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Norman Radican, Alzheimer's Australia: Who will I be when I get dementia? An LGBTI Diversity Within Diversity Perspective

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Norman Radican, LGBTI Project Officer, Alzheimer's Australia South Australia delivered this presentation at the 2013 LGBTI Aged Care Forum. The two day event offers a platform for discussion on …

Norman Radican, LGBTI Project Officer, Alzheimer's Australia South Australia delivered this presentation at the 2013 LGBTI Aged Care Forum. The two day event offers a platform for discussion on national policy issues, mental and physical health and implementing sensitive quality care and service delivery.

The forum brings together LGBTI community leaders plus senior researchers on LGBTI issues in the aged and health care sectors, to share perspectives on good practice insights for real needs as well as strategies to build community and sector capacity. For more information about the event, please visit the conference website: http://www.informa.com.au//lgbtiagedcare

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  • 1. Who will I be when I get dementia? An LGB and TI Diversity within Diversity Perspective Norman Radican LGBTI Project Officer CaLD Liaison Officer Access and Equity Unit Alzheimer’s Australia SA LGBTI Aged Care Conference Sydney June 2013
  • 2. Access to services is determined and influenced by diverse social and cultural factors which impact on an individual’s capacity to enter the health service system and their ability to engage that system to provide them with the best quality services for their needs
  • 3. Equity in dementia and aged care services supports the right of every individual to the highest attainable standard of care regardless of their age, culture, religion, race, language, gender, sexual orientation, geographic location or socio-economic status
  • 4. Cultural Diversity Continuum Competence Appropriateness Awareness Sensitivity
  • 5. Aboriginal and Torres Strait Islanders Culturally and Linguistically Diverse YOD Rural & Remote Prisoners Homeless • LGBTI New and Emerging Communities
  • 6. HIV positive Accelerated Ageing 20% Cognitive Impairment HIV Associated Dementia (HAD)
  • 7. January 2011 SALO LGBTI Community Dementia Project July 2012 LGBTI Training Program for Dementia Ageing and Aged Care Services
  • 8. Dementia Statistics Over 320,000 Australians living with dementia Increase by 1/3 to 400,000 in 10 years Expected to be at least 900,000 by 2050 One person diagnosed every 6 minutes 1,700 new cases each week One in ten people over 65 have dementia Almost 25,000 people with YOD Estimated 1.2 million people caring for someone with dementia Third leading cause of death in Australia THERE IS NO CURE
  • 9. What is Dementia? Disease Over 100 Syndromes 4 Main Types Alzheimer’s disease most common Symptoms Memory Loss Memories regress to life of 20’s and 30’s
  • 10. Am I the only Gay (LBTI) in the Village?
  • 11. By 2050 almost 900,000 people in Australia will be living with dementia (Access Economics 2010) If we conservatively say that the LGBTI population is approximately 8 - 10% of the overall population then by 2050, there will 90,000 people living with dementia who identify as lesbian, gay, bisexual, and transgender, intersex Approximately 20% of the more than 1000 people living with HIV in SA will develop HAD (HIV Associated Dementia)
  • 12. In or Out of the Closet In the Closet
  • 13. Who will I be when I get dementia?
  • 14. “Who will I be when I get dementia?” asked Mary
  • 15. Transgender
  • 16. LGBTI ATSI CALD
  • 17. PERSON-CENTRED CARE All people have the right to be treated as unique individuals with dignity and respect regardless of age, culture, religion, race, language, gender, sexual orientation, geographic location or socio-economic status
  • 18. Aged Care must be relevant to the lives of LGBTI people, not the other way around. Mark Butler MP, Minister of Mental Health and Ageing, Minister for Social Inclusion
  • 19. Understand LGBTI Dementia Australia
  • 20. Thank You ! Any Questions?

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