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Developing New Paradigmsfor the Recruitment ofMinority Elders Using CBPRGerardo Moreno MD MSHS, Catherine Sarkisian MD, MS...
Research Question• What do minority seniors believe aboutcollection of biological data?• What barriers would there be to p...
MethodsPartnersLA CAPRA - Laura Trejo (LA City Dept of Aging)RCMAR/CHIMECenter for Biodemography and Population Health...
OutcomesIncrease the scientific knowledge of the mosteffective protocols for recruiting, enrolling, andretaining minority...
OutcomesDisseminate best practices identified• metric: community conferences, academicworkshops, peer-reviewed reports, a...
CERP aims addressedCERP Aim 3Strengthen Community infrastructure forsustainable partnered researchCERP Aim 4Drive inno...
Progress to date and timelineAug – Sept2012Oct – Nov2012Dec 2012 Jan 2013 Feb 2013 Mar – Sept2013IRB applicationApprovedFi...
Added value from CTSI FundingCHIME/RCMAR funded Community Liaison Core to conduct focusgroups Dissemination through RCM...
Next Steps• Complete key stakeholder interviews• Plan for focus group discussions• Dissemination of best practices to comm...
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Recruiting Minority Elders to Participate in Research

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This study will examine the barriers that prevent minority elders from participating in research, particularly those studies that involve collection of biomarkers. Minority elders face health disparities but are underrepresented in research. As a consequence, research results are potentially non-generalizable to older, minority adults.

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Transcript of "Recruiting Minority Elders to Participate in Research"

  1. 1. Developing New Paradigmsfor the Recruitment ofMinority Elders Using CBPRGerardo Moreno MD MSHS, Catherine Sarkisian MD, MSHS,Laura Trejo MPP, Carol Mangione MD, MSPH,1Community Engagement Research Program (CERP)/CTSI meetingOctober 18, 2012CHIME/RCMAR  Community Liaison Core  chime.ucla.edu
  2. 2. Research Question• What do minority seniors believe aboutcollection of biological data?• What barriers would there be to participatingin this type of research i.e., being interested inparticipating/providing informedconsent/returning for follow-up studies?• How can we increase participation in researchand improve the quality of the experience forminority seniors?
  3. 3. MethodsPartnersLA CAPRA - Laura Trejo (LA City Dept of Aging)RCMAR/CHIMECenter for Biodemography and Population HealthReview LiteratureQualitative Studyo Semi-structured stakeholder interviews• Leaders in aging community (n=10), snow-ball samplingo Focus groups• English (n=3) and Spanish (n = 3)• One hour, at senior centers
  4. 4. OutcomesIncrease the scientific knowledge of the mosteffective protocols for recruiting, enrolling, andretaining minority seniors into research studiesutilizing biological markers of health• Community stakeholder engagement(metric: conduct interviews)• Community engagement of older minorityadults (metric: conduct focus groups)
  5. 5. OutcomesDisseminate best practices identified• metric: community conferences, academicworkshops, peer-reviewed reports, andpresent in national scientific meetings
  6. 6. CERP aims addressedCERP Aim 3Strengthen Community infrastructure forsustainable partnered researchCERP Aim 4Drive innovation in community engagementthat accelerates the volume and impact ofpartnered research in diverse communities
  7. 7. Progress to date and timelineAug – Sept2012Oct – Nov2012Dec 2012 Jan 2013 Feb 2013 Mar – Sept2013IRB applicationApprovedFinal qualitativeinterview guideConductstakeholderinterviews(con’d)Conduct Focus(con’d)Final codebook Submit resultsto peerreviewedjournalReviewbiomarkerprotocols atUCLA & reviewliteratureContinueIdentifyingleaders in agingcommunityBegin analysis ofinterviewtranscriptsCompleteanalysis ofinterviewtranscriptsCompleteanalysis ofgrouptranscriptsDisseminatebest practices(regional,community,scientificmeetings)DraftedinterviewguidesConductstakeholderinterviewsFinalizequalitative focusgroup guideDevelop initialcode book forfocus groupsQuantitativedate reportTechnical reportFeedback fromLA CAPRA(presentation)Draft qualitativefocus group guideConduct Focus Transcribe FocusGroupsOutline plan formanuscriptsAdditionalanalysisIdentify keystakeholdersBegin analysis ofgrouptranscriptsDistributequantitativedata reportsPresent atnational RCMARmeeting
  8. 8. Added value from CTSI FundingCHIME/RCMAR funded Community Liaison Core to conduct focusgroups Dissemination through RCMAR nationalcommunityCERP CTSI enhancement Research assistant Key stakeholder interviews Strong and meaningful community participation• Support for community’s time National dissemination through CTSI network
  9. 9. Next Steps• Complete key stakeholder interviews• Plan for focus group discussions• Dissemination of best practices to communityand academic investigators
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