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MoM2010: Clinical Informatics
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MoM2010: Clinical Informatics

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  • 1. Clinical Informatics
    Clinical Research (Registries)
    Ms. ShaziaNazSubhani
    Head- Registries Core Facility
    Technical Specialist
    Biostatistics Epidemiology & Scientific Computing Department
    King Faisal Specialist Hospital & Research Center
    ssubhani@kfshrc.edu.sa
  • 2. Presentation Overview
    • About King Faisal Specialist Hospital & Research Center
    • 3. Clinical Research
    • 4. The Importance of Research Data
    • 5. Trends in Health Research
    • 6. Web-Based Registries
    • 7. Geospatial Analysis (GIS)
    • 8. Examples
    • 9. What are we trying to achieve?
    • 10. SuperView
    • 11. SuperWeb
  • King Faisal Specialist Hospital & Research Center
    Riyadh, Saudi Arabia
    KFSH&RC is a multi-facility, multi-entity tertiary care hospital and one of the leading healthcare institutions in the Kingdom of Saudi Arabia. 
    The mission is to provide medical services of highly specialized nature and promote medical research and education programs, including postgraduate education training, as well as to contribute towards the prevention of various diseases.
    http://www.kfshrc.edu.sa
  • 12. Importance of Research Data
    • Research provides a road map for customizing, tailoring, and individualization of opportunities.
    • 13. Research is essential to guide improvements in health systemsand develop new initiatives.
    • 14. Improving knowledge and understanding
    • 15. Spin-off research projects
    • 16. Health planning
    • 17. Resource allocation
    • 18. Evaluation of clinical and public health programs
    • 19. Cluster investigation
  • Trends in Health Research – Clinical Registries
    Web-Based Registries
    • National Cancer Registry
    • 20. National Diabetes Registry
    • 21. National Congenital Heart Defects Registry
    • 22. National Epilepsy Registry
    • 23. National Neural Tube Defects Registry
    • 24. National Family Safety Registry
    • 25. Pan Arab Liver Transplantation Registry
    Maps
    Several other hospital based registries
    • Cleft Lip/Palate and Craniofacial Anomalies
    • 26. Thromboembolic Disorders
    • 27. Neuromuscular Diseases
    • 28. Venous Thrombosis and Familial Thrombophillia
    Data Entry
    Data Updates
    Search Results
    Charts
    Data Export
    Statistical Reports
    Data Auditing
  • 29. Hospital - 1
    Web Server
    Hospital - 2
    Hospital - 3
    Database
    Data Centralization
    • Data Entry/Updates
    • 30. Search Engine
    • 31. Charts Generation
    • 32. Reports Generation
  • Web-based clinical registries software offers an anytime-anywhere access to the centralized data, removing geographical boundaries and allowing easy extension of a registry collaboration with national & international health facilities
  • 33. Geospatial Analysis – Saudi National Diabetes Registry
    • Phase I : Riyadh region with 27 participating hospitals.
    Patient’s Count
    Patient’s Count
    (Live Data)
  • 34. Single patient information
    List of all patients in Al Kharjcity
    Geospatial Analysis – Saudi National Diabetes Registry
  • 35. Geospatial Analysis – Saudi National Diabetes Registry
    Designed web-interface for the Saudi National Diabetes Registry.
    Live data projection as maps with the help of ESRI ArcIMS 9.3.1
  • 36. Retinopathy Distribution among Diabetic Patients
  • 37. Regular Insulin - Distribution among Diabetic Patients
  • 38. Geospatial Analysis – Age Distribution of Diabetic Patients
  • 39.
    • Easy to query using the query tool from the “Tool Menu” or using the user defined query engine.
    • 40. Customizable
    • 41. Map Tools
    • 42. Layers
  • 43. Health Research data has needs of evaluation, reporting, mapping and presentation in a way that:
    • secures the privacy and confidentiality of data
    • 44. assists policy and decision makers to
    • 45. make accurate and timely decisions
    • 46. allocate required resources
    • 47. take necessary measurements to address health problems.
    What are we aiming to achieve?
  • 48. National Center for Health Statistics
    Vision Statement: The National Center for Health Statistics (NCHS) will expand the availability of research data for dynamic analysis and reporting using high technology platforms.
    Geographical distribution of data as maps along with tabulations and charting will be available with data filters for narrowing down the inquiries supporting important decisions.
  • 49. Objectives - National Center for Health Statistics
    • To provide a unique real time statistical platform for researchers and health administrators that will assist them in making sound decisions.
    • 50. To provide state of the art repository of information on various disease registries and national projects.
    • 51. To make available the non-identifiable health research data for browsing and queries.
  • National Center for Health Statistics – Undergoing Project
  • 52. Our imagination is the only limit to what we can hope to have in the future.
    ~ Charles F. Kettering
    Ability is of little account without opportunity
    ~ Napoleon
  • 53. KFSH Register Data SuperVIEW Demo – for Public
  • 54. KFSH Register Data SuperVIEW Demo – for Public
  • 55. KFSH Register Data SuperVIEW Demo – for Public
  • 56. KFSH Register Data SuperVIEW Demo – for Public
  • 57. KFSH Register Data SuperVIEW Demo – for Public
  • 58. KFSH Register Data SuperVIEW Demo – for Public
  • 59. KFSH Register Data SuperVIEW Demo – for Public
  • 60. KFSH Register Data SuperWEB Demo – for Researchers
  • 61. KFSH Register Data SuperWEB Demo – for Researchers
  • 62. KFSH Register Data SuperWEB Demo – for Researchers
  • 63. Registries Core Facility Web-site: http://rc.kfshrc.edu.sa/rcf
    Some useful demos of Superview: http://superstar.spacetimeresearch.com
  • 64. Conclusion
    • Enterprise Reporting
    • 65. Management Automation
    • 66. System-Wide Modifications
    • 67. Quick Measuring of Data
    • 68. Timely Decision Making
    • 69. Win, win situation for all collaborators
  • Thank you