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  • 1. A tribute to my fellow zebras and spreading awareness
    • By Vanessa Balter
    When you hear hoof beats think ZEBRA!!!
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  • 6. Some info about EDS
    • There are several types of eds, the most common being hypermobile, classical, and vascular.
    • EDS affects 1/250,000 people
    • There is NO cure, and no real treatment for Ehlers Danlos Syndrome
    • The vascular type is the most deadly form of eds
    • The connective tissue holding the joints together turns into a gum like structure instead of like a rubber band
  • 7. Symptoms and Tests
    • The most common symptoms of EDS are: joint laxity, subluxations, dislocating, stretchy skin, easy bruising, poor wound healing, organ rupture, and severe pain
    • To Diagnose Vascular EDS there is a blood test and a skin biopsy, the other forms are harder to diagnose, they use a scale called the Beighton Scale to diagnose hypermobility and classical.
  • 8. The Beighton Scale
    • The scale goes up to 9 points
    • In order to get a diagnosis you must get a score of 5 or higher
    • Touching thumb to forearm for each hand you get 1 point
    • Pulling pinky back past 90 degrees 1 point for each hand
    • Hyper extending elbow past 180 degrees 1 point for each arm
    • Hyper extending knees back past 180 degrees 1 point for each leg
    • Touching your palms to the floor WITHOUT bending your knees.
  • 9. In loving memory Steven Smith 5/8/79 - 3/12/03 Pam Windisch 11/9/61 - 10/7/09 J. Marlon Finley 3/31/54 - 1/18/2004 David Daniel Bowen III 3/21/82 - 7/8/96 James Early Barlow Jr 10/25/45 - 12/12/94 Josh Doss 7/14/70 - 1/30/98
  • 10. YOU ARE NEVER ALONE
    • LOOK AT ALL THE BEAUTIFUL PEOPLE WHEN YOU FEEL ALONE IN THE WORLD
    • I LOVE YOU ALL SO MUCH!!!!
    • YOU ARE ALL BEAUTIFUL PEOPLE
    • YOU’VE HELPED ME KEEP GOING ON AND I AM HERE FOR YOU
    • WE WILL NOT STOP FIGHTING UNTIL WE FIND A CURE!!!! STAY STRONG!!!!!
  • 11.
    • I wish
    • I wish I could stand up and talk while going on a walk
    • I wish I could brush my hair without having my shoulders flare
    • I loved to mountain climb, but sadly long ago was my last time
    • Living in a bed is so sad, just thinking about it makes me so mad.
    • No one believes the pain, in my life there is only rain.
    • “ you look fine” people say, well don’t judge because im not OK
    • constantly living life on the sideline, has really took a toll on my mind
    • dislocating, scarring, sublixin this is all just so much to take in
    • The pain is so bad I feel like crying, sometimes I feel like my hope is just dying
    • no matter how old eds can have you sold
    • why have you given me this body as my tent, is there any way I can put it up for rent?
    • Already had depression, having eds certainly does not make it lessen.
    • I wish I could live life as a “normal” college kid, feelings of helplessness are rid
    • Oh eds the weight you bear is a ton, there is no time in life for fun
    • Why did you have to come to me, leave me alone and let me be free
    • One day free of pain, when maybe the sun could shine in my life, and no rain
    • Just once I want to experience that day, there isn’t anything I wouldn’t pay
    • To all of my eds friends, im always here for you with a shoulder to lend
    • On days when you feel like throwing the towel in, im here for you through thick and through thin.
    • A poem by Vanessa Balter
  • 12. THANK YOU ALL FOR WATCHING REMEMBER YOU ARE NEVER ALONE YOU ARE ALL SO BEAUTIFUL TO ME LOVE ALWAYS AND FOREVER ~ your fellow zebra Vanessa Balter