From Social Networks to Social Medicine: Exploring the role of online interventions [4 Aud 1330 Urowitz]

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  • 1. Urowitz, S. From Social Networks to Social Medicine: Exploring the role of online interventions
    • This slideshow, presented at Medicine 2.0’08 , Sept 4/5 th , 2008, in Toronto, was uploaded on behalf of the presenter by the Medicine 2.0 team
    • Do not miss the next Medicine 2.0 congress on 17/18th Sept 2009 ( www.medicine20congress.com )
    • Order Audio Recordings (mp3) of Medicine 2.0’08 presentations at http://www.medicine20congress.com/mp3.php
  • 2. Medicine 2.0 September 4, 2008 David Wiljer, PhD and Sara Urowitz, PhD Princess Margaret Hospital/University Health Network; University of Toronto. From Social Networks to Social Medicine: Exploring the role of online interventions
  • 3. The Canadian Health Care System –
    • Universal health care system
    • Providing health care for a large population
  • 4. The Canadian Health Care System –
    • Privately delivered
      • comprehensive coverage for medically necessary hospital and physician services
    • Publicly funded
      • Federal government
      • 10 Provinces
      • 3 Territories
    • Challenge: How to ensure sustainability?
  • 5. Empowerment Model Roberts, Health Expectations, 1999 Individual/ Micro Level Community / Macro-Level Organizational / Mediating Level
    • Psychological Domains
    • Self-esteem
    • Individual competencies
    • Self-efficacy
    • Collective Domain
    • Empowered members
    • Political action
    • Redistribution of resources
    • Community decision-making
    • Management Domains
    • Shared decision-making
    • Ability for individual to affect change
    • Increase in “feelings of power”
  • 6. Adapted from Kreuter et al., 2000 Clinical Encounter Experiential Health Information General Health Information Personal Health Information Health Information: Chronic Disease Generic content Individualized content Level of Personalization Level of Self-Management Low High
  • 7. Experiential Information Matthew Hurst, 2008
  • 8.
  • 9. Experiential Information
    • Overcome the feeling of isolation.
    • Find similar patients who truly experience the illness or condition.
    • Begin to network and become a more significant stakeholder by informing “others in the system.”
    Leonard, Wiljer et al. JHIT, 2008
  • 10. Caring Voices: A National Initiative to Support and Connect Cancer Survivors
  • 11. Why Caring Voices
    • Caring Voices provides an alternative means for providing and accessing supportive care through:
      • Educational resources
      • Regular monthly programming
      • Online chats with experts and other survivors
      • Forums for posting questions
      • “ Friend” matching that provides opportunity to find people with similar experiences
  • 12.
  • 13.
  • 14. Educational Resources
  • 15. Monthly Events Calendar
  • 16. Chats: Real time Communication (Survivor:Expert) (Survivor:Survivor )
    • Average 9 monthly chats
    • 35% led/moderated by clinicians
      • MDs (n=2)
      • Nurses (n=3)
      • Allied Health (n=4)
    • Additional 24% led by experts in cancer community
  • 17. Forums: Asynchronous Communication
  • 18. People Matching
  • 19. Caring Voices Phase 2
  • 20.
  • 21. Usability Results (n=8) Agree Neutral Disagree Easy to use 85% 0% 14% Liked appearance 86% 14% 0% Easy to learn the site 86% 0% 14% Easy to participate in forums 71% 14% 14% Easy to participate in chats 71% 14% 14% Receive support from other survivors 86% 14% 0%
  • 22. User Growth An average of 49.5 new users register/month
  • 23. Web Stats
  • 24. Number of Visitors 61.3% increase in the number of visitors
  • 25. Lymph Line Study
    • To conduct a feasibility study using CaringVoices.ca to provide clinical education
    • Gather preliminary data for a randomized control trial to examine the impact of this approach on the physical and emotional well-being of patients.
    • Funded by CBCRA
  • 26. Study Consent
    • Assessment by
    • clinician
    • DASH
    • FACTB +SP
    • Complete questionnaires
    • Tour of Caring Voices
    • Schedule ~4 clinical visits (according to Standard of Care)
    • Follow-up appointment booked
    • DASH
    • FACTB +SP
    Follow-up Appointment Focus Groups 4 Online Educational Sessions
    • Fluid Measure
    • Adherence to Care Plan
    • After Session 4:
    • DASH
    • FACTB+SP
    >10% fluid volume Lymph Line enrolment Informed of Lymph Line study If interested… LymphLine Protocol Funded by CBCRA
  • 27. GYN Gals
    • Feasibility study
      • Explore using CaringVoices.ca as a platform to deliver group therapy
        • Women who suffer from distress resulting from sexual dysfunction related to gynecological cancers
        • 12 week intervention
        • Using education resources and forum postings
        • One live chat with MD and sex therapist
        • Classen et al. 2008
  • 28. Conclusions
    • Online communities
      • are an innovative option for providing education and support
      • provide opportunities to support and sustain social medicine using collaborative relationships
      • can benefit and impact on how health care is delivered and researched
  • 29. Contact Information
    • Sara Urowitz, PhD
    • Manager
    • Educational Informatics
    • Princess Margaret Hospital
    • [email_address]
    • 416.946.4501 ext. 3810
    • David Wiljer, PhD
    • Director
    • Knowledge Management and Innovation
    • Princess Margaret Hospital
    • [email_address]
    • 416.946.4501 ext 4703