Your Voice
AUTUMN 2013
Welcome to our autumn newsletter and I must
The meeting was successful with N and
say compared to t...
Older People’s Partnership
Board
Cambridgeshire Older People's Partnership
Board exists to ensure that there is a coordina...
Intro to our Board Member
Judith Margolis

I’ve met loads of new people and made lots of
new friends, The conversations al...
Getting Around Town

Shopmobility Opening Hours

With the introduction of many pedestrian only
town centres, getting aroun...
Would you like to raise some
money for your favourite
charity?
On Thursday 7th November 12- 6pm
Huntingdon Shopmobility is...
Useful telephone numbers

Websites

Adaptations for Council owned property:
www.reallyusefulstuff.co.uk

Cambridge City Co...
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Cambridgeshire Alliance newsleter 2013

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The Cambridgeshire Alliance for Independent Living's Autumn newsletter 2013

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Cambridgeshire Alliance newsleter 2013

  1. 1. Your Voice AUTUMN 2013 Welcome to our autumn newsletter and I must The meeting was successful with N and say compared to the last time I wrote we have K sharing their interests and J finding had an amazing summer. I hope you have all new information from the PA about things enjoyed some sunshine over the last few available in the community. They have months. With this newsletter we hope to keep all now met for a second time and plan to you up to date with what we are doing and try and do something on a regular basis. what else is happening around the county. This is exactly how we envisaged the shared care or arrangements working and hope to Website hear other success stories. Sometimes Our website is up and running with lots of sharing an activity can make costs cheaper useful information. Our Support Community and introduce people to others who they may pages allow PAs to advertise their not have met any other way. availabilities as well as employers being able to their vacancies. We have a success story to share with you from our “shared care” element Training of the support community. Carer D had advertised that her daughter We have run two lots of our training so far this year with funding from Cambridge Community (N) and PA would like to meet other service users and their carers for lunch or Foundation and have two more to do. other outings. J ( the mother of K ) got in Additionally we are pleased to offer a couple of drop in sessions for people who may have a touch and thought this sounded like a great idea. N her PA , J and K met up for question or to ask about their care package, their direct payment or employing staff. lunch. Training Drop In Sessions 1) Orwell House – Cambridge (please note change of venue) 25th Sept, 2nd and 1) Papworth Monday 21st Oct 10 -1pm 9th Oct 12.30am – 3.30 pm 2) Pendrill Court – Papworth 2) Papworth Monday 28th Oct 10am – 4pm Tuesday 12th Nov 1am-4pm
  2. 2. Older People’s Partnership Board Cambridgeshire Older People's Partnership Board exists to ensure that there is a coordinated multi-sector approach from all stakeholders to enable people aged 50 plus to live active, satisfying and independent lives whilst ensuring that the needs of the most vulnerable people in Cambridgeshire are met. The Older People's Partnership Board is made up of representatives from Cambridgeshire County Council, Cambridge and Peterborough Clinical Commissioning group, Healthwatch, and relevant voluntary sector organisations. The Board is facilitated by the Cambridgeshire Alliance for Independent Living. This ensures the independence of the board from the County Council. It is vital that older people are not labelled as one single-issue group. The age range alone is very significant even before we consider differences arising from gender, race, ethnic origin, disability, actual or perceived sexual orientation, gender identity, marital status, nationality, religious belief or any other characteristic which may impact upon a person’s opportunities in life. Older people (50+) have a lot to offer and the Older People's Partnership Board recognises this, as well as working to ensure that their needs are met. Cambridgeshire Older People's Partnership Board is fully committed to recognising and celebrating that diversity, and treating everyone with dignity and respect. The Partnership works particularly hard to include those people who are disadvantaged because of their difference. The Board tries to directly influence the priorities, commissioning and service developments of the different agencies and to work together to ensure the highest quality and best value services for older people in Cambridgeshire. Reminder! It also shares information and good practice across agencies and identifies gaps in services and highlights areas of concern to older people. Current priority areas of work for the board include:  Dementia  Community transport  Lifelong learning  Winter issues  Information, advice and guidance There are two ways to be involved in the work of this board; Full membership – This involves attending and contributing to the board meetings, reading the relevant paperwork and participating in relevant sub-groups as required. The Older People’s Partnership Board is looking for new members. Would you like to join us? Corresponding membership – This means that you will be on the email circulation list for the group and can feed in your views and comments in this way. The Board meets quarterly at venues around the county. All venues are fully accessible and a loop system will be provided. All expenses, such as travel costs are reimbursed to members. If you would like more information about the work of this board please contact Nadeem Ahmed nadeem@cambridgeshirealliance.org.uk or call 0300 111 2301. If you are a Blue Badge holder, make sure you regularly check the expiry date! I just got a £40 parking ticket because my badge was out of date in July !
  3. 3. Intro to our Board Member Judith Margolis I’ve met loads of new people and made lots of new friends, The conversations always start with ‘what a cute dog’, and ‘what does he do?’ As well as being one of the Directors of the Cambridgeshire Alliance, I am a Trustee of Disability Cambridgeshire and Disability Huntingdonshire. We all share an office in Papworth where once a week I work as a telephone advisor for DISH. Previously I was head of the Centre of Strategy and Marketing at the Open University Business School. In 2008, after two encounters with breast cancer, I developed Cerebella Ataxia and had to retire early. Now I use an electric wheelchair most of the time and have a great life. Whilst it’s easy to dwell on the negative, there are many good things that have happened to me as a result of my disability. The best is my wheelchair! Before I had it, I found life very hard to cope with my condition. I was exhausted all the time and was so unsteady on my feet that people thought I was drunk. Once I sat down, life became much easier. My work for the ‘Alliance’ brings me into our office several days a week. Presently I am working on the rebranding project, making sure our new publicity materials and website are changed to our new name, logos and house colours. It’s funded by the Office of Disability Issues which helps user-ledThe next best thing was that I got a chance to organisations (like us) develop and grow. learn how to fly an aeroplane. In 2006 I won a I am determined to make our website reach disabled flying scholarship, and went to flying the ‘gold standard’ of accessibility. school in South Africa for six weeks, it was We are a pan-disability organisation and absolutely brilliant. should have a website that is accessible to When I applied to have my little dog Alfie everyone. It’s a tall order, and may take a trained as an assistance dog, I naively said while, but I am determined to achieve it. ‘if I can fly a plane I should be able to train a In my spare time (!) I work for the Huntingdon dog’. The Support Dogs Charity specialises in and District branch of the MS Society as their training dogs owned by people with lead support volunteer, answering their advice disabilities. When Alfie was two, he went to line and helping with welfare claims. Multiple boarding school for four weeks and we had to Sclerosis has very similar symptoms to practice for a about year before we graduated. Cerebella Ataxia and I find that I can It was hard work I soon found out that understand the problems our members face. aeroplanes do exactly what you tell them to In all these activities I am supported by my do, whilst dogs have a mind of their own! husband who has become an excellent cook, But seriously, Alfie has changed my life; as and Alfie the dog. Anyone attending meetings well as all the jobs he does for me, such as with me usually can find him doing his bit, picking things up and bringing me the phone, actively sleeping under the table. (that’s the he gives me the confidence to go into strange dog, not the husband). places and try new things.
  4. 4. Getting Around Town Shopmobility Opening Hours With the introduction of many pedestrian only town centres, getting around with a mobility impairment can be really difficult. That’s where a Shopmobility scheme can come in handy. In Cambridgeshire we have four schemes that have a selection of motorised scooters and wheelchairs for you to borrow. All the local schemes are registered with the National Federation of Shopmobilty and as many schemes throughout the country, some run by donation and some ask for a small fee to join. Ely: 01353 666655 Thursday & Friday: 10.30am - 4.30pm Cambridge Grafton Centre: 01223 457452 Monday - Saturday: 10:00am - 4:00pm Grand Arcade: 01223 461858 Monday - Saturday : Sunday : 10:00am - 5:00pm 11:00am - 4:00pm Peterborough: 01733 313133 It’s always advisable to call ahead to the local Monday - Friday: Shopmomility office to ensure that suitable Saturday : aids are available. 10:00am - 4:00pm 09:00am - 5:00pm Huntingdon: 01480 432793 Monday - Saturday : 09:00am - 3:00pm Did you know? Many supermarkets and National Trust properties have scooters that you can loan too. Locally, Hinchingbrooke Park has a pair of Tramper scooters that you can loan free of charge. These rugged, battery powered wheelchairs, can go around the Park on the harder paths. They have simple hand controls and can be used after a short training session. Hinchingbrooke Park also lend out adapted bikes. One is for 2 people to ride the other has a seat in front for passenger to be carried around. We suggest you 'phone to book your ride in advance as they are very popular; 01480 451568
  5. 5. Would you like to raise some money for your favourite charity? On Thursday 7th November 12- 6pm Huntingdon Shopmobility is organising a “Sponsorthon” in the Commemoration Hall Huntingdon. You can choose to do a sponsored jigsaw-athon or a knit-a-thon. There is a £5 entry to cover the hall costs but any sponsorship you raise will go to YOUR chosen charity. Jigsaws will be provided but you can bring your own. You can be sponsored by the hour or by the number of jigsaws you take part in. and Madame Tussauds; Calumet photographic accessories and £150 cash. Closing date is 31st Oct 2013. Up to four JPEG images can be sent to obcomp@disabledphotographers.co.uk with a completed entry form. Stepping Stone Free advice, support and funding are available to help you get involved in local sporting opportunities. The project, Stepping Stones, offers children and adults with a disability or long-term health conditions; information, advice and support to help them engage in regular sporting activities If you would rather knit you can bring your own within mainstream sports settings, clubs and knitting or knit squares with wool and provided organisations. knitting needles (limited numbers) and again be They also offer free training and advice to sponsored by the time taken or by the square. coaches, officials, administrators and Squares will be used to make blankets for a volunteers so they can support you effectively. Ugandan Orphanage. The initiative is one of 44 projects Contact Debbie on 01480 432793 or nationwide and is being delivered by Action shopmobility@huntsforum.org.uk For Children and co-funded by Sport England and Cambridgeshire County Council. Get your cameras ready “ON THE MOVE 2013” Stepping Stone will run during the next 18 months and hopes to help about 200 people. If you or anyone you know can benefit from On the Move is the annual photographic Stepping Stone, please contact either, Emma competition for people with disabilities and is Yates or Ryan Armes; at Action For Children on organised by Mobility Choice and The Disabled 01223 301756 or e-mail Photographers Society. ryan.armes@actionforchildren.org.uk This year's theme of Travel & Leisure offers opportunities to capture the atmosphere of MOTABILITY- update being out and about, whether to destinations First All-Electric Vehicle through near or far, holidays or short breaks, the transport to get you there, the people you meet. Motability There are three age categories: under 12, 1218 and over 18 years. Winning and shortlisted images will be printed, mounted and displayed at a public exhibition and award ceremony at Calumet Photographic in London. Each category winner will receive a Merlin Annual Pass for a disabled person and carer, offering entry to a range of top UK attractions; such as the London Eye, LEGOLAND Windsor The Nissan Leaf plug-in vehicle is available on the Motability scheme, the first time that an all-electric vehicle has been offered. You can see the Nissan Leaf, which has a £999 upfront payment on the Motability scheme, here. The freephone number for Nissan Mobility, if you would like to find out more: 0800 731 9633 or you can email nissan.mobility@nissan.co.uk.
  6. 6. Useful telephone numbers Websites Adaptations for Council owned property: www.reallyusefulstuff.co.uk Cambridge City Council Housing Department 01223 457833 East Cambridgeshire Hereward Housing Properties 0800 9161422 South Cambridgeshire (Shire Homes) 08450 450 051 Fenland Housing Department 01354 654321 Huntingdonshire Housing Partnership - (Home Improvement Agency) Addenbrooke’s Advice Line www.independentliving.co.uk 01480 388720 01223 217 397 Blue Badge 0345 045 5204 Cambridgeshire Alliance for Independent Living 0300 111 2301 Cambridgeshire Direct General enquiries 0345 045 5201 Children’s Disability Team 01223 568 808 Children’s Services 0345 045 5203 Countywide Physical Disability Team: Disability Cambridgeshire Take a look at this useful gadget. An egg cracker and separator for cracking eggs one handed. 0345 045 5202. 01480 839192 Disability Huntingdonshire 01480 830833 Occupational Therapists 0345 045 5205 PALS 01223 216 756 Papworth Trust Helpline 0800 952 5000 Pension Credit Help line 0800 991 234 Personal Independent Payments 0800 917 2222 Red Cross Mobility Aids & Equipment Loans 01480 213376 Safeguarding Vulnerable Adults 0345 045 5202. Social Services Adult & Older People 0345 045 5202 Village Benefits Service 01353 666 990 Independent Living have got a good article on wheelchair passports and the benefits of having one of these. If you are a wheelchair user get a look at this site www.fixmystreet.co.uk. If you have problems with uneven streets, potholes or dropped kerbs. You can report your issues on this site and it will go straight to the CCC highways team. You can even track the progress of your complaints. http://www.openbritain.net/ When looking for information on accessible holidays or travel the information the information always seems to be scattered in lots of different places, This new website may be the answer and is the brainchild of the charity Tourism for All UK, Open Britain aims to bring together information from a variety of sources, VisitEngland and DisabledGo are major partners in this venture. They have carried out access inspections and have given award ratings for accommodation under the National Accessible Scheme. If you want extra assurance, inspected venues carry the logo of the organisation who visited them. Some of the information is provided by the venues themselves and the listings carry the ‘i’ sign.

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