Consumer health information (CHI) in medical libraries

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Consumer health information (CHI) in medical libraries

  1. 1. Consumer health information (CHI) in medical libraries: an introduction to information services, challenges & trends Dean Giustini, UBC health librarian & instructor | [email_address] | LIBR2195 Week 13 | Summer 2011 Canadian consumer health information (CHI) portal Men's Health Pathfinders Women's Health Pathfinders Top 100 Canadian Health Websites    
  2. 2. Objectives <ul><li>Discuss importance of consumer health information in society </li></ul><ul><ul><li>Rise of consumer movements/ lobbying/ activism </li></ul></ul><ul><li>Define CHI & patient education </li></ul><ul><li>Issues in consumer health </li></ul><ul><li>Challenges for libraries & library technicians </li></ul><ul><li>Future trends in consumer health </li></ul>Dean Giustini, UBC health librarian & instructor | [email_address] | LIBR2195 Week 13 | Summer 2011 Vitruvian Man
  3. 3. <ul><li>1940s . Dr. Spock </li></ul><ul><li>1960s . Ralph Nader, Morton Shulman </li></ul><ul><li>1970s . AHA Patient Bill of Rights </li></ul><ul><li>1980s . AIDS lobby, breast and prostate cancer </li></ul><ul><li>1990s . Use of web by consumers </li></ul><ul><li>Other . MedlinePlus, patient-physician relationship, public libraries </li></ul>The rise of consumer health information Dean Giustini, UBC health librarian & instructor | [email_address] | LIBR2195 Week 13 | Summer 2011
  4. 4. <ul><li>Consumer health information (CHI) is information on health and medical topics provided in response to requests from the general public, including patients and their families. In addition to information on the symptoms, diagnosis and treatment of disease, CHI encompasses information on health promotion, preventive medicine, the determinants of health and accessing the health care system. </li></ul><ul><ul><ul><li>The Provision of Consumer Health Information – CAPHIS : Consumer and Patient Health Information Section of the MLA </li></ul></ul></ul>What is consumer health information? Dean Giustini, UBC health librarian & instructor | [email_address] | LIBR2195 Week 13 | Summer 2011
  5. 5. <ul><li>Patient education is a planned activity, initiated by a health professional, whose aim is to impart knowledge, attitudes and skills with the specific goal of changing behaviour, increasing compliance with therapy and, thereby, improving health. </li></ul><ul><ul><ul><li>The Provision of Consumer Health Information – CAPHIS : Consumer and Patient Health Information Section of the MLA </li></ul></ul></ul>What is patient education? Dean Giustini, UBC health librarian & instructor | [email_address] | LIBR2195 Week 13 | Summer 2011
  6. 6. <ul><li>Consumer health information </li></ul><ul><ul><ul><li>emphasis on health promotion & empowerment </li></ul></ul></ul><ul><ul><ul><li>provided by public and medical libraries </li></ul></ul></ul><ul><ul><ul><li>online access is key </li></ul></ul></ul><ul><ul><ul><li>linked to support/advocacy groups; initiated by patrons </li></ul></ul></ul><ul><li>Patient education </li></ul><ul><ul><ul><li>emphasis on the patient experience </li></ul></ul></ul><ul><ul><ul><li>undergoing procedures, understanding illness or disease </li></ul></ul></ul><ul><ul><ul><li>provided by health professionals AND library staff </li></ul></ul></ul><ul><ul><ul><li>often in clinical setting in advance of patient consent </li></ul></ul></ul>Major differences & comparisons Dean Giustini, UBC health librarian & instructor | [email_address] | LIBR2195 Week 13 | Summer 2011
  7. 7. <ul><li>Consumer health information </li></ul><ul><ul><ul><li>What is the optimum diet to prevent cancer? </li></ul></ul></ul><ul><ul><ul><li>Can you tell me where to find information on avoiding household cleaning products that are toxic? </li></ul></ul></ul><ul><ul><ul><li>How many servings of fruit should I have per day? </li></ul></ul></ul><ul><ul><ul><li>What is the best way to exercise? How often? </li></ul></ul></ul><ul><li>Patient education </li></ul><ul><ul><ul><li>Can you tell me what happens when you get an MRI? </li></ul></ul></ul><ul><ul><ul><li>When I get a bloodtest, what are they looking for? </li></ul></ul></ul><ul><ul><ul><li>I have been diagnosed with multiple sclerosis. What treatments are available for me? </li></ul></ul></ul><ul><ul><ul><li>My doctor has prescribed ativan for me. What is that? </li></ul></ul></ul>Some sample reference questions Dean Giustini, UBC health librarian & instructor | [email_address] | LIBR2195 Week 13 | Summer 2011 For other questions, see BCLA Continuing Education Workshop 2010
  8. 8. The reference interview in CHI Dean Giustini, UBC health librarian & instructor | [email_address] | LIBR2195 Week 13 | Summer 2011 . respect privacy/confidentiality (in person & online) . provide a safe, private place . listen closely, be empathetic . be aware of emotions & body language . use reassuring phrases …” I’ll try to help you” . know limits of your collection & expertise . refer question if necessary
  9. 9. <ul><li>BC Cancer Agency website </li></ul><ul><li>DISCERN: Quality Criteria for Consumer Health Information    </li></ul><ul><li>Health on the Net (HON) Foundation </li></ul><ul><li>MLA User's Guide to Finding & Evaluating Health Information </li></ul><ul><li>MedlinePlus Guide to Healthy Web Surfing </li></ul><ul><li>Patient 101: How to Find Reliable Health Information </li></ul><ul><li>Webwatch Guidelines at Consumer Reports </li></ul>Tools for evaluation of information Dean Giustini, UBC health librarian & instructor | [email_address] | LIBR2195 Week 13 | Summer 2011
  10. 10. Challenges for libraries <ul><li>Collection development, expertise </li></ul><ul><li>What would be helpful for the consumer/patient? </li></ul><ul><li>Reference interview – referrals? </li></ul><ul><li>Libraries don’t have access to doctor/patient charts </li></ul><ul><li>Do you provide consumer level information only? selective reference? </li></ul><ul><li>Referral - as we do not dispense advice, how is this done properly? </li></ul>Dean Giustini, UBC health librarian & instructor | [email_address] | LIBR2195 Week 13 | Summer 2011
  11. 11. <ul><li>Emotional issues around disease/prognoses </li></ul><ul><li>Culture, language, general literacy, Canadian context </li></ul><ul><li>Foreign language materials vital </li></ul><ul><li>Literacy - reading level of user to material selected </li></ul><ul><li>“ Health literacy” level of person asking </li></ul><ul><li>Privacy, confidentiality </li></ul>Challenges for libraries (cont’d) Dean Giustini, UBC health librarian & instructor | [email_address] | LIBR2195 Week 13 | Summer 2011 Artist Alireza Darvish
  12. 12. Future trends <ul><li>Consumer health literacy & mini-med school </li></ul><ul><li>Cochrane Consumer Network – http:// www.cochrane.org/consumers/about.htm </li></ul><ul><li>Twitter, social networking sites </li></ul><ul><li>Telemedicine e.g., Second Life </li></ul><ul><li>Public library collaborations </li></ul><ul><li>Consumer health classes & services </li></ul>Dean Giustini, UBC health librarian & instructor | [email_address] | LIBR2195 Week 13 | Summer 2011

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