It's About Children - Winter 2013 Issue by East Tennessee Children's Hospital

It's About Children - Winter 2013 Issue by East Tennessee Children's Hospital



Read the Winter 2013 issue of It's About Children Magazine by East Tennessee Children's Hospital.

Read the Winter 2013 issue of It's About Children Magazine by East Tennessee Children's Hospital.



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    It's About Children - Winter 2013 Issue by East Tennessee Children's Hospital It's About Children - Winter 2013 Issue by East Tennessee Children's Hospital Document Transcript

    • Special issue: featuring our annual report
    • Mark Your Calendar JAN. 13 3 FEB. MAR. 4 CPR class for parents and teens age 14 and older 6 p.m. to 10 p.m. Children’s Hospital’s Koppel Plaza Building (Meschendorf Conference Room) Class costs $25. Call 865-541-8262 to register. Learn CPR so you can respond to emergencies in your home. National Pancake Day 7 a.m. to 10 p.m. All IHOP restaurants Get a free short stack of pancakes; then donate to Children’s Miracle Network Hospitals. Visit for more information. All funds raised locally go directly to Children’s Hospital to help purchase medical equipment. 2 It’s About Children, Issue 4 • 2013
    • Spotlight 4 JAN. 25 15 FEB. Through DEC. 21 Alexander Toth is full of energy and happiness–no more so than when he’s racing for glory during one of his weekly visits to the hospital. Safe Sitter class for teens age 14 and older 9 a.m. to 3 p.m. Children’s Hospital’s Koppel Plaza Building (Meschendorf Conference Room) Class costs $25. Call 865-541-8262 to register. Learn correct babysitting techniques, emergency responses and how to use babysitting as a business. Charlie Brown merchandise Kohl’s department stores Books, plush toys, a backpack and note cards are $5 each. Visit for more information. All net profits from local stores will help fund our helmet safety program. FEB. Young man, start your scooter MEDIC blood drive 7 a.m. to 4 p.m. Children’s Hospital’s Koppel Plaza Building (Meschendorf Conference Room) It is free. Call 865-541-8165 for more information. One donation can help up to three people. Donors must be at least 17 years old, weigh more than 110 pounds and have an ID. Donate at 9 24 Real heroes Children’s Hospital would not be the extraordinary place it is without our heroes. And their super powers are even more exceptional than those found in comic books. Learn more in our annual report. Supporting health care in schools We are funding 10 additional school nurses in 13 Title I Knox County elementary schools for the next three years. Connect with us: It’s About Children is a publication of the Marketing Department at East Tennessee Children’s Hospital. Editor: Paul Parson Designer: Deborah Hosterman Cover photo by Michael Dayah 3
    • Young man, start your scooter Story by E. Anderson Photos by Michael Dayah continued on page 6 4 It’s About Children, Issue 4 • 2013
    • Donate at 5
    • continued from page 4   It’s Wednesday morning in the East Tennessee Children’s Hospital Hematology/Oncology Clinic. The clinic is designed with a circular floor plan—perfect for little Alexander Toth’s favorite activity. As he flies around the nurses’ station on his scooter, anticipating his dad Dustin hiding around the corner, the 2-year-old is only a blur of blond curls and high-pitched laughter. But just a year ago, Alexander could do little more than rest those curls on his dad’s shoulder, moaning and wincing in pain, while unknowingly fighting a life-threatening disease. Today, thanks to Children’s Hospital, Alexander is full of energy and happiness—no more so than when he’s racing for glory in the weekly Hem/Onc 500. WARNING SIGNS Alexander’s health problems began innocently enough, with a skin rash and flakes on his scalp. Doctors told the Toths it was cradle cap, a common ailment for infants. Then, in August 2012, he developed a rash on his abdomen and a high fever. Chronic ear infections also led doctors to put tubes in his ears—but the problems persisted. “There were all of these constant little things that would send us in a bunch of different directions and to different specialists. We didn’t realize then that it was one thing that was causing all the problems,” Dustin said. Dustin and his wife, Hollie, who work staggered schedules so one of them can stay at home with Alexander and his older siblings, Samantha and Xavier, knew that something was seriously wrong with their son. “I would spend my week with him on my shoulder, with him just twirling his curls and crying. We called him The Grumbler, because he was just so unhappy and would grumble all the time,” Dustin said. 6 A ROAD MAP FOR TREATMENT For months, the Toths treated Alexander’s various symptoms. But when the toddler’s belly became swollen because of an enlarged liver, they rushed Alexander to the Children’s Hospital Emergency Department, where, after testing, he was diagnosed with Langerhans cell histiocytosis (LCH). The disease is caused when the body has too many Langerhans cells—a type of white blood cell that helps the body fight infection. These cells can build up and cause tumors or damage organs. Susan Spiller, M.D., a pediatric oncologist at Children’s Hospital, said symptoms can vary from mild to life-threatening, like Alexander’s. “These cells just start to grow uncontrollably and create a lot of different issues,” she said. “In Alexander’s case, there is multi-organ involvement. It infiltrates everything. In a case like his, we suggested intense treatment, which gave him a better than 50 percent chance of getting it under control.” For Alexander’s mom, getting a diagnosis meant the first step to getting her little boy healthy. “It was a relief to finally get an answer,” Hollie said. “It felt good to know that it was all tied together, and we could start treatment.” It’s About Children, Issue 4 • 2013
    • The Toths credit Children’s Hospital with calming any anxiety they felt about Alexander’s diagnosis. “When we were in the Emergency Department, we had six different specialists come in and talk to us and connect notes,” Dustin said. “We were fearful for a minute, but they had a road map laid in front of us for him, which helped ease our minds.” For more than a year, the Toths traveled from their home in Mohawk, Tenn., more than an hour to Knoxville where Alexander underwent chemotherapy at Children’s Hospital. “I have been so impressed with Children’s Hospital,” Dustin said. “We’re very active and hands-on. I don’t want him to go through something I can’t be a part of, and they allow us to be that way,” he said. “You know they are doing everything they can every day to get the best results for the kids. The awesome team is part of the reason we were able to stay so positive.” DETERMINED TO WIN Alexander has had an amazing response to the chemotherapy, Dr. Spiller said. “It was a gradual uphill and gradual downhill for them, but to see him laughing and giggling today, it’s hard to remember how sick he was when he first came in,” she said. continued on page 8 Donate at 7
    • continued from page 7 Hollie said Wednesdays, Alexander’s clinic day, are his favorite. The Toths bring Alexander’s trusty red Radio Flyer scooter to his appointments. “At first, the scooter was just Alexander’s way of keeping up with his brother and sister. Everything hit him at a prime development stage, so he lost some of his functioning. He used the scooter as his aid to get around. But now he rides circles around the house,” Dustin said. “And we have the best time at the hospital. He rides around and around. He’s finally enjoying life.” Dustin is grateful for the improvement in his son and hopes that the obstacles he’s had to face will help him in the future. “You always hope for the best for all your children, but Alexander’s had to live through so much—and he’s taken it all in stride. I just pray that the resilience he was born with and forced to use will carry him for the rest of his life.” just the facts: Langerhans cell histiocytosis 8 Has no known cause. Occurs when the body accumulates too many Langerhans cells, a type of white blood cell that is supposed to help the body fight infection. The cells can build up in certain parts of the body, causing tumors or damaging organs. May only affect one area of the body, such as the skin or the bone, or it may affect multiple systems. Is treated with cortisone shots, surgery or chemotherapy for the most extreme cases. Believed to occur in one out of every 200,000 children, though is often under-diagnosed when symptoms are mild. It’s About Children, Issue 4 • 2013
    • Donate at 9
    • Hero is a word that can be applied to people who do extraordinary things in sometimes extraordinary circumstances. Oftentimes, heroes are people who exhibit inspiring works of bravery when the situation calls for it. Walking through our hospital, I see heroes every day. Heroic children who are battling illnesses and injuries. Heroic doctors, nurses and staff members who do everything they can to ensure these children go on to lead healthy, productive lives. We are proud of our hospital and our more than 1,900 employees who make a lifesaving impact every day. As donors, you are heroes—champions— for all of our patients at East Tennessee Children’s Hospital. You enabled us to have an incredible year, managing 148,140 patient visits in the hospital. You’ve helped us become the largest pediatric clinical care provider in East Tennessee and allowed us to care for our most vulnerable patients—nearly 800 premature and critically ill newborn babies. We are excited to share with you our accomplishments—and our heroes—in this year’s annual report. And we’re even more excited about looking forward to the future. With your help, we will continue to make a difference and allow our little heroes to grow up and become heroes to their own children. Keith Goodwin President and CEO 10 It’s About Children, Issue 4 • 2013
    • continued on page 12 Donate at 11
    • More than 30 pediatric specialties only Comprehensive Regional Pediatric Center in East Tennessee continued from page 11 They come in all shapes, sizes and ages. Some of them wear lab coats. Others wear surgical gowns and masks. There are even a few, as in the case of some of our volunteers, who don fairy wings when the occasion calls for it. Our heroes make a difference every day. And their super powers are even more exceptional than those found in comic books. Nurses who ease nerves while checking vitals. Doctors who create treatment plans to give our young patients the best chance at healthy futures. Child life specialists who hold a shaky hand and turn fear into fun. Anesthesiologists who take away the pain. Volunteers who soothe a crying baby to sleep with a lullaby. Athletes and special visitors who raise spirits just by saying hello. Children’s Hospital would not be the extraordinary place it is without our heroes, including our donors. Your support helps fund a 12 significant portion of the lifesaving equipment and innovative treatment we use for our patients. The daily care we provide with help from our donors makes a significant impact to the children of our community. This can easily be seen in our busy Emergency Department, where last year we had 71,764 patient visits. Because we care for more children needing emergency care than anyone else in East Tennessee, our doctors and nurses are equipped to treat everything from minor injuries to major medical concerns. We understand we are caring for patients who need a special kind of treatment—not only to make them well, but also to make them feel comfortable and safe. Our heroes are also busy offering pediatric specialty care like the team from our Cleft and Craniofacial Clinic, which was officially approved It’s About Children, Issue 4 • 2013
    • More than 400 doctors 152 beds as a Cleft Palate Team by the American Cleft Palate-Craniofacial Association and Cleft Palate Foundation in January. Or, our Cystic Fibrosis Care Center, which is accredited by the Cystic Fibrosis Foundation. In addition to the care we provide every day, we strive to be pioneers. We are at the forefront of care in treating neonatal abstinence syndrome (NAS), a condition that stems from the country’s prescription drug epidemic. Tennessee ranks among the top states in prescription drug abuse, and Children’s Hospital developed the treatment protocol for NAS after seeing its impact. Our heroic efforts also extend beyond the hospital. We sponsor the Knoxville Area Coalition on Childhood Obesity, which works to decrease the number of overweight and obese children in East Tennessee. We also run Project ADAM Tennessee, a program that works with school systems to prevent sudden cardiac deaths. But of course, the most important heroes of Children’s Hospital are the bravest of them all. The ones who wear pink pajamas featuring their favorite Disney princesses. The ones who dream of being professional baseball players or teachers. The ones in your family, your school and your community. There’s your little neighbor, who’s been fighting for her life since the day she was born— battling a rare cancer that requires intense chemotherapy treatments. Your 15-year-old son, whose life is often put on hold for treatment and hospitalization for his cystic fibrosis. Your 8-year-old nephew, who is finally feeling well enough to go back to soccer practice after undergoing ear tube surgery. These everyday heroes are the ones we most celebrate. And they’re the reason we are committed to making Children’s Hospital the best place for pediatric care in East Tennessee. Donate at 13
    • 148,140 patient visits 148,015 in FY12; 149,295 in FY11 72,575 patients 71,914 in FY12; 71,478 in FY11 261,558 physician practice visits 257,514 in FY12; 261,342 in FY11 71,764 Emergency Department visits 66,068 in FY12; 66,628 in FY11 10,918 surgeries 10,844 in FY12; 10,952 in FY11 313 babies treated for drug dependency 168 in FY12; 82 in FY11 14 330 transports 864,762 website visits We are a trusted source of pediatric health care information for East Tennessee families. It’s About Children, Issue 4 • 2013
    • Donate at 15
    • FY13 6091 FY12 5941 FY11 5976 Hospital Admissions FY13 6091 Visits Outpatient FY12 5941 FY13 142,049 FY11 5976 FY12 142,074 FY11 143,318 Hospital admissions Outpatient Visits NICU Patient FY13 142,049Visits FY13 790 FY12 142,074 FY12 646 FY11 143,318 FY11 600 ital Admissions 6091 5941 5976 al Admissions 091 atient Visits 941 142,049 976 142,074 143,318 FY11 FY13 FY12 5,976 6,091 5,941 atient Visits e Health Visits 59 16 21,810 15 17,584 00 NICU Patient Visits PICU Patient Visits FY13 790 FY13 559 FY12 646 FY12 615 FY11 600 FY11 600 Outpatient visits FY13 790 FY12 646 FY11 600 Pediatric Intensive Care Unit (PICU) patient visits PICU Patient Visits Home Health Visits FY13 559 FY13 21,810 FY12 615 FY12 17,584 FY11 600 FY11 16,120 tient Visits Patient 42,049 Visits 790 42,074 646 43,318 600 Patient Visits Patient Visits 90 559 46 615 00 600 Neonatal Intensive Care Unit (NICU) patient visits FY11 FY12 FY13 170,757 168,355 168,517 Home Health Visits FY13 21,810 FY12 17,584 FY11 16,120 Hours for Evaluation FY13 15,266 FY12 14,441 FY11 15,858 Hours for Evaluation FY13 15,266 FY12 14,441 FY13 559 FY12 615 FY11 600 It’s About Children, Issue 4 • 2013
    • Outpatient activity 21,810 20,444 10,453 9,290 6,836 4,673 3,901 2,913 2,336 Home Health Gastroenterology Endocrinology Pulmonology Physiatry Cardiology Hematology/oncology Diabetes Urology Donate at 1,235 570 379 348 348 259 132 91 Nephrology Cystic fibrosis Psychology Infectious disease Rheumatology Weight management Dermatology Gynecology 17
    • 12 7 therapy dogs 18 iPads Visits from these furry friends help ease anxiety and promote shorter recovery times for our patients. Used daily to help educate children about their care and provide them with much-needed distractions during uncomfortable medical procedures. 24,980 9,925 Our child life specialists help educate patients about their illnesses and treatments. Because our patients range from infants to 21-year-olds, child life specialists must be prepared with a variety of activities to support them during stressful experiences and painful procedures. patient interactions distractions It’s About Children, Issue 4 • 2013
    • 52,784 volunteer hours This represents a $1,339,657.92 cost-savings. It is equivalent to providing more than 6,300 chest X-rays. 12,573 Spanish translation requests This is a 27.27 percent increase since FY11. We are the only hospital in Knoxville with interpreters on staff. Donate at 19
    • 58 medical fellows, residents and students 1,798 nursing students 302 students in other health care positions, such as respiratory therapists, emergency technicians and surgical technicians We provide pediatric clinical training to more than 70 hospitals, universities and institutions. 6,750 hospital rounds For the safety of our patients and staff, we employ full-time security officers 24 hours a day, seven days a week. 20 It’s About Children, Issue 4 • 2013
    • 5,698,12007 $ in donations Visit to see a list of our donors who contributed $100 or more in FY13, listed by giving levels. Donate at 21
    • 518,55413/day $ 189,272,25800/year 1,900 $ employees the cost to operate Children’s Hospital 3% Other 35% FY13 Commercial Payer mix 62% Medicaid/TennCare 416 $ Gross revenue Deductions from revenue Expenses Net gain Debt 234 $ 160 $ 30 $ 41.5 $ (millions) 22 It’s About Children, Issue 4 • 2013
    • Patient population 609 1,212 Virginia Kentucky 144,680 Tennessee 1,639 Other states East Tennessee counties Anderson 7,330 12,386 Blount Campbell Claiborne Cocke Grainger Hamblen Jefferson 3,928 2,042 2,038 2,051 3,310 4,698 69,932 Knox Loudon Monroe Morgan Roane 4,708 3,137 1,922 3,390 Scott 2,186 Sevier 11,574 Union 2,694 Donate at 23
    • News Supporting health care in schools   Children’s Hospital is funding 10 additional school nurses in 13 Title I Knox County elementary schools for the next three years. “This very generous gift to the students of Knox County will have a major impact on student health, facilitate family engagement and improve health education, resulting in an improvement in classroom performance and school attendance,” said Dr. Jim McIntyre, Superintendent of Knox County Schools. “The health and wellness of children are our top priorities,” said Keith Goodwin, President and CEO of Children’s Hospital. “We’re happy to help fund these positions because we believe the school nurse plays a pivotal role in the health and well-being of students. Children’s Hospital conducted a community health assessment to identify gaps in services to children of this community, and we recognize that when children are healthy, they’re better prepared to learn, happier and able to be more actively engaged in school.” 24 The new school nurses are in the following schools: • Beaumont • Belle Morris • East Knox • Green Magnet • Inskip • Lonsdale • Maynard • Mooreland Heights • Norwood • Pond Gap • South Knox • Spring Hill • West View It’s About Children, Issue 4 • 2013
    • Invest in a healthy future for children If you are age 70 and a half or older, you can make charitable gifts to East Tennessee Children’s Hospital using funds from your individual retirement accounts (IRAs) without undesirable tax effects. • You can make a tax-free transfer up to $100,000 from an IRA to Children’s Hospital until Dec. 31, 2013. • These transfers would fulfill some or all of your required minimum distribution without increasing taxable income. Call our Development Department at 865-541-8441 for assistance. Donate at 25
    • Your Dollars at Work The colorful world of charity For the second time this year, Children’s Hospital benefited from a little colorful mayhem. A portion of the proceeds from the August Color Me Rad 5K—more than $16,000—was donated to the hospital. The money will be used to help provide critical health care services to our pediatric patients. “We knew Children’s Hospital was a great hospital from the beginning. But after several visits there, we saw f irsthand how truly amazing they are and what incredible love and support they give to the patients and their families,” said Kristine Peterson, Race Director. The August 5K had more than 5,500 participants who ran the 3.1-mile course while being bombarded with color. The color is FDA-approved colored cornstarch, and almost 5,000 pounds of it were used for the race. The event was inspired by the Holi Festival in India. “We want this event to be memorable, fun and messy,” said race organizer Scott Crandall. “This is the most fun you can have while running.” 26 It’s About Children, Issue 4 • 2013
    • In memory of Claire Curing Kids Cancer learned about Children’s Hospital through Peggy Gillen, Program and Events Director for the nonprofit charity. Gillen’s niece, Claire Hayes, was a patient at Children’s Hospital, where she battled both Ewing’s sarcoma, which is a rare bone cancer, and acute myeloid leukemia. The teenager passed away this past April. In her memory, Curing Kids Cancer recently donated $25,000 to support our Hematology/Oncology Clinic. The money was raised through the AT&T Curing Kids Cancer Golf Classic in Georgia. Curing Kids Cancer was founded by Grainne and Clay Owen after losing their 9-year-old son to leukemia in 2003. Since its founding in 2005, the Atlanta-based charity has raised more than $2 million for pediatric cancer research. Charles Hayes, Claire’s father, hugs Alissa Kennedy, one of the nurses who treated his daughter. Donate at 27
    • Your Dollars at Work Friends making a difference Great friends. You know, the people you can count on when you really need them, the people who are there day after day, year after year supporting you in all kinds of ways. Where would you be without them? Children’s Hospital has great friends, too. The generosity of our donors this past year enabled the hospital to raise $5.7 million, to purchase $2.5 million in new equipment and to fund $1 million for our upcoming expansion project. In 2012, as a way of expressing our gratitude to our great friends, a tradition of an annual donor appreciation dinner and the giving of the Goodfriend Family Award was started. The Goodfriend Family Award was established to honor an individual, family, foundation or business whose support has been both exceptionally generous and sustained throughout the years. The first recipient of the award, and for whom the award is named, was the Robert M. Goodfriend family. This year, in honor of their dedication to Children’s Hospital, the Goodfriend Family Award was given to the Regal Entertainment Group and Will Rogers Institute. Accepting the award on the firm’s behalf was Ted Cooper, Chairman of Will Rogers Institute and Senior Vice President of Film for Regal Entertainment Group. Since 1994, Regal Entertainment Group and Will Rogers Institute have supported Children’s Hospital through event sponsorships, funding of hospital equipment and in-kind gifts. Regal also provided funding for the renovation of our lobby and surgery waiting room as well as updates to the surgery area. “Children’s Hospital is grateful for all Regal Entertainment Group and Will Rogers Institute have done not only for this hospital, but for the children of East Tennessee,” said Carlton Long, Vice President for Development and Community Services. “Their support, as well as the generosity of all our donors, has helped Children’s Hospital offer not only exceptional, comprehensive, familycentered care but also a comforting and healing environment as well.” Keith Goodwin, President and CEO of Children’s Hospital; Ted Cooper, Chairman of Will Rogers Institute and Senior Vice President of Film for Regal Entertainment Group; and Robert (Bob) M. Goodfriend 28 It’s About Children, Issue 4 • 2013
    • Every coin matters Jack Ryan, Merle FM afternoon host, recently undertook a unique fundraising event to benefit Children’s Hospital. One of our avid supporters, Ryan gives Children’s Hospital credit for saving his daughter’s life. “When someone saves your child’s life, you can’t help but want to repay them for it, however you can. In my line of work, I am able to use the power of radio to talk about the wonders of Children’s Hospital to a large audience and encourage my listeners to give to the hospital, to volunteer or to become involved however they are able,” said Ryan. “Our entire family believes in the miracles that are happening every day at Children’s Hospital. We know from experience that the entire staff is fully dedicated to healing children from their aches, pains and sickness.” For two weeks, Merle the Squirrel and the Merle Monster Truck visited various Food City, Applebee’s and Clayton Homes locations as well as the Anderson County Fair to collect 1 million coins for Children’s Hospital. To encourage people to give, Ryan gave anyone donating $10 or more in coins a ticket to the Ashton Shepherd concert in July. Through Ryan’s efforts, $5,666.06 was raised for our Radiology Department. “Ryan’s event is a great example of how even the loose change in our purses and pockets can help children,” said Carlton Long, Vice President for Development and Community Services at Children’s Hospital. Jack Ryan, Merle FM afternoon host Donate at 29
    • 30 It’s About Children, Issue 4 • 2013
    • Thank you to all of the sponsors and volunteers who made this year’s Fantasy of Trees possible. Major sponsors Donate at 31
    • NON-PROFIT ORGANIZATION U.S. POSTAGE PAID PERMIT 433 KNOXVILLE, TN 2018 Clinch Ave. • P.O. Box 15010 Knoxville, Tennessee 37901-5010 RETURN SERVICE REQUESTED Nothing puts a smile on aNothing puts a smile on a child’s face quicker than getting a gift— child’s face quicker than getting a gift We always try to stay current with friends of the hospital. If for any reason you should receive a duplicate issue or need to update your address, please notify the hospital at 865-541-8723 or Nothing puts a smile on a child’s face quicker than getting a gift... ...especially when that child is spending the holidays in the hospital. It’s not always possible to visit a sick child in the hospital. We are happy to help you let a special patient and concerned parents know you are thinking of them. Call us at 865-541-8103, and we will help you pick out the perfect gift. Phone orders are accepted from 9 a.m. to 5 p.m. Monday to Friday and will be delivered to the patient the same day. There is no charge for delivery. We accept Visa and MasterCard.