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GIPA/MIPA Principles and Adherence Support Programs

GIPA/MIPA Principles and Adherence Support Programs






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    GIPA/MIPA Principles and Adherence Support Programs GIPA/MIPA Principles and Adherence Support Programs Presentation Transcript

    • Supporting Sustainable Adherence to HIV Prevention, Care & Treatment
      ICAP Technical Workshop
      October 19-22, 2009Kigali, Rwanda
      GIPAGreater Involvement of People Living with HIV/AIDS
      MIPAMeaningful Involvement of People Living with HIV/AIDS
      Robert Remien, PhD; Professor of Clinical Psychology
      Monday, October 19, 2009
    • What is GIPA/MIPA?
      It is a principle that aims to realize the rights and responsibilities of people living with HIV, including their right to self-determination and participation in decision-making processes that affect their lives.
      In these efforts, GIPA/MIPA also aims to enhance the quality and effectiveness of the AIDS response, as countries scale up their national AIDS responses to achieve the goal of universal access to prevention, treatment, care and support services.
    • Why is GIPA/MIPA important?
      PLWHA have directly experienced factors that make people vulnerable to HIV infection, and HIV-related illnesses and the strategies for managing them; thus they have expertise.
      When communities are proactively involved in ensuring their own well-being, success is more likely – for themselves and their peers.
    • Roles for PLWHA
      Campaigns & public speaking
      Policy-making process
      Leadership and support (networking)
      Treatment roll-out and preparedness
      Program development & implementation
      Personal involvement in their own health
    • Advocacy
      Inclusion in the research agenda
      Law reform
      Access to services: treatment, care, and support
      Resource mobilization
    • Campaign & Public Speaking
      Increase visibility
      Support for others who are isolated
      Peer education
      Reduce stigma
    • Policy Making
      People living with HIV participating in the development and monitoring of HIV-related policies at all levels
    • Leadership & Support
      People living with HIV can provide leadership:
      HIV support groups or networks
      seeking external resources
      encouraging participation of new members, or
      simply participating by sharing their experiences with others
    • Treatment Rollout & Preparedness
      People living with HIV support treatment roll-out through educating others on treatment options, side effects and adherence, and can be involved as home-based and community health-care workers
      “Peer Education”
      “Peer Support”
    • Program Development & Implementation
      People living with HIV can provide knowledge and skills towards universal access through participation in the governance of global organizations such as UNAIDS and the Global Fund and in the choice, design, implementation, monitoring and evaluation of prevention, treatment, care and support programs, and research.
      “Advisory Boards” and other Meaningful Roles to play
    • Personal
      They can take an active role in decisions about their own treatment, self education about therapies, opportunistic infections and adherence, and positive prevention.
      This can be taken and disseminated in their families and in their communities.
      As “role models”
      As “advocates:” information, motivation, skills, support