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4 tidhar see care-ifa2012_tidhar

  1. 1. A Step Ahead and A Step Behind Lessons Learnt From Trialling a Prototype Patient-Led Internet-Based Cancer Care Self- Management System Dr Gil Tidhar Dr. Donna Milne, Lisa Sheeran, Matthew Holmes, Prof. Sanchia Aranda© Copyright 2012, SeeCare IFA2012 Next 1
  2. 2. CanCare: The Project  Background  60% of Australians surviving at least 5 years after cancer diagnosis  Cancer is now a chronic illness  Variety of care settings and health providers  Aim Trial a patient-led, internet based cancer care coordination and self management system to enhance the relationship and communication between patients, family and friends, and health professionals© Copyright 2012, SeeCare IFA2012 Next 2
  3. 3. Care Approach: Care Everywhere Goal 1 Goal 2 Need 1 Need 2 Professional Non-Professional Carers Carers Family and Friends© Copyright 2012, SeeCare IFA2012 Next 3
  4. 4. Partnership and Support© Copyright 2012, SeeCare IFA2012 Next 4
  5. 5. Initial Interviews: Consumers and Health Professionals Consumers:  Significant demand for a patient-led internet-based cancer care self-management system.  Capacity and desire to participate in the management of their care and in the care of someone they support. Health Professionals:  Recognize the potential benefits of patient-led care – to the patient and to the health system.  Significant challenges with existing medical and hospital practices and existing care provider ICT.  General concerns regarding changes to the care model.© Copyright 2012, SeeCare IFA2012 Next 5
  6. 6. Lessons Learnt: Considerations  Organizational and Contextual  Project Governance  Project Implementation© Copyright 2012, SeeCare IFA2012 Next 6
  7. 7. Organizational and Contextual Considerations 1. Develop, communicate, and share the trialed care model 2. Inclusion of health provider’s key decision makers 3. Ensure IT integration and support from health provider’s IT department© Copyright 2012, SeeCare IFA2012 Next 7
  8. 8. Project Governance Considerations 4. Partnerships bring benefits but require compromise 5. Inclusive project management 6. Use clinical experts that understand IT systems and IT research 7. Manage gap between health provider IT and consumer IT environments 8. Reuse of existing IT systems reduces cost and risk but requires compromise© Copyright 2012, SeeCare IFA2012 Next 8
  9. 9. Project Implementation Considerations 9. Recruiting Users to the trial is critical to the success of the project 10. Expectations of reliability of trialed IT should be managed 11. New functionality should focus and be suitable for the patient and their carers© Copyright 2012, SeeCare IFA2012 Next 9
  10. 10. Overall Lessons Learnt Patient-led cancer care self-management systems are:  A Step ahead of current medical and hospital practice  A Step behind consumer demand and requirements for uptake© Copyright 2012, SeeCare IFA2012 Next 10
  11. 11. www.seecare.net gil@seecare.net© Copyright 2012, SeeCare IFA2012 11
  12. 12. © Copyright 2012, SeeCare IFA2012 12