How to talk to your health care professional - Eileen O’Donovan

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How to talk to your health care professional - Eileen O’Donovan

  1. 1. How to talk to your Health Care Professional Eileen O‟Donovan & Susan O‟Carroll
  2. 2. Workshop Today will be :• A Personal Space with a group agreement And group Introduction• A Short Presentation• Some Group Discussions• Personal awareness• Role Play• A Short Video Clip• Tips on „How to Talk to your HCP‟
  3. 3. Discussions on :• Who are your Health Care Professionals ( HCP) ?• what would you like to share in your experiences of „Talking to your HCP‟ (negative & Positive)• What do you want from this workshop ?• Defining „ your Goals „ when you are talking to your HCP
  4. 4. Living with advanced cancer typically means a lotof doctor appointments and on going treatmentYou need a health care team you can trust
  5. 5. DoctorPatient /nurse/team Communicating your needs
  6. 6. Key members of your Health Care Team• Medical Oncologist• Radiation Oncologist• Oncology Nurse e.g. Day ward• Breast Care Nurse• Oncology Liasion Nurse• Social Worker• GP• Community Public Health Nurse
  7. 7. CommunicationOpen Communication is the key to getting your needs met with ease and is essential to good care and long term planning
  8. 8. “With communication comes understanding and clarity; with understanding, fear diminishes; in the absence of fear, hope emerges; and in the presence of hope, anything is possible.”Ellen Stovall, 3-time cancer survivor Cancer Community Support www.cancersupportcommunity.org
  9. 9. Communication could be a problem if: • After many visits you have questions that went unanswered or were answered poorly • You never feel you have enough time to say what is on your mind • Members of your health care team seem rushed, distracted or uninterested
  10. 10. “ Don’t be afraid to ask a question —there are no stupid questions and don’t be afraid to get a second opinion. Don’t let some doctor talk you out of it. If you feel more comfortable, get that second opinion and feel comfortable in the treatment you are receiving rather than just accepting it. Be a part of your treatment process.It’s empowering to be proactive’ Penny - Cancer support community www.cancersupportcommunity.org
  11. 11. “ It’s really important to understand the disease and to educate yourself. It’s a matter of what this disease is, how it impacts you, and being able to communicate with your health care provider.”Elaine L. Cancer Support Community www.cancersupportcommunity.org
  12. 12. “I hate to take the doctor‟s time to answer my questions.”“I‟m so puzzled I don‟t know what to ask.”“So many medical terms were used so quickly that I just went away confused.”
  13. 13. Talking about „your experiences‟ Postives Negatives Discussion
  14. 14. „Choosing to be Patient Active is not a singlemonumental decision, but a series ofsmall,incremental choices that help you regain asense of control over your treatment and yourlife in general‟
  15. 15. Personal Awareness & Assertiveness
  16. 16. ROLE PLAY
  17. 17. „How to talk to your HCP„Reflection and comments
  18. 18. „Your Goals „Identify „your Goals‟ Disease control Quality of Life Prolonging Life Cure
  19. 19. Treatment DecisionsTreatment decisions can change and you must go with those changes….. One needs to have a balance Response to treatment vs Quality of Life
  20. 20. Tips on Communicating Effectively with your HCPImproving communication Before A Visit•Bring questions with you•Keep notes of issues experienced between visitsand bring notes to remind you•If you still feel questions and concerns are notaddressed – consider changing doctors!
  21. 21. Improving communication During the visit•Write down the answers to your questions in the doctor‟soffice•Write down new information from the doctor•Read your notes back to the doctor•Ask the doctor to explain anything that is unclear•If there are changes to your treatment plan , take the timeat this visit/clinic time to fully understand this and requesta follow up call or visit with your Nurse
  22. 22. Communication Tips• Keep a running list of questions to bring to your appointments• Ask your doctor what the best way is to get your questions answered, i.e should you bring your questions to the appointment , would it be easier to get answers by email ? Should you schedule a separate appointment• It might be helpful to choose one person to communicate your needs• Know that you deserve to get your questions answered. So don‟t be shy ,ask again and again until you are satisfied• Bring someone along to the appointments• Take notes , even a mini recorder !
  23. 23. Always Always tell your Doctor or nurse if andwhen you are experiencing side effects orsymptoms that are making you uncomfortable orinterfering with your activities of daily living
  24. 24. Short and medium effects of treatments must be Communicated to your HCP They can be managed ! Pain Nerve damage Weight gain /loss Memory & Fatigue & Sleep concentration disturbances
  25. 25. Wording questions: Do not ask leading questions .A leading question is worded in such a way thatsignals the answer you‟re hoping for !„ I am going to be alright, aren‟t I „ reword toWhat do you think is my prognosis ?
  26. 26. „Don‟t be afraid to speak your mind or get on your doctors‟ nerves. Tell them everything you‟re feeling. Because they can‟t help you if they don‟t know what‟s wrong. That‟s what they are there for‟ Laura Cancer Support communitywww.cancersupportcommunity.org
  27. 27. Questions ????Thank you for listening and participatingEileen & SusanCancer Information Services NursesIrish Cancer Society National Helpline 1800 200 700
  28. 28. Recommended websites:Cancer Support Community USwww.cancersupportcommunity.orgLiving Beyond Breast Cancerwww.lbbc.org/National Coalition for Cancer Survivorshipwww.canceradvocacy.org

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