What information and training do patients and public need Per SpindlerDirector, Biopeople, University of Copenhagen, Denmark
WORK AHEAD !EUPATI contributes to IMI‘s goal of raisingpatients‘ awareness and participation inpharmaceutical R&D provides scientifically reliable, objective, comprehensive, user-friendly information on therapeutic innovation and pharmaceutical Research & Development reaches out to patients incl. the lay and hard to reach patient community enables a meaningful involvement and empowerment of patients and raises public awareness (lead redesign of health care innovation) facilitates appropriate patient-relevant advice to industry, academia, authorities and ethics committees
Audiences: advocacy leadersand the public at large EUPATI Training Programme ( experts) Academic Modular Certificate Programme 100 Patient Ambassadors. Patient patient Journalists, Patient Trainers advocates EUPATI Educational Toolbox ( education) Tool box with a variety of distributable formats 12.000 Paper-based patient booklets, presentations, eLearning, webinars, vi advocates deos etc. EUPATI Internet Library ( information) Wiki” “YouTube” Social Media” Internet Sources (Editorial Board) 100.000 TV films and/or cartoons individuals
Content development of EUPATItargets important aspects oftherapeutic innovation1. Medicines development process from research to approval2. Personalized and predictive medicine3. Drug safety and risk/benefit assessment of medicines4. Pharmaco-economics, health economics and health technology assessment5. Design and objectives of clinical trials (& roles of stakeholders)6. Patients roles & responsibilities in innovative medicines development
Reflecting European diversity:7 languages 7 most frequently spoken languages: English, French, German, Spanish, Polish, Russian, Italian Serving 12 European countries: UK, Ireland, Malta, France, Luxemburg, the francophone Belgium and Switzerland, Germany, Austria, the German- speaking Part of Switzerland, Spain, Italy and Poland, plus Russian-speaking population in CEE
The first steps are needs assessmentand material collection followed bycontent development Strategy & methodology for Identification and review of training material available information resources to the three audiences Knowledge & attitude survey Collection of available material Analysis of information needs Adaptation, productionincl. format and style of delivery and translation of material Review & gap analysis
Get to know us! Web: www.patientsacademy.eu Twitter: @eupatients as well as:
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