Assessing Research in Communities of Color

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This study will develop a toolkit to assist investigators with employing and utilizing the skills of community health workers, or promotoras, to encourage participation of underserved ethnic and minority populations in research.

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Assessing Research in Communities of Color

  1. 1. • Marie Mayen-Cho, MPH, Director, Providence Access to Care/Health Education Outreach • Miriam Hernandez, Supervisor Providence Latino Health Promoter Program • Laurie Shaker-Irwin, PhD, MS Assistant Professor, MedicineCo-Leader, Regulatory Knowledge and Support, Industry Relations, and Research Ethics CTSI grant UL1TR000124
  2. 2. Background Ensuring participation in medical research by racial and ethnic minorities represents an essential goal to improving health outcomes for these populations. Evidence suggests that racial and ethnic minorities have less opportunity to participate in potentially beneficial clinical research. Analysis of numerous studies indicates that Community Health Workers (Promotoras) are effective in increasing access to health services, increasing knowledge, and promoting behavior change among ethnic minorities. Understanding the role that Promotoras play in research designs and the development of culturally and linguistically appropriate training programs will help increase participation of underserved minority and ethnic populations in medical research.
  3. 3. Research Questions How can investigators collaborate with community based organizations to improve participation of racial and ethnic populations in clinical research? What role should Promotoras play in research studies? How prepared are existing organizations that hire and train Promotoras to participate in research projects?
  4. 4. MethodsQualitative Conduct focus groups with experienced Promotoras  Four focus groups with Promotoras (approximately 50)  Six interviews with program directors/coordinators Tool kit:  Based on the results of the focus groups and individual interviews, a tool kit will be developed for investigators on how to recruit, employ and utilize the skills of trained Promotoras in their research design.
  5. 5. Outcomes Progress to Date  Conducted three focus groups of experienced promotoras  Conducted six interviews with community leaders  Data analysis
  6. 6. CERP Aims Addressed Aim 1 – Promote and sustain bidirectional knowledge sharing between community and academia Aim 2- Strengthen community infrastructure for sustainable partnered research Aim 3 – Drive innovation in community engagement that accelerates the volume and impact of partnered research in diverse communities Aim 4 – Build health services research methods into partnerships to accelerate design, production, and wide adoption of evidence-based practice and behavior
  7. 7. Timeline-deliverablesSept. 2012 Sept – Oct Nov – Dec January 2013 February 2013 2012 2012• IRB Approval • Finalize • Transcribe, • Develop tool • Disseminatefor Qualitative qualitative review, and kit findingsprotocol focus group code Focus discussion Groups guide• Draft • Conduct • Review all • Obtain • Submit finalqualitative Focus Groups focus group feedback from reportfocus group and interview participantsdiscussion transcriptsinterviewguide • Analyze data
  8. 8. Added-value from CTSI Funding This CERP funded research project allows us to  Gather data that will allow us to :  Improve collaboration between investigators and community based organizations  Improve knowledge of Promotoras roles in clinical research projects  Improve participation of racial and ethnic minorities in medical research  Prepare for potential funding opportunities
  9. 9. Next Steps Share findings with participating Promotoras and organizations Submit findings (manuscript) for publication. Submit new application(s) for funding for development of training curriculum and training of Promotoras

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