It's About Children - Summer 2003 Issue by East Tennessee Children's Hospital

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It's About Children - Summer 2003 Issue by East Tennessee Children's Hospital

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See more at: http://www.etch.com/about_us/its_about_children.aspx

See more at: http://www.etch.com/about_us/its_about_children.aspx

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  • 1. 102 Board of Directors James S. Bush Chairman Robert Madigan, M.D. Vice Chairman Robert M. Goodfriend Secretary/Treasurer Michael Crabtree Dawn Ford Peyton Hairston Jeffory Jennings, M.D. Bob Koppel Donald E. Larmee, M.D. Dugan McLaughlin Chris Miller, M.D. Alvin Nance Dennis Ragsdale J. Finbarr Saunders, Jr. William F. Searle III Bill Terry, M.D. Laurens Tullock Danni Varlan Medical Staff Chris Miller, M.D. Chief of Staff Lewis Harris, M.D. Vice Chief of Staff David Nickels, M.D. Secretary Chiefs of Services Lise Christensen, M.D. Chief of Medicine Cameron Sears, M.D. Chief of Surgery David Birdwell, M.D. Chief of Pathology Clifford J. Meservy, M.D. Chief of Radiology Mike Mysinger, D.D.S. Chief of Dentistry Mark Cramolini, M.D. Chief of Anesthesiology Administration Bob Koppel President Paul Bates Vice President for Human Resources Joe Childs, M.D. Vice President for Medical Services Rudy McKinley Vice President for Operations Jim Pruitt Vice President for Finance Beckie Thomas, R.N. Vice President for Patient Care A quarterly publication of East Tennessee Children’s Hospital, It’s About Children is designed to inform the East Tennessee community about the hospital and the patients we serve. Children’s Hospital is a private, independent, not-for-profit pediatric medical center which has served the East Tennessee region for more than 65 years and is certified by the state of Tennessee as a Comprehensive Regional Pediatric Center. Ellen Liston Director of Community Relations David Rule Director of Development Wendy Hames Editor Katie Harvey Assistant Editor Neil Crosby Cover/Contributing Photographer “Because Children are Special…” …they deserve the best possible health care given in a positive atmosphere of friendliness, cooperation and support— regardless of race, religion or ability to pay.” …their medical needs are closely related to their emotional and informational needs; therefore, the total child must be considered in treating any illness or injury.” …their health care requires special understanding, special equipment, and specially trained personnel who recognize that children are not miniature adults.” …their health care can best be provided by a facility with a well-trained staff whose only interests and concerns are with the total health and well-being of infants, children and adolescents.” Statement of Philosophy East Tennessee Children’s Hospital www.etch.com Artwork by some of Children’s Hospital’s special patients On the cover: 5-year-old Chance Shular and WBIR-TV Channel 10 anchor emeritus Bill Williams prepare for the 2003 Children’s Miracle Network Telethon. Read Chance’s story on pages 4-5. – by Katie, age 9 – by Lauren, age 6 – by Blake, age 9
  • 2. 3 To: care@etch.com Sent: March 31, 2003 6:16 PM Subject: Thank You! I was at Children’s Hospital for surgery in January. I had Amanda Brown (as my nurse). I had brain surgery; I had Dr. Harris (Lewis W. Harris, M.D.). He was a great doctor. If I ever have to have surgery again, I will go to Dr.Harris. Thank you all; you saved my life. Thank you all, and God bless you all. Love, Nathan Ronsse April 3, 2003 I would also like to thank Kristy Riggins(Child Life Specialist). She answered all ofNathan’s questions and came through withgetting the movie “Hoosiers” that he hadrequested. I appreciated your time and concernfor Nathan and our family. Thanks to everyoneat Children’s Hospital. You are all GREAT! Michelle Ronsse Russellville, TN I would like to thank the entire second floor nursing staff. They were very thoughtful and considerate. I am grateful that God gave us this wonderful place to come to in a time of need. The staff worked very hard to keep Chase happy and to keep me comfortable. I am privileged to have this staff working to help my son. Thank you for your hard work and consideration! Kristi Jackson Harriman, TN The entire 2nd floor nursing staff Kristi Jackson a
  • 3. 4 Chance Shular, 5, has a name that is very indicative of his personality. He is adventurous and carefree, and he isn’t afraid to take chances. He and his brother, Storm, 10, love the outdoors and have plenty to keep them occupied at their house in Seymour, including 4-wheelers, a large yard, a trampoline and a creek. It is the perfect place for boys to be boys, but without careful supervision and safety precautions, it is also the perfect place for accidents to occur. Being the parents of two young and active boys, Barry and Kim Shular must constantly be alert of where their children are and what they are doing. On Saturday, June 1, 2002, the boys were under the supervision of a baby sitter, and nobody could have predicted what was going to happen that day. It was the day Chance’s fearless nature led to an accident that gave his parents the scare of their lives. That day, Kim was at a merchandise show in Gatlinburg, and Barry had left the house for a short while to go work out in Sevierville. Barry had been gone about 45 minutes when he got a call from the baby sitter saying that Chance had an accident on his 4-wheeler. “I talked to Chance on the phone,” Barry said, “and when I asked if he was OK, he said, ‘Yeah, Daddy. I’m just sleepy.’ So I stopped what I was doing and came home immediately.” When Barry arrived home, he found Chance asleep on his bed. He could not see any serious effects from the accident, but just to be safe, he decided to take Chance to Children’s Hospital. Once, when Chance needed stitches after hitting his head on a paint can, they took him to St. Mary’s Medical Center, where Kim is a registered nurse. In this case, though, Barry said he For more than 20 years, the Children’s Miracle Network Telethon has been raising money for Children’s Hospital. During last year’s 22-hour live broadcast, the hospital was engulfed in excitement caused by the television cameras and people scattered everywhere. But for the Shular family of Seymour, it was a traumatic time due to the hospitalization of their youngest son. Their story illustrates that even during this large event, the focus of Children’s Hospital’s staff is always on its patients. It also is a testament that money raised by the telethon is being used for its purpose — to enable Children’s Hospital to provide the best pediatric health care for the children of this region.
  • 4. 5 didn’t consider anywhere but Children’s Hospital. “It was more serious,” he said. “And if it’s serious, you go to Children’s.” About three or four miles down the road, Chance started throwing up. “That absolutely scared me to death,” Barry said. Barry’s fears were calmed a little, though, when the first person he saw when he entered the Children’s Hospital Emergency Department was a woman he had gone to high school with — Becky Dougherty, R.N. She was the triage nurse on duty that day, and she got Chance into a room immediately. This was the first of many fortunate experiences the Shulars had at Children’s Hospital during their difficult time. “We were so fortunate to have a place like Children’s during all of this,” Kim said. “Everyone came away from this bad experience with something positive.” Barry had called his wife on the way to the hospital, but it took her awhile to get there from Gatlinburg. In the meantime, Chance had a CT scan, and when Kim arrived, the results had already come back. Barry knew his wife would be concerned about the situation since, as a nurse, she works with neurological patients, and especially since she had not been there to know what was happening. But Barry was extremely impressed with the way the staff at Children’s Hospital interacted with Kim. “All of her questions were answered and information was given to her in a timely manner with respect to her profession,” he said. Barry and Kim were also very pleased to hear that the CT showed no sign of damage. “When I arrived, I was immediately put at ease,” Kim said. “They said the CT scan looked really good, and we should be going home that afternoon.” The Shulars did not get to go home that afternoon, though. In fact, they stayed at Children’s Hospital until Tuesday due to a complication that was not discovered until Sunday afternoon. Pediatric Hospitalist Charlotte Sutton, M.D., admitted Chance to Children’s Hospital on Saturday night, because several hours after the accident, he still was not responding normally. “Dr. Sutton said that Chance wasn’t waking up the way he should, but that this was pretty normal with head trauma,” Kim said. “They wanted to watch him overnight to make sure he started waking up more, but that there was still nothing significant to worry about.” Sunday morning, Chance was acting more awake, which aroused hope in his parents that they would be going home that day. Kim went home that morning to collect some things the family needed after the unplanned stay in the hospital. When she returned a short time later, Kim found Barry, three nurses and a doctor around Chance’s bed, and she could tell that her husband was upset. Pediatric Hospitalist Heather Edgely, M.D., had arrived on the Sunday afternoon shift and was checking the same things that had been checked the night before. However, Dr. Edgely noticed something different about Chance’s eye movement. He could look forward, left and right, but he could not make his eye move up and down. Dr. Edgely ordered a stat CT scan, and the whole frightening process started over for the Shulars, except this time they knew something was wrong. “The concern in Dr. Edgely’s eyes got us concerned,” Barry said. “I thought, ‘this is worse than we’ve imagined.’” The CT scan came back clear once again, but Dr. Edgely was still concerned. She consulted with Lewis Harris, Jr., M.D., a neurosurgeon, on the phone about possibly ordering an MRI, but he felt comfortable with the CT scan. He arranged for Gary Gitschlag, M.D., a pediatric ophthalmologist, to examine Chance the next morning. Dr. Gitschlag discovered that one of Chance’s eye muscles was entrapped in an orbital fracture caused by the impact of the accident. This explained why Chance’s eye was not moving up and down, and the impairment of vision was probably why he had been nauseated. “Progressively Chance woke up, but he wouldn’t eat,” Kim said. “The staff was willing to bring him anything he wanted, but he still wouldn’t eat. He would feel sick and have to lie down.” Chance finally awoke and ate something on Tuesday. He even got to enjoy the hospital playroom with his brother and watch a video he selected from the video cart before he was discharged that afternoon. On Friday of that week, Tim McConnell, M.D., a maxillofacial surgeon recommended by Dr. Gitschlag, performed surgery on Chance’s eye. He removed the muscle from the fracture and built a platform to prevent the muscle from falling down and getting entrapped again. When Chance recovered from surgery, all the energy that had built up inside him was unleashed. “Once he woke up, he was going 90 miles an hour again,” Kim said. “And he hasn’t slowed down since.” The Shulars took a vacation to the beach the following week. It was a special trip after such an unfortunate situation. Despite the circumstances, though, the Shulars say their experience at Children’s Hospital was equivalent to any vacation. “We are just so impressed with the care and treatment by everyone we met during Chance’s hospitalization,” Barry said. “The only other place we have received such good care was at Disney World.” Chance still has difficulty looking up, but Dr. Gitschlag continues to work with him. “The only thing different is when he wants to look up, instead of glancing with his eyes, he will move his whole head,” Kim said. “And he’s more cautious about bumping his head on things now.” His parents are more cautious now, too. They are making even more of an effort to explain and enforce safety rules to prevent other accidents from occurring. Chance and Storm were never allowed to ride the 4-wheelers unsupervised, but now this rule is even more seriously stressed. Also, the boys are required to wear their helmets with protective face shields whenever they ride, even if it is just around the yard. Barry and Kim do not want to take any chances when it comes to the safety of their children. “You realize that something tragic can happen, and they can be gone in a heartbeat,” Barry said. “We were just so fortunate that it wasn’t worse.” By Katie Harvey, Publications Specialist Chance (at right), his brother, Storm, and their dog, Max.
  • 5. 6 Clarisa E. Cuevas, M.D. B.A. — Manhattanville College, Purchase, New York, 1975 M.D. — University of Puerto Rico Medical School, San Juan, Puerto Rico, 1980 Internship/Residency — Beth Israel Medical Center, New York, 1980-81; University Children’s Hospital, San Juan, Puerto Rico, 1981-83 Fellowship (Pediatric Gastroenterology) — Baylor College of Medicine, Houston, 1983-89 Experience — Private practice in pediatric gastroenterology, nutrition and hepatology, Memphis, 1991-97; private practice in pediatric gastroenterology, nutrition and hepatology at the Nemours Children’s Clinic, Fort Myers, Florida, 1997-98; Pediatric Gastroenterology and Nutrition, Ochsner Clinic and Hospital, New Orleans, 1999-2002 Board Certifications — Pediatrics, Pediatric Gastroenterology Societies — American Academy of Pediatrics, North American Society for Pediatric Gastroenterology, Hepatology and Nutrition Interests — reading, sewing, weight training, music and travel SubspecialistP R O F I L E Clarisa Cuevas, M.D., is pleased to be joining an old friend, Youhanna Al-Tawil, M.D., in his pediatric gastroenterology practice at East Tennessee Children’s Hospital. Drs. Cuevas and Al-Tawil both did fellowships in pediatric gastroenterology at Baylor School of Medicine. They also credit the same person as their greatest influence in the field of pediatric gastroenterology — William Klish, M.D., who was the Chief of Pediatric Gastroenterology at Baylor School of Medicine. Dr. Cuevas, who was a pediatrician for three years before completing her fellowship, says Dr. Klish was a major influence on her decision to become a gastroenterologist. Dr. Cuevas’ decision to study medicine seemed ordained, with her mother being a nurse and her father a physician. In medical school, pursuing pediatrics also was as clear to her as blue skies. Pediatric gastroenterologist to join friend’s practice at Children’s Hospital “I love children,” she said. “I knew this is what I wanted to do.” The study of gastrointestinal disease was what first interested her in the field of gastroenterology. In addition to treating this and other rare and life-threatening diseases such as liver disease, Dr. Cuevas also works with common symptoms such as vomiting, diarrhea, constipation and abdominal pain. She says her field still fascinates her because it is rapidly changing. “We still cannot cure a lot of diseases,” she said. “But we can definitely improve the lifestyles of children who have them. With help, the illness won’t prevent them from achieving anything they desire to do.” For someone who has traveled all over the world, Dr. Cuevas is excited about moving to Knoxville. “It is a large city with a small town mentality,” she said. “And I love the fall here.” She also considers Children’s Hospital very progressive and is looking forward to working here. “I think I will be very happy personally and professionally,” she said. While Dr. Cuevas’ personal interests include reading, weight training and playing with her miniature schnauzer, Scottie, her latest professional interest is obesity in children. About one in five children in the United States is overweight, and that number continues to rise. “It has yet to be defined what can be done about this problem,” she said. “But like with all pediatric medicine, we know that children are not ‘little’ adults, and we always need to approach things according to their unique needs.” By Katie Harvey, Publications Specialist
  • 6. 7 Child-family centered care is an approach to pediatric health care that focuses on the family as a child’s primary source of strength and support. It is visible in large and small ways throughout hospitals that adopt the approach. Children’s Hospital has begun an initiative to formally adopt a child-family centered care approach at a vital time of growth in our history. Last year the hospital established a Child-Family Centered Care Steering Committee, which has since developed a plan to improve the good work already being done at Children’s. Many elements of child-family centered care are already emphasized through the Service Excellence program at Children’s Hospital. The committee’s membership includes staff from Administration, Community Relations, Child Life, Nursing, Radiology, Respiratory Care, Service Excellence, Medical Staff and patient family members. As part of that plan, Children’s Hospital invited Beverly Johnson, executive director of the Institute For Family-Centered Care, to visit our medical center late last summer to discuss ways Children’s could enhance • The core concepts of child-family centered care are respect, strengths, choice, information, support, flexibility, collaboration and empowerment. • People are treated with dignity and respect. • The “Platinum Rule,” which is more important than the “Golden Rule,” is to “Treat others as they would like to be treated.” • Child-family centered care is relevant both in adult care and pediatrics, but the concept is more advanced in pediatrics. Children’s Hospital initiative seeks to strengthen child-family centered care its provision of child-family centered care. She conducted focus groups to learn about the hospital and how care is provided here. She also presented a series of inservice sessions for more than 250 Children’s Hospital employees on the topic of child- family centered care. After her visit, Johnson provided a written report of her findings to the hospital. The steering committee thoroughly reviewed the report and used it as a springboard to develop goals and a timeline for the next year. Among the projects: • All units were asked to self-assess their child-family centered care efforts, and these are being reviewed by the Steering Committee. • The hospital’s core documents — the Mission Statement and Goals Statement — are being revised to include the concept of child-family centered care. • Parental involvement in the hospital will be increased. Parents will be invited to sit on the Steering Committee, review “Sharing Information” patient education brochures, speak at courses offered to health care workers at Children’s and be involved in the hospital in many other ways. • Subcommittees have been established to evaluate a variety of areas, including “first impressions” (such as signage calling parents “visitors”) and unit/departmental improvements. • A plan is being created to inform staff and physicians of the plans and progress. • A new video of parents talking about what is important to them will be developed for staff orientation purposes. • Policies, procedures and job descriptions will be reviewed and updated as needed. “We’ve been doing many of the components of child-family centered care for many years at Children’s Hospital,” said Laura Barnes, Nursing Director for Critical Care Services and coordinator of the hospital’s child-family centered care initiative. “This initiative allows us to find ways we can improve on what we already do well, especially focusing on parents as our partners in the care of their children.” Doesn’t it seem that when the people we love are near us, we feel that all is well? Child-family centered care highlights • Family-FOCUSED care is doing things FOR the family, which assumes the family is dependent on the health care system. Family-CENTERED care is doing things WITH the family, which assumes the family is part of the health care system. • In pediatrics, health care tends to be child-centered, which is good, but it needs instead to be child-family centered because the family is most important to the child. • Hospitals have a long tradition of labeling families as “visitors,” but they are NOT visitors to their loved ones who are the patients. Pediatric health care workers need to remember that the social connection to family is an important part of the patient’s recovery. • Child-family centered care is not an “extra” thing for staff to learn and adjust to. It is woven into what pediatric health care workers already do. • Families must be allowed to define who their “family” is. It might not just be parents or grandparents; it might also include a neighbor or close friends.
  • 7. 8 The continuing construction and expansion of Children’s Hospital is making great progress to provide additional services and a new location to better serve children throughout the East Tennessee region. Perhaps the most exciting construction news is the completion of Children’s West Surgery Center. The facility, which is located at Pellissippi Parkway and Westland Drive, became operational in early April. The center is a joint effort between Children’s Hospital and 14 area surgeons and dentists and provides full pediatric outpatient surgery services. Some construction complete, more continues In addition to the completion of the Children’s West Surgery Center, the hospital has also completed the Koppel Plaza addition. The expanded building is now home to the majority of Children’s administrative departments, enabling the Medical Office Building to house only physician offices. Although the Knoxville area received large amounts of rainfall in February, the Koppel Plaza construction was not slowed by the inclement weather, according to Rudy McKinley, Vice President of Operations. However, the same cannot be said for the hospital expansion. According to McKinley, construction on the hospital has been delayed several weeks because of rain. To date, construction crews have completed the foundation walls for the new seven-story patient tower, which will be located on Clinch Avenue and 20th Street, and for the additional floor above the existing Emergency Department and Outpatient Clinic area. The patient tower should be enclosed and under roof by early 2004. Furthermore, the Children’s Hospital Rehabilitation Center, which is scheduled to open in March 2004, is in the beginning stages of construction. Rouse Construction, the contracted builder for the project, should soon begin digging footers for the 21,500-square-foot structure, which will be relocating beside the Children’s West Surgery Center from its present site on Gleason Road. For the latest details about the expansion projects at Children’s Hospital, please visit our Web site at www.etch.com/projects.cfm. By Eric Barnes, student intern “Fa La La La La … Let the Holidays Begin!” is the theme for the 19th annual Fantasy of Trees. Co-chairs Belinda Ford and Karen Waldbauer and assistant co- chair Becky Vanzant are busy planning the events that will take place Nov. 26-30 at the Knoxville Convention Center. With the help of thousands of volunteers who will contribute more than 100,000 hours of their time throughout 2003, this year’s event will feature hundreds of designer-decorated holiday trees, festive and colorful decoarations, gingerbread houses, non-stop live entertainment and assorted holiday shops. This year there will be five new children’s activities including decorating stockings, jingle bell buddies and itsy bitsy trees. Also new is a children’s musical play area featuring a SantaCam, kid’s Christmas karaoke, and “Santa’s Jazzy Band,” which will involve children as band members with instruments like bells and tambourines. Last year’s Fantasy of Trees was the most successful in the event’s 18-year history, raising $312,463 to benefit Children’s Hospital. Since its inception, the Fantasy of Trees has raised more than $3 million to purchase new and replacement pediatric medical equipment. Fantasy of Trees names new co-chairs, sets theme For more information about being involved in the 2003 Fantasy of Trees, contact the Children’s Hospital Volunteer Services and Resource Department at (865) 541-8385, send an e-mail to fot@etch.com or visit the event’s section on our Web site at www.etch.com/fantasy.cfm. by Leslie Mauldin, student intern The new Children’s West Surgery Center at Pellissippi Parkway and Westland Drive is now open.
  • 8. 9 Summer Camp. These words conjure up fond memories of childhood summers for many adults and mean eager anticipation for children everywhere as they look forward to upcoming adventures from swimming and cookouts to walks by a creek and hiking through the woods. However, for children with physical limitations and disabilities or those with serious illnesses like cancer or blood disorders, summer camp might be a far away dream. But, thanks to Children’s Hospital and the monetary assistance of people throughout East Tennessee, this popular summertime experience is a reality for dozens of children with special needs at three unique camps. CAMP EAGLE’S NEST For one week in late June, patients from Children’s Hospital Hematology/Oncology Clinic will participate in a summer camp of their very own called Camp Eagle’s Nest. Located at Wesley Woods in Townsend, Tenn., Camp Eagle’s Nest offers plenty of outdoor activities for campers including archery, caving, tubing, canoeing, crafts, photography, rock climbing, horseback riding, hiking, and orienteering (where the campers will learn ways to navigate through the outdoors). Campers will also participate in a karaoke talent show and many other activities as each night falls. The fact that each child attending Camp Eagle’s Nest is affected either by cancer or a blood disorder might only be apparent if you know the identity of their counselors: all are doctors, nurses and other medical staff from East Tennessee Children’s Hospital. This interaction outside of the Hematology/Oncology Clinic allows the hospital staff a unique opportunity to form relationships and the children an opportunity to see their medical staff outside of the hospital environment. More than 80 campers from ages 10 through 18 will attend the weeklong camp Children’s Hospital patients enjoy summer camp experience June 29 –July 3, and campers ages 6-10 will join them July 1-3. Camp Eagle’s Nest is free of charge to all patients, thanks to financial and in-kind donations to the camp and funding from Children’s Hospital. For more information, call Children’s Hospital at (865) 541-8476. DONALD M. GALLY SUMMER CAMP Parents of children with special needs or disabilities can sometimes have challenges finding fun summer experiences and opportunities that meet their child’s unique needs. But thanks to Children’s Hospital Rehabilitation Center and the Kiwanis Club’s Fresh Air Camp in Knoxville, children with special needs have the chance to enjoy all of the fun of going to summer camp. The Donald M. Gally Summer Camp, organized by the Children’s Hospital Rehabilitation Center, offers a unique summer camp experience for children and young people with special needs and disabilities the weeks of July 7-11 and July 14-18. The camp is coordinated by physical and occupational therapists, who develop a curriculum which includes swimming, stories, singing, arts and crafts, field trips, nature hikes, games and much more. Each activity is designed not only to provide fun and excitement but also offers a therapeutic experience for each child. Campers ages 5 through 11 attend camp July 7-11, and teens ages 12 to 18 attend camp the week of July 14-18. The Donald M. Gally Summer Camp is held at the Kiwanis Club Fresh Air Camp on Prosser Road in Knoxville from 8:30 a.m. to 3 p.m. each day during the weeklong camp. Fees for this special camp are based on each individual’s family income. Scholarships are available for those who may need financial assistance. For more information on registering your child for the Donald M. Gally Summer Camp, call the Children’s Hospital Rehabilitation Center at (865) 690-8961 or visit the center at 8042 Gleason Road in Knoxville. The deadline for registration is Monday, July 1. CHILDREN’S HOSPITAL DIABETES DAY CAMP Children’s Hospital Diabetes Clinic is hosting a Diabetes Day Camp for children with diabetes July 7-11 at Karns Community Youth Center. This special camp will offer children with diabetes a fun and safe learning experience for living and coping with diabetes. Campers age 5 to 12 years of age will have the opportunity to gain knowledge and develop confidence and independence in caring for their diabetes. The children will also be able to participate in swimming, arts and crafts, sports and games, singing, and participation in “talk times” with other campers who are living with diabetes. Children’s Hospital Diabetes Day Camp will be from 8:30 a.m. until 3 p.m. each day. Camp is $40 per child with scholarships available for campers with the need for financial assistance. There are a limited number of spaces available, and there is no walk up registration. The deadline for registration is June 20. Special thanks to the many sponsors whose support helps make the Children’s Hospital Diabetes Day Camp a success. For more information, call Cathy Van Ostrand at (865) 541-8281 or contact her by e-mail at cvanostrand@etch.com. by Genny Kirchner, student intern and Janya Marshall, Associate Director for Public Relations Recreational activities such as basketball score points with campers at the Donald M. Gally Summer Camp. Children with special needs enjoy swimming and other summer activities with the help of counselors at the Donald M. Gally Summer Camp. Campers show off their dance moves during an evening social at Camp Eagle’s Nest.
  • 9. 10 Every year, there seem to be more instances of missing children than the previous year. Thanks to programs like the Amber Alert, which is a system used to mass broadcast an abducted or missing child’s information, most of these children can be found quickly. Luckily, the Knoxville area hasn’t had a high profile missing child case, but we are not immune to it. As part of a national campaign to increase awareness about missing children, Shoney’s of Knoxville, Inc. will again host a series of Shoney’s KidCare events at area malls in conjunction with the National Center for Missing and Exploited Children. Parents will receive personal identification for their children KidCare ID program offers security to parents to keep in a safe place, which can assist local authorities should their child ever become missing. At KidCare, participants will receive FREE KidCare identification cards with the child’s photo included; having these documents ready and available greatly expedites the recovery effort should a child become missing. Police Department officials will be on-site for fingerprinting, and representatives from Children’s Hospital and Safety City will provide additional child safety information. KidCare ID dates are as follows: • Saturday, August 16, West Town Mall • Saturday, August 23, Knoxville Center Mall • Foothills Mall — August date still to be determined Children’s Hospital is proud to partner with Shoney’s in taking a proactive approach to keeping children safe. This is just one more way that Children’s Hospital is dedicated to providing the best possible care for the children of East Tennessee. By Seth Linkous, Public Relations Specialist Imagine your family, including your three-year-old daughter, has just escaped from a fire inside your house. The fire department is already on the scene, expertly handling the situation and extinguishing the flames. The damage to your house is minimal, but your greatest fear remains — your daughter is having trouble breathing. One of the firemen is specially trained in caring for children and begins to stabilize and treat your daughter while preparations are made for an ambulance to take your daughter to Children’s Hospital. As frightening as this scenario is, it could be worse. The person caring for your child could have little or no pediatric training, and the result could be devastating. In an effort to ensure more prehospital professionals, those individuals who provide care before a person can get to a hospital, in this area can assess and treat ill or injured children, Children’s Hospital offers a special course called PEPP. PEPP stands for Pediatric Education for Prehospital Professionals, and a recent course was offered to paramedics from the Knoxville Fire Department. Twenty out of 48 paramedics from the Knoxville Fire Department participated in the PEPP course, held at Children’s Hospital on March 31. The course was offered in conjunction with the Pediatric Advanced Life Support (PALS) renewal course, which Children’s Hospital has offered to the Knoxville Fire Department for many years. The remaining paramedics will attend the PEPP course in 2004 when their PALS certification expires. There are two versions of the PEPP course: a one-day basic life support (BLS) version and a two-day advanced life support (ALS) version. Both versions use case- based lectures, live action videos, hands-on skill stations and small group scenarios to teach life-saving techniques that should be used on children in various prehospital emergency situations. “Only about 10 percent of emergency calls are pediatric related, and only about one percent of those are critical,” Bowen said. “However, if they ever find themselves answering that critical pediatric call, this course really helps prepare EMTs and paramedics to treat and care for children.” Bowen also coordinates and instructs PEPP “outreach courses” at various Emergency Medical Service (EMS) agencies with the help of EMS members who have pediatric experience and local community college instructors. Children’s Hospital employees Bob Lembersky, M.D. and Christy Cooper, RN, EMT-P, also have been active in the outreach program. These “outreaches” are an extension of Children’s Hospital’s responsibilities as a Comprehensive Regional Pediatric Center (CRPC). “As a Comprehensive Regional Pediatric Center, we are to serve as an example of excellence in pediatric care,” Bowen said. “Our responsibility is to educate others so children in East Tennessee can receive special care any time or anywhere they need it. Once a child is at Children’s Hospital, he or she will be given the highest quality of pediatric care, but through this effort we are trying to ensure better pediatric care before the child arrives here.” Special training helps prepare local emergency personnel for pediatric emergencies Garth Ogle, EMT-P, inserts a nasopharyngeal airway during skills training at the March 31 PEPP course.
  • 10. 11 After practicing pediatric general surgery at East Tennessee Children’s Hospital for nearly four decades, John R. Maddox, Jr., M.D., has been performing operations longer than any of his current patients and many of their parents have been alive. When he began his career at Children’s Hospital in October 1964, he was the only pediatric subspecialist on staff, and the hospital was a 50-bed facility on Laurel Avenue. This year — thousands of surgeries, dozens of subspecialists, and many hospital expansions later — Dr. Maddox is retiring. His legacy will remain through many more changes at the hospital, because his professional dedication and expertise are unequaled even by his 39 years of experience. While discussing his career, Dr. Maddox propped his feet on his desk, which was bought by his grandfather in 1903, and reflected on the growth of the hospital, the advancements in medicine, and how “fun” medicine was when he began practicing. Dr. Maddox was first introduced to the field of pediatric surgery when he was working at LeBonheur Children’s Medical Center in Memphis while he was in medical school at the University of Tennessee. His job was to do medical histories and physicals on surgery patients, but he said he would often stay late to observe operations. “I think it was more the air-conditioned room — a rare treasure in Memphis in the ‘50s — than a passion for pediatric surgery that captured my attention,” Dr. Maddox said with a reminiscent grin. But after doing a general surgery fellowship at Alton Ochsner Medical Foundation in New Orleans from 1959 to 1963, he knew he wanted to pursue pediatrics. He went on to do a pediatric surgery fellowship in 1963-64 at the University of Louisville Children’s Hospital in Louisville, Ky. Pediatric Surgeon Dr. Maddox to retire after 39 years of service Dr. Maddox chose to come to Knoxville after his fellowship, because he realized what many people did not at the time — that children receive better care at a children’s hospital than at a general hospital with a pediatric unit. He was drawn to East Tennessee Children’s Hospital because he was impressed with the staff and service, although the facilities were not as inviting. “Children’s always had great people, but the building was terrible when I came here,” he said. When the new hospital was built on Clinch Avenue in 1970, Dr. Maddox’s perspective changed. There were only two patient floors, but he said he remembers thinking they would never be filled. Obviously, the patient population did surpass the hospital size, and Children’s Hospital has expanded several times since then. Many other things have changed at Children’s Hospital and in the medical field over the last 30 years. Dr. Maddox believes general pediatric surgery, which is one of the oldest pediatric subspecialties at about 55-60 years old, has been improved by the emergence of other subspecialties. “Neonatology didn’t even exist when I was growing up,” he said. “But it has dramatically impacted surgeons’ ability to treat premature babies. Things like intravenous feeding have saved more lives than anything since I’ve been in practice.” Neonatology stands out to Dr. Maddox professionally and personally. The father of four boys, his only daughter was born premature, weighing only three pounds. The technology needed to help her grow and develop did not exist at the time, and she did not survive. “There is no reason why she wouldn’t survive today, even with complications,” Dr. Maddox said. The addition of subspecialties at Children’s Hospital over the years has also impacted pediatric surgery in that the increase of patients from other areas of the hospital — such as gastroenterology and endocrinology — has required the recruitment of more pediatric surgeons. In fact, Dr. Maddox had a solo practice until July 2002. Now he is leaving behind four partners at the East Tennessee Surgery Group, PLLC — Alan E. Anderson, M.D.; Patrick V. Bailey, M.D.; Konstantinos “Gus” Papadakis, M.D.; and David T. Schindel, M.D. Although the availability of pediatric surgical services at Children’s Hospital will not suffer, the loss of Dr. Maddox will be felt around the hospital. “His handprints are all over many of the things we do at Children’s Hospital,” Bob Koppel, president of Children’s Hospital said. “He has truly made a difference in the hospital and in the lives of tens of thousands of children.” Dr. Maddox served on the Children’s Hospital Board of Directors from 1972-1999 and he was Chief of Staff in 1971-72. Most importantly, though, he has committed his career — and his life — to caring for children. Children’s Hospital could not accomplish its mission of providing the best pediatric health care possible without people like John Maddox. He will be sorely missed. John R. Maddox, Jr., M.D. Children’s Hospital and all other hospitals across the nation have been working hard to meet the April 14 deadline for compliance with the Health Insurance Portability and Accountability Act of 1996, often referred to as HIPAA. Children’s Hospital has long been dedicated to patient privacy. The HIPAA privacy regulations provide hospitals and patients with an additional means to help guarantee that patient privacy will continue to be a top priority in the United States. HIPAA includes regulations that govern the use and release of a patient’s personal health information and limits the kinds of information hospitals can disclose regarding patients. Besides privacy standards, HIPAA creates new standards for administrative transactions and the security of individual health information. The new rules are beneficial for patients because they strengthen and set national standards for the privacy of medical information. They guarantee strong privacy rights to patients and families in a common- sense manner, and the rules give patients more control over who can see their private medical information. Implementation of HIPAA at Children’s Hospital has required a variety of operational changes throughout the hospital and in our relationship with many contractors. HIPAA brings changes to hospitals
  • 11. Please send the free brochure titled “Personal Records” Name_________________________________ Address _________________________________________ City ____________________ State _____ Zip ____________Phone #___________________________  Please call me at the above phone number for a free confidential consultation concerning planned giving.  Please send me more information about deferred giving.  I have already included Children’s Hospital in my estate plan in the following way: ____________________________________________________________________  Please send me information about The ABC Club. Children’s Hospital Development Office (865) 541-8441 ( ) Include Children’s Hospital In Your Estate Plans. Join The ABC Club. For More Information, Call (865) 541-8441 12 BB “I don’t have expensive possessions, so why bother?” You probably want the people closest to you to receive items that are special to them, even items that are largely of sentimental value. Perhaps you have grandfather Jones’ handmade bassinet that has been used by every child in the family for three generations, or your “Papaw’s” pocket watch. Perhaps there is a Bible that belonged to great uncle Caleb, the circuit riding preacher, or a bedroom suite that your mother bought with “her money.” Perhaps there is an antique automobile or great grandmother’s old sewing machine. These items may not have great monetary value, but within your family there may be a very strong emotional attachment to them. This creates the potential for long-lasting disagreements among family members if you fail to make your wishes known in a legal and binding way in the form of a will. “I’m not wealthy, so why bother?” You certainly want to ensure that the assets accumulated during your lifetime are divided among your heirs according to your wishes rather than to the state’s inheritance laws. Perhaps there is one heir to whom you would like to leave your home while giving securities or cash to others. Perhaps you have an heir with special health problems such as a Down’s syndrome child for whom you would like to create a trust to assure a lifetime free of financial worries. Perhaps you have supported Children’s Hospital during your lifetime, and you would like to include gifts to us and other charities in your plans. Perhaps you have recently remarried and would like your new spouse to be able to live in your home for his or her lifetime, and then ultimately leave it to the children from your first marriage. Or perhaps there is an individual whom you specifically wish to exclude from receiving anything under your will. State inheritance laws will divide your belongings in equal shares among your living heirs if you do not have a will. They do not accommodate any of these special circumstances. A properly prepared will is the only way to assure that wishes are carried out. For more information on wills and estate planning, including a copy of our free booklet “Personal Records,” please send your name and address to us via the reply form below. Or you may contact David Rule, Director of Development, at dsrule@etch.com, Teresa Goddard, CFRE, Senior Development Officer, at tgoddard@etch.com, or call (865) 541-8162. Editor’s Note: Because restoring the health of sick and injured children is our mission, the first installment in our “Why Bother” series on wills and estate planning focused on the need to plan for custody of minor children. Copies of this article are available if this topic is of interest to you. We hope this installment is useful and informative to our readers. In the next issue of It’s About Children, we’ll discuss some of the information your attorney needs to prepare your will. ecause (your) children are special, a will is vital. EstatePlanning... Whoneedsawill?Whybother? by David Rule, Director of Development
  • 12. 13 U p c o m i n g e v e n t s t o b e n e f i t C h i l d r e n ’ s If you are looking for something new to do this summer, or if you are interested in helping Children’s Hospital, there are several upcoming events that accomplish both. Through the support of sponsors and participants, these events help Children’s Hospital provide the best pediatric health care for East Tennessee’s children. For more information about any of these events, contact the Children’s Hospital Development Department at (865) 541-8441 or visit the calendar of events on the Children’s Hospital Web site at http://www.etch.com/attractions.cfm. Children’s Champions Day As part of Children’s Miracle Network Telethon weekend, Children’s Hospital is inviting members of the East Tennessee community to participate in Champions for Children’s Day on Friday, May 30. Individuals are encouraged to show support for the telethon and Children’s Hospital by purchasing this year’s specially-designed telethon T-shirt and wearing it to work, school or around the town. This year’s shirts are white with the design (pictured below) printed on the front and are available through Children’s Hospital Development Department for $6 each. The deadline for ordering is Friday, May 16. Children’s Hospital Specialty License Plates The drive to receive commitments for the new East Tennessee Children’s Hospital specialty license plate is now in high gear with just over a month left to reach the goal of 1,000 orders. Although a number of individuals have already committed to purchasing the specialty plate, more are needed to reach the goal and have the plate issued. An initial payment of $35 will secure a specialty plate, with nearly half of the proceeds directly benefiting Children’s Hospital. EXPO Run The Knoxville Track Club will be hosting the 26th annual TN Sports Medicine EXPO 10K/5K Run on Saturday, May 24 beginning at 8 a.m. The event will start at the Civic Coliseum courtyard. Participants may register by signing up at Runner’s Market in the Shops at Western Plaza in Knoxville or mail in entries. The entry fee for early registration is $15; the entry fee for late registration, which will be available Sunday, May 18 through Friday, May 23, is $20. Limited registration will also be available on race day for an entry fee of $20. This will be the second year that partici- pants can collect pledge donations or make contributions to benefit Children’s Hospital. More than 1,500 individuals of all ages are expected to participate in this year’s event. Once again, schools and churches will have an opportunity to compete for $500 in cash prize awards by having the greatest number of participants in the run/walk. In addition, prize money will be awarded to the top finishers in several age categories participating in the 10K race. A celebration with food, music and grand prize drawings will take place following completion of the race. Tennessee River 600 Participants in this water enthusiast event will take a weeklong, 600-mile trip down the Tennessee River on their personal watercrafts, starting from Knoxville’s Volunteer Landing on Sunday, July 27 and ending at Pickwick Landing near Memphis on August 2. Participants also collect donations to benefit the four Children’s Miracle Network Hospitals along the route, including East Tennessee Children’s Hospital, and the Tennessee Wildlife Resources Agency. Last year’s event raised a net total of $16,682 for the five organizations. by Eric Barnes, student intern
  • 13. 14 Q&A A: Parents should review and teach their children basic rules of the road such as riding with traffic, proper hand signals and where the child should and should not ride. They also should ensure that the bike is the appropriate size, has good working brakes and properly inflated tires, and undergoes regular maintenance work. Some other bicycle safety tips parents should teach their children are: • Stop and look both directions before entering a street. • Yield the right-of-way to pedestrians. • When riding at night, put reflective tape on clothing or wear reflective vests or jackets. • Avoid riding in wet weather and walk bikes across intersections. • Never ride double. Q: Are trampolines safe for children to play on at home? A: In my opinion, trampolines and safety do not go together. The American Academy of Pediatrics (AAP) recommends that trampolines should not be used at home at all, because they pose such a safety threat. Q: If we already own a trampoline, what are some ways to prevent our child from getting injured on it? A: If you choose to have a trampoline at home, there are several safety precautions you must practice. • Allow only one person on the trampoline at a time. • Do not attempt or allow somersaults. • Completely cover the springs, hooks and frame of the trampoline with shock-absorbing pads. Also, use shock- absorbent material on the ground around the perimeter of the trampoline. • Place the trampoline away from structures and other play areas. • Do not use a ladder with the trampoline, because it provides unsupervised access by small children. No child under 6 Outdoor Safety This summer, East Tennessee Children’s Hospital will treat hundreds of children and adolescents for injuries that could have been prevented. Injuries involving bicycles, trampolines, water and all-terrain vehicles are frequently seen in the Children’s Hospital Emergency Department, and the staff realizes that most of these injuries are preventable. Mick Connors, M.D., pediatric emergency medicine specialist at Children’s Hospital, offers the following information, which may keep children outdoors at play and away from the hospital’s emergency department. Q. Is there any way to prevent my child from being injured while playing outdoors? A: Children should be encouraged to be active and enjoy playing outdoors. However, parents and children need to recognize that many simple things can be done to prevent injuries. It is no fun to go to the emergency department with an injury. Q: What should I do to ensure my child is safe when riding his or her bicycle? A: All children should wear helmets whenever riding a bicycle. The most common serious injury we see from bike accidents is head injury. In the event of a crash, wearing a bicycle helmet reduces the risk of serious head injury by 85 percent. Everyone should be aware that most of these injuries occur very close to a child’s own house, so helmets should be worn even for those “short” rides. Q: Besides always wearing a helmet, what other advice will help my child be a safer bicycle rider?
  • 14. 15 Upcoming Community Education Classes For more information or to register for any of these classes, to be added to the Healthy Kids mailing list for announcements of upcoming classes or to receive our free Healthy Kids parenting newsletter, please call (865) 541-8262. Announcements about upcoming classes can be seen on WBIR-TV 10 and heard on area radio stations. Or visit our Web site at www.etch.com and click on “Healthy Kids Education and News.” Children’s Hospital’s Healthy Kids Campaign is a community education initiative of the hospital’s Community Relations Department to help parents keep their children healthy. years of age should use a regular-size trampoline. • Always supervise children who use a trampoline. These safety tips also apply to newer trampolines with netting surrounding the perimeter. These should not be mistaken as injury-proof. In fact, most trampoline injuries occur on the trampoline and not as a result of falling off it. Q: I have heard a lot about injuries on personal watercrafts lately. What can I do to reduce my child’s risk for injury on one of these vehicles? A. Make sure all riders of personal watercrafts are wearing a properly fitted, U.S. Coast Guard-approved life jacket. Also, when driving a personal watercraft, one should constantly look in all directions for other boaters, skiers, divers or swimmers; avoid wake jumping and passing close to other boats; and always operate at a safe speed and be prepared to stop or alter the watercraft’s course in an emergency. Q: Is there any age requirement for operating a personal watercraft? A: By law, any person operating a personal watercraft must be at least 12 years old unless supervised by an adult, but I recommend allowing only licensed drivers (16 years old) to operate these vehicles. Q: How old must my child be to operate an all-terrain vehicle (ATV)? A: At the time, there is no minimum age requirement in Tennessee to drive an ATV. However, the Consumer Product Safety Commission and the AAP are working to try to keep all children under the age of 16 off ATVs because of the high rate of serious injuries caused by them. Q: What safety precautions should be taken for children riding ATVs? A: If your children will be riding an ATV, you should first make sure the vehicle is properly sized for a child. Also, anyone who owns or rides an ATV should first take a safety course. There are also several safety measures that can reduce the risk of a child being injured on an ATV: • Children riding an ATV should always wear a protective helmet that encases the head and has a protective face shield, such as those used to protect motorcycle riders. • Always supervise children when they are riding ATVs. • Never allow your child to operate an ATV at night or during inclement weather when obstacles and terrain aren’t easily visible. • Prohibit your child from carrying passengers and riding as a passenger on an ATV. These tips may help prevent accidents while children are playing in the yard or in the water, but the greatest source of help is educating yourself and your children about safety precautions. For more information on childhood injury prevention, visit the Children’s Hospital Web site at www.etch.com or call the Children’s Hospital Community Relations Department at (865) 541-8165. Compiled by Katie Harvey, Publications Specialist Mick Connors, M.D. Infant & Child CPR Monday, May 19 • Monday, June 16 Monday, July 14, 6:30-9 p.m. Children’s Hospital Koppel Plaza — Cost: $18 This class will teach caregivers cardio pulmonary resuscitation and choking maneuvers for children ages eight and younger. This class also teaches home safety. Participants must be at least 14 years old to attend. Class size is limited, so preregistration is required. Safe Summer Travel Wednesday, May 28, 10 a.m. Barnes & Noble, 8029 Kingston Pike — Cost: Free With vacation season just around the corner, this class will teach parents safe travel tips and provide ideas for keeping children happy during long car rides.
  • 15. NON–PROFIT ORGANIZATION U.S. POSTAGE PAID PERMIT 433 KNOXVILLE, TN We always try to stay current with friends of the hospital. If for any reason you should receive a duplicate issue, please notify the hospital at (865) 541-8257. Children’s Hospital 2018 Clinch Ave. • P.O. Box 15010 Knoxville, Tennessee 37901-5010 RETURN SERVICE REQUESTED In 1983, Children’s Hospital became a charter member of the Children’s Miracle Network and participated in the first Children’s Miracle Network Telethon. That year, the local telethon raised $95,487, all of which remained at Children’s Hospital for the direct benefit of its patients. Last year, the 20th annual CMN broadcast was a testimony of the progress Children’s Hospital has made over the years — it was the largest telethon of any kind in East Tennessee’s history. Of course, the telethon is not the only thing that has grown at Children’s Hospital in the last 20 years. During the 1983-4 fiscal year, the number of visits made to Children’s Hospital for injuries and illnesses was less than 40,000. That number has more than tripled since then; in 2001-02, there were more than 121,000 patient visits, and even more are expected for the 2002-2003 fiscal year, which ends June 30. To accommodate this continued growth and better serve our patients, Children’s Hospital’s facilities are also growing. The $47.5 million expansion plan that is now well under way was designed to better meet the needs of the increasing number of children receiving care at Children’s Hospital. The success of this year’s Children’s Miracle Network telethon is crucial in helping Children’s Hospital grow to better serve the children of East Tennessee. Funds from the telethon will be used to purchase new and sophisticated medical equipment for various hospital departments, including the Laboratory, the Post-Anesthesia Care Unit, the Radiology Department and the Surgery Department. For complete details of what the telethon funds will purchase, visit our Web site at www.etch.com. Children are the future, so please invest in the futures of thousands of children by supporting the 2003 Children’s Miracle Network broadcast on WBIR-TV Channel 10 on Saturday, May 31, and Sunday, June 1, live from Children’s Hospital. Your support helps ensure that each child who comes to Children’s Hospital, now and in the future, is able to receive the care he or she needs. For more information about the Children’s Miracle Network or the Children’s Miracle Network Broadcast, or if you would like to volunteer at the telethon, please call (865) 541-8441. May 31 - June 1, 2003