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On your Libido, Eye Colo(u)r and Broccoli Preferences: Problems with Self-Reported (Medical) Data
 

On your Libido, Eye Colo(u)r and Broccoli Preferences: Problems with Self-Reported (Medical) Data

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Ignite talk on data curation. Given at StrataRx San Francisco 2012

Ignite talk on data curation. Given at StrataRx San Francisco 2012

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    On your Libido, Eye Colo(u)r and Broccoli Preferences: Problems with Self-Reported (Medical) Data On your Libido, Eye Colo(u)r and Broccoli Preferences: Problems with Self-Reported (Medical) Data Presentation Transcript

    • On your Libido, Eye Colo(u)r and Broccoli Preferences: Problemswith Self-Reported (Medical) Data Samantha Clark (@iameltonjohn) Bastian Greshake (@gedankenstuecke)
    • Our Interest• Started• Allows users to share genetic data, along with (medical) information• Right now: ~120 different traits/phenotypes
    • Regional Idiosyncrasies
    • Regional Idiosyncrasies
    • Further Problems The Desire to be Unique
    • The Desire to be Unique
    • The Desire to be Unique
    • Even More Problems Cognitive Biases
    • Cognitive Biases
    • Cognitive Biases
    • Not all questions are useful
    • Possible MitigationsDisclaimer: Not all of those have been tested by us
    • Questionnaires
    • Questionnaires
    • Automatic Tracking http://dl.maclife.com/maclife_photos/0510/reviews/fitbit_full.jpg
    • Automatic Tracking http://dl.maclife.com/maclife_photos/0510/reviews/fitbit_full.jpg
    • MagicHistogram: http://www.canon.ca/support_images/KB_Images/G0034801.jpgBeard: http://i98.photobucket.com/albums/l247/g0machamp/014-7.jpg
    • Magic
    • Conclusions People dont mind answering questions about themselves, but they arent necessarily too good at providing unbiased answers in a unified metric. Some things that may help this in the future are standardized or automatic data collection.