Social media aims to create an “interactive environment”Users communicate & discuss in two directions
“…Our local hospital has a Facebookpage where I can get health and wellness information to manage my care... they even list good patient websites to visit so I can see how I compare to other patients….”
Social media in health 2.0 ehealth 2013
Social media in health:history, movements & current practice(s) #hcsmForum @giustini #hcsmca
In ten (10) minutes • Define terms such as social media & web 2.0 • Show examples of how patients use social media • Put social media into historical context • Touch on social media usage in Canada • Future of social media in health
Turn to your neighbour, tell them what social media tool you use most often On the count of three …
Social media terms or movements A search at PubMed.gov reveals: • health 2.0 — 29 citations, 2006-2013 • medicine 2.0 — 15 citations • web 2.0 — 313 citations • social media — 859 citations Boulos MN, Maramba I, Wheeler S. Wikis, blogs and podcasts: a new generation of web-based tools for virtual collaborative clinical practice and education. BMC Med Educ. 2006;5;6:41.
What is (social) media? AAP defines social media as “…any website that allows social interaction” Web 2.0 refers to two-way interactions on social media to encourage participation, collaboration and knowledge creation
What is health 2.0? Try instead: Van De Belt et al Definition of health 2.0 and medicine 2.0: a systematic review. JMIR. 2010.
Health 2.0 milestones 1995 PubMed.gov 1998 Google, MedlinePlus.gov 2002 Web 2.0 2004 Facebook 2005 – Health 2.0 Patients Like Me (‘04) Apple iPhone (‘07), CureTogether (‘08) 2006 Twitter 2007 Tumblr, HootSuite (‘08), Pinterest (’10) 2010-13 Quantified Self movement
How Canadians use social media • 21 million+ Canadians are on social networks • 64% of Canadians have a profile on a social network • 18.2 million are on Facebook • 32% of us spent more time on social media than year before… – Canadians watch 1 hr. day of video – 80% from YouTube – 79% of us won’t leave home without our mobile device
E-Patient movement Host Susan Hunt, “e-Patient” Dave deBronkart & Lygeia Ricciardi, eHealth Professional My Health Counts! e-Patients (1 min. video) http://www.youtube.com/watch?v=q8ZJ38pjJ0A
The empowered patient• Participate in a social revolution• Learn new skills, meet new people• Develop new friends, social bonds• Feel more informed …empowered• Follow health & wellness 2.0
Challenges for patients • Conversation is not always two-way • Dr. Google (self-diagnosis) • Reliability of information • Information overload • Other patients dispensing advice • Confidentiality, safety
Opportunities for patients • Public health alerts • Monitoring flu outbreaks • Participate in clinical trials • E-doctoring • Social & psychological support • Academic & clinical medicine research
In closing, as an e-patient • Be smart as you learn how to navigate • Be friendly online/offline with patients • Try one tool & proceed slowly • Attend public lectures & learn more • Talk to a medical librarian; ask your local public library • Follow Sun, Province, G&M, UBC eHealth Strategy Office http://hlwiki.ca/ http://ehealth.med.ubc.ca/
Using social media in health… A two-way street
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