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A Bicycle Built for Two: 10 Lessons Learned on Integrating Social Media and Health
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A Bicycle Built for Two: 10 Lessons Learned on Integrating Social Media and Health

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Ten lessons learned about integrating social media into health, with an eye towards shared decision making (SDM). Presented at the 2011 Dartmouth Summer Institute on Shared Decision Making.

Ten lessons learned about integrating social media into health, with an eye towards shared decision making (SDM). Presented at the 2011 Dartmouth Summer Institute on Shared Decision Making.

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  • 1. A Bicycle Built for Two10 Lessons Learned on Integrating SocialMedia and Health Jodi Sperber, MSW, MPH8/29/11
  • 2. Photo  credit:  boston.com.  h8p://bo.st/prPD7h   1.  let’s  face  it:   lots  of  people  are  out  for  a  ride.  
  • 3. 8 in 10 adults in the U.S. use the Internet. 18-29 year olds online: 95% Adults 65+ years: 42% Latinos: 78% African Americans: 67%Whos  Online:  Internet  User  Demographics  |  Pew  Research  Centers  Internet  &  American  Life  Project  h8p://bit.ly/ra8nCd   3
  • 4. What are the top 5 things people in the U.S. do online?4
  • 5. What are people doing when they are online? 92% Send or read an email 87% Use search to find information 83% Look for health/medical information 83% Look for info about a hobby or interest 82% Search for a map or driving directionsWhat Internet Users Do Online | Pew Research Centers Internet & AmericanLife Project http://bit.ly/r4Duh1 5
  • 6. Health is social §  59% turn to Internet when they need info and assistance in dealing with health or medical issues. §  60% say information found online affected a decision about how to treat an illness or condition. §  56% say it changed their overall approach to maintaining their health or the health of someone they help take care of.Social Life of Health Information, Pew Internet and American Life, June 11,2009. By Susannah Fox and Sydney Jones. 6
  • 7. Decisions & actions impacted §  53% - led them to ask a doctor new questions, or to get a second opinion from another doctor. §  49% - changed the way they think about diet, exercise, or stress management. §  38% - affected decision about whether to see a doctor. §  38% - changed the way they cope with a chronic condition or manage pain.Social Life of Health Information, Pew Internet and American Life, June 11,2009. By Susannah Fox and Sydney Jones. 7
  • 8. Clinical support + Non-clinical support Better health8
  • 9. 2.  if  all  you  see  are  the  potholes,   you’re  in  for  a  bumpy  ride.  
  • 10. Adults living with 2+ chronic conditions 2x likely to report “major help”Social Life of Health Information, 2011. Pew Research Center’s Internet andAmerican Life Project, August 9 – September 13, 2010 Survey. http://bit.ly/nbTvPr 12
  • 11. 3.  if  you  dont  have  the  basics   down  it’s   harder.  
  • 12. It’s social mediaPhoto  credit:  Evgeniy  Zotov.  h8p://bit.ly/qArGrv   14
  • 13. Listen and observe first. It’s not (just) about you.Photo credit: Kyle Rokos. http://bit.ly/qOlYpU 15
  • 14. 4.  things  evolve  over  Zme,  but  the  basics  are  the  same.  
  • 15. Photo  Credit:  adwriter.  h8p://bit.ly/oIei5Q  5.  it  takes  pracZce.  and  it’s  ok  to  have  help.  
  • 16. 18
  • 17. 19
  • 18. 6.  its  not  about  owning  a  bike;   its  that  you  ride  it.  Photo  credit:  earth2marsh.  h8p://bit.ly/oF3u0b  
  • 19. Sharing: Ideas Experience Support21
  • 20. 22
  • 21. #hcsm:  Every  Sunday,  6pm  Pacific,  9pm  Eastern  23
  • 22. Independent Organizational 24
  • 23. 25
  • 24. 7.  ok,  its  a  li8le  bit  about  the  bike.  
  • 25. Planning is essential27
  • 26. Goal:     Make SDM part of routine care Who  is  your  primary  audience?    Where  can  they   P   be  found?   O   What  are  you  trying  to  accomplish?   What  will  change  if  you  are  successful?    How  will   S   you  respond?   T   Based  on  the  above,  what  tools  make  sense?   Adapted  from  Forrester  Research.  More  at  h8p://bit.ly/pTp4R2     28
  • 27. 29
  • 28. Photo  credit:  SCA  Svenska  Cellulosa  AkZebolaget.  h8p://bit.ly/owZjca   8.  it’s  exercise,  but  and  it’s  fun!  
  • 29. 31
  • 30. 9.  without  you  it’s  less  useful.  
  • 31. Case Study 2010 Research and Policy Forum Washington, DC33
  • 32. 2010 Research and Policy Forum•  Combination of tools –  Eventbrite (invite), Twitter (messaging), Watershed/UStream (webcast)•  Promoted hashtag: #rpforum•  Requested (free) signup prior to event•  Goal: 25-50 participants34
  • 33. From  Auckland,  NZ  to  Yaphank,  NY   •  Australia   •  Great  Britain   •  Austria   •  Greece   •  Belgium   •  Israel   •  Brazil   •  Netherlands   •  Bulgaria   •  New  Zealand   •  Canada   •  Spain   •  Germany   •  United  States  35
  • 34. Those  with  interest  and  influence  may  not  be  in  the  room,   but  they  can  s;ll  be  an  asset.   36
  • 35. 37
  • 36. 38
  • 37. 39
  • 38. 40
  • 39. A  few  weeks  later…  …the  conversaZon  conZnued   41
  • 40. Case Study: #rpforum•  Leveraged network built over time•  Expanded reach globally for very little cost•  Brought virtual audience into the room•  Kept the conversation going•  Mutually beneficial42
  • 41. Day 1 of SIIPC43
  • 42. Day 1 of SIIPC44
  • 43. Salzburg statement on shared decision making Clinicians: SZmulate  a  two  way  flow  of  informaZon  and   encourage  paZents  to  ask  quesZons,  explain   their  circumstances,  and  express  their  personal   preferences   Patients: Speak  up  about  their  concerns,  quesZons,   and  what’s  important  to  them  45
  • 44. Salzburg statement on shared decision making Clinicians: SZmulate  a  two  way  flow  of  informaZon  and   encourage  paZents  to  ask  quesZons,  explain   it’s social their  circumstances,  and  express  their  personal   preferences   Patients: Speak  up  about  their  concerns,  quesZons,   and  what’s  important  to  them  46
  • 45. 10.  everyone   has  their   own  style...    Photo  credit:  faster  panda  kill  kill.  h8p://bit.ly/pvrLgM   but  its  sZll  a  bike.   Photo  credit:  Dmitry  Gudkov.  h8p://bit.ly/qR1Gvb  
  • 46. Your next step, in a tweet #siipc  48
  • 47. A Bicycle Built for Two10 Lessons Learned on Integrating SocialMedia and Health Jodi Sperber, MSW, MPH8/29/11

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