Fox Valley Sibling Support Network - What is that?

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    Fox Valley Sibling Support Network - What is that? - Presentation Transcript

    1. Harriet Redman Executive Director Established in 1998 as a 501(c) 3 tax exempt organization. Dedicated to the interests of brothers and sisters of people with special needs. Sally Randa Adult Sibling Coordinator
    2. FVSSN Mission
      • To create the opportunity for individuals who have brothers and sisters with special needs to thrive throughout their unique lifelong journey.
    3. Needs of Siblings
      • INFORMATION about their sibling
      • OPEN COMMUNICATION
      • RECOGNITION of their role
      • QUALITY TIME with parents
      • CONTACT WITH OTHER SIBLINGS AND SUPPORT
      • WAYS TO COPE with stressful events, unexpected disruptions to family plans, and extra responsibilities
      • UNDERSTANDING for their altered lives, their pressures and acknowledgement of the difference in their families
      • TRAINING to help care for, teach and play with their sibling.
      • COUNSELLING if necessary, to share feelings and resolve issues.
    4. What does the Fox Valley Sibling Support Network do?
      • Provides information on sibling issues
      • Provides training for FVSSN Sibshop facilitators and other interested individuals
      • Plans and operates Sibshops, Sib Camps, Adult Sibling conferences and other sibling events for children, teens and adults
    5. FVSSN Programs for people who have siblings with disabilities For children - Sibshops ages 6-12 - SibDays of Summer ages 6-12 - Sib Camp A ges 10-15 For adults - Future is now! - wi adult sibling conference - Social activities
      • Siblings have the longest bond with their brother or sister with disabilities.
      • Siblings experience most of the same concerns and joys that parents experience.
      • 60% of siblings of people with intellectual disabilities expect to oversee their care as adults. (Krauss, 1996)
      • As more people with disabilities outlive their parents and demand for services increases faster than funding, the responsibility of their care often falls to siblings.
    6. Key Benefits of FVSSN programs
      • Children become advocates for themselves and their brothers and sisters.
      • Children feel pride in themselves and their siblings.
      • As adults, siblings feel better prepared to make decisions, seek support and have positive attitudes toward their roles.
      • A 2005 survey of Sibshop graduates (ages 18-34) conducted by the University of Washington reports:
      • 90% said Sibshops had a positive effect on the feelings they had for their siblings;
      • 2/3 said Sibshops taught them coping strategies
      • 75% said Sibshop affected their adult lives
      • 94% said they would recommend Sibshops to others
    7. For More Information
      • www.FVSSN.org
      • Email: [email_address]
      • (920) 968-1742
      For information about the national Sibling Support Project, visit: www.siblingsupport.org
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