Fox Valley Sibling Support Network - What is that?

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This short presentation gives an overview of what this 501c3 not for profit organization does for people who have siblings with special needs.

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Fox Valley Sibling Support Network - What is that?

  1. 1. Harriet Redman Executive Director Established in 1998 as a 501(c) 3 tax exempt organization. Dedicated to the interests of brothers and sisters of people with special needs. Sally Randa Adult Sibling Coordinator
  2. 2. FVSSN Mission <ul><li>To create the opportunity for individuals who have brothers and sisters with special needs to thrive throughout their unique lifelong journey. </li></ul>
  3. 3. Needs of Siblings <ul><li>INFORMATION about their sibling </li></ul><ul><li>OPEN COMMUNICATION </li></ul><ul><li>RECOGNITION of their role </li></ul><ul><li>QUALITY TIME with parents </li></ul><ul><li>CONTACT WITH OTHER SIBLINGS AND SUPPORT </li></ul><ul><li>WAYS TO COPE with stressful events, unexpected disruptions to family plans, and extra responsibilities </li></ul><ul><li>UNDERSTANDING for their altered lives, their pressures and acknowledgement of the difference in their families </li></ul><ul><li>TRAINING to help care for, teach and play with their sibling. </li></ul><ul><li>COUNSELLING if necessary, to share feelings and resolve issues. </li></ul>
  4. 4. What does the Fox Valley Sibling Support Network do? <ul><li>Provides information on sibling issues </li></ul><ul><li>Provides training for FVSSN Sibshop facilitators and other interested individuals </li></ul><ul><li>Plans and operates Sibshops, Sib Camps, Adult Sibling conferences and other sibling events for children, teens and adults </li></ul>
  5. 5. FVSSN Programs for people who have siblings with disabilities For children - Sibshops ages 6-12 - SibDays of Summer ages 6-12 - Sib Camp A ges 10-15 For adults - Future is now! - wi adult sibling conference - Social activities
  6. 6. <ul><li>Siblings have the longest bond with their brother or sister with disabilities. </li></ul><ul><li>Siblings experience most of the same concerns and joys that parents experience. </li></ul><ul><li>60% of siblings of people with intellectual disabilities expect to oversee their care as adults. (Krauss, 1996) </li></ul><ul><li>As more people with disabilities outlive their parents and demand for services increases faster than funding, the responsibility of their care often falls to siblings. </li></ul>
  7. 7. Key Benefits of FVSSN programs <ul><li>Children become advocates for themselves and their brothers and sisters. </li></ul><ul><li>Children feel pride in themselves and their siblings. </li></ul><ul><li>As adults, siblings feel better prepared to make decisions, seek support and have positive attitudes toward their roles. </li></ul>
  8. 8. <ul><li>A 2005 survey of Sibshop graduates (ages 18-34) conducted by the University of Washington reports: </li></ul><ul><li>90% said Sibshops had a positive effect on the feelings they had for their siblings; </li></ul><ul><li>2/3 said Sibshops taught them coping strategies </li></ul><ul><li>75% said Sibshop affected their adult lives </li></ul><ul><li>94% said they would recommend Sibshops to others </li></ul>
  9. 9. For More Information <ul><li>www.FVSSN.org </li></ul><ul><li>Email: [email_address] </li></ul><ul><li>(920) 968-1742 </li></ul>For information about the national Sibling Support Project, visit: www.siblingsupport.org

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