My first title slide using a tweet!
Joyce Lee, MD, MPH; Associate Professor
Pediatric Endocrinology/Child Health Evaluatio...
I don’t have any ties to mobile
application companies
The mobile apps I present are at
my personal whim and don’t
imply en...
I am social media editor for JAMA
Pediatrics but my views do not
represent those of the journal
91%of US adults have a cell phone
56%of US adults have a smartphone
79% 81%
69%
55%
39%
18%
18-24 25-34 35-44 45-54 55-64 65+
Age group
Pew Internet http://goo.gl/icIeSD
Smartphones: a gener...
53%
64%
60%
White African-American Hispanic
Pew Internet http://goo.gl/icIeSD
Smartphone
Ownership
(%)
Differences in smar...
77%
47%
22%
8%
81%
68%
40%
21%
90% 87%
72%
43%
18-29 yrs 30-49 yrs 50-64 yrs 65+ yrs
< $30k $30k - $74,999k ≥$75k
Pew Inte...
The US consumer spends
2 hr 38 min per day
on smartphones and tablets
http://goo.gl/PCdbol
The US consumer spends
2 hr 38 min per day
on smartphones and tablets
http://goo.gl/PCdbol
Mobile and Social go hand in ha...
I believe they can but…
http://goo.gl/Inp7j4
Unfortunately this dream is
not even close to the reality
of healthcare right now
What’s a
Medical Mobile Application?
Any of the following for managing health/
wellness:
(1) Software program that runs on smartphones
(2) Accessory that attac...
 
	
  
3 Types of Medical Mobile Apps
FDA Regulated
Enforcement at FDA Discretion
Not FDA Regulated
 
	
  
3 Types of Medical Mobile Apps
FDA Regulated
Enforcement at FDA Discretion
Not FDA Regulated
(1)  Are intended to be used as an
accessory to a regulated
medical device
(2)  Transform a mobile platform
into a regulat...
Connecting a glucometer to a
mobile phone turns it into an
FDA-regulated medical device
The AliveCor is an iPhone case
that gives EKG readings;
it had to be FDA-approved
“When the intended use of a mobile app is
for the diagnosis of disease or other
conditions, or the cure, mitigation,
treat...
The LED light on your flash is not
FDA regulated, unless you are trying
to use it as an opthalmoscope
Based on this definition, FDA sent this letter
to the makers of the uChek Urine Analyzer
“Please note that though the type...
 
	
  
3 Types of Medical Mobile Apps
FDA Regulated
Enforcement at FDA Discretion
Not FDA Regulated
(1)  Help patients/users self-manage their disease
or condition without providing specific
treatment suggestions;
(2)  Pro...
 
	
  
Enforcement at FDA Discretion
(4)  Help patients document, show or
communicate potential medical conditions to
heal...
By definition, tracking/recording apps
for blood sugar may fall into this category,
but apps using self-entered data
don’t...
 
	
  
3 Types of Medical Mobile Apps
FDA Regulated
Enforcement at FDA Discretion
Not FDA Regulated
Not FDA Regulated
	
  
	
  
(1)  E-book medical textbooks
(2)  Medical flashcards/training
(3)  Patient education apps
(4)...
Are medical mobile applications
effective for improving health?
The jury is still out. Most studies have
focused on SMS; formal evaluation of effectiveness
of sensor and smartphone techn...
Regarding regulation, FTC did crack down
on this appmaker for a false claim that
light emanating from the phone
could trea...
And this study is interesting; even if an app
does not give “medical advice” and is
not technically “regulated”, do patien...
We published a review of commercially
available diabetes apps
http://www.ncbi.nlm.nih.gov/pubmed/
23627878
There are some major problems with
the app search process
Of 480 apps,
50% were relevant
Of 600 apps,
85% were relevant
Searching for “diabetes” is very
different on Android vs. iP...
Terms in the description are
determined by the app maker:
“Health” “Fitness” “Nutrition”
•  Difficult to customize searche...
When you search, there isn’t much of an
advanced search, and you have to swipe
screen by screen, then you get lazy
and giv...
How many stars ★★★★★ and or
reviews give you confidence in a
medical mobile app?
App search algorithms are
not transparent
What kinds of diabetes apps
did we find?
(we only looked at the iTunes store
for this part)
Medical Management (<1%)
Tracking & Visualization (33%)
Teaching/training (22%)
Nutritional References (8%)
Physician Dire...
Medical Management (<1%)
Tracking & Visualization (33%)
Teaching/training (22%)
Nutritional References (8%)
Physician Dire...
This is the only FDA-approved medical
Management diabetes app that I know of
http://www.welldoc.com/
Tracking & Visualization (33%)
Nutritional References (8%)
Physician Directed Apps (8%)
Social forums/blogs (5%)
Teaching/...
Comes w/a cute monster, but glucose
is hand entered in the US for now
http://mysugr.com/
This is probably the most useful tool
for mobile downloading of glucose for now,
w/ Android/iPhone/multiple meter
compatib...
Some pts have had trouble getting
this meter covered by insurance
Technology is not effective if you
don’t have access to ...
This is the only real-time glucometer I
know of; it has a 2G chip embedded in
the meter that uploads BG to the cloud
in re...
Medical Management (<1%)
Tracking & Visualization (33%)
Teaching/training (22%)
Nutritional References (8%)
Physician Dire...
http://goo.gl/U6vqRm
Medical Management (<1%)
Tracking & Visualization (33%)
Teaching/training (22%)
Nutritional References (8%)
Physician Dire...
http://www.mynetdiary.comhttp://www.calorieking.com/
Medical Management (<1%)
Tracking & Visualization (33%)
Teaching/training (22%)
Nutritional References (8%)
Physician Dire...
Finally, what are the
security issues with medical
mobile apps?
Are they HIPAA compliant?
Who knows? Many don’t say
What is being done with my health
data? Who knows?
Who reads the fine print and is the
info even in there?
Can data be shared with the
provider?
Some do by email, but providers
are not supposed to use email
because it’s not secur...
Maybe Google can help you
find an app
#sadstateofmhealthtechnology
Hard to find apps
Too many apps
Uncertain Quality of Apps
Uncertain Benefit of Apps
Apps lack seamless link to provider
Th...
In the meantime,
there is a diabetes technology
revolution happening right under
our screens
Social Media
73% of adults are on some kind of
social networking site
Pew Internet http://goo.gl/oP5bKZ
67%
20%
15% 16%
13%
71%
22% 21%...
What can I say, this is how I feel:
What is Twitter?
It’s a microblogging platform,
a place to have a
conversation
How do you use
Twitter?
First, set up your profile
and choose your name
@_________
First, choose your name
and set up your profile:
Who are you?
What do you care about?
@lphilipson
@HopeWarshaw
@EndoGoddess
@Dermdoc
@kidney_boy
Your name? Your specialty?
It’s up to you
This is not engaging!
“Who is that egghead?”
Show people what you care about and
how to learn more about you
To tweet,
hit this button
Tweet
You only have 140 characters
to say something
Tweet an article/news/resource
of interest
Use a link shortener to save space
Use #hashtags
#diabetes
#dsma
#doc
#dblog
#quantifiedself
#mhealth
#dataviz
A #hashtag can mean many
things like a topic or group
Diabetes Online Community (DOC)
myglu.org
#cdtc2014
A #hashtag can be used for
conferences
(I just created one for
this meeting)
To follow and to be followed
You will see the tweets of people
that you follow
My followers will see my tweets
Use mentions to reach out to
specific individuals
Retweet someone else’s tweet
Hit the retweet button (RT will show up);
Change it to MT if you modify the tweet;
h/t “Hat t...
So now you know
how to use Social Media,
but why would
a diabetes professional use it?
You don’t feel like tweeting your
morning breakfast
You’re not Miley Cyrus
You have better things to do than
put your math skills on display
Neither are you mother monster
(Lady Gaga)
Plus, haven’t you heard that
“social media and medicine
is a dangerous mix”?
http://goo.gl/ZD2Rl6
http://goo.gl/dS0thM
60% of US medical schools reported incidents of
students posting unprofessional online content
13% reported violations of ...
“Professionalism and social media can
be an uneasy mix...”
BMJ, 2012
But there are a few principles
to follow as a healthc...
If you have a personal account, separate
it from your professional one
	
  	
  	
  
Dr. Joyce Lee
Associate Professor
by d...
“Don’t Lie, Don’t Pry
Don’t Cheat, Can’t Delete
Don’t Steal, Don’t Reveal”
Follow the 12-word Social
Media Policy from the...
Remember HIPAA!
http://goo.gl/vntKv2
Don’t talk about
patients, even in
general terms
If you wouldn’t say
it in an elevato...
Why should you consider
taking the plunge?
To learn about new mobile
applications for diabetes
To keep abreast of real-time
diabetes technology news
To troubleshoot
technology issues
To learn how diabetes
technology works
in the real world
http://goo.gl/bp7JKl
To learn about design issues
in diabetes technology
To have a conversation about
design issues in diabetes
technology
To learn about novel real-world
applications of diabetes
technology
http://goo.gl/128wVg
iSeismometer iPhone app + CGM
on nightstand = effective alarm!
http://goo.gl/Y7yGsH
Glucose Sensor + Flovent = Rash-free?
To learn about a patient-
designed future of mobile
technology and data visualization
for diabetes
http://databetic.com/?p=304
He used 3 medical devices,
3 activity monitors, a smartphone…
and 10 different software systems to
make his year of visualizations
What a beautiful future for
patient-driven visual design
And for patient-driven
hypotheses and insights
Check out his new app: Meal Memory
http://www.databetes.com/
To witness the incredible
creativity and hacking
capabilities of individuals/families
with diabetes
cloud
CGM
Nightscout is helping
a family manage blood sugars
in a more sophisticated manner
using open-source tools
#weare...
http://goo.gl/glAEUA
Check out this DIY Artificial Pancreas!
#wearenotwaiting
#diyps
To advocate as a community for
individuals with diabetes
http://goo.gl/JAj1k4
http://tidepool.org/
http://goo.gl/p4hJQt
Check out this blogpost
about #wearenotwaiting
http://goo.gl/s5yI2U
http://goo.gl/6ZeMFU
To connect our patients and
families with online communities
“Social media has saved lives in the
diabetes community. It has helped people
who are struggling with their diabetes to
ta...
Run by Diabetes Community Advocacy
Foundation
Mobile technology & social media
are changing the paradigm of
who, what, and how health information
is communicated
#theoldmedicine
In clinic, Provider to Patient,
Off-line, 9-5 PM Weekdays only
#thenewmedicine
Outside of clinic, Patient to Patient,
Online, and 24-7
“Someone recently asked me to name the most
exciting innovation in health care today. I think
he was hoping for a sexy tec...
Thanks to the students for
doing the homework!
Some got rid of their eggheads!
http://goo.gl/EvzHex
Thanks to:
The Diabetes Online Community
Dr. Klonoff
Healthdesignby.us
Mott Mobile Technology for Enhancing Child Health
I...
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth
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mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth

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These slides are adapted from a talk that I gave in April at the 2014 Clinical Diabetes Technology Meeting in Los Angeles, about mobile technology and social media. I was honored to be presenting at the event. Thanks to Dr. Klonoff and the diabetes online community! Also, here was homework that I made for the site: http://joyceisplayingontheinter.net/andtalkingaboutdiabetestech.html

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mobile and #socialmedia - the cutting-edge #diabetes technology of the future #s4pm #dsma #hcsm #mhealth

  1. 1. My first title slide using a tweet! Joyce Lee, MD, MPH; Associate Professor Pediatric Endocrinology/Child Health Evaluation and Research Unit (CHEAR) Mott Children’s Hospital/University of Michigan Twitter: @joyclee
  2. 2. I don’t have any ties to mobile application companies The mobile apps I present are at my personal whim and don’t imply endorsement, except for the patient designed ones (which I love!!)
  3. 3. I am social media editor for JAMA Pediatrics but my views do not represent those of the journal
  4. 4. 91%of US adults have a cell phone
  5. 5. 56%of US adults have a smartphone
  6. 6. 79% 81% 69% 55% 39% 18% 18-24 25-34 35-44 45-54 55-64 65+ Age group Pew Internet http://goo.gl/icIeSD Smartphones: a generational thing that will soon become universal Smartphone Ownership (%)
  7. 7. 53% 64% 60% White African-American Hispanic Pew Internet http://goo.gl/icIeSD Smartphone Ownership (%) Differences in smartphone ownership are narrowing across race/ethnicity
  8. 8. 77% 47% 22% 8% 81% 68% 40% 21% 90% 87% 72% 43% 18-29 yrs 30-49 yrs 50-64 yrs 65+ yrs < $30k $30k - $74,999k ≥$75k Pew Internet http://goo.gl/icIeSD Smartphone Ownership (%) Differences in smartphone ownership are narrowing across income
  9. 9. The US consumer spends 2 hr 38 min per day on smartphones and tablets http://goo.gl/PCdbol
  10. 10. The US consumer spends 2 hr 38 min per day on smartphones and tablets http://goo.gl/PCdbol Mobile and Social go hand in hand!
  11. 11. I believe they can but…
  12. 12. http://goo.gl/Inp7j4 Unfortunately this dream is not even close to the reality of healthcare right now
  13. 13. What’s a Medical Mobile Application?
  14. 14. Any of the following for managing health/ wellness: (1) Software program that runs on smartphones (2) Accessory that attaches to a smartphone (3) Software + Accessory See the FDA final guidance document http://goo.gl/6ttcF0
  15. 15.     3 Types of Medical Mobile Apps FDA Regulated Enforcement at FDA Discretion Not FDA Regulated
  16. 16.     3 Types of Medical Mobile Apps FDA Regulated Enforcement at FDA Discretion Not FDA Regulated
  17. 17. (1)  Are intended to be used as an accessory to a regulated medical device (2)  Transform a mobile platform into a regulated medical device FDA Regulated
  18. 18. Connecting a glucometer to a mobile phone turns it into an FDA-regulated medical device
  19. 19. The AliveCor is an iPhone case that gives EKG readings; it had to be FDA-approved
  20. 20. “When the intended use of a mobile app is for the diagnosis of disease or other conditions, or the cure, mitigation, treatment, or prevention of disease, or is intended to affect the structure or any function of the body of man, the mobile app is a device” -FDA Intent matters with FDA regulation
  21. 21. The LED light on your flash is not FDA regulated, unless you are trying to use it as an opthalmoscope
  22. 22. Based on this definition, FDA sent this letter to the makers of the uChek Urine Analyzer “Please note that though the types of urinalysis dipsticks you reference for use with your application are cleared, they are only cleared when interpreted by direct visual reading. Since your app allows a mobile phone to analyze the dipsticks, the phone and device as a whole functions as an automated strip reader. When these dipsticks are read by an automated strip reader, the dipsticks require new c l e a r a n c e a s p a r t o f t h e t e s t s y s t e m .” -FDA
  23. 23.     3 Types of Medical Mobile Apps FDA Regulated Enforcement at FDA Discretion Not FDA Regulated
  24. 24. (1)  Help patients/users self-manage their disease or condition without providing specific treatment suggestions; (2)  Provide patients with simple tools to organize and track their health information; (3)  Provide easy access to information related to patient’s health conditions or treatments;     Enforcement at FDA Discretion
  25. 25.     Enforcement at FDA Discretion (4)  Help patients document, show or communicate potential medical conditions to health care providers; (5)  Automate simple tasks for health care providers; (6)  Enable patients or providers to interact with Personal Health Records (PHR) or Electronic Health Record (EHR) system
  26. 26. By definition, tracking/recording apps for blood sugar may fall into this category, but apps using self-entered data don’t seem to be regulated thus far
  27. 27.     3 Types of Medical Mobile Apps FDA Regulated Enforcement at FDA Discretion Not FDA Regulated
  28. 28. Not FDA Regulated     (1)  E-book medical textbooks (2)  Medical flashcards/training (3)  Patient education apps (4)  Automation of office operations (5)  Videoconferencing/email to facilitate communication betw/ pt & provider
  29. 29. Are medical mobile applications effective for improving health?
  30. 30. The jury is still out. Most studies have focused on SMS; formal evaluation of effectiveness of sensor and smartphone technology on health outcomes has yet to be done.
  31. 31. Regarding regulation, FTC did crack down on this appmaker for a false claim that light emanating from the phone could treat acne http://goo.gl/tppRqS
  32. 32. And this study is interesting; even if an app does not give “medical advice” and is not technically “regulated”, do patients interpret it that way and defer seeking medical attention? http://goo.gl/1RQcWm
  33. 33. We published a review of commercially available diabetes apps http://www.ncbi.nlm.nih.gov/pubmed/ 23627878
  34. 34. There are some major problems with the app search process
  35. 35. Of 480 apps, 50% were relevant Of 600 apps, 85% were relevant Searching for “diabetes” is very different on Android vs. iPhone
  36. 36. Terms in the description are determined by the app maker: “Health” “Fitness” “Nutrition” •  Difficult to customize searches •  App search algorithms are not transparent •  Small numbers of reviews “Health & Fitness” is a really broad category presumably defined by the app maker. These are the most popular, But are they evidence-based? The answer is NO.
  37. 37. When you search, there isn’t much of an advanced search, and you have to swipe screen by screen, then you get lazy and give up after about 10 swipes
  38. 38. How many stars ★★★★★ and or reviews give you confidence in a medical mobile app?
  39. 39. App search algorithms are not transparent
  40. 40. What kinds of diabetes apps did we find? (we only looked at the iTunes store for this part)
  41. 41. Medical Management (<1%) Tracking & Visualization (33%) Teaching/training (22%) Nutritional References (8%) Physician Directed Apps (8%) Social forums/blogs (5%)
  42. 42. Medical Management (<1%) Tracking & Visualization (33%) Teaching/training (22%) Nutritional References (8%) Physician Directed Apps (8%) Social forums/blogs (5%)
  43. 43. This is the only FDA-approved medical Management diabetes app that I know of http://www.welldoc.com/
  44. 44. Tracking & Visualization (33%) Nutritional References (8%) Physician Directed Apps (8%) Social forums/blogs (5%) Teaching/training (22%) Medical Management (<1%)
  45. 45. Comes w/a cute monster, but glucose is hand entered in the US for now http://mysugr.com/
  46. 46. This is probably the most useful tool for mobile downloading of glucose for now, w/ Android/iPhone/multiple meter compatibility (yes, cord is clunky) https://www.glooko.com/
  47. 47. Some pts have had trouble getting this meter covered by insurance Technology is not effective if you don’t have access to it! http://www.ibgstar.us/
  48. 48. This is the only real-time glucometer I know of; it has a 2G chip embedded in the meter that uploads BG to the cloud in real-time https://www.telcare.com/
  49. 49. Medical Management (<1%) Tracking & Visualization (33%) Teaching/training (22%) Nutritional References (8%) Physician Directed Apps (8%) Social forums/blogs (5%)
  50. 50. http://goo.gl/U6vqRm
  51. 51. Medical Management (<1%) Tracking & Visualization (33%) Teaching/training (22%) Nutritional References (8%) Physician Directed Apps (8%) Social forums/blogs (5%)
  52. 52. http://www.mynetdiary.comhttp://www.calorieking.com/
  53. 53. Medical Management (<1%) Tracking & Visualization (33%) Teaching/training (22%) Nutritional References (8%) Physician Directed Apps (8%) Social forums/blogs (5%) Saving for a future presentation !
  54. 54. Finally, what are the security issues with medical mobile apps?
  55. 55. Are they HIPAA compliant? Who knows? Many don’t say
  56. 56. What is being done with my health data? Who knows? Who reads the fine print and is the info even in there?
  57. 57. Can data be shared with the provider? Some do by email, but providers are not supposed to use email because it’s not secure!
  58. 58. Maybe Google can help you find an app #sadstateofmhealthtechnology
  59. 59. Hard to find apps Too many apps Uncertain Quality of Apps Uncertain Benefit of Apps Apps lack seamless link to provider The promise of mobile health has yet to be realized
  60. 60. In the meantime, there is a diabetes technology revolution happening right under our screens
  61. 61. Social Media
  62. 62. 73% of adults are on some kind of social networking site Pew Internet http://goo.gl/oP5bKZ 67% 20% 15% 16% 13% 71% 22% 21% 18% 17% Facebook LinkedIn Pinterest Twitter Instagram 2012 2013 Social Media Site Use (%)
  63. 63. What can I say, this is how I feel:
  64. 64. What is Twitter?
  65. 65. It’s a microblogging platform, a place to have a conversation
  66. 66. How do you use Twitter?
  67. 67. First, set up your profile and choose your name @_________
  68. 68. First, choose your name and set up your profile: Who are you? What do you care about?
  69. 69. @lphilipson @HopeWarshaw @EndoGoddess @Dermdoc @kidney_boy Your name? Your specialty? It’s up to you
  70. 70. This is not engaging! “Who is that egghead?”
  71. 71. Show people what you care about and how to learn more about you
  72. 72. To tweet, hit this button
  73. 73. Tweet You only have 140 characters to say something
  74. 74. Tweet an article/news/resource of interest
  75. 75. Use a link shortener to save space
  76. 76. Use #hashtags
  77. 77. #diabetes #dsma #doc #dblog #quantifiedself #mhealth #dataviz A #hashtag can mean many things like a topic or group
  78. 78. Diabetes Online Community (DOC) myglu.org
  79. 79. #cdtc2014 A #hashtag can be used for conferences (I just created one for this meeting)
  80. 80. To follow and to be followed
  81. 81. You will see the tweets of people that you follow
  82. 82. My followers will see my tweets
  83. 83. Use mentions to reach out to specific individuals
  84. 84. Retweet someone else’s tweet Hit the retweet button (RT will show up); Change it to MT if you modify the tweet; h/t “Hat tip” acknowledges who gave u info
  85. 85. So now you know how to use Social Media, but why would a diabetes professional use it?
  86. 86. You don’t feel like tweeting your morning breakfast
  87. 87. You’re not Miley Cyrus
  88. 88. You have better things to do than put your math skills on display
  89. 89. Neither are you mother monster (Lady Gaga)
  90. 90. Plus, haven’t you heard that “social media and medicine is a dangerous mix”?
  91. 91. http://goo.gl/ZD2Rl6
  92. 92. http://goo.gl/dS0thM
  93. 93. 60% of US medical schools reported incidents of students posting unprofessional online content 13% reported violations of patient confidentiality 52% reported student use of profanity 48% reported frankly discriminatory language 39% reported depiction of intoxication 28% reported sexually suggestive material JAMA, 2012 http://goo.gl/voZFXN
  94. 94. “Professionalism and social media can be an uneasy mix...” BMJ, 2012 But there are a few principles to follow as a healthcare professional on social media…
  95. 95. If you have a personal account, separate it from your professional one       Dr. Joyce Lee Associate Professor by day Lady Gaga by night
  96. 96. “Don’t Lie, Don’t Pry Don’t Cheat, Can’t Delete Don’t Steal, Don’t Reveal” Follow the 12-word Social Media Policy from the Mayo Clinic http://goo.gl/kxNca2
  97. 97. Remember HIPAA! http://goo.gl/vntKv2 Don’t talk about patients, even in general terms If you wouldn’t say it in an elevator, don’t say it online
  98. 98. Why should you consider taking the plunge?
  99. 99. To learn about new mobile applications for diabetes
  100. 100. To keep abreast of real-time diabetes technology news
  101. 101. To troubleshoot technology issues
  102. 102. To learn how diabetes technology works in the real world
  103. 103. http://goo.gl/bp7JKl
  104. 104. To learn about design issues in diabetes technology
  105. 105. To have a conversation about design issues in diabetes technology
  106. 106. To learn about novel real-world applications of diabetes technology
  107. 107. http://goo.gl/128wVg iSeismometer iPhone app + CGM on nightstand = effective alarm!
  108. 108. http://goo.gl/Y7yGsH Glucose Sensor + Flovent = Rash-free?
  109. 109. To learn about a patient- designed future of mobile technology and data visualization for diabetes
  110. 110. http://databetic.com/?p=304
  111. 111. He used 3 medical devices, 3 activity monitors, a smartphone…
  112. 112. and 10 different software systems to make his year of visualizations
  113. 113. What a beautiful future for patient-driven visual design
  114. 114. And for patient-driven hypotheses and insights
  115. 115. Check out his new app: Meal Memory http://www.databetes.com/
  116. 116. To witness the incredible creativity and hacking capabilities of individuals/families with diabetes
  117. 117. cloud CGM Nightscout is helping a family manage blood sugars in a more sophisticated manner using open-source tools #wearenotwaiting
  118. 118. http://goo.gl/glAEUA Check out this DIY Artificial Pancreas! #wearenotwaiting #diyps
  119. 119. To advocate as a community for individuals with diabetes
  120. 120. http://goo.gl/JAj1k4
  121. 121. http://tidepool.org/
  122. 122. http://goo.gl/p4hJQt Check out this blogpost about #wearenotwaiting
  123. 123. http://goo.gl/s5yI2U
  124. 124. http://goo.gl/6ZeMFU
  125. 125. To connect our patients and families with online communities
  126. 126. “Social media has saved lives in the diabetes community. It has helped people who are struggling with their diabetes to take control and improve their health. It shows people that there isn’t such a thing as a “perfect diabetic,” but there can be an educated and determined one.” -Kerri Sparling @sixuntilme
  127. 127. Run by Diabetes Community Advocacy Foundation
  128. 128. Mobile technology & social media are changing the paradigm of who, what, and how health information is communicated
  129. 129. #theoldmedicine In clinic, Provider to Patient, Off-line, 9-5 PM Weekdays only
  130. 130. #thenewmedicine Outside of clinic, Patient to Patient, Online, and 24-7
  131. 131. “Someone recently asked me to name the most exciting innovation in health care today. I think he was hoping for a sexy technology tip, like an app that’s catching fire in the expert patient communities I follow. Nope. I’ve said it before and I’ll say it again: the most exciting innovation of the connected health era is…people talking with each other.” http://goo.gl/bu7eOv
  132. 132. Thanks to the students for doing the homework! Some got rid of their eggheads! http://goo.gl/EvzHex
  133. 133. Thanks to: The Diabetes Online Community Dr. Klonoff Healthdesignby.us Mott Mobile Technology for Enhancing Child Health I love twitter Follow me there: @joyclee http://www.doctorasdesigner.com/

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