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What’s best for our deaf child? - a parents perspective, 24-10-2009
 

What’s best for our deaf child? - a parents perspective, 24-10-2009

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The FEAPDA congress dealt with the vital but not always easy relationship between families, teachers of the deaf and other professionals. How can this be a useful and effective relationship?

The FEAPDA congress dealt with the vital but not always easy relationship between families, teachers of the deaf and other professionals. How can this be a useful and effective relationship?
Inge Doorn, one of the keynote speakers, presented: What’s best for our deaf child? - a parents perspective.

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    What’s best for our deaf child? - a parents perspective, 24-10-2009 What’s best for our deaf child? - a parents perspective, 24-10-2009 Presentation Transcript

    • A parent's perspective FEAPDA Inge Doorn What's best for our child?
    • Introduction
      • Three children
      • Jara is deaf
      • Studied Sociology
      • Working with the FODOK
    • A father?
    • What's best for our child?
      • Parents have to make a lot of choices, like:
        • Do you use signlanguage?
        • Do you want a Cochlear Implant for your child?
        • What kind of education do you choose?
      • How do you find out what is best for your child?
      • What role do professionals play?
              • Jara
      • Born after pregnancy of 26 weeks
      • Vulnerable lungs
      • Her physical condition influenced our decisions
    • Deaf, than what?
      • 4 months old
      • Audiologist: special relationship
      • FODOK: booklet
    • Family support?
      • Second appointment: list with names of family support services
      • Not used to ask for help
      • So many questions...
      • Yes!
    • Family support!
      • 6 to 8 times a year
      • to observe Jara
      • for a quiet chat
      • information about: developing communication, hearing aids, signlanguage, education etc.
      • counseled us emotionally
    • Sign language?
      • Our communication?
      • Would we be able to share our feelings?
      • Would we be able to learn a new language?
    • Sign Language!
      • We followed different courses:
        • a short course for the two of us at home
        • a course for family and friends at home
        • a couple of courses with other parents
      • Family support offered the right solution
    • Playgroup? A deaf woman came to play with Jara No
    • Cochlear Implant?
      • Our family worker played a mayor role:
        • she gave us a lot of information
        • answered our questions,
        • spoke about the different CI teams,
        • the risks of surgery,
        • clarified information we received from hospital and
        • spoke with us about our feelings, doubts and fears.
      • Hospital care was poor, which made us hesitate
      • We asked the FODOK for some booklets
      • We spoke with a lot of parents
      • Jara was 2,5 years old
      • We hoped that the future
      • would be easier for her.
      Cochlear Implant!
    • What education?
      • Family Support informed us about the different schools.
        • special education (school for the deaf)
        • regular education
        • bilingual education in the neighbourhood
      • Together we visited that school, and decided to go there.
    • Preschool?
      • over three years old
      • not enough knowledge to work with deaf children
      • together with Ruth
    • Primary school
      • A lot of attention to Jara's development
      • Good contact with all the different professionals: speechtherapist, cesartherapist, audiologist, gymteacher, signlanguage teacher, etc.
      • Focus on social skills and deaf identity
    • Primary school
      • Focus on the parents.
      • We are well informed: class visits, notebook, etc.
      • We discuss issues we have with Jara and together we look for a working solution.
      • Working relationship? Yes, due to frankness and acceptance.
    • End Child Support End of Child support More questions!
    • Again, sign language or not?
      • Different opinions about using sign language.
      • Parents now have to gather relevant data themselves.
      • Important focus on the complete child! Not only on what he/she should learn with an implant.
    • Regular and special education
      • 4 days special education, 1 day regular school
      • Participate in the hearing world
      • Parents arrange this themselves
      • Schools are willing to participate
    • What's best for our child?
      • Parents are constantly looking for answers to their questions.
      • It's important that parents are well informed so that they can make the right decisions for their child.
    • A working relationship?
      • Professionals should put their knowledge and skills at the service of deaf children and their parents.
      • Ideally every parent should have a professional sparring partner.
      • Professionals and parent organizations should work closely together.
    • Thank you very much for your attention!