Experiences and Attitudes of Patients Reading their Medical Records
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Experiences and Attitudes of Patients Reading their Medical Records

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There is a relatively large number of studies on how different patient groups access their medical records online and their attitudes to a prospective introduction of new online e-health services ...

There is a relatively large number of studies on how different patient groups access their medical records online and their attitudes to a prospective introduction of new online e-health services (Ammenwerth et al., 2012) and the use of online health information (Palsdottir, 2011; Ross et al., 2005 ). In contrast, there is considerably less research on how patients utilise the possibilities to access paper copies of their medical records, who are the recurrent and non- recurrent users of these services and what is the impact of these non-digital health information practices to the patients’ attitudes to the introduction of new online access services.

The aim of this presentation is to analyse how recurrent and non- recurrent ordering and reading of medical records relate to their use and to the patients’ health information practices and expectations of new online access services. The study is based on a combined postal and web survey of a simple random sample of 1000 patients who ordered a paper copy of their medical records from the Uppsala County Council (Sweden) with a final analysed sample of (N=) 354 returned questionnaires. The study shows that there are significant differences between the groups of patients who ordered a copy of their medical record for the first time and those who had ordered it once or multiple times before.

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Experiences and Attitudes of Patients Reading their Medical Records Experiences and Attitudes of Patients Reading their Medical Records Presentation Transcript

  • Experiences and Attitudes  of Patients Reading their  Medical Records  differences between readers and recurrent readers Isto Huvila1,2, Mats Daniels1, Åsa Cajander1  and Rose-Mharie Åhlfeldt2 1. Uppsala University  2. School of Business and Economics, Åbo Akademi University  3. University of Skövde
  • Information
  • Copyright © Middle Earth Enterprises and New Line Productions
  • Uppsala
  • http://www.sustainsproject.eu
  • http://www.it.uu.se/research/hci/dome/
  • Empirical study •  Postal survey with possibility to answer anonymously on the web •  June-August 2012 •  Mailed to 1000 patients, final sample N=354 (35,3 %) –  Fully anonymous, no reminders or other tracking of the respondents •  Descriptive statistics and ANOVA (Tamhane’s T2) in SPSS 21.0
  • Questionnaire 1.  Ordering a copy of the medical record: how, why, how many times? 2.  Interest in online access and other e-Health services 3.  Perceived benefits and threats of such services 4.  Health information behaviour 5.  Self-perceived health 6.  Demographics
  • Respondents Secondary or higher education / Lower / Nor formal education Internet access at home / No access at home 1+ h Internet user per day / Less / Non-users Employed/Retired/Other Born in Sweden/abroad Male/Female 0% 20% 40% 60% 80% 100%
  • No difficulties to understand I understood the parts I was interested in I understood the most written on the medical record 4,2 4,25 4,3 4,35 4,4 4,45
  • Reasons to read To engage my relatives in my healthcare For Social Security Agency To get an insurance For another care provider Follow-up of a visit Uncertain whether I received correct care Check some details Overview of care history General interest 0 0,5 1 1,5 2 2,5 3 3,5 4 4,5
  • Interactions
  • Groups Recurrent readers Second-timers First-timers
  • Why? It helps to improve my healthcare It is a premise for active participation in care To follow up of a visit To get an overview of the earlier care 3,5 3,6 3,7 3,8 3,9 4 4,1 4,2 4,3 4,4 4,5
  • Attitudes •  Are unlikely to ask from family members of relatives that the two other groups (2.48) •  Do not want to read possibly worrying hypotheses online (1.67)
  • Characteristics •  Read medical literature •  Member in patient organisations •  Older •  Female •  Have worked in contact with healthcare •  Use computers less frequently than the first-timers
  • Second-timers –  Most positive of all to the possibility to read the medical records online (4.37) –  Most intrested in self complementing the record with relevant information (3.33)
  • Attitudes •  Least interested in reading their medical record online (2.26)
  • Characteristics •  Better self-perceived health (than with recurrent users) (3.93) •  Least worried about their health (2.42) •  Least care visits (3.21)
  • Comparisons and context •  Earlier findings on interest in reading medical records –  Interest is low, ~0,4-4% –  Data from USA, Denmark (1970s) •  The case of Uppsala –  11 000 copies ordered annually (-2012), ~ 300 000 patients (3,7%) –  Current data shows that •  55 % first-timers •  19 % second-timers •  22 % recurrent readers
  • Impact? Conclusions
  • Huvila, I. Information Services and Digital Literacy: In search of the boundaries of knowing. Chandos, 2012.
  • Experiences and Attitudes of Patients Reading their Medical Records  differences between readers and recurrent readers Isto Huvila1,2, Mats Daniels1, Åsa Cajander1 and Rose-Mharie Åhlfeldt2 1. Uppsala University 2. Åbo Akademi University 3. University of Skövde More information (e) isto.huvila@abm.uu.se (t) @ihuvila (w) (w) http://www.it.uu.se/research/hci/dome/ www.istohuvila.se