Hold On!!! Bladder Cancer and             Men             GREG RIEHL RN BSCN MA  25TH ANNUAL UROLOGICAL EXCELLENCE CONFERE...
How did it all start?       I SAW RED
Objectives Share my story – it is one    Describe why men do not  of denial and reflects         seek health care  broad...
De-nial? What was I thinking?
Nurse becomes the patient This was difficult for me My story, in a ‘nut’ shell       You might need your earmuffs
Knowledge does not = Behaviour changeMens health is            My story is a typical important. We know          example...
And Now for Some Stats
What do Canadian stats tell us?        Type of cancer                                    New cases                        ...
What do Canadian stats tell us?        Type of cancer                                    New cases                        ...
What do Canadian stats tell us?Type                   Deaths                   Deaths per 100,000                       To...
What do Canadian stats tell us?Type                   Deaths                   Deaths per 100,000                       To...
Three Types of Bladder CancerTransitional cell         Who knew, to this day I carcinoma                  have no idea, ...
Where do men get health information?
Where domen gettheir healthinformationfrom?
Bladder cancer search??? On the internets About 10,300,000 results (0.14 seconds) People have to wade through a lot of i...
Bladder Cancer CanadaSunday, Sept 23, 2012 the Bladder Cancer Canada 5K Awareness Walk  takes place right across Canada!!!...
patientslikemeAt PatientsLikeMe, people with every type of condition arecoming together to share their health experiences,...
Totally UnrelatedNetworking, who cares!!! I was asked to do a presentation on networking for Federal Employees who were a...
The Good - Bad Rule Most people overestimate      Words like asthma, radon,  the lethality of cancer,       diabetes are...
ShhhhhhMost health information for men is targeted at their penises
The difference between men & women’s healthHealth for girls/women starts earlier than ever.        HPV vaccinations     ...
Complete physical – Primary CareDoes this even happen for most men?      My GP said I could talk about one issue, maybe ...
What is up with men? Men seem to invest more resources in getting bigger and  stronger early on in their lives. But women...
Men’s health
So why do men die before their wives?Because they want to . . .
What to do? We need to improve            Men disregard symptoms  overall communication          and present later – We...
What things do I specifically do? I speak I volunteer                Stars of Hope Dance Gala I tell my story Movembe...
What’s next for me, or the man in your life?Urinary Incontinence?   BPH???? I think I                          have this...
Questions? Comments?      Thoughts?  THANKS FOR YOUR PARTICIPATION
Greg Riehl RN BScN MAContactinformation   Email: gregriehl@sasktel.net
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Hold on!!! Bladder Cancer and Men's Health

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  • In 2012 SK had 180 new cases of Bladder Cancer in men, and 45 deaths in Males were linked to Bladder Ca
  • In 2012 SK had 180 new cases of Bladder Cancer in men, and 45 deaths in Males were linked to Bladder Ca Men are overrepresented in all cancers, except breast cancer. For some men numbers don’t mean much, but percentages do.
  • 6% of all new cases of cancer are Bladders Ca, and 3.6% of all cancer deaths are from bladder ca In Quebec, because of the registry’s dependence on hospital data, the numbers of prostate, melanoma and bladder cases are believed to be underreported. The large interprovincial differences seen in bladder cancer incidence rates are likely due to differences in reporting of in situ cases, particularly in Ontario, where such cases were not collected until recently and were not available for this publication. In 2012 SK had 180 new cases of Bladder Cancer in men, and 45 deaths in Males were linked to Bladder Ca ‘ Men have a 14.9 per cent risk of dying of cancer before the age of 75 - for women the risk is 9.1 per cent. And 143.1 per 100,000 men die from cancer each year compared to 87.2 per 100,000 women.’ http://www.telegraph.co.uk/health/8566594/Why-do-men-die-younger-than-women.html
  • There are three types of bladder cancer that begin in cells in the lining of the bladder. These cancers are named for the type of cells that become malignant (cancerous): Transitional cell carcinoma : Cancer that begins in cells in the innermost tissue layer of the bladder. These cells are able to stretch when the bladder is full and shrink when it is emptied. Most bladder cancers begin in the transitional cells. This is the most common type of bladder cancer. Squamous cell carcinoma : Cancer that begins in squamous cells , which are thin, flat cells that may form in the bladder after long-term infection or irritation. Adenocarcinoma: Cancer that begins in glandular (secretory) cells that may form in the bladder after long-term irritation and inflammation .
  • Depends how old you are. Bladder cancer hits men at an average age of…………. Some men will obviously go to their GPs, if they have one. Some men will look on the internet.
  • Fear is the most effective way of gluing a memory in place. I had no prior knowledge of ‘bladder cancer’ seemed quite odd really. I knew about lung cancer from my mom’s experience and from patients I looked after in the hospital. Most older men, get the horror stories from their buddies on coffee row. And most of these gentlemen, don’t believe you can have a positive experience in the hospital, with surgery, especiatlly when someone starts putting things into your body, where things are naturally supposed to be coming out. A lot of time people are happy within their group, this is their comfort zone. If someone had a bad experience with surgery or cancer, then chances are likely everyone will know about it, and this will directly influence their decisions.
  • http://www.nih.gov/news/pr/aug2007/nci-29.htm
  • Patientslikeme
  • Some things are inherently good, and some things are inherently bad.
  • men are less likely to have contact with the health care system and are not receiving timely advice on health measures that could improve both longevity and quality of life. http://www.bcmj.org/articles/development-men%E2%80%99s-health-program-do-we-need-new-approach-bc
  • Kind of like cosmopolitan
  • This shouldn’t cut it anymore
  • Hold on!!! Bladder Cancer and Men's Health

    1. 1. Hold On!!! Bladder Cancer and Men GREG RIEHL RN BSCN MA 25TH ANNUAL UROLOGICAL EXCELLENCE CONFERENCE REGINA, SK SEPTEMBER 20 - 22, 2012
    2. 2. How did it all start? I SAW RED
    3. 3. Objectives Share my story – it is one  Describe why men do not of denial and reflects seek health care broader issues of men’s health in general.  Recognize that we all have I hope to share my a role to play, especially thoughts and reflection on women! my ongoing journey so nurses can support and  Plan for action advocate for the health of men in their lives.
    4. 4. De-nial? What was I thinking?
    5. 5. Nurse becomes the patient This was difficult for me My story, in a ‘nut’ shell  You might need your earmuffs
    6. 6. Knowledge does not = Behaviour changeMens health is My story is a typical important. We know example of the that knowledge does importance of not always impact communication in behaviour change, so health and what can we, as nurses, relationships, and partners, leaders, do to working through denial support men’s health. and fear. Communication with health professionals & your family/friends
    7. 7. And Now for Some Stats
    8. 8. What do Canadian stats tell us? Type of cancer New cases Cases per 100,000 Total M W Tota M W l Prostate 26500 26500 — — 121 — Lung 25600 13300 12300 54 62 49 Colorectal 13300 13000 10300 49 60 40 Breast 22900 200 22700 50 1 96 NHL 7800 4300 3500 17 20 14 Bladder 7,800 5,800 2,000 16 27 8ww.cancer.ca/~/media/CCS/Canada%20wide/Files%20List/English%20files%20heading/PDF%20-%20Policy%20-%20Canadian%20Cancer%20Statistics%20-%20English/Canadian%20Cancer%20Statistics%202012%20-%20English.ashx ‡ Ontario does not currently report in situ bladder cases.
    9. 9. What do Canadian stats tell us? Type of cancer New cases Cases per 100,000 Total M W Total M W Prostate 26500 26500 — — 121 — Lung 25600 13300 12300 54 62 49 Colorectal 13300 13000 10300 49 60 40 Breast 22900 200 22700 50 1 96 NHL 7800 4300 3500 17 20 14 Bladder 7,800 5,800 2,000 16 27 8ww.cancer.ca/~/media/CCS/Canada%20wide/Files%20List/English%20files%20heading/PDF%20-%20Policy%20-%20Canadian%20Cancer%20Statistics%20-%20English/Canadian%20Cancer%20Statistics%202012%20-%20English.ashx ‡ Ontario does not currently report in situ bladder cases.
    10. 10. What do Canadian stats tell us?Type Deaths Deaths per 100,000 Total M W Total M WLung 20,10 10,80 9,400 42 50 36 0 0Colorectal† 9,200 5,000 4,200 19 23 15Breast 5,200 55 5,100 11 <0.5 19Pancreas 4,300 2,100 2,100 9 10 8Prostate 4,000 4,000 — — 19 —Non-Hodgkin Lymphoma 2,800 1,500 1,300 6 7 5Leukemia 2,600 1,500 1,100 5 7 4Stomach 2,100 1,350 790 4 6 3Bladder 2,100 1,450 670 4 7 2
    11. 11. What do Canadian stats tell us?Type Deaths Deaths per 100,000 Total M W Total M WLung 20,10 10,80 9,400 42 50 36 0 0Colorectal† 9,200 5,000 4,200 19 23 15Breast 5,200 55 5,100 11 <0.5 19Pancreas 4,300 2,100 2,100 9 10 8Prostate 4,000 4,000 — — 19 —Non-Hodgkin Lymphoma 2,800 1,500 1,300 6 7 5Leukemia 2,600 1,500 1,100 5 7 4Stomach 2,100 1,350 790 4 6 3Bladder 2,100 1,450 670 4 7 2
    12. 12. Three Types of Bladder CancerTransitional cell Who knew, to this day I carcinoma have no idea, but if I hadSquamous cell carcinoma to guess, I would think itAdenocarcinoma was transitional cell carcinomaGreg’s type of Cancer?
    13. 13. Where do men get health information?
    14. 14. Where domen gettheir healthinformationfrom?
    15. 15. Bladder cancer search??? On the internets About 10,300,000 results (0.14 seconds) People have to wade through a lot of information Men, especially, can be a bit impatient, and maybe even lack attention We need to develop resources that make sense and are targeted at different generations http://www.nih.gov/news/pr/aug2007/nci-29.htm
    16. 16. Bladder Cancer CanadaSunday, Sept 23, 2012 the Bladder Cancer Canada 5K Awareness Walk takes place right across Canada!!!!!!!!! www.bladdercancercanada.org/main.php?lan=1
    17. 17. patientslikemeAt PatientsLikeMe, people with every type of condition arecoming together to share their health experiences, find patientslike them and learn how to take control of their health. Theresult is improved care for patients as well as an accelerationof real-world medical research. http://en.wikipedia.org/wiki/PatientsLikeMe
    18. 18. Totally UnrelatedNetworking, who cares!!! I was asked to do a presentation on networking for Federal Employees who were affected by the latest round of cuts from the Dear Leader.I related my bladder cancer story, somewhere in my presentation, linked to the patientslikeme siteA lady approached me afterwards, and wanted to talk to me about her brother, who was diagnosed with bladder cancer and was refusing to go for surgery.
    19. 19. The Good - Bad Rule Most people overestimate  Words like asthma, radon, the lethality of cancer, diabetes are much less there are actually a lot scary but can be more more dangerous things in lethal. life that could kill you.  Emotions have a huge Some people simply hear influence on our actions the word cancer, or as men. tumor, or surgery, and  Most men repress our they either stop listening emotions & do not or they freak out a bit. communicate effectively with our families & friends or health professionals.
    20. 20. ShhhhhhMost health information for men is targeted at their penises
    21. 21. The difference between men & women’s healthHealth for girls/women starts earlier than ever.  HPV vaccinations  PAP test - a letter comes in the mail  BSE?Health for boys/men starts when?  Most likely in the emergency ward  TSE? Not likely  PSA?  When you are 40 the glove comes out.Traditionally, boys and men are taught that they should be self-reliant, control theiremotions, and maintain a strong image by denying pain or weakness.
    22. 22. Complete physical – Primary CareDoes this even happen for most men?  My GP said I could talk about one issue, maybe two.The worried well go more often than the rest of us.Men rarely seek medical attention, and when they do, it should be taken seriously.Culture plays a lot in this.Being male should not mean poorer health status.Episodic health care does not work in the long run.False evidence appearing real = FEAR
    23. 23. What is up with men? Men seem to invest more resources in getting bigger and stronger early on in their lives. But women are geared for endurance in life. Women are typically shorter and smaller than men. Use fewer of your own resources and you will live longer, it seems. We see it in animals: the earthworm lives four times as long if it doesn’t eat or have sex. http://www.telegraph.co.uk/health/8566594/Why-do-men-die-younger-than-women.html
    24. 24. Men’s health
    25. 25. So why do men die before their wives?Because they want to . . .
    26. 26. What to do? We need to improve  Men disregard symptoms overall communication and present later – We need to improve the possibly connected to that dialogue between men risk-taking behaviour, and their families and more likely denial, fear, or caregivers within the culture. health system  We all have to get men to Major illnesses need to be communicate more about detected faster. their health – if not with a Women are still the nurse or doctor, then with friends, buddies, or on the gatekeepers!!!!!! inter-web.
    27. 27. What things do I specifically do? I speak I volunteer  Stars of Hope Dance Gala I tell my story Movember I involve my family, friends, and co-workers I could do more  riehldance@hotmail.com I am optimistic
    28. 28. What’s next for me, or the man in your life?Urinary Incontinence? BPH???? I think I have this already????EDOMG  Note to self . . . . . .The Lower Urinary Circumcision Tract Symptoms  old& young (LUTS)  HIV RecommendationsUrology consults
    29. 29. Questions? Comments? Thoughts? THANKS FOR YOUR PARTICIPATION
    30. 30. Greg Riehl RN BScN MAContactinformation Email: gregriehl@sasktel.net
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