It's About Children - Spring 2004 Issue by East Tennessee Children's Hospital


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It's About Children - Spring 2004 Issue by East Tennessee Children's Hospital

  1. 1. Spring 2004 EAST TENNESSEE CHILDRENÕS HOSPITAL ChildrenÕs Hospital 2018 Clinch Ave. ¥ P.O. Box 15010 Knoxville, Tennessee 37901-5010 We always try to stay current with friends of the hospital. If for any reason you should receive a duplicate issue, please notify the hospital at (865) 541-8257. NON-PROFIT ORGANIZATION U.S. POSTAGE PA I D PERMIT 433 KNOXVILLE, TN EAST TENNESSEE CHILDRENÕS HOSPITAL Hall Oates T O T A K E ‘CENTER STAGE’ After more than 30 years of success together, rock/soul singers Hall & Oates will bring their act “Center Stage” at the 12th annual benefit for Children’s Hospital April 3 at the Knoxville Convention Center, a new location for this event. Daryl Hall and John Oates met and first collaborated in 1967. After a brief period performing separately, they were reunited in 1969 and have performed together almost continuously since that time. Their earliest hits came in the 1970s, including “She’s Gone” and “Rich Girl.” After a period of limited success, their album Voices featured four hit singles — a remake of the Righteous Brothers’ “You’ve Lost That Lovin’ Feelin,” “You Make My Dreams,” “Kiss On My List” and “Every Time You Go Away.” For the next several years Hall & Oates produced a number of hits, including “Private Eyes,” “I Can’t Go For That (No Can Do),” “Maneater,” “Out Of Touch,” “Family Man,” and “Method Of Modern Love.” Hall recorded a successful solo album during the pair’s three-year hiatus in their partnership that ended with their reunion in 1988. In 2002, they released a new album, Do It For Love, that featured the title song and “Man On A Mission.” The Center Stage benefit will begin at 6:30 p.m. with cocktails and hors d’oeuvres at the Knoxville Convention Center, followed by dinner and Hall & Oates’ performance. A dance band will perform following the concert. Underwriting support is provided by Goody’s, Clayton Homes, Pilot Corporation and LandAir. A special thanks goes to Bob and Wendy Goodfriend, who will serve as co-chairs for the event for the 12th year. Center Stage has raised more than $1.6 million for Children’s Hospital since its inception. &
  2. 2. Board of Directors James S. Bush Chairman Robert Madigan, M.D. Vice Chairman Robert M. Goodfriend Secretary/Treasurer Michael Crabtree Dawn Ford Peyton Hairston Jeffory Jennings, M.D. Bob Koppel Donald E. Larmee, M.D. Dugan McLaughlin Chris Miller, M.D. Alvin Nance Dennis Ragsdale J. Finbarr Saunders, Jr. William F. Searle III Bill Terry, M.D. Laurens Tullock Danni Varlan Medical Staff Chris Miller, M.D. Chief of Staff Lewis Harris, M.D. Vice Chief of Staff David Nickels, M.D. Secretary Chiefs of Services Lise Christensen, M.D. Chief of Medicine Cameron Sears, M.D. Chief of Surgery David Birdwell, M.D. Chief of Pathology Clifford J. Meservy, M.D. Chief of Radiology Mike Mysinger, D.D.S. Chief of Dentistry Mark Cramolini, M.D. Chief of Anesthesiology Administration Bob Koppel President Paul Bates Vice President for Human Resources Joe Childs, M.D. Vice President for Medical Services Rudy McKinley Vice President for Operations Jim Pruitt Vice President for Finance Beckie Thomas, R.N. Vice President for Patient Care A quarterly publication of East Tennessee Children’s Hospital, It’s About Children is designed to inform the East Tennessee community about the hospital and the patients we serve. Children’s Hospital is a private, independent, not-for-profit pediatric medical center that has served the East Tennessee region for more than 65 years and is certified by the state of Tennessee as a Comprehensive Regional Pediatric Center. Ellen Liston Director of Community Relations David Rule Director of Development Wendy Hames Editor Neil Crosby Cover/Contributing Photographer “Because Children are Special…” ...they deserve the best possible health care given in a positive, child/family-centered atmosphere of friendliness, cooperation, and support - regardless of race, religion, or ability to pay.” ...their medical needs are closely related to their emotional and informational needs; therefore, the total child must be considered in treating any illness or injury.” ...their health care requires family involvement, special understanding, special equipment, and specially trained personnel who recognize that children are not miniature adults.” ...their health care can best be provided by a facility with a well-trained medical and hospital staff whose only interests and concerns are with the total health and well-being of infants, children, and adolescents.” Statement of Philosophy East Tennessee Children’s Hospital The Bottom LineArtwork by some of Children’s Hospital’s special patients 2 Hanna age 8 Nithya age 9 Rachel age 9 15 the best care possible for his or her special pediatric medical needs. Q: What should parents know or do to prepare for a trip to the emergency room in case an emergency happens? A: Although we realize that a trip to our hospital’s emergency room is usually unexpected, there are a few things you can do to prepare for your visit. Be sure to always have your children’s Social Security Q: In what cases is a trip to the Children’s Hospital Emergency Department necessary? A : Any of the above circumstances would merit a trip to the Children’s Hospital Emergency Department if your child’s pediatrician is not available, but it is important to keep in mind that emergency departments are equipped to care for all children — from those with minor illnesses to those with life-threatening injuries. Because of this, patients with a less severe problem usually will have to wait until more critically ill patients are treated. The emergency department is also more appropriate than a doctor’s office for sudden and serious situations such as these: • A head injury that has caused loss of consciousness, vomiting or problems with balance or coordination • An injury that has caused numbness and tingling or paleness in an extremity • An injury that will likely need an X-ray and casting • Complications related to a chronic medical condition such as diabetes or asthma • Difficulty breathing or gasping for breath • For an infant from birth to three months, any change in color, especially paleness or bluish color around the mouth and in the face Q: What if my child is sick and our pediatrician is not available, but it is not an emergency? Should I take my child to an urgent care (or walk-in) clinic? A: Generally, walk-in medical facilities do not have staff specially trained in pediatrics, so I would not recommend having your child treated at one. If your child is sick and your pediatrician is not available, bring your child to Children’s Hospital’s Emergency Department. You may have to wait a little longer than other patients whose conditions are more severe, but your child will receive numbers, current medication (dosage and schedule), and insurance information. You will be asked to provide this information about your child. For more information on visits to the Emergency Department, visit our Web site at Compiled by Katie Harvey, publications specialist Making Healthy Choices Tuesday, March 23, 7 p.m. Tuesday, April 20, 7 p.m. Place: Children’s Hospital Koppel Plaza Because food habits often are family-centered, it is important to recognize unhealthy habits and take steps to correct them. A registered dietitian will discuss how to make appropriate healthy food choices, provide substitutes for foods that promote weight gain and suggest methods for increasing daily activity. Class sizes are limited, so pre-registration is required. This course is FREE. Infant and Child CPR Monday, February 23, 6:30 p.m. Monday, March 8, 6:30 p.m. April 20, 6:30 p.m. Monday, May 11, 6:30 p.m. Place: Children’s Hospital Koppel Plaza This class will teach caregivers cardio-pulmonary resuscitation and choking maneuvers for children ages eight and younger. This class also gives general home safety advice and tips. Class sizes are limited, so pre-registration is required. This course is $18 per person. Monthly programs at Borders Books The last Wednesday of every month at 10 a.m. Place: Borders Books, Music and Café, 202 Morrell Road in Knoxville Pediatric health topics for this free program vary each month. Parents and children are both welcome to attend, and preregistration is not required. For more information or to register for any of these classes, to be added to the Healthy Kids mailing list for announcements of upcoming classes or to receive our free Healthy Kids parenting newsletter, please call (865) 541-8262. Announcements about upcoming classes can be seen on WBIR-TV 10 and heard on area radio stations. Or visit our Web site at and click on “Healthy Kids Education and News.” Children’s Hospital’s Healthy Kids Campaign, sponsored by WBIR-TV Channel 10 and Chick-Fil-A, is a community education initiative of the hospital’s Community Relations Department to help parents keep their children healthy. Upcoming Community Education Classes Lise Christensen, M.D.
  3. 3. To whom it may concern, My son, Marcus Bennett Skeen, was brought to the Emergency Department at Children’s Hospital around 10 p.m. on the evening of September 30, 2003. We ended up being admitted, and our stay was until Thursday, October 2, 2003. It was important to both my husband and I to make you aware how extremely impressed we were with the staff at Children’s Hospital. This view held true throughout our entire experience from the emergency room to our inpatient occurrence. Having a business where doing education seminars on customer service courtesy skills is a large portion of what we do, I am probably more in tune with this type of behavior than the average person and often use my own personal experiences as illustrations in my discussions. My family has been in a few situations where, unfortunately, our experiences were less than pleasant, and sadly, most of these experiences were due to staff and behaviors. This makes what is already a difficult situation even worse. It’s the simple gestures that can make all the difference in the world, and everyone we encountered at Children’s went out of their way to accommodate us. Even to a staff member, on her lunch break, having to direct me to an exit so I could get to the outside parking lot. Sensing that I was frustrated, tired and lost, she took the time to walk me down the hall directly to the exit door and gave me further instructions on how to get to the parking garage … lunch tray still in her hand! With the exception of a few names on the night staff (Katy and Lori), I am regretful that we were in a state of mind that we were not more aware of keeping up with names … there would be many to thank. In the Emergency Department, we were treated with the utmost care and sincere concern from staff members in the admissions process, to Dr. Lise Christensen to nurses and the gentleman from Respiratory Care (who was most attentive in his care for our son, including his regard to Marcus not feeling well). From the specifics relating to Marcus’s care to simple courtesy such as making sure my husband and I were comfortable or needed anything, each staff member made us feel as if we were the only family at the hospital! I understand that the nursing industry has to be one of the most difficult professional situations to be in, and yet the staff we dealt with obviously loved their jobs and were good at it. It was a wonderful balance of appropriate professionalism and yet sincere kindness and courtesy. Thank you for everything and for helping to make the best out of an unfortunate situation. Knoxville, and anyone in this community who has a child, is fortunate to have the availability of such a wonderful facility dedicated to children! With kindness, Beth Skeen Knoxville Dear Mr. Koppel: My granddaughter, Caroline Winstel, was admitted to room 327 in your hospital on October 2, 2003. I wanted you to know our impressions of your hospital. All the staff from housekeeping and nursing to chaplains went above and beyond the norm. Everyone was very friendly and helpful, and well trained. You could tell that all the staff enjoyed working there. All I had to do was to step outside the door and someone immediately asked if I needed something. I was flabbergasted; this is not the way hospitals are run these days. Everything is supposed to be the bottom line and staff cutting, even non-profits. Also details of tests and results were clearly explained to us and on a timely basis. The staff seemed genuinely concerned for us. No one seemed to be in a hurry, and your staffing ratio is incredible. I just wished I could say these things about the hospital where I work. Please tell your housekeeping department what a great job they are doing; the decor was great, and the entire place was spotless. Sincerely, Laraine B. Rush Horse Shoe, N.C. Editor’s note: This letter was written during the fall 2003 United Way campaign for the employee newsletter at BWXT Y-12, LLC., the Y-12 National Security Complex in Oak Ridge. The Children’s Hospital Rehabilitation Center is a United Way agency. A Personal Experience … The East Tennessee Children’s Hospital Rehabilitation Center is a United Way organization that helps children who have problems with speech, fine motor skills and gross motor skills. Children receive therapy there for issues ranging from mild speech impediments to severe physical disabilities. Many of these children have numerous health problems and disabilities. My son was born with severe vision problems, hydrocephalus (fluid on the brain), one small lung, and one completely deaf ear. After he was released from the Neonatal Intensive Care Unit at Children’s Hospital, he was evaluated by the East Tennessee Children’s Hospital Rehabilitation Center to determine if he would require additional follow-up and/or therapy, and that is when our wonderful relationship with this organization began. My baby’s vision problems and the four surgeries he had before he was 6 months old, coupled with the two months he spent confined in his car seat to recover from those surgeries, caused him to have delays in both his gross and fine motor skills. Thanks to a lot of prayer from family and friends and the excellent physical therapy and occupational therapy he received at the East Tennessee Children’s Hospital Rehabilitation Center, my son finally walked on his own for the first time when he turned 2 years old. I have left the East Tennessee Children’s Hospital Rehabilitation Center either crying for my son or crying for other children on numerous occasions. These kids struggle tremendously to do tasks that we take for granted that children should be able to do. These kids try so hard to meet their goals, and it is not easy for them. Sometimes it causes them physical pain to use muscles that they do not normally use very often to learn how to sit up, crawl or walk, and their tears will just break your heart. But there is nothing that compares to the joy on their little faces when they finally accomplish one of their goals and realize they actually can do it. I will always remember the physical therapist who worked with my son. As he struggled, she would encourage him to say, “I can do it …I can do it!” The therapists who work at the East Tennessee Children’s Hospital Rehabilitation Center are amazing people. They have tender hearts and an intense desire to help the children in our community to succeed in doing tasks that other children are able to do. If you are looking for a good organization to designate your United Way contribution funds to, and you want to help children in the process, please consider designating the East Tennessee Children’s Hospital Rehabilitation Center (#211, Knox County) on your United Way Donation. Thanks for giving to the United Way and enabling children like mine to walk. Jamie Arnold BWXT Y-12 Plant Training Organization 14 • Severe headache • Earache, fluid discharge from the ear or sudden hearing loss • Severe sore throat, especially with trouble swallowing or speaking • Vomiting for 12 hours or more • Vomiting of blood • Intense or unusual abdominal pain or a swollen or abnormally large abdomen • A sudden rash, crop of blotches or blisters, especially over a large area of the body Whenever your child has a symptom that concerns you, you should not hesitate to call your child’s pediatrician, even if the symptom does not appear on this list. • Uncontrollable crying for an abnormally long time 3 Months to 1 Year • Temperature of 101 degrees in infants 3 to 6 months, or 104 degrees in children 6 months or older • Child refuses to eat and misses several feedings • Unusual crankiness and irritability or unusual sleepiness • Any blood in the stool Infant to Adolescent • High fever • Chills and full-body shaking • Extreme sleepiness or unexplained lethargy • Unusual excitement or hysterical crying • Sudden weakness or paralysis of any part of the body • Seizures Nothing is more frightening to parents than thinking something might be wrong with their child’s health. Parents can easily become overly cautious, calling their pediatrician every time they hear their baby cough. But how do you know whether your child’s illness is minor or if you need to go to your child’s pediatrician or to the hospital? Lise Christensen, M.D., emergency medical physician at East Tennessee Children’s Hospital, offers the following advice about when you should see your child’s pediatrician and when you should go immediately to the Children’s Hospital Emergency Department. How do I know when I should call my childÕs pediatrician? Q: How do I know when I should call my child’s pediatrician? A: There are certain signs and symptoms to look for in your child that are definitely a reason to call your pediatrician. Some typical symptoms of illness differ depending on the child’s age. You should call your pediatrician immediately if your child has any of the following symptoms listed in his or her age category: Birth to 3 Months • A temperature of 100.4 degrees or higher • “Pink eye” • Redness or tenderness around the navel area • Vomiting that continues for more than six hours • Diarrhea that occurs more than eight times a day • Stops feeding normally
  4. 4. 4 SarahSarahSarah brings this bear with her on visits to Children’s Hospital 13 Specialty License Plates The specialty license plate issued by the state of Tennessee to recognize Children’s Hospital is now available. Individuals who purchased one of the plates in advance may go to their county clerk’s office to receive their new plate. Anyone who did not preorder one of the plates may also purchase one at their county clerk’s office at any time. Children’s Hospital benefits from the sale of the specialty plates. Phonathon Prior to the Children’s Miracle Network broadcast each year, teams of business professionals work together to raise funds for Children’s Hospital through the annual Phonathon. During February and March, callers contact donors from previous Children’s Miracle Network telethons, thank them for their past support and ask them to renew their pledge in advance of this year’s telethon, which is set for June 5 and 6. Last year’s phonathon raised nearly $60,000. Prior to being called, past donors will receive a reminder postcard about the upcoming phonathon. Star 102.1 Radiothon Be sure to tune in to the third annual Radiothon, sponsored by longtime Children’s Hospital supporters Star 102.1 radio and the Journal Broadcast Group. The Radiothon will take place March 4 and 5 from 6 a.m. to 6 p.m. each day, live from West Town Mall and live from the new Children’s Hospital Rehabilitation Center each day from noon to 2 p.m. Marc and Kim, Star 102.1’s morning team, will host the Radiothon and encourage listeners to make a personal pledge to help Children’s Hospital. Funds raised during the event will help purchase supplies for the Children’s Hospital Rehabilitation Center and Children’s Hospital Home Health Care. Radiothon raised more than $260,000 in its first two years. A great way for your family, business or church group to get involved in Radiothon is to be a “Cash Cop for Kids,” which will help kick off the event. A “Cash Cop” is an individual who agrees to solicit donations for Children’s Hospital from coworkers, friends and families in the months prior to Radiothon. Stay tuned to Star 102.1 for further details or call the Children’s Hospital Development Office at (865) 541-8567 to participate. Hat Trick Weekend A hat trick is one of hockey’s greatest feats – three goals in one game. The Knoxville Ice Bears’ Hat Trick Weekend March 12 and 14 hopes to fulfill an equally great accomplishment to benefit the Oncology Clinic at Children’s Hospital: to collect hundreds of new hats for the oncology unit’s Hat Tree. New hats are always needed for patients whose chemo-therapy treatment frequently results in hair loss. Hats must be new, and all sizes and styles are needed, from caps with sports emblems to “frilly” ones for girls. Hat Trick Weekend will feature hockey games with pre- game activities at the Knoxville Civic Coliseum. “Cutest Little Baby Face” Contest The 14th annual “Cutest Little Baby Face” contest will offer two opportunities for photographs on March 13 from 9 am. to 6 p.m. and March 14 from noon to 5 p.m. Photographs will be taken at Belz Factory Outlet World in Pigeon Forge. The contest, which raised more than $12,000 last year, is open to children ages 5 and younger. Participants may preregister by completing a registration form in the outlet mall’s Center Court or by calling the Children’s Hospital Development Department at (865) 541-8745. The entry fee for preregistration is $5, and registration at the event is $7. The fee includes a choice of 5x7 portrait of the participating child. Once all entry photographs are taken, voting will take place March 26 from 9 a.m. to 6 p.m. and March 27 from 9 a.m. to 3 p.m. A $1 donation to Children’s Hospital will count as 100 votes for a photo of a favorite baby. The child with the most votes will win and will be announced at the “Baby Face Parade” which begins at 3:30 p.m. on March 27. TK’s Breakfast When B97.5 morning radio personality TK Townshend “cooks breakfast” for Knoxville this year, the popular breakfast event will be in a new location. TK will host the ninth annual TK’s Breakfast for Children’s Hospital on March 20 at the Knoxville Convention Center from 9-11 a.m. Families can enjoy music and entertainment during the breakfast, as well as bid on and purchase items at the live and silent auctions. Knoxville’s own Jordan Hill is scheduled to perform. Other performers for this year’s event have not yet been confirmed, but past performers include All-4-One, Jim Brickman and Lee Greenwood. Food City Family Race Night March 24th hopes to see NASCAR fans racing to Knoxville’s Civic Coliseum from 5-9 p.m. for a night of family fun. Activities include autograph signing by NASCAR drivers, free food sampling, show cars, simulators and shopping for souvenirs. Tickets are $4 in advance or $5 at the door. Children ages 12 and under are admitted free. Tickets may be purchased at any Knoxville area Food City. Million Coin March The four Knoxville area stations of Citadel Broadcasting Group will host the Million Coin March beginning April 15 to benefit Children’s Hospital. Personalities from the stations will encourage listeners to visit drop-off sites to donate their pennies, nickels, dimes, quarters and other coins to the hospital. Listen to the stations – WIVK, NewsTalk, WOKI and WILD — for more information on when and where to drop off donations. Children’s Hospital Invitational Golf Tournament The 21st annual Children’s Hospital Golf Tournament to benefit the Oliver William Hill, Jr., M.D., Pediatric Neurology Laboratory will take place May 10 at Fox Den Country Club. The tournament will feature morning and afternoon rounds. In case of rain, the event will be rescheduled for May 17. Special thanks to Ruby Tuesday, the signature sponsor of the tournament, for their ongoing support of Children’s Hospital. by Matt Rongey, student intern U P C O M I N G E V E N T S T O B E N E F I T C H I L D R E N ’ S Mark your calendars now for several upcoming events designed to entertain families and benefit Children‘s Hospital. Thanks to the generous people of East Tennessee who host and participate in these events, Children’s Hospital can continue to provide the best pediatric health care for all the children of this region. DatestoRememberUpcoming events to benefit Children’s Hospital March Phonathon Through March 11 Star 102.1 Radiothon March 4 & 5 Hat Trick Weekend March 12 & 14 Cutest Little Baby Face Contest — Photos March 13 & 14 TK’s Breakfast March 20 Food City Family Race Night March 24 Cutest Little Baby Face Contest — Voting March 26 & 27 April Million Coin March Begins April 15 Nancy Hayes Memorial Baseball Tournament April 23-25 May Children’s Hospital Invitational Golf Tournament May 10 June Children’s Miracle Network Broadcast June 5 & 6 For more information about any of these events, call (865) 541-8441 or visit our Web site at and click on “Coming Attractions.”
  5. 5. W ÒSarah is one of the bravest young ladies I have ever known,Ó Cawood said. ÒI really admire her.Ó When 13-year-old Sarah Allison of Oak Ridge spoke in front of officials at a televised Knox County Commission meeting on May 27, 2003, having butterflies in her stomach was the least of her worries. In fact, the reason 6th District County Commissioner Mark Cawood invited Sarah to speak at the meeting was to share her experience with inflammatory bowel disease (IBD), which refers to two chronic conditions: ulcerative colitis and Crohn’s disease. These conditions cause inflammation of the large intestine, also called the colon, and can result in severe abdominal pain and serious side effects in the digestive tract. ÒSarah is one of the bravest young ladies I have ever known,Ó Cawood said. ÒI really admire her.Ó When Sarah spoke, Knox County Mayor Mike Ragsdale was so impressed with her positive attitude, hard work and courage in the face of her medical challenges that he proclaimed that day as “Sarah Allison Day.” Sarah had been having challenges with abdominal pain and heartburn long before she came to see Youhanna Al-Tawil, M.D., pediatric gastroenterologist at Children’s Hospital, on November 18, 2002. Sarah saw Dr. Al-Tawil to be evaluated for possible gastroesophageal reflux disease (GERD), meaning gastric content is brought from the stomach into the esophagus. During Sarah’s physical exam, Dr. Al-Tawil discovered blood in her stool as well as many other indicators that she was suffering from something more serious than GERD. He told Sarah and her mother, Janice, that there was a possibility Sarah had ulcerative colitis or Crohn’s disease. Both ulcerative colitis and Crohn’s are inflammatory diseases of the large intestine. Crohn’s disease, however, can also affect any part of the gastrointestinal tract, whereas ulcerative colitis usually only affects the colon. Sarah was admitted to Children’s Hospital for evaluation including an endoscopy, which showed serious inflammation in her colon. Biopsies and several lab tests were completed during the two weeks she spent in the hospital, and these supported a diagnosis of inflammatory bowel disease (IBD). When Sarah went home, her treatment plan included daily doses of several medications. Drug treatment is the primary method for alleviating symptoms of both ulcerative colitis and Crohn’s disease, and great progress is being made in the development of medications for treating IBD. Two categories of drugs may be prescribed: anti-inflammatory drugs and immunosuppressive agents, such as steroids, to restrain the immune system from attacking the body’s own tissues and causing further inflammation. If a patient does not respond to the medicine, surgery may be considered. “Since ulcerative colitis only affects the colon, it is a curable disease if the colon is removed,” Dr. Al-Tawil explained. “But surgery is not for everyone, and it is always best to see ÒYour attitude can truly affect how you feel,Ó Sarah said. if medications can help before going that route.” After Sarah was admitted to Children’s Hospital for the second time on January 16, her doctors increased her steroids, and she was released after four days. Just a few days later, on January 27, Sarah came back to Children’s Hospital in “crisis mode,” as her mother termed it. She was in extreme pain and was bleeding uncontrollably. The damage done by the disease made removal of her colon, rectum and appendix necessary. The surgery, which took place at Children’s Hospital on February 10, 2003, was such a long process, it had to be coordinated and performed by two of the hospital’s pediatric surgeons. “Gus” Papadakis, M.D., and David Schindel, M.D., performed the surgery using specially-designed instruments and a camera placed through small incisions to reduce scarring and shorten Sarah’s recovery time. It was the first time this particular surgery, a laparoscopic colectomy, was performed in East Tennessee, but that did not scare Sarah. In fact, Janice said Sarah was laughing on the way to surgery. After 14 hours of surgery and several hours of recovery, Sarah awoke with a contagious confidence that she was going to feel better soon. ÒYour attitude can truly affect how you feel,Ó Sarah said. Sarah has applied this to all aspects of her life. She always remains positive, whether in the hospital (almost 90 days in Children’s Hospital over the past year) or at school (maintaining a 3.9 GPA at Karns Middle School during the time she was in and out of the hospital and maintaining a 4.0 so far this school year). Dr. Al-Tawil is especially appreciative of Sarah’s outlook because treating the underlying problems caused by IBD, such as emotional stress, is just as important as any other treatment. The emotional damage created by the disease can be nearly as destructive and devastating as the physical damage. Learning to deal with the disease can be overwhelming for adults, but it is especially difficult for children, adolescents and young adults, he said. Sarah learned many distraction and 5 visualization techniques to help her deal with the roller coaster of physical and emotional feelings she experienced, but she also used her strong sense of humor. She nicknamed her colon “Rotten Roger,” so she could focus any anger she felt on the disease and not elsewhere. Sarah also has a solid support group to help her cope with various aspects of the disease including her mom, dad (Brad), sister (Amanda Rogers), other family, friends, members of her church, teachers and many staff at Children’s Hospital. Knowing how this kind of support can help or hurt someone with IBD, Sarah and her mother are working with Linda Smithson, Surgical Services Clinical Nurse Specialist, to start a support group at Children’s Hospital for other IBD patients and their families. Sarah and her mom are also writing a book together titled “Rotten Roger, A Good Colon Gone Bad: A Teenager’s Story of Crohn’s Disease/Ulcerative Colitis.” In addition, Janice serves as a Children’s Hospital Parent Adviser. As “experts” in caring for their children, the role of Parent Advisers is to inform Children’s Hospital staff how the hospital experience could be improved for patients and their families through a variety of venues (see article about Child-Family Centered Care on page 8). “They are caring people who want to help the community,” Dr. Al-Tawil said. “What they are doing is wonderful because it enhances public understanding of a disease that many times goes unrecognized.” Sarah has made tremendous progress over the last year. She has regained most of the weight she lost post-surgery (which was about 30 lbs.). When Drs. Papadakis and Schindel removed Sarah’s colon, they also did a procedure called ileoanal reservoir. An ileoanal reservoir (or J-pouch) is an internal pouch formed from the small intestine that provides a storage place for stool in the absence of the colon. A temporary ileostomy, a surgically-created passage through the skin of the abdomen into the lowest part of the small intestine, is also made. This temporary ileostomy diverts the stool into a bag worn on the abdomen, protecting the pouch while it heals. Approximately four to six months after the first surgery, if an X-ray of the pouch shows it has healed, then a second surgery to remove the ileostomy is scheduled. The pouch now becomes functional so that waste passes into the pouch, where it is stored until a bowel movement occurs. Sarah had her ileostomy removed in August, and although the pouch generally takes up to one year to fully adapt, Sarah has been functioning well and will continue to improve over time. About one million Americans have IBD, but Sarah is “one in a million” in more ways than that. Not many people have a day named for them, but not many people are as inspiring as Sarah either. “Sarah is the kind of person who renews your appreciation for the little things in life,” Dr. Al-Tawil said. “She will do great things with her life.” by Katie Harvey, publications specialist Sarah and her best friend, Amanda Fritschie. 12 These four words are much more than a simple slogan at Children's Hospital. For over six decades, these four words have served as the guiding light for decisions small and large. They are important to the physician and the office worker. They influence the work of the Board Member and the billing clerk. These four words light the way for nurses, social workers, respiratory therapists, food service workers, chaplains, housekeepers, administrators, dietitians and x-ray technicians; they permeate every aspect of our operations. The caring, compassionate philosophy reflected in these four words has inspired thousands of community leaders, physicians and employees to spend decades of volunteer time, donate millions of dollars and devote entire careers to the task of building the hospital where children made more than 130,000 visits last year. Yet there is so much more to be done. As our area grows and prospers, there are more and more children in need of care. In December 2003, our Emergency Department set a new record with 326 patient visits in a single day. This one statistic is representative of many that reflect large increases in the number of children coming to Children's Hospital for care. With the hospital's original Open Door policy dating to 1937 still in effect, gifts are more important than ever. One of the many ways you can help Children's Hospital enhance its mission of care is by a gift of securities. Gifts of securities can provide financial benefits to the contributor as well as to the children we are privileged to serve. When you give securities that you have owned for at least one year and that have increased in value, you may be entitled to an income tax deduction for the full market Estate Planning... ÒBecause Children Are Special...Ó Include Children’s Hospital in your estate plans. Join the ABC Club. For more information, call (865) 541-8441. Please send the free brochure titled “Taking Stock & Giving It.” Name______________________________ Address__________________________________________ City___________________________ State_______ Zip_____________ Phone#(______)___________ r Please call me at the above phone number for a free confidential consultation concerning planned giving. r Please send me more information about deferred giving. r I have already included Children’s Hospital in my estate plan in the following way: ________________________________________________________________________________ r Please send me information about the ABC Club. Children’s Hospital Development Office (865) 541-8441 value of the stock. Most donors pay little or no capital gains tax on the appreciation. Also, securities gifts are flexible; you can give all of your shares or donate any portion of them. You can give securities outright or through a trust. When using appreciated securities you have owned for at least one year to fund a charitable trust, you can: • further enhance health care available to area children, • receive an income for life, • bypass 100 percent of capital gains tax, • most likely receive a charitable income tax deduction, and • leave a legacy of support that can help many future generations. Please consult with your tax advisors to determine how such a gift might affect your personal tax situation. There may be advantages available to you if you donate closely held securities or use other charitable planning techniques that benefit the donor as well as Children’s Hospital. We are pleased to work with you and your financial advisors to find the techniques that are most suitable for you, and all information is held in the strictest confidence. Please call David Rule, Director of Development, or Teresa Goddard, CFRE, Senior Development Officier, at (865) 541-8441 or mail the form below in the attached envelope.
  6. 6. 6 Why Pediatrics? I’ve known that I wanted to become a pediatrician since seventh grade. I am always inspired by the enthusiasm, innocence and honesty of children. Greatest Influence – My greatest influences personally and professionally have been my family, faith and all the wonderful children and families whom I have had the privilege to meet over the years. Philosophy – Preventive medicine and teaching are as integral to the practice of pediatrics as the acute care of the ill child. My goal is to have parents understand and feel comfortable with the care their child has received. Proudest Moment as a Pediatrician – My proudest moments are when I am able to calm a sick child and reassure the frightened parents. Kathy Holloway, M.D. Age – 37 Husband – Brian Holloway, M.D. Children –Emily (age 8) and Matthew (age 6) Name of Pediatric Practice – Knoxville Pediatric Associates Personal Interests – My family and their activities, cooking, tennis and reading Academic Background/Prior Experience B.S. – Ursinus College, Collegeville, Pa., 1988 M.D. – Temple University School of Medicine, Philadelphia, Pa., 1992 Internship – Children’s Hospital Medical Center of Akron, Akron, Ohio, 1992-93 Residency – Children’s Hospital Medical Center of Akron, Akron, Ohio, 1993-95 Other – Treated patients in the Children’s Hospital Emergency Department’s ED-2 for three years prior to joining KPA Pediatrician Profiles Why Pediatrics? Pediatrics is the best job in the world. Children love to laugh, and in pediatrics, you can have fun while providing children with medical care. Greatest Influence – God Philosophy – To provide quality medical care and to be a positive influence in the lives of children and their families. Pediatrics is more than just a job; it is a unique opportunity to make a difference in the life of a child. Proudest Moment as a Pediatrician – The day-to-day moments make pediatrics special. A laugh, a hug or a smile from a child makes me proud to be a pediatrician every day. Jill McDowell, M.D. Age – 37 Husband – Mark Newsome Name of Pediatric Practice – Boys & Girls Pediatrics, Asheville Highway and Sevierville Personal Interests – Church, golf, reading Academic Background/Prior Experience B.S.–University of Tennessee, Knoxville, 1989 M.D.–University of Tennessee, Memphis, 1994 Internship – University of Tennessee Medical Center, Knoxville, 1994-95 Residency – University of Tennessee Medical Center, Knoxville, 1995-97 A childhood dream becomes a rewarding reality “Pediatrics is the best job in the world.” 11 With much excitement and anticipation, the staff of the Children’s Hospital Rehabilitation Center is busily preparing to move into its new facility on Friday, February 20. The center has already received all required state approvals, so plans are for the center to open in its new location on Monday, February 23. The new building is located on the Children’s West campus at Pellissippi Parkway and Westland Drive, next to the Children’s West Surgery Center that opened in spring 2003. The new center, which is relocating from its present site on Gleason Road, has about 22,500 square feet all on one level in an updated facility. The new facility offers expanded space for all the Rehab Center’s services. It also features a large, fully accessible, therapeutic playground, pictured above. It provides handicapped-accessible opportunities for children to build skills in independent movement with wheelchairs, crutches and walkers, practice upper-body strength building, develop balance and movement confidence, and build social and behavioral skills through play with other children. While work is winding down for the time being on the Children’s West campus, major construction continues on the main Children’s Hospital campus. Good progress is being made toward completion of the 115,000-square-foot, seven-story patient tower being added to the hospital at the corner of Clinch Avenue and 20th Street. While unpredictable weather is always a factor in construction, here is an update on what has been completed and what is planned for the next few months: • The tower’s steel structure is “topped out” and will soon be under roof. • Work has begun to create rooms on the lower levels of the new tower. • Utility work on the lowest level of the tower is underway, and work on the new cafeteria will begin as soon as this is complete. • Work is continuing on the south side of the hospital for the installation of new heating and air-conditioning units on the 2nd, 3rd and 4th floors. The units should be delivered and installed soon, and then this space will be enclosed. • Renovation of about 90,000 square feet of existing hospital space is scheduled to begin in the latter part of 2004. This work will include upgrading of all semi-private inpatient rooms with half baths to private rooms with full baths. The $31.8 million expansion and renovation of Children’s Hospital will ultimately allow for more space and comfort for patients and families. Features will include 95 private patient rooms with full baths, an expanded 13-bed Pediatric New physicians added to staff Children’s Hospital is pleased to welcome the expertise of the following new medical staff members who have joined our staff in recent months: Frank Castro, M.D., orthopedics Frances Craig, M.D., pediatrics and emergency medicine Lisa Herron, M.D., pediatrics John J. McGraw, M.D., orthopedics. Intensive Care Unit and an expanded 44- bed Neonatal Intensive Care Unit. The hospital’s licensed beds will increase from 122 to 152, and a larger Emergency Department will see an increase from 18 to 34 beds. In addition, the Surgery and Radiology Departments will be expanded, and more space will allow additional room for a larger cafeteria, support services, staff and storage. Rehab Center moving day has arrived New therapeutic playground at the East Tennessee Children’s Hospital Rehabilitation Center OPEN HOUSE The Children’s Hospital Rehabilitation Center will host an open house at the new center on Monday, April 12, from 4-7 p.m. The public is invited to attend
  7. 7. 10 Long-time Children’s Hospital volunteer Nancy Flynn of Knoxville has been named president of the Tennessee Hospital Association’s Council on Volunteers. She began her term in mid-October at the Tennessee Hospital Association (THA) annual meeting in Nashville and will lead the organization for a two-year term through 2005. Flynn has served on the Council of Volunteers board since 1997, also serving as regional chairperson and assistant regional chairperson. The THA Council on Volunteers is composed of volunteer and auxiliary organizations from member health care institutions throughout the state of Tennessee. The council’s goals and responsibilities include encouraging and assisting volunteer leaders and members across the state to stimulate volunteerism, advocacy and activity; to provide guidance and educational opportunities through programs, publications and direct contact; support THA’s mission by strengthening the participation of volunteers in health care facilities’ efforts to provide quality patient care; and effective government and community relations. Flynn’s volunteer involvement at Children’s Hospital began in February 1987, and she has volunteered nearly 16,000 hours of service at the hospital during the past 16 years. She has served on the Children’s Hospital Auxiliary Board since 1990, holding the office of vice president in 1993-94 and president in 1994-95, and she also served on the Children’s Hospital Board of Directors in 1994-95. In addition, Flynn has volunteered with the Fantasy of Trees holiday event to benefit Children’s Hospital each of the past 16 years and served as the event’s co-chair in 1991-92. She also volunteers at the Children’s Miracle Network Telethon and Children’s Hospital Invitational Golf Tournament each spring. Flynn has been honored for her volunteer service at Children’s Hospital with both the 24-Karat Award for enthusiasm in 1993 and the Anne Regas Award for leadership in 1995. A native of Harriman, Flynn and her husband Bob have two sons and four grandchildren. Flynn is the second Children’s Hospital volunteer to hold this leadership position within the THA Council on Volunteers; volunteer Peg Parker served as president of the organization in the early 1980s. “Nancy Flynn’s commitment and volunteer service to Children’s Hospital is exemplary,” said Bob Koppel, President of Children’s Hospital. “She is representative of the hundreds of caring volunteers who assist our health care facility in providing the very best of care to our patients and families. All of us at Children’s Hospital applaud her as she assumes this statewide leadership role with THA.” Volunteer named to state office Children’s Hospital has a new publication! Children’s E-News debuted in October with the first mailing to e-mail subscribers. Children’s E-News is a free, text-only e-mail newsletter that is sent once a month. It includes timely information from the hospital as well as links to various pages on the Children’s Hospital Web site, Newsletter topics include health articles for parents, kids and teens from KidsHealth and Children’s Hospital; information about upcoming hospital events and fund-raisers; and “virtual visits” that help parents and kids learn about typical visits to the hospital. The next issue will be e-mailed in March, and it will include such topics as ear infections, information for kids about cerebral palsy, information for teens about asthma, what happens in the Emergency Department during a typical visit, and the Cutest Little Baby Face Contest fund-raiser. If you would like to subscribe to Children’s E-News, visit the hospital’s Web site at, scroll to the bottom of the home page and fill out the Comment Form. Be sure to give your e-mail address and check the box to be added to our e-mail list. In its second year at the Knoxville Convention Center, the Fantasy of Trees brought a musical mood to the holiday season for 51,462 guests. Highlighting the theme “Fa La La La La ... Let the Holidays Begin,” the show featured a magical forest of hundreds of beautifully decorated trees and other designer items, continuous entertainment, children’s activities, decorating and style demonstrations, and many holiday shops. The proceeds from this year’s show – estimated at about $300,000 – will fund the purchase of new and replacement equipment for the larger space and expanded services at the new Children’s Hospital Rehabilitation Center scheduled to open in February. The real stars of the 2003 Fantasy of Trees were the 9,831 volunteers who donated in excess of 116,000 hours to make this year’s event such a success. Children’s Hospital extends its thanks to all volunteers and visitors to the 2003 show. The Fantasy of Trees has raised more than $3.3 million for Children’s Hospital since its inception in 1985. 2003 Fantasy of Trees welcomes holidays in musical style Hospital debuts e-newsletter 7 HELPING HANDS than to receive.” One group of special-needs adults in Knoxville is giving back to the Children’s Hospital Rehabilitation Center, a place where some of the group’s members received great care as children. The Helping Hands Ministry of First Baptist Concord is a day program for women ages 21-29 with special needs. There are currently five women enrolled in the ministry: Elizabeth Adams, Jenny Bopp, Michael Kelly, Heather McGuire and DeDe Owen. These young women, under the direction of Marilyn Bopp (Jenny’s mother), do various jobs and tasks for First Baptist Concord and other churches and businesses in the community, including the Children’s Hospital Rehab Center. “One of the best things about this program is seeing how their faces light up with enjoyment and satisfaction when they feel like they are accomplishing something,” Marilyn Bopp said. “They get a great sense of fulfillment from serving others.” The young women volunteer at the Children’s Hospital Rehabilitation Center every Wednesday and Thursday from 3-5p.m. Working with Carleasha McKinney, a Rehab Center aide, they clean toys and equipment and prepare different rooms for therapy sessions. Many may perceive the work they do as mundane, but these women perform the tasks with enjoyment and enthusiasm. For Owen, McGuire and Jenny Bopp, volunteering at the Rehabilitation Center is even more significant, because they were once patients there. “Of course, it’s great to have the help,” said Anne Woodle, Director of the Rehab Center. “But the best part is seeing these young women help others as they’ve been helped in the past.” Marilyn Bopp said the women enjoy being around the children at the Rehab Center, because it gives them an appreciation for how far they have come. On the other side, Woodle said it’s inspiring for the Rehab Center’s children to see these young women give back. “It is a positive experience for everyone involved,” Woodle said. “These young women are doing a tremendous job.” Very special volunteers give backby Katie Harvey, publications specialist You often hear the familiar adage, “It’s better to give... De De Owen Jenny Bopp Heather McGuire with Carleasha McKinney Carleasha McKinney, Michael Kelly and Elizabeth Adams You often hear the familiar adage, “It’s better to give...
  8. 8. 8 9 At Children’s Hospital, child-family centered care is more than a way of thinking; it is a way of doing. Child-family centered care is an approach to pediatric health care that focuses on the family as a child’s primary source of strength and support. Since the initiative to formally adopt a child-family centered care approach began, Children’s Hospital has achieved and exceeded many of its goals for improving the provision of this philosophy. The hospital’s core documents – the Mission Statement and the Goals Statement – have been revised to include the concept of child-family centered care. Also, several clinical and non-clinical hospital departments have self-assessed their child- family centered care efforts and developed and implemented ways to make their services more child- and family-friendly. A few examples: Business Office – Because parents often bring their children with them when they visit the Business Office, the staff decided it would be helpful to have a play area for children in the office. The new play area gives children a place to have fun and offers parents a way to handle their business without the stress of entertaining their child. This small step supports the child-family centered goal of making the entire hospital a setting where families are placed first. Food and Nutrition Services – In response to requests, the Food and Nutrition Services Department found an easy way to further involve parents in the care of babies who do not yet eat table food. Because parents know best what their child likes and dislikes, Food and Nutrition Services prepared a baby food menu that allows parents to select from a variety of baby foods to be delivered to the child at mealtime. Previously, parents had no choice in what baby foods were sent to their child. The menus are approved by the hospital’s clinical dietitians and the Second and Third Floor nursing staff. Inpatient Floors – Parents often have many questions during their child’s stay, and it is not always easy to remember all the questions, especially during a lengthy stay. The staff on Children’s Hospital’s two inpatient floors saw this need and met it in a manner that strengthens child-family centered care. A notepad was designed for daily use in the hospital, offering parents a convenient place to record questions for the patient’s caregivers. It also offers a place to keep track of names of the patient’s physicians, nurses and other helpers each day. The notepads increase the interaction between the child and family about the child’s care, because the child can also use it to record his or her own questions. Chronic care – Children’s Hospital often serves children with chronic medical conditions that require continuous care at home and frequent hospital visits. Parents of these children receive a significant amount of educational and instructional information, and the clinical care teams have seen an increasing need for consolidating all the information into a more child- and family-friendly format. The Children’s Hospital staff who are a part of the clinical care teams have developed and are testing a parent notebook that helps the family keep track of vital information, such as lab results, discharge instructions, important phone numbers, community resources and more. Some of these successes may seem small, but every detail makes a difference when it improves the hospital experience for patients and families. “We are always looking for ways to move forward on the continuum of child- family centered care,” said Laura Barnes, Nursing Director for Critical Care Services and coordinator of the hospital’s child- family centered care initiative. “We especially want to focus on parents as our partners in the care of their children.” The next important aspect of child- family centered care is being accomplished through the new Children’s Hospital Parent Advisers. As parents whose children have been patients at Children’s Hospital, the Parent Advisers have an informed view of the hospital’s policies, programs and practices. The role of a Parent Adviser is to offer “professional parenting” opinions of how Children’s Hospital might improve child-family centered care in all areas. “When it comes to caring for their children, parents are the ‘experts,’ not the health care provider,” Barnes said. “They are the constant in the child’s life, and we have to rely on them to provide the best care possible.” Specific areas Parent Advisers may choose to work in include: • Serving as a member of a Children’s Hospital committee or task force, such as the Parent Education Committee • Telling the story of their Children’s Hospital experience during the hospital’s General Orientation training for new employees and at other programs for employees and medical staff • Serving as mentors for other patient families • Reviewing hospital audiovisual and written materials to give a parent’s perspective • Participating in needs assessments in designated areas • Serving as parent advocates for Children’s Hospital in a variety of situations • Participating in focus groups • Participating in fund-raising events to discuss the benefits of Children’s Hospital from a parent’s perspective The Children’s Hospital Parent Advisers represent a range of professions and racial, ethnic and socioeconomic backgrounds. Their experiences at Children’s Hospital are also distinctly different, from repeated hospitalizations with a chronically ill child to bringing a generally healthy child to the Emergency Department for care. As a group, they are familiar with virtually every service the hospital offers. During the first Parent Adviser meeting in October, the group shared insights from their different perspectives with enthusiasm and eagerness to effect change. The one thing they all have in common is their willingness to work with Children’s Hospital to explain how the hospital can better work with families. “What we are trying to change is the subtle difference between saying, ‘We take care of the child and the family’ to ‘We work together with the family to take care of the child,’” Barnes said. by Katie Harvey, publications specialist Seventy-five grants were awarded statewide. The funds came from Tennessee’s $5.6 million share of a settlement with 23 states and various groups that brought lawsuits against major vitamin companies accused of price-fixing. Of the seventeen grants totaling more than $1.2 million awarded to Knox County-based organizations, the hospital received one of the largest. The program, “Prescription for Healthy Kids,” was created by Kathy Mount, Director of Food and Nutrition Services at Children’s Hospital, and Anne Woodle, Director of the Children’s Hospital Rehabilitation Center. In planning the program, Mount and Woodle addressed issues important to children with varied nutritional needs. The three components of the program (see sidebar) are individually important in making the most of the grant’s provisions. “This program will have a broad scope by providing knowledge and materials to pediatric health care professionals throughout the region,” Woodle said. “By educating people and providing them with resources, you are doing something that changes them forever.” The budget and timeline for the project were finalized in October, and the three-year project began in January. In March, Mount will send selected Children’s Hospital staff to a conference sponsored by the American Dietetic Association in Chicago. The program will offer a certificate of training in childhood and adolescent weight management. Other training opportunities also will be offered to staff. Mount will also select the method, such as a conference, to provide education to area physicians and other pediatric health care professionals. “We will first provide our staff with intensive training,” Mount said. “But we also are looking forward to working with pediatricians in private practice.” Currently, Mount and Woodle are developing the project evaluation component. They will share in-house quarterly reports on how many children the program has served and how much money has been spent. New information about “Prescription for Healthy Kids” will be provided in upcoming issues of It’s About Children as the program progresses. “The incremental steps of this program can result in an incredible impact on the nutrition and health of thousands of children,” Woodle said. Child-family centered care is everywhere at Children’s Hospital PRESCRIPTION FOR HEALTHY KIDS PRESCRIPTION FOR HEALTHY KIDS is a medical nutrition therapy project to improve nutrition and health for East Tennessee’s children. Objectives are: • To promote healing and support to children with specific nutritional needs. • To foster the normal growth and development of children. • To educate families, caregivers and health professionals in the best ways to provide good nutrition. PRESCRIPTION FOR HEALTHY KIDS will serve typically developing children, those whose health is threatened due to lack of proper nutrition, and those whose serious medical conditions are made worse by weight problems and lack of physical activity. The project has three components: Prescription: Feeding Prescription: Fitness Therapy Prescription: Education PRESCRIPTION: FEEDING will expand services for children with medical feeding problems that prevent adequate nutrition. These children may have conditions such as cerebral palsy, cystic fibrosis, failure to thrive, genetic and metabolic disorders and reactive airway disease. The expanded services will include specialized training for speech pathologists, updated diagnostic equipment and expanded training for parents. PRESCRIPTION: FITNESS THERAPY will focus on children with medical conditions that are made worse by weight problems, such as diabetes and cardiac and respiratory disease. The program will include physical conditioning, strengthening and endurance training and a family education component to establish healthy diets and eating habits. PRESCRIPTION: EDUCATION will increase the ability of physicians and other pediatric health care professionals to address the nutritional needs of their patients. Children’s Hospital’s ability to manage increasing numbers of children with serious medical conditions affected by nutrition problems will be improved, and specialists at Children’s Hospital will provide training to assist pediatric specialists throughout East Tennessee to address patients’ nutritional needs. by Katie Harvey, publications specialist $250,000 grant writes Prescription for Healthy Kids In May 2003,Children’s Hospital was awarded a $250,000 grant for a program aimed at improving the health and nutrition of children throughout East Tennessee.
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