don’t get me wrong, I do understand thatDamascene moment. I‘ve not come out of these Acts are there for the protection of us all, but they can at times be restricting, andit a different person.“ what we might call ‘common sense’ is not always permitted to prevail.Was he bored not working? God no, he The medical staff closest to us, usually those in our ENT Outpatients or in in-patientsays, he didnt have the strength to be. wards of our hospitals, have their hands tied by Confidentiality. They are not permitted to“No! I was ill. I was very ill. I barely had let our Clubs know when one of our Club Members is in hospital, about to be released orthe energy to heave myself over in bed. anything else. It’s literally more than their job is worth for them to do so. This often resultsThey told me: ‘The good news is the in our members being in hospital or even having an operation without anyone in theprognosis is optimistic, the bad news is Club knowing. Of course, some don’t want support, and some might not appreciate athat, other than bone marrow, it‘s the hospital visit. But then I do know that some would! So where is the support?most gruelling of times.‘ And that‘s how itproved. My head had to have the As Secretary of the Plymouth Laryngectomy Club I would very much appreciate hearing fromradiation. If it‘s in your body, it‘s fine, but if Clubs or individuals as to how they deal with the subject of Confidentiality so as to better theit‘s in your mouth, you can‘t talk or eat support they provide to their Members. Do please email me on: saudigeoff@yahoo.co.ukand there are various other disgusting Geoffrey N. Readconditions that come with it.“ Plymouth Laryngectomy Club4
  • 5. Baseplate Not Sticking? Try This! Deadline ExtendedMy father, Ronald Greenwood, had a The deadline for submissions fromlaryngectomy in August 2009 at the age of doctors, patients and carers of83. After three tough months in hospital, treatment uncertainties has beenhe finally returned home and looked extended by the Head & Neck Cancerforward to attending speech therapy to Research Setting Partnership tolearn a new way to speak. However, November 30 2011. In September, allDad’s physical neck anatomy proved clubs will receive details of some of thedifficult. His stoma is oval-shaped, set suggestions submitted so far andquite deeply between tight, protruding further advice about how to get involvedneck muscles. He found it difficult to cover in this important project.it completely with his thumb and adhesive In the meantime any club or individualbaseplates would come unstuck, allowing can make a submission using the formair to escape when he tried to speak. Dad This was an encouraging start but Dad felt sent out already or the web linkwas feeling frustrated and rapidly losing it wasn’t ideal to carry his homemade provided. Please contact Vivien Reed ifhope. Even the speech therapist found his material ‘mushroom’ everywhere with you need more information.case challenging. him. Mum’s next experimental discovery was that a standard HME, usually worn Malcolm BabbThe initial breakthrough came through a with a baseplate, also fits into the plastic NALC Vice Presidentsimple solution. My mother, Barbara, tied trachea tubes. So now Dad first puts asoft material around a ball of cotton wool, Kapi-gel around the stoma. (This is a jelly-with a handle, forming a ‘mushroom’ like doughnut shape which acts like a No Flight Problemsshape. Dad learnt oesophageal speech spacer.) The plastic trachea tube sits Continued from page 3by pressing the bundle of soft material snugly on top of this, held in place with theover his stoma to stop air escaping – and proven not to be a reason to stay with the Velcro neck band. Then Dad simply fits ahe found his voice! security and comfort of home which I had standard HME into the end of the tube – and talks! come to value particularly and rely on over the last year. Apart from the usual We wanted to share this idea as perhaps effects of ageing (I was 71 last January) it other laryngectomees find difficulties with is still possible to enjoy life. The support adhesive baseplates too. Hopefully some gained from attending the LANSW readers might find this alternative to be a meetings and involvement with the solution. website have contributed tremendously to Anne Greenwood my recovery, confidence and wellbeing. A small boy is lost so he goes up to a policeman and says: “I’ve Macnews lost my dad”. “What’s he like?” asks the Have you seen the online Macmillan magazine for Summer 2011? It’s packed with policeman. “Beer and women” interesting features & news (including video clips). You can find it at: replies the boy. (from NSW www.macnews.macmillan.org.uk/summer_2011 newsletter Still Talking)Shoulder Dysfunction exercise. A muscle on top of my left shoulder had collapsed and muscles leading from it likewise. The left pectoral wasThe following letter was to Still Talking – the NSW (New South sagging as if the muscle had collapsed to under my armpit.Wales, Australia newsletter): (Man-boob would be an appropriate description to apply here.)Your article has reminded me of my own experience. By 2000 I Ill health caused a premature end to that and a followinghad developed Cancer of the tongue which ended up at Stage 4 series of appointments with physiotherapists at the sameby diagnosis that December. During the preceding winter practice. A third was started later but only after mymonths, I discovered pain similar to that described. Initially, I laryngectomy and commencing at a second practice was Ithought the problem was that my mattress needed an urgent finally able to lift my arm normally. Last year I commencedreplacement as the pain occurred when in bed. However, I learnt treatment with another therapist and the programme Ithat as the cancer spread it had paralysed a nerve (Spinal commenced then still needs to continue.Accessory?) leading to the failure of a muscle (Trapezius?). My main problem now is my appearance – the dreaded man-It was too late for me to have surgery so I had Chemotherapy boob! I will never work as an underwear model again unless Iand Radiotherapy. When treatment was completed, being succeed in exorcising it. And I fear attending the local swimconcerned that I had the same limited use of my arm, I centre, changing to my Speedos and being scorned by all theconsulted a physiotherapist. I learnt that the nerve and the Chicky-babes! Oh, my dismay!muscle were still able to function but would benefit from Raymond Chappelow 5
  • 6. News from the Clubs Speak Easy, Cornwall Chinwags, Kirkaldy THE LOVE AFFAIRFrom their newsletter: This month, Jack On 27 June 2011, 13 (laryngectomees, How could she expect me to love it,Pagett, Brenda Salter, Di Helyer, Ted and Speech Therapists, family & friends) made a bright pink, convertible car.Barbara Barlow, Peter and Pat Clark, Ron their way to Ratho. They were going on It was a ladies car, or for funny youngand Rosemary and Jan were treated to a one of the barges on the Edinburgh Canal men,magical boat trip on the Helford River (Seagull Trust Cruises). The crew were very not a copper who was manly by far.followed by delicious afternoon tea helpful and entertaining. There were threecourtesy of the Budock Vean Hotel – crew members – all volunteers – who My poor old Charlie was no good for thethanks to Ted and Barbara. Our thanks gave them a lot of information as they wife,also to Phil who took us on a guided went along. Tea and biscuits were served. so to that heaven, he had to be sent.journey up and down the many beautiful Before their return journey, they stopped A really true friend, in many moments ofcreeks, where we saw egrets nesting and at the picnic area. As it was raining, they strife,cormorants taking flight alongside the all stayed on the barge. They all enjoyed Such sadness, when cruelly bent.boat, into Frenchman’s Creek (for Daphne the Marks & Spencer picnic hamper, But late one night, as I was driving home,du Maurier fans), and then past multi crisps, drinks etc which Christine (the in my effeminate looking car,million pound properties, some owned by Speech therapist) kindly organised and I spotted a smash and grab, in that gas-litfamous people. This was followed by an picked up. She also organised the gloom,informal meeting at the hotel. A warm booking of the barge (for which many and the bandits as they sped off afar.welcome had been extended to Ron, thanks).Rosemary and Val by Plymouth Lary Club I gave chase along that silent street,at their recent meeting (which was The Seagull Trust is free for people with with headlights and hooter blaring,attended by Bill from NALC) and Speak special needs or disabilities. The crew are hoping a police car, that I might meet,Easy would be happy to go up to all volunteers. Donations are welcomed. with such noise and all lights glaring.Plymouth again. Ron told PLC members They returned with Christine steering them part of the way back. They all bought We did many miles at eighty,that they are welcome to join us at Totnes souvenirs (pens, fridge magnets, small with me close, right up their tail.Littlehempston for the steam train journey bears, postcards etc) to remind them of They thought it was the CID,(details below), and of course we look the occasion. They arrived back at 5.30. to take them off to jail.forward to seeing them at Devoran inSeptember for a soup & sandwich lunch. They all had a lovely afternoon (despite At last my colleagues stopped them, the rain). It was very peaceful and those villains looked in dismay,Here is an account of their recent trip by calming. The photo shows the group at my litle pink marvel, racing gem,steam train: “After quite an early start for beside the barge. which had really spoilt their day.those taking the train from down West,seven of us met up with Miles from Platon And then I realised it was Charlie,for an enjoyable, scenic trip back in time his spirit had been reborn.on the Buckfast Steam Train from Totnes to a true copper’s car, my Charlie,Buckfastleigh. We had two hours to spare, “I’d never leave you,” he had sworn.so after lunch some wandered into the So now my little pink Zodiac,town, but there were several attractions is known by all the nick,around the railway – at the butterfly farm what gives those villains heart attack.we saw one emerge from its jewel-like The’re quite glad when he’s off sick. continued on page 8 Len A. Hynds Diary Dates Western Patient Day in Swansea Wednesday 14 September For further details please contact Laryngectomy Conference Ireland Head Office on 020 7730 8585 or Wednesday 19 October Welsh and info@laryngectomy.org.uk The Windpipers, Blackpool At their May meeting, they welcomed Ulla the Hacketts Hotel for their usual luncheon Rohrbeck from Heimomeb, a German and it was nice to meet up with other company, who demonstrated their groups from the North West. The Easy To products for laryngectomees. They had a Swallow cookbooks, which the club had very informative evening and were very purchased for laryngectomees, have been impressed with the Larkel swimming aid. passed to Jo Ashton for distribution. A trip Ulla distributed free samples to all the to the Lakes is anticipated for August and, members and they had a very pleasant of course, the NALC Lunch is on 4 evening. Some of the members attended September in Penrith.6
  • 7. News from the Clubs Oxford Lothian ClubMany of the club members turned out at the Churchill Hospital, on Thursday 19 May 2011. A club member, Jim Thomas, has writtenThe occasion was the presentation of to CLAN with a poem by Georgediagnostic equipment to the hospital and Robertson. It was prompted by a requestalso for the naming of the room in honour from a “laddie about 6‘ 3’’ and about 16of Ken Whiley. Ken’s family were well years old who asked me to get him fags. Irepresented. His sister Grace, brother Peter told him my wife had told the shopkeeperand wife Annette, son Keith and Keith’s not to sell me fags. I didn’t tell him I’dpartner, Kay, were there. Although Ken stopped smoking 27 years previously. Ihimself was unable to be there in person, showed him my stoma by lifting myhe made a speech, which was delivered Kapitex Bib. At that time I didn’t use a laryby his son, Keith: button. I’ve never seen him since!”Firstly, I would like to say I am sorry that I cannot be there in person. The LessonI am very honoured having this unit named after me. I feel the room is honouring not Mister, mister, can you do me a fave,only me but also the work carried out by the Oxford Laryngectomy Club. For those who I’m a lad who is a nicotine slave;don’t know I would like to tell you a bit about the history of the club. I need a draw, I need a drag, Desperate for the kick of a fag.The laryngectomy club in Oxford goes back a long way. I formed the club a few monthsafter my operation in 1982. I had heard about similar clubs elsewhere and felt that this Mister, mister, I’m out of my mind,was something badly needed for the Oxford area – and it certainly was needed. In my Twenty please, if you’d be so kind.25 years plus with the club we gained many members – those who were about to have I’m going crazy, I’m in a rage,operations, their families and friends. Members came, from people in Oxford and from The shop won’t serve me, I’m underage.miles around. The club went from strength to strength – not only helping those affectedwith information who were about to have an operation but also as a social club and Listen lad and listen good,fundraiser. Please don’t think I’m being rude.I remember many enjoyable lunches and dinners. These were great for meeting Before you board this smoking boat,members and their families but also raised money through various raffles. That was Have a wee look at my throat.apart from bring and buy sales and other events run by myself and other members. So go away, just turn and flee,Substantial amounts have been raised and this has been used over the years to help the Learn a lesson shown by me. consultants buy much Do you still want this man’s fave? needed equipment, helping I didn’t think so! Not that brave. individuals affected and refurbishing a relatives’ room in the hospital to name but a few. I know Head & Neck since I moved to Essex the Cancer Clubs club has continued to raise I have heard that several Laryngectomy money and arrange various Clubs throughout the UK have lunches and dinners. progressed from being Laryngectomy So in conclusion I would like Clubs to becoming Head & Neck Cancer to repeat how deeply Clubs. In other words, accepting Headhonoured I am to have this unit named after me and would like to thank you all for & Neck Cancer patients as members.coming with a special thanks to the consultant, Mr Cox. Thank you all. The NALC Association Secretary has Ken Whiley confirmed to me that this is perfectly acceptable. As Secretary of the Plymouth Laryngectomy Club I wouldSans Blas 2011 very much appreciate hearing from those clubs that have made this change andClan readers may recall news of the whether it has proved to be a bonus or acelebrated Laryngectomee choir from Leon. problem to them. Do please email meWell, the latest magazine ALLE has two on: saudigeoff@yahoo.co.ukphotos of them celebrating the Feast of theirpatron San Blas (St Blaise). They sang in the Geoffrey N. ReadChurch of San Martin. We did a web search Plymouth Laryngectomy Clubto see if they appear on You Tube so wecould hear them in action. But we couldn’tfind them there. So just enjoy the photo. 7
  • 8. News from the Clubs Plymouth Lost Chord North Ashford ClubThe club has its own website at: Staffordshire Here are two photos of their day trip onwww.plymouthlc.webs.com where you On Tuesday 5 July the Lost Chord Club the Hythe and Romney railway, travellingcan read about all that is happening. (North Staffordshire Laryngectomee from Hythe to Dungeness, with aHere are a few snippets: Support Group) along with the Head traditional pub lunch at The Britannia Inn,A copy of the Club’s Calendar of Events, Cases (Staffordshire Head and Neck where fish and chips have an excellentincluding Future Entertainments for the Cancer Support Group) visited the reputation. There were 26 in the group,next 12 months or so, is available on our National Arboretum at Alrewas. We the weather was lovely and all enjoyedClub’s website. The PLC Club’s August arrived at 10.30 in time for those who the scenic ride, the fish and chips wereMeeting was at the Mustard Tree Cancer wished to attend the 11 o’clock service. very tasty and all enjoyed the summerSupport Centre at 11 a.m. There was a Talk Members then toured the site either by outing. The group are now busy planningby our Guest Speaker, Miles WILLIAMS train or on foot. At 1.00 pm we departed their next venture with plenty of ideas tofrom Platon Medical. On 5 September for Barton Marina for lunch. We had an choose from.they held their Annual General Meeting excellent lunch enjoyed by everyone. Afterat the Mustard Tree Cancer Support lunch some of the ladies visited the shopsCentre at 11 a.m. After the meeting there around the marina. The generalwas a Talk by our Guest Speaker, Charles consensus was that everyone had a greatHANDLEY from Countrywide Supplies Ltd. day out!On Wednesday, 14 September The SpeakEasy Club in Cornwall has made abooking at Devoran, near Truro, for aSoup & Sandwich lunch and has invitedPLC Members to join them. Also inSeptember Ted will be organising a mini-bus trip from Plymouth to Dartmeet for aCream Tea. Meanwhile, Club Secretary,Geoff Read has sent this to CLAN :IF AT FIRST YOU DON’TSUCCEED...I was in and out of Derriford Hospital oneweek in July! First as an overnight in-patient to have my oesophagus dilatedfor the umpteenth time! Speak Easy, Cornwall Continued from page 6An overnight stay.They then tried to fit a new valve the very chrysalis, exotic specimens flyingnext day but this was not to be! amongst tropical plants, and terrapins so static we thought they were plasticIt just wouldn’t go! models until one or two suddenly slid intoI returned to the hospital two days later the water. From there, on to watch theand had a new all-singing, all-dancing otters swim and play; and for those whovalve fitted at long last. really only came for the trains(!) aEven though I now have a very sore throat museum and a miniature railway. OurI can manage to eat and drink again after thanks to Pat for organising the day, and12 weeks’ abstinence! to Miles who, on behalf of Platon, paidI can even talk a little! our entrance fees to see the butterflies and otters. We were disappointed that soI am so grateful to all concerned at few were able to make it, and missedDerriford Hospital... especially for the those who had wanted to join us but werenever-ending patience of Maggie and prevented (especially Val who boardedJulia! our train at St Austell, heard she was on aI know I’m not the best of patients but train to Glasgow, so jumped off!). Wethose two never seem to give up on me... would welcome suggestions fromeven though I’m sometimes getting ready A few members & friends attended the members for outings or other socialto throw the towel in! open air concert by the City of Plymouth events – at the moment our eventsIt’s great to know that kind of support is Orchestra at Chaplin’s Superstore in calendar runs out of steam afteravailable to us all! Plymouth on 23 July. September!© The National Association of Laryngectomee Clubs 2011 Printed by The Ludo Press Ltd, London SW17 0BA