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European Information Sources On Social Care In Europe


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Selected Information Sources …

Selected Information Sources
on Social Care in Europe
Julie Robinson, Social Care Institute for Excellence, December 2009
A 'mind map ' of key websites and resources for information workers

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  • 1. Selected Information Sources on Social Care in Europe Julie Robinson, Social Care Institute for Excellence, December 2009 Principal academic centres and researchers Other organisations Databases Portals Journals Principal academic centres and researchers Sweden CHESS (Centre for Health Equity Studies) CHESS is where researchers from sociology, psychology and public health sciences work together on issues of health and inequality. "We who work at CHESS are devoted to the study of social determinants of health. We want to understand how human society acts as a life-long determinant of health, and hope that this understanding will provide a better basis for reducing health inequalities." Several databases are available at CHESS. "Health, Sickness, Income and Work (HSIA)" with register data containing patient care, "The Stockholm Birth Cohort Study (SBC)" with both survey and register information for 50 years on a cohort born in 1953, as well as "The Uppsala Birth Cohort Multigenerational Study (UBCoS)" including data on five generations. Those who are interested to use these databases outside of CHESS may contact the project leader responsible for each database. Provides a useful bibliographical publications list. Details research projects - ongoing and completed. Institute for Evidence Based Social Work (IMS) The primary task of the Institute for Evidence-Based Social Work Practice, IMS, is "to work to promote the constant development of methods and work forms within social services by means of systematic consideration and assessment of the results and effects of social work for clients, users, relatives and society in general. Its objective is for social work to be founded on the best knowledge available in order to promote the best interests of its clients and users." ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 2. Europe European Centre for Social Welfare Policy and Research The European Centre is a UN-affiliated intergovernmental organisation concerned with all aspects of social welfare policy and research. On the website you find information about projects, events, websites from 2003 - 2008, and book series, enriched with downloads, cross-references and external links. You may access the information via Research Areas too. This allows you to view the latest research results and identify suitable contacts. Highlights include: policy briefs; EuroSocial report series (high level policy discussion); conference proceedings and individual articles. EUROFAMCARE An EU funded research project -Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage. It provides national background reports for over twenty countries (in English). Comprehensive, but concise. Fully referenced. European Observatory on Health systems and policies The Observatory ‘supports and promotes evidence- based health policy- making through comprehensive and rigorous analysis of the dynamics of health care systems in Europe. ‘The Observatory is a partnership between the World Health Organization Regional Office for Europe, the Governments of Belgium, Finland, Norway, Slovenia, Spain and Sweden, the Veneto Region of Italy, the European Investment Bank, the World Bank, the London School of Economics and Political Science (LSE), and the London School of Hygiene & Tropical Medicine (LSHTM). Although focused on health, documents published on the site are often relevant to social care or include sections on social care. Country profiles include finance and reform as well as shorter sections on social care and shorter at-a-glance- summaries. Country information provides in depth reports on individual countries and links to websites and publications providing overviews of the health and social security system in that country. Increasingly, the Observatory publishes information from non- European countries as well. ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 3. France Agence Nationale de l'evaluation et de la qualitie des etablissements et services sociaux et medico-sociaux France’s national agency for evaluating the quality of social services and medico-social services. ANESM is and SCIE have signed an Entente Cordiale on social care good practice. The international concordat looks at how two similar organisations, using the best available international knowledge and evidence, can work together as key players in the drive to improve quality in social care services. ANESM and SCIE are counterpart organisations. Site in French. INSERM Created in 1964, the French National Institute for Health and Medical Research (INSERM) is a public scientific and technological organisation. Overseen jointly by the French Ministries of Research and Health, INSERM's vocation is to promote health for all.The site is in French. IRDES IRDES' primary mission is to provide high quality independant research and reliable information for guiding national health policy. IRDES’ multidisciplinary team monitors and analyses health policies and behaviours of consumers and health care providers from economic, medical, geographical and international perspectives. Part of the site is in English. Look out for the English French Glossary of health economics. Finland National Institute for Health and Welfare The National Institute for Health and Welfare was formed from a merger of STAKES and the National Public Health Institute (KTL) in 2009. A new website. At time of going to press, most of the information is currently on the STAKES and KTL websites. See below 1.6.2 and 1.6.3. National Public Health Institute (KTL) Provides information on research projects and bibliographical lists, but few downloadables. ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 4. STAKES STAKES (Knowledge for welfare and health) is an expert agency in Finland whose key functions are research, development and statistics. Norway NOVA -Norwegian Social Research NOVA is one of the largest social research institutes in Norway. It conducts research on different aspects of society and the welfare state. Nova focuses on the whole range of the life course: from the early years to the later life. Themes include: children and child welfare; youth; aging; migration and minorities; living conditions and welfare services; and social security and social policy. The research is centered on Norwegian society, but international projects form a growing and important addition. On this website you will find presentations of research results and information about publications, projects, and NOVA’s researchers. NORDIC NOMESCO The Nordic Medico-Statistical Committee (NOMESCO) was set up in 1966, following a recommendation by the Nordic Council. In 1979, it became a permanent statistical committee under the Nordic Council of Ministers with separate fundings from the Nordic Committee on Social Policy and a permanent secretariat in Copenhagen. Mainly health orientated, the database links to downloads of social and health indicators. Other publications available from the main site are for purchase. This site could be useful forobscure, quick health statistics. Nordic Centre for Welfare and Social Issues (NVC) The Nordic Centre for Welfare and Social Issues - NVC, is an institution within the social and health sector of the Nordic Council of Ministers. NVC has its headquarters in Stockholm and an office in Malmö. Its affiliated institutions consist of NVC Denmark, based in Dronninglund, Jylland, and NVC Finland, based in Helsinki. NVC is an amalgamation of the Nordic Cooperation on Disability (NSH), the The Nordic Educational Programme for the Development of Social Services (NOPUS), the Nordic Staff Training Centre for Deaf & Blind Services (NUD) and the Nordic Council for Alcohol & Drug Research (NAD). The Nordic Centre for Walfare and Social Issues is tasked with enhancing the quality of the social policy sphere in the Nordic region and adjacent areas by ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 5. means of education, information, support for research cooperation, development work, network establishment and international work. The efforts of the NVC will assist in developing the Nordic welfare model and will strengthen Nordic cooperation. social-Issues---NWC/ Nordic Cochrane Centre The Nordic Cochrane Centre (NCC) is an independent research and information centre that is part of The Cochrane Collaboration, an international network of individuals and institutions committed to preparing, maintaining, and disseminating systematic reviews of the effects of health care. SFI Campbell Established in 2002, SFI Campbell (formerly Nordic Campbell Centre) is a subsidiary of SFI the Danish National Centre for Social Research with an independent board and its own budget. SFI Campbell is the first regional centre in the international Campbell collaboration. The centre works with evidence and measuring of effects of social welfare interventions. The centre supports the integration of research, policy and practice in the social welfare area. One of its aims is to provide a link for Nordic networks of researchers and users. ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 6. Denmark SFI: Danish National Institute of Social Research The Centre conducts research and carries out commissioned projects in the area of welfare state policies. The Centre is a sector research institution under the aegis of the Danish Ministry of Social Affairs. Its primary focus is therefore on matters concerning the Ministry, but it also deals with wider issues such as, employment, integration and labour market conditions, economic and family-related issues, and other national and international social conditions and development trends of significance to the living conditions of the population. Published research on the website includes over 100 working papers as well as report abstracts and some research publications. See also : SFI Campbell UK Campbell Collaboration Modelled on the Cochrane Collaboration, the Campbell Collaboration is ‘an international research network that produces systematic reviews of the effects of social interventions’. The library is a searchable database providing online access to summaries (‘title proposals’) of systematic reviews which enable you to evaluate the scope of the review, the appropriateness for the Campbell Collaboration, and any possible overlap with existing registered reviews. Some reviews also provide the protocol and/or full text of the review report. As with the Cochrane library (see 2.8), the sytematic reviews sometimes contain European literature in a pre-digested form, so it may be worth identifying such reviews at an early stage of your search. Cochrane Library The Cochrane Library includes the Cochrane Central Register of Controlled Trials, Cochrane Database of Abstracts of Reviews of Effects, and Cochrane Database of Systematic Reviews. Although primarily evidence-based medicine resources, some are relevant to, or overlap with, social care. As with the Cambell collaboration (see 2.4), the sytematic reviews sometimes contain European literature in a pre-digested form, so it may be worth identifying such reviews at an early stage of your search. ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 7. Other organisations European Information Association A non-profit-making organisation with charitable status, the EIA is a professional body for librarians and information specialists. It aims to ‘provide not only access to information about the EU, but also to expertise in its workings, so that our members, their users, and other interested parties can benefit from gaining a clearer picture of what the EU is and how it works.’ The European information Association website ( gives useful help and guidance on searching for European Information, including the key European databases. The Association also offers training on searching for European Information. KELA Kela – The Social Insurance Institution of Finland. This is the provider of social security benefits for all residents of Finland. As well as information on social services, the site includes some research reports. Norwegian Board of Health supervision The Norwegian Board of Health Supervision is a national public institution operating under the aegis of the Ministry of Health and Care Services. The English pages contain useful information about organization and supervision of Norwegian health and social services. This gives an overview of health and social services, a list of links to the most important government bodies in the fields of health and social services, and links to reports (mainly high level government strategy documents) in English. More and more information in English will be added to the website later, so probably worth bookmarking for future reference. Source OECD Launched in 2000, Source OECD is the OECD's (Organisation for Economic Co-operation and development) Online Library of Statistical Databases, Books and Periodicals for which, you will need to subscribe. The OECD is one of the world's largest and most authoritative sources of comparable statistics and economic and social data. As well as collecting data, OECD monitors trends, analyses and forecasts economic developments. It also researches social changes and emerging trends. The online library offers access to all OECD books, reports, annuals, working papers, loose-leaf binders, periodicals and 34 statistical databases. ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 8. Databases CODES (COnnaissances et Décision en EConomie de la Santé) The first francophone database dedicated to health economics evaluation. CODES is the French equivalent to NHS EEDS. Indeed, CODES was inspired by NHS EEDS. It aims to list all published studies in the field of economic evaluation of health care technologies in the French context (more than 820 articles), analyse them and to provide free access to the information. The data base has two types of studies. Firstly, the studies which examine and relate costs and results are known as "full evaluations". These are presented with an abstract, written by the CODECS research assistants and then validated by experts. Secondly, the "partial studies" examine only one of the following elements: costs, results or methodology. Available in French and English. DEFF (Denmark's Electronic Research Library) Provides access to journals, a research project database, global e- prints and information gateways. Over 6,000 documents in the Research database are open access (i.e. unrestricted access to the full text article). ECLAS: European Commission Library Catalogue The European Commission's central library was established in 1958 when the EU institutions were founded. It covers a wide range of subjects relating to European integration, European Law and politics, and many works relating to the Member States. The collections consist of almost all official publications of the EU. It also has extensive collection of publications of international organisations such as the UN, OECD, World Bank. Approximately 505,000 volumes are held by the Library. One of the catalogue’s strengths is the large number of articles selected from the 2,500 periodicals to which the library subscribes. ERA-AGE European Research Area in Ageing (ERA-AGE) is a five year project funded by the European Commission, under the Sixth Framework Programme. The ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 9. aim of ERA-AGE is to ‘promote the development of a European strategy for research on ageing and, thereby, to enable Europe to gain maximum added value from investment in this field’. The sites hosts a database of research programmes and research centres on aging in the European Union. Health policy monitor The International Network Health Policy & Reform was initiated and set up in 2002. Every six months, health policy experts report and comment on five or more health policy trends and developments from their countries. Criteria for inclusion of issues in any survey round are innovation, potential impact on the status quo of a health care system, and transferability to other health care systems. To date, more than 800 comprehensive reports can be looked up in the online database. The ‘search for reforms’ button is good for specific aspects or topics of health policy reform. Your search can be triggered by countries, health policy issues, process stages (from inception to implementation and evaluation), key actors, date of report, and ratings. NARCIS NARCIS (National Academic Research and Collaborations Information System) is a Dutch national database which, provides access to 247,560 scientific publications (184,102 of which are open access publications), 6,403 data sets, and information on researchers (expertise), research projects and research institutes in the Netherlands. It includes DAREnet and the national Dutch research database (NOD) in one portal. SIGLE (Pre-2005 only) SIGLE (System for Grey Literature in Europe) is an open access to SIGLE bibliographical references of reports and other grey literature (GL) produced in Europe which began in 1980. OpenSIGLE is a multi-disciplinary database covering pure and applied science and technology, economics, other sciences and humanities. The records are in English. They include bibliographical data, the SIGLE classification codes (cf. Full Subject Category List) with their wording, and possibly an English summary. It also provides information on the availability of the document and the conditions of access from each supply centre. NB. Sadly, this database stopped adding new material in 2005. ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 10. Social Care Online Produced and maintained by the Social Care Institute for Excellence, Social Care Online is the UK's most extensive free database of social care information. The subject coverage is very wide ranging from criminal justice to social policy to mental health and well as allaspects of social care services. There are over 110,000 abstracted records, including in-depth abstracts to systematic reviews. Social Care Online indexes 278 current journals and has also indexed a number of other journals which have ceased publication. Content of the database originates from the catalogue of National Institute for Social Work library and includes resources dating from the 1980s. Abstracted articles from key social work journals, such as the British Journal of Social Work, and defining texts, by authors such as John Bowlby (Attachment Theory), which were published in the 60s and 70s can also be found on Social Care Online. The UK is the main focus, but it does include information on many countries, especially comparative studies which include the UK. Where possible a URL link is provided to enable direct online access to a free full text document. WHOLIS The library catalogue for the World Health Organisation. Provides full text links to some material. Portals Europa EUROPA - the gateway to European Union information .This is the official portal to the European Union in a range of languages. It provides up-to-date coverage of European Union affairs and essential information on European integration. Users can also consult all legislation currently in force or under discussion, access the websites of each of the EU institutions, and find out about the policies administered by the European Union under the powers devolved to it by the Treaties. One of the busiest websites in the world, it is the main source of official information on the EU. Although there is much material available, it is not always clear which source you should use or how information can be found. The European information Association website ( gives useful help and guidance on searching for European Information, including the key European databases. European Commission Research These European research websites have lots of information on research studies, only some of which relate to social care: a minefield, but difficult to ignore. ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 11. Health EU Health-EU is the official public health portal of the European Union. It is very health orientated, but does have some social care information (e.g. carers, mobility, long-term conditions). Intute This is a gateway to subject catalogues with links to high quality Internet sites, selected and described by specialists from within British academia. The portal has a UK focus, but is still worth looking at for European sources/links. Nordically Yours is a portal for information and news about health, social welfare and well-being, work- and education related issues in the Nordic countries. The portal shows the benefits of Nordic cooperation around important social issues. The name ”NordicAlly” stands for both the Nordic perspective and Nordic cooperation. Portal health agencies in France A useful starting point for health information in France. This site is in French. TEL (The European Library) The European library searches the content of 48 European national libraries from Albania to the Ukraine. The information is available in 35 languages. Resources can be both digital (books, posters, maps, sound recordings, videos, etc.) and bibliographical. Quality and reliability are guaranteed by the 48 collaborating national libraries of Europe. Since it went live in 2005, the European Library exists to open up the universe of knowledge, information and cultures of all Europe's national libraries. Journals All the journals below have some European content (not necessarily in every issue). In addition, they are all selectively abstracted and indexed on Social Care Online. While SCO collects core material from the UK, it does collect non-UK material if: ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 12. • the subject matter is not well covered in UK literature • it is a comparative study • it contains topics of relevance to the UK • it contains overviews of the situation in other countries. You can search by journal title under the intermediate search function. ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 13. Aging and Society Ageing and Society is an interdisciplinary and international journal devoted to publishing papers which further the understanding of human ageing. It draws contributions and readers from a broad spectrum of subject areas. In addition to original articles, Ageing and Society features an extensive book review section, review symposia, a section of abstracts of relevant articles in other journals, special issues on important topics and progress reports on specified research areas. British Journal of Guidance & Counselling British Journal of Guidance and Counselling mainly publishes research in the following areas: the theory and practice of guidance and counselling; the provision of guidance and counselling services, and; training and professional issues. Theoretical and empirical studies relating to the practice of guidance and counselling are reported, drawing on a variety of disciplines, encompassing both quantitative and qualitative methodologies, and ranging in scope from large-scale surveys to individual case-studies. The journal also explores the links between various areas of guidance and counselling and their relationship to such cognate fields as education, psychotherapy and social work. British Journal of Occupational Therapy The British Journal of Occupational Therapy is the official journal of the College of Occupational Therapists. Its purpose is to publish contributions of papers relevant to theory, practice, education, management and research in occupational therapy. Child Abuse & Neglect-The international Journal Child Abuse and Neglect provides an international, multidisciplinary forum on all aspects of child abuse and neglect including sexual abuse, with special emphasis on prevention and treatment. The scope extends further to all those aspects of life which either favour or hinder optimal family interaction. Contributions are primarily from the fields of psychology, psychiatry, social work, medicine, nursing, law, law enforcement, legislation, education and anthropology. Child: care, health and development This peer reviewed journal publishes papers dealing with all aspects of the health and development of children and young people. Coverage includes: the health of children and young people; physical, psychomotor, emotional and social development; social and environmental factors, including the family, affecting health and development; the evaluation of specific interventions for children and government policies and the organisation of services. Community Work & Family ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 14. The aims of Community, Work & Family are: to publish theoretical, research- based, policy and practical contributions in the growing area of community, work and family and their interface; to provide an international forum for debate in the field and reflect the range of approaches to community, work and family in different contexts, by encouraging contributions from academics and practitioners from around the world; to foster the development of theory, research, policy and practice; to highlight the experiences of those members of communities, organisations and families whose voices are seldom heard; to encourage critical examination of existing frameworks and practices to promote research which employs methods with the potential to lead to social action. European Journal of Social Theory This journal aims to bring together social theorists and theoretically-minded social scientists with the aim of ‘making social theory relevant to the challenges facing the social sciences in the 21st century.’ European Journal of Social Theory's definition of social theory is wide-ranging including many varieties of contemporary social and political thought from critical theory to postmodernism to the sociology of knowledge. European Journal of Social Work The European Journal of Social Work publishes refereed papers on key contemporary issues in social policy, social service institutions and strategies of social change. The focus is primarily European, but major international contributions are also published. The Journal aims to reflect the diversity of cultural and conceptual traditions in which the social professions in Europe are grounded. At the same time it seeks to examine emerging European paradigms in methodology and comparative analysis. This journal now incorporates the journal "Social Work in Europe" from 2003 onwards. Evaluation -The International Journal of Theory, Research and Practice Evaluation encourages dialogue between different evaluation traditions such as program evaluation, technology assessment, auditing, value-added studies, policy evaluation and quality assessment. Evaluation is interdisciplinary, bringing together contributions from across the social sciences and related disciplines, including, but not limited to: politics, economics and public administration; psychology, sociology and anthropology; education, health and law; information science and information technology. Journal of European Social Policy ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 15. The journal covers a wide range of social policy issues from a Europe-wide perspective. Subjects include: ageing and pensions, benefits, family policy, gender, health care, HIV/AIDS, international organisations, migration, poverty, professional mobility, unemployment and the voluntary sector. Evaluation -The International Journal of Theory, Research and Practice Evaluation encourages dialogue between different evaluation traditions such as program evaluation, technology assessment, auditing, value-added studies, policy evaluation and quality assessment. Evaluation is interdisciplinary, bringing together contributions from across the social sciences and related disciplines, including, but not limited to: politics, economics and public administration; psychology, sociology and anthropology; education, health and law; information science and information technology. International Journal of Social Research Methodology This journal aims to provide: a focus for ongoing and emergent methodological debates across a wide range of social science disciplines and substantive interests; an international medium for the discussion of social research methodology across a range of approaches, as these relate to practical, theoretical, ethical, political, epistemological and philosophical issues; a forum for researchers and practitioner-researchers to consider methodological issues as these relate to research practice in a range of professional and service settings and sectors; a base for the dissemination of information about events and book publications in the broad field of social research. International Journal of Social Welfare (former title: Scandinavian Journal of Social Welfare) This journal aims to encourage debate about the global implications of the most pressing social welfare issues of the day. Its interdisciplinary approach will promote examination of these issues from the various branches of the applied social sciences and integrate analyses of policy and practice. International Social Work International Social Work is a scholarly refereed journal aimed at extending ‘knowledge and promote international exchange in the fields of social work, social welfare and community development. ‘ Its main focus is on ‘the interaction between processes of globalisation and the development of social welfare at national level, as well as social work and community development locally. It aims at examining the meaning of international social work in practice and theory, and exploring how those concerned with social work and community development can engage with ©Julie Robinson, Social Care Institute for Excellence. November 2009
  • 16. international issues.‘ The journal would also like to encourage comparative studies and cross-national research. Journal of European Social Policy The journal covers a wide range of social policy issues from a Europe-wide perspective. Subjects include: ageing and pensions, benefits, family policy, gender, health care, HIV/AIDS, international organisations, migration, poverty, professional mobility, unemployment and the voluntary sector. Journal of Interprofessional Care The Journal of Interprofessional Care promotes collaboration within and between education, practice and research in health and social care. It provides a channel to communicate ways in which interprofessional education can cultivate collaboration in practice which can, in turn, improve the quality of care for individuals’ families and communities. It treats research as both a collaborative field in its own right and as a means to evaluate interprofessional education and practice. Journal of Social Welfare & Family Law This journal provides interdisciplinary coverage of a wide range of issues pertaining the implementation of social policy and how this affected by legal developments, particularly in the fields of social work, law, probation and health care. ©Julie Robinson, Social Care Institute for Excellence. November 2009