FAABI – Families Affected by ABI
Mikayla Ramm – FAABI Graduate
Karen Ramm – FAABI Parent
Jacqui Pierce – FAABI Founder
The Voice of the Child
“Head injuries do not happen to
individuals,
they happen to whole families.”
Tony Moore – Rehab. sp...
The Voice of the Child
The children in a family are often
the hidden and voiceless
casualties when a parent or
sibling acq...
The Voice of the Child
•  These two statements sum up the issues relating to
children in a Family Affected by ABI. These w...
The Voice of the Child
FAABI was borne from this report.
Unfortunately FAABI’s creation is based on anecdotal
evidence onl...
The Voice of the Child
What we do know is:
These kids need support.
History & Context
The Voice of the Child
Why do these children need support?
Following a brain injury to a family member, children may
exper...
The Voice of the Child
• Confusion
• Anger
• Jealousy
• Embarrassment
• Isolation/loneliness – “Am I the only one with a p...
The Voice of the Child
• Helplessness and Hopelessness
• Anxiety and/or Depression
• Loss of childhood – becoming a young ...
The Voice of the Child
•  Find some funding – Karingal board
•  Find a partner organisation that specializes in facilitate...
The Voice of the Child
How does FAABI work?
•  Children are grouped according to age and activities are designed
to suit t...
The Voice of the Children & Families
A grandmother made the commitment to transport her grandchildren
7 weeks running from...
The Voice of the Children & Families
Quotes from Kids:
• "The group should be longer - it should be six months".
• "Coming...
Promoting FAABI – National Launch Brain Injury Awareness Week 2013
Mikayla & Harrison with Jenny Macklin then Federal
Mini...
Future of FAABI
Continue the Geelong Program
THE DREAM-
SECURE GOVERNMENT FUNDING
TO TAKE FAABI STATE–WIDE
LIKE FAPMI
Panel
The panel are now undertaking a Q & A session
Then over to you :
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Jacqui Pierce, Mikayla Ramm & Karen Ramm Karingal - Interactive Panel Discussion - We are Parents Too - The Voice of the Child

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Jacqui Pierce, Mikayla Ramm and Karen Ramm Karingal delivered the presentation at the 2014 Younger People with very High & Complex Care Needs Conference.

The 4th Annual Younger People with very High & Complex Care Needs Conference focused on topics such as report on Summer Foundation’s preliminary findings from NDIS Launch sites in Barwon & the Hunter Valley, identify policy & practice opportunities & barriers for YPINH that arise from the NDIS.

For more information about the event, please visit: http://www.informa.com.au/youngerpeopleconference14

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Jacqui Pierce, Mikayla Ramm & Karen Ramm Karingal - Interactive Panel Discussion - We are Parents Too - The Voice of the Child

  1. 1. FAABI – Families Affected by ABI Mikayla Ramm – FAABI Graduate Karen Ramm – FAABI Parent Jacqui Pierce – FAABI Founder
  2. 2. The Voice of the Child “Head injuries do not happen to individuals, they happen to whole families.” Tony Moore – Rehab. specialist & author of Cry of the Damaged Man & Echoes of the Early Tides History & Context
  3. 3. The Voice of the Child The children in a family are often the hidden and voiceless casualties when a parent or sibling acquires a brain injury. History & Context
  4. 4. The Voice of the Child •  These two statements sum up the issues relating to children in a Family Affected by ABI. These were identified during the research for a report titled: “In a moment everything can change…” which was launched in Victoria in 2006. •  A recommendation from this report was: “To ensure all family members have access to a range of formal and informal support networks.” History & Context
  5. 5. The Voice of the Child FAABI was borne from this report. Unfortunately FAABI’s creation is based on anecdotal evidence only because…We actually don’t know the true extent of this issue. How many school aged children have a parent or sibling with an Acquired Brain Injury? We do not have these statistics readily available! History & Context
  6. 6. The Voice of the Child What we do know is: These kids need support. History & Context
  7. 7. The Voice of the Child Why do these children need support? Following a brain injury to a family member, children may experience some or all of the following: • A sense of abandonment - dad in hospital so mum is with dad or sibling in hospital so mum & dad are with the injured sibling • Trauma – if directly involved in or a witness to the event that caused the injury • Grief & Loss History & Context
  8. 8. The Voice of the Child • Confusion • Anger • Jealousy • Embarrassment • Isolation/loneliness – “Am I the only one with a parent/sibling with an ABI?” History & Context
  9. 9. The Voice of the Child • Helplessness and Hopelessness • Anxiety and/or Depression • Loss of childhood – becoming a young carer. • The very real possibility that they may be visiting mum/dad or sibling in a nursing home. History & Context
  10. 10. The Voice of the Child •  Find some funding – Karingal board •  Find a partner organisation that specializes in facilitated group support for children – Glastonbury chosen after “interviewing” three local agencies. •  Pilot the program - 2009 •  Seek further funding to continue running the program – philanthropic trusts – spasmodic success leading to intermittent running of program •  Seek ongoing funding – ONGOING!!!!!!! FAABI from Idea to Reality
  11. 11. The Voice of the Child How does FAABI work? •  Children are grouped according to age and activities are designed to suit the age group. •  One weekly session after school during school term at Glastonbury generally for 6 – 8 weeks •  Group size up to a maximum of 8-10 children •  Afternoon tea is provided •  Assistance with transport if required •  Lots of fun activities, e.g. painting, drawing, creative movement FAABI from Idea to Reality
  12. 12. The Voice of the Children & Families A grandmother made the commitment to transport her grandchildren 7 weeks running from Cranbourne to Geelong to enable them to access the facilitated peer support in relation to having a parent with ABI. This resulted in her driving approximately 7 hours each week to ensure her grandchildren could access the support they desperately needed. The father of a 9 year old reported that sleeping patterns for the children had settled, the children appeared happier and his 9 year old was no longer bed wetting. (The bed wetting had only begun after the mum’s brain injury) FAABI – is it needed and does it work?
  13. 13. The Voice of the Children & Families Quotes from Kids: • "The group should be longer - it should be six months". • "Coming to the group makes my week better". • "I really like this group". • "This is like Youth Group except you guys care, really care about us". • "An ongoing drop-in group would be good; fortnightly would be good". • Quotes from Parents: • "I think (……...) will be sad the group is finishing". • "It's time out for my kids, time when they do not have to help out so much". • "There are not a lot of places that do what you guys do". FAABI – is it needed and does it work?
  14. 14. Promoting FAABI – National Launch Brain Injury Awareness Week 2013 Mikayla & Harrison with Jenny Macklin then Federal Minister for FaHCSIA and Darren Cheeseman then Federal Member for Corangamite
  15. 15. Future of FAABI Continue the Geelong Program THE DREAM- SECURE GOVERNMENT FUNDING TO TAKE FAABI STATE–WIDE LIKE FAPMI
  16. 16. Panel The panel are now undertaking a Q & A session Then over to you :

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