Democracy and Bioethics in the ‘Developing’ Countries: Who has the X-Factor?
Upcoming SlideShare
Loading in...5
×
 

Democracy and Bioethics in the ‘Developing’ Countries: Who has the X-Factor?

on

  • 89 views

Democracy and Bioethics in the ‘Developing’ Countries: Who has the X-Factor? ...

Democracy and Bioethics in the ‘Developing’ Countries: Who has the X-Factor?
This is my talk for the 28th Annual Conference of the European Society for the Philosophy of Medicine and History (ESPMH) held in Debrecen, Hungary on 28.08.2014.

It highlights:
How is bioethics ‘performing’ in different regions of the world?
Why do I think this the case?
Democracy (whatever that means!) as bioethics’ X-factor
What can we do to help the field in ‘our’ countries without being sent to jail ?! (the example of informed consent)

Statistics

Views

Total Views
89
Views on SlideShare
88
Embed Views
1

Actions

Likes
2
Downloads
0
Comments
0

1 Embed 1

https://www.linkedin.com 1

Accessibility

Categories

Upload Details

Uploaded via as Microsoft PowerPoint

Usage Rights

CC Attribution-NonCommercial LicenseCC Attribution-NonCommercial License

Report content

Flagged as inappropriate Flag as inappropriate
Flag as inappropriate

Select your reason for flagging this presentation as inappropriate.

Cancel
  • Full Name Full Name Comment goes here.
    Are you sure you want to
    Your message goes here
    Processing…
Post Comment
Edit your comment

Democracy and Bioethics in the ‘Developing’ Countries: Who has the X-Factor?Democracy and Bioethics in the ‘Developing’ Countries: Who has the X-Factor? Presentation Transcript

  • Democracy and Bioethics in the ‘Developing’ Countries: Who has the X-Factor? (ESPMH Conference, Debrecen 28.08.2014) Ghaiath Hussein, MBBS, MHSc.(Bioethics) Doctoral researcher, University of Birmingham, UK ghaiathme@gmail.com
  • Disclosure • I am a holder of a PhD studentship grant from Wellcome Trust • The costs of my participation in this conference are covered by this grant • I have no conflict of interests • The opinions expressed in this presentation are solely mine and do not represent anyone or any institution
  • Democracy in my country… 2 stories! • Story no. 1: The golden pen story President phoning chief of intelligence President: I’m missing my golden pen. Indeed, someone stole it! Chief of intelligence: No worries Sir, I will take care of that. Few hours later… President on the phone again President: It’s OK, I’ve found my golden pen. Chief of intelligence: Weird! we have arrested 14 – four of them already signed confessions of stealing it
  • Outline of my talk • How is bioethics ‘performing’ in different regions of the world? • Why do I think this the case? • Democracy (whatever that means!) as bioethics’ X-factor • What can we do to help the field in ‘our’ countries without being sent to jail ?! (the example of informed consent) • Take home messages
  • Regions on diet… Territory size shows the proportion of all scientific papers published in 2001 written by authors living there. Source: http://www.worldmapper.org/display.php?selected=205
  • What about bioethics?
  • Affiliation of research ethics committees/boards 800 700 600 500 400 300 200 100 0 Source: https://www.HealthResearchWeb.org/en/result Government Hospital globally Research institution University Total 50 10 17 78 155 16 297 49 372 734 No. of registered RECs/REBs/IRBs Africa, Asia, and Caribbean (N=157/178) Americas and the EU (N=734/955)
  • Why is it the case for bioethics in LMICs? Part of the overall reduced contribution to scientific publication Lack of trained personnel, infrastructure, resources, etc.. (e.g. Abou- Zeid et al. 2009, Kass et al. 2007) Racist editors!!! (Chattopadhyay et al., 2013) Democrac y Complicate d care Philosoph y
  • It is not a coincidence… • The countries with least Freedom of press and least democratic are the least in bioethics structures & publications THE ECONOMIST DEMOCRACY INDEX Sources: www.rsf.org/index2014/en-index2014.php and http://en.wikipedia.org/wiki/Democracy_Index#External_links (2012)
  • Why is democracy important to bioethics? Freedom • Free media • Free thinkers (philosophers?) • Free public (debates, gatherings, lobbying, advocacy) Rights • Right to know - Right to ask - Right to be answered satisfactorily • Rights are protected by laws Accounta bility • All is responsible • Doctors are not untouchable half-gods • Politicians are not untouchable gods Empower ment • Make informed decisions about their lives after being fully informed and fully involved
  • How to survive? Example of Informed consent • Informed consent as an empowering micro-democratic process • Practitioners and researchers can empower the Gives the participant/pt. the right to know Gives her the right to ask questions & understand oppressed by: Disclosure Voluntariness Gives the participant/pt. the right to choose freely from different choices Gives her the freedom to refuse Empowerment People will know that they have the right to be informed, to discuss, and to choose freely Generational mind-shift  ?macro-democracy
  • Conclusions • Without democracy, bioethics in nothing more an academic discipline known and practiced selectively by practitioners and researchers • Proper education and practice of bioethics will give the field the potential to be a tool of empowerment and positive change • Informed consent, as a shared decision making process, is a micro-democratic process that can empower the oppressed in non-democratic countries
  • Democracy in my country… 2 stories! • Story no. 2: The ‘stability’ story George Bush Bill Clinton G. W. Bush Obama
  • • References • Abou-Zeid, A., Afzal, M., & Silverman, H. 2009. Capacity mapping of national ethics committees in the Eastern Mediterranean Region. BMC Medical Ethics, 10, (1) 8 available from: http://www.biomedcentral.com/1472-6939/10/8 • Esayed, D. E. & Kass, N. E. Assessment of the Ethical Review Process in Sudan. Developing World Bioethics 7[3], 143-148. 2007. • Kass, N.E., Hyder, A.A., Ajuwon, A., ppiah-Poku, J., Barsdorf, N., Elsayed, D.E., Mokhachane, M., Mupenda, B., Ndebele, P., Ndossi, G., Sikateyo, B., Tangwa, G., & Tindana, P. 2007. The Structure and Function of Research Ethics Committees in Africa: A Case Study. PLoS Med, 4, (1) e3 available from: http://dx.doi.org/10.1371%2Fjournal.pmed.0040003 • Chattopadhyay, Subrata, Catherine Myser, and Raymond De Vries. "Bioethics and its gatekeepers: does institutional racism exist in leading bioethics journals?." Journal of bioethical inquiry 10.1 (2013): 7-9.