Care.data 17 09-13
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Care.data 17 09-13

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Care.data 17 09-13 Care.data 17 09-13 Presentation Transcript

  • Building choice of high quality support for commissioners care.data High quality care for all: now and for future generations Dee Moore Intelligence Specialist September 2013 1
  • care.data - Agenda • NHS Changes • What is care.data • Reality • Why care.data? • Starting point • Growth • Information Governance & Confidentiality • Data Pipes • Forward Timeline
  • The NHS is changing Francis Report Recommendations (2013) http://www.midstaffspublicinquiry.com/sites/default/files/report/Executive%20summary.pdf “Develop and share ever improving means of measuring and understanding the performance of individual professionals, teams, units and provider organisations for the patients, the public, and all other stakeholders in the system.” “A coordinated collection of accurate information about the performance of organisations must be available to providers, commissioners, regulators and the public, in as near real time as possible, and should be capable of use by regulators in assessing the risk of non-compliance. It must not only include statistics about outcomes, but must take advantage of all safety related information, including that capable of being derived from incidents, complaints and investigations.” “If the culture of those engaged in and with the NHS is to change, information must be made available about the performance and outcomes of the service provided to enable patients to make treatment choices and have a proper understanding of the outcomes for them.” We thought we had taken steps to improve the patients’ perception of the hospital care. Accordingly, when we saw the results, we were looking at historic information. How could we measure such feedback when the data was so old? The Francis Report, (February 2013) “All our data is secondary use; none of it is used for the purpose for which it was collected. When it comes to the big data collections, their quality and uptake, we have found that one of the most important levers is giving people who entered the data the chance to see it.” The Round Table Report, (February, 2013)
  • What is care.data? • care.data is a modern knowledge service which will provide comprehensive, timely and accurate data for: • Patients, carers and the public • Health, care and health professionals • Providers, commissioners, researchers, regulators
  • TextText World class data Open Outcomes Patient Voice and Insight Customer choice and control Transparency Participation Securing a world class health service High quality care for all 5
  • And what does this mean in real terms?
  • Trying to join the dots
  • Joining the dots further Pregnancy Letters Scan Miscarriage GP Stressful period
  • Why? • To avoid mistakes of the past and improve patient care • the elimination of variation in the quality and equity of services provided across the country • the identification of wasteful duplications • in service and gaps in care • the detection of systemic failings
  • Why? (continued) • monitoring of outcomes • trends over time • comparisons of different patient pathways • the development of predictive models • Visibility of where NHS has been under-investing in different areas of the country, in different groups of people, and in different diseases and conditions.
  • Our starting point for world class data • Hospital Episode Statistics (HES) • world-class data warehouse containing details of all hospital activity in England • In operation since 1989 • Primary purpose is healthcare analysis for the NHS and government • Invaluable research tool Dame Edith Körner (1921-2000)
  • UNCLASSIFIED
  • NHS England is commissioning the care.data programme on behalf of the ISCG All parts of the English health and care system support the modernisation of care through the better use of data and technology The role of the ISCG is to commission services within an agreed strategic framework; and then to monitor delivery against set objectives
  • The care.data programme is designed to comply with the highest standards of information governance: Human Rights Act NHS Constitution Data Protection Act Health & Social Care Act 2nd Caldicott Review
  • Five outbound flows of data from CES Health and care providers Health and Social Care Information Centre Statutory Disclosures e.g. s251 Patient Health Services Researchers Providers, Com missioners, Publ ic Health England etc. Published data
  • care.data patient data flows • Patients have three options: HSCIC data recipients 2. Block their primary care data being extracted from their GP practice but consent to other data to flow from HSCIC (e.g. hospital data) GP practice 3. Block their primary care data being extracted from their GP practice and block other data flowing from HSCIC (e.g. hospital data) 1. DEFAULT: Consent to their primary care data being extracted from their GP practice and consent to their data flowing from HSCIC 1 2 3
  • care.data in progress Current Phase 3 Phase 2 Phase 1 • GP data • Mental health data • Detailed hospital data • Clinical audit data • Disease registry data • Community health services data • Social care data 2012/13 2013/14 2014/15 2015/16 Current position: Local initiatives and national registers operate largely in isolation Potential benefits from prescribing in care homes and home monitoring. Some leading hospital sites capture detailed data Patients with LTCs in active participation. Leading hospital sites’ prescribing results. Work with social care data pioneers. Patients with access e.g. to pathology results.
  • Resources Website www.nhs.uk/caredata On-line toolkit with Patient FAQs Look in your GP practice for patient leaflets and posters