What Is A Biobank Updated

What is a Biobank?

Biobanks contain biological samples and often the data derived from them.

A biobank can contain…
blood
tissues…like tumors
DNA
health information

What about personal information:
birth date
self-reported race?
sex
Yes!

Biobanks are accessed by many people
Many researchers at many institutions
Many researchers at many biotech companies

Research using biobanks is not related to stem cell research human cloning

Oversight and responsibility for the biological samples and data are negotiated between the biobank and...
Research institutions and their researchers
Funding bodies (National Institute of Health)
Ethics boards (Institutional Review Boards)
Local, state, national, and international legislatures

Data given to researchers can (often)
be linked back to the
primary biobank source
Can researchers tell where the data comes from?

Why are they linked back to the biobank?
In case the researcher has questions about the biological sample
So the data generated by the researcher can be given back to the biobank (to the collective)
In case someone wants their sample removed from the biobank
To keep track of the samples…

How are they linked back to the biobank?
Using an anonymous identifier
randomly assigned
to each unique person
like “E129Y472J95’

Biobanks are often called…
Biorepositories
Biotrusts
Large cohort studies
Biolibraries
These are each similar but not quite the same .

What Is A Biobank Updated

by Brad on Aug 25, 2009

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What Is A Biobank Updated — Presentation Transcript