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LD Commissioning Workshop: Challenging Behaviour Foundation: Best practice in involving and engaging people with a learning disability and family carers
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LD Commissioning Workshop: Challenging Behaviour Foundation: Best practice in involving and engaging people with a learning disability and family carers

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Viv Cooper and Cally Ward, Challenging Behaviour Foundation: Best practice in involving and engaging people with a learning disability and family carers

Viv Cooper and Cally Ward, Challenging Behaviour Foundation: Best practice in involving and engaging people with a learning disability and family carers

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  • 1. Improving Commissioning andProvision:Better Practice in involving and engagingpeople with learning disabilities and theirfamilies
  • 2. Workshop Outcomes - an increased understanding of :2. The perspectives of people with learning disabilities and their families.3. The impact of ‘getting it right’ or ‘getting it wrong’4. The need to work in partnership5. What good practice looks like6. Next steps – action for us all!
  • 3. The perspectives of people with learning disabilities and their families.What they want – A good life..‘get it right for him and you get it right for us’….• Right support in the right place at the right time.• Information at the right time in the right format & support to understand the implications• Recognised and valued as partners -across the lifespan• High quality, safe services
  • 4. • People don’t start off as high cost ‘complex cases’.• There is a pathway to these services and we need to intervene earlier to stop people ending up in the Winterbourne Views!• Families are often the only people who know about the whole journey
  • 5. Families tell us!‘They’ve lost his history’.‘They havent bothered to find out how she communicates’.‘It was all decided at the case review before we even got there’.‘It all happened so suddenly – nothing was planned. They moved her before we were even told’.‘I don’t understand why they have to restrain him so often’.
  • 6. The perspectives of people with learning disabilities and their families.Family Local Specialisthome Services Needs not met Services Needed Can we find a way home?
  • 7. Daniel • Daniel is happy & leads an interesting life • Local, close to family • Adapted bungalow- HA tenancy • Good staff support • Exploring employment opportunities • Circle of support
  • 8. Robert •Complex brain surgery age 5 •Residential out of area school 9½ •No transition planning •3 failed out of area residential placements – including an undiagnosed bleeding stomach ulcer •Sept 2007 ATU ( plan for discharge 12 - 18 months) •March 2012 – still there History of multiple incidences of physical and verbal abuse Restraint Issues round funding
  • 9. Where does this leave people?
  • 10. ActivityThink about why westill get it wrong!Why doesn’t policytranslate intopractice?
  • 11. The need to work in partnership to ‘get it right’- the challenge of co productionIndividual person• assessment - discharge planning• Care planning – person centred• Delivery• OutcomesImplications:• Practical• Information• Codifying it in practice – monitoring and performance review• Advocacy
  • 12. The need to work in partnership to ‘get it right’- the challenge of co productionOperational• Auditing services on behalf of commissioners• Inspecting – CQC• Workforce issues – recruiting staff & training• Staff development and performance• Self assessment of health SAF
  • 13. The need to work in partnership to ‘get it right’- the challenge of co productionStrategic• Local structures – Health and Wellbeing Board, Partnership Board etc• Self assessment health frameworks• Coproduction in strategic planning and commissioning based on local JSNA – across children and adults• Governance issues for providers
  • 14. Next steps – action for us all!It is complex – but……..what does it mean for you?• Commissioners• Providers• Clinician
  • 15. Next steps – action for us all!ActivityThink about your own practice and where you can do things differentlyIdentify the actions you will take