What Is A Biobank Updated

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What Is A Biobank Updated

  1. 1. What is a Biobank?
  2. 2. Biobanks contain biological samples and often the data derived from them.
  3. 3. A biobank can contain…   <ul><ul><li>blood </li></ul></ul><ul><ul><li>tissues…like tumors </li></ul></ul><ul><ul><li>DNA </li></ul></ul><ul><ul><li>health information </li></ul></ul>
  4. 4. What about personal information:   <ul><ul><li>birth date </li></ul></ul><ul><ul><li>self-reported race? </li></ul></ul><ul><ul><li>sex </li></ul></ul><ul><ul><li>Yes! </li></ul></ul>
  5. 5. Biobanks are accessed by many people  <ul><ul><li>Many researchers at many institutions </li></ul></ul>Many researchers at many biotech companies
  6. 6. Research using biobanks is not related to stem cell research human cloning
  7. 7. Oversight and responsibility for the biological samples and data are negotiated between the biobank and...  <ul><ul><li>Research institutions and their researchers </li></ul></ul><ul><ul><li>Funding bodies (National Institute of Health) </li></ul></ul><ul><ul><li>Ethics boards (Institutional Review Boards) </li></ul></ul><ul><ul><li>Local, state, national, and international legislatures </li></ul></ul>
  8. 8. <ul><ul><li>Data given to researchers can (often) </li></ul></ul><ul><ul><li>be linked back to the </li></ul></ul><ul><ul><li>primary biobank source </li></ul></ul><ul><ul><li>Can researchers tell where the data comes from? </li></ul></ul>
  9. 9. Why are they linked back to the biobank?  <ul><ul><li>In case the researcher has questions about the biological sample </li></ul></ul><ul><ul><li>So the data generated by the researcher can be given back to the biobank (to the collective) </li></ul></ul><ul><ul><li>In case someone wants their sample removed from the biobank </li></ul></ul><ul><ul><li>To keep track of the samples… </li></ul></ul>
  10. 10. How are they linked back to the biobank?   <ul><ul><li>Using an anonymous identifier </li></ul></ul><ul><ul><li>randomly assigned </li></ul></ul><ul><ul><li>to each unique person </li></ul></ul><ul><ul><li>like “E129Y472J95’ </li></ul></ul>
  11. 11. Biobanks are often called… <ul><ul><li>Biorepositories </li></ul></ul><ul><ul><li>Biotrusts </li></ul></ul><ul><ul><li>Large cohort studies </li></ul></ul><ul><ul><li>Biolibraries </li></ul></ul>These are each similar but not quite the same .
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