Fox Valley Sibling Support Network - What is that? - Presentation Transcript
Harriet Redman Executive Director Established in 1998 as a 501(c) 3 tax exempt organization. Dedicated to the interests of brothers and sisters of people with special needs. Sally Randa Adult Sibling Coordinator
FVSSN Mission
To create the opportunity for individuals who have brothers and sisters with special needs to thrive throughout their unique lifelong journey.
Needs of Siblings
INFORMATION about their sibling
OPEN COMMUNICATION
RECOGNITION of their role
QUALITY TIME with parents
CONTACT WITH OTHER SIBLINGS AND SUPPORT
WAYS TO COPE with stressful events, unexpected disruptions to family plans, and extra responsibilities
UNDERSTANDING for their altered lives, their pressures and acknowledgement of the difference in their families
TRAINING to help care for, teach and play with their sibling.
COUNSELLING if necessary, to share feelings and resolve issues.
What does the Fox Valley Sibling Support Network do?
Provides information on sibling issues
Provides training for FVSSN Sibshop facilitators and other interested individuals
Plans and operates Sibshops, Sib Camps, Adult Sibling conferences and other sibling events for children, teens and adults
FVSSN Programs for people who have siblings with disabilities For children - Sibshops ages 6-12 - SibDays of Summer ages 6-12 - Sib Camp A ges 10-15 For adults - Future is now! - wi adult sibling conference - Social activities
Siblings have the longest bond with their brother or sister with disabilities.
Siblings experience most of the same concerns and joys that parents experience.
60% of siblings of people with intellectual disabilities expect to oversee their care as adults. (Krauss, 1996)
As more people with disabilities outlive their parents and demand for services increases faster than funding, the responsibility of their care often falls to siblings.
Key Benefits of FVSSN programs
Children become advocates for themselves and their brothers and sisters.
Children feel pride in themselves and their siblings.
As adults, siblings feel better prepared to make decisions, seek support and have positive attitudes toward their roles.
A 2005 survey of Sibshop graduates (ages 18-34) conducted by the University of Washington reports:
90% said Sibshops had a positive effect on the feelings they had for their siblings;
2/3 said Sibshops taught them coping strategies
75% said Sibshop affected their adult lives
94% said they would recommend Sibshops to others
For More Information
www.FVSSN.org
Email: [email_address]
(920) 968-1742
For information about the national Sibling Support Project, visit: www.siblingsupport.org
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