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Girl Power 2 Cure

Girl Power 2 Cure






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    Girl Power 2 Cure Girl Power 2 Cure Document Transcript

    • GET YOUR GIRL POWER ON! the power of girls to cure rett syndrome Girl Power sm 2 Cure www.girlpower2cure.org Girl Power 2 Cure, Inc. 121 Avenue of Two Rivers Rumson, NJ 07760 732.747.2068 contact@girlpower2cure.org
    • About Us Girl Power 2 Cure, Inc. is a 501c3 nonprofit Power organization dedicated to raising awareness and Girl tm funds for treatments and a cure for Rett Syndrome, Cure a devastating neurological disorder that almost 2 w w w.g ir lp o wer2cu re.o rg exclusively affects girls. We are all about harnessing the spirit of girls as volunteers, as mentors, and as a power of positive change in their communities in support of their fellow girlfriends “Warrior” Moms! who are suffering from Rett Syndrome. Ingrid Harding, mother of Sarah, her Kelly Butler is our Program Director and 8-year-old daughter with Rett is at the heart of communicating with Syndrome, founded Girl Power 2 Cure, Rett Syndrome families and organizing Inc. in May 2006. She wanted to find a all of our events. Her daughter Brooklyn way to engage young girls with their is four years old and was diagnosed special needs peers after watching with Rett Syndrome shortly after her wonderful bonds form between her second birthday. own daughter and her classmates in school. Prior to Girl Power 2 Cure, Inc., Kelly was the Associate Director of Admission at Ingrid hopes Girl Power 2 Cure, Inc. will Trine University (formally Tri-State bring mainstream awareness of Rett University). Kelly works from her home Syndrome and help raise the millions in Indiana where she resides with her of dollars it will take to cure hundreds husband Charlie and daughter of thousands of suffering girls. Brooklyn. Ingrid is also the co-founder and a Trustee of the Rett Syndrome Research Funds raised through Girl Power partners: Trust. 2 Cure events benefit the Rett Syndrome Research Trust which Prior to Girl Power 2 Cure, Inc., Ingrid was CEO & Program Director for committed $2.4 million towards PlayhouseRadio.com, an online research in 2008, more than any children’s music station. other Rett Syndrome organization in the world. Ingrid works from her home in New Jersey with her husband Peter and three children: Pierce (11), Sarah (8) and Gretchen (6). w w w. r s r t . o r g Girl Power 2 Cure, Inc. |121 Avenue of Two Rivers | Rumson, NJ 07760 | 732.747.2068 | contact@girlpower2cure.org | Tax # 20-8011668
    • About Rett Syndrome WHAT IS RETT SYNDROME? > Debilitating neurological disorder that predominantly affects females. > The most physically disabling of the autism spectrum disorders. > The leading genetic cause of severe impairment in girls - most cannot speak, walk or use their hands. > As prevalent as Cystic Fibrosis, ALS and Huntington's. There are close to half a million girls and women battling Rett Syndrome worldwide. > Another little girl is born with Rett Syndrome every 90 minutes. > Symptoms include seizures, severe digestive problems, extreme anxiety, Parkinsonian tremors, impaired cardiac and circulatory function, scoliosis, and disordered breathing. BELIEVE IN THE CURE - WE ARE CLOSE Rett Syndrome may hold the There are just a handful of disorders that only a ect females. While breast cancer is the most prevalent, Rett Syndrome is the leading key to a cure for millions of cause of severe neurological impairment in females, a ecting another people suffering from dozens little girl every 90 minutes. of disabilities. Condemned to an entire lifetime of struggles, these girls are born normal only to be robbed of their ability to speak, walk, crawl, or use “We hope that Rett Syndrome their hands between the ages of one and two. They depend on others for every part of their day. Complications include seizures, will be one of the first sudden death in their sleep and scoliosis. childhood neurological diseases to be cured. A Today, there is no cure, but Rett Syndrome is CURABLE! Research has recently proven this syndrome is completely reversible in mice. successful treatment for Rett Amidst the mass confusion going on within their central nervous Syndrome could potentially systems, these girls are smart, strong, and waiting patiently for us to unlock the door to their recovery. lead the way to treatments for millions of other sufferers Not only will this research help hundreds of thousands of girls and of pediatric women worldwide, but the ndings have a direct impact on research on Autism, schizophrenia, bipolar disorder, Alzheimer's and many neurodevelopmental other neurological disorders. disorders.” In essence, our girls may hold the key to a cure for millions of people su ering from dozens of problems. -- Dr. Omar Khwaja, MD PhD Medical Director Rett Syndrome Program Their cure is a HUGE cure! Children’s Hospital Boston Girl Power 2 Cure, Inc. |121 Avenue of Two Rivers | Rumson, NJ 07760 | 732.747.2068 | contact@girlpower2cure.org | Tax # 20-8011668
    • Our website... Girl Central. Girl Power tm 2 Cure The Girl Power 2 Cure website is where both Rett families and other girls within their communities can come to learn about Rett Syndrome. We offer unique resources for Rett www.girlpower2cure.org girls as well as reach out to girls’ organizations to involve them with service projects and other volunteer efforts. NDROME FIGHT RETT SY Girl Power 2 tm Cure er 2 cu re.o rg w w w.g ir lp o w Ingrid Harding knows Real Girl Power. She has it, her daughter Sarah and all girls with Rett Syndrome have it. They live it. The tireless battle she is waging to cure Rett is the kind of story any journalist would be honored to tell, a story which reminds us all that with certainty and hard work, we can change the world. Terry Schaefer Former Producer NBC TODAY SHOW Girl Power 2 Cure, Inc. |121 Avenue of Two Rivers | Rumson, NJ 07760 | 732.747.2068 | contact@girlpower2cure.org | Tax # 20-8011668
    • Our family resource... Family Central. THE EVERYTHING RETT SITE RettGirl! is Girl Power 2 Cure’s latest addition. Visitors to www.rettgirl.org will find a centralized resource and referral site for helping their daughter’s cope with Rett Syndrome. Everything from wheelchairs rett girl org and orthotics, to helpful websites and therapy recommendations! Girl Power 2 Cure, Inc. |121 Avenue of Two Rivers | Rumson, NJ 07760 | 732.747.2068 | contact@girlpower2cure.org | Tax # 20-8011668
    • Dress Up 2 Cure Our Annual Fund Raiser! Dress Up 2 Cure is an annual national campaign taking place on April Fools' Day and throughout the month of April (Autism Awareness Month) to raise money for Rett Syndrome Research. Families who have daughters with Rett Syndrome head up teams. Each of their team members raise money for their team by getting dressed up silly or hosting an event: Casual Work Days, tea parties, luncheons, bake sales, craft parties.... the works! Schools participate by encouraging students to dress up for a donation of spare change. proceeds benefit Re tt Syndrom e research I SUPPO R TEAM S T AVANN AH click to chip in! 2009 Girl Power 2 Cure, Inc. |121 Avenue of Two Rivers | Rumson, NJ 07760 | 732.747.2068 | contact@girlpower2cure.org | Tax # 20-8011668