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It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital
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It's About Children - Summer 2006 Issue by East Tennessee Children's Hospital

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See more at: http://www.etch.com/about_us/its_about_children.aspx

See more at: http://www.etch.com/about_us/its_about_children.aspx

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  • 1. Board of Directors James S. Bush Chairman Robert Madigan, M.D. Vice Chairman Michael Crabtree Secretary/Treasurer Dawn Ford Steven Harb Lewis Harris, M.D. Jeffory Jennings, M.D. Bob Koppel Donald E. Larmee, M.D. A. David Martin Dugan McLaughlin Christopher Miller, M.D. Alvin Nance Dennis Ragsdale William F. Searle III Bill Terry, M.D. Laurens Tullock Danni Varlan Medical Staff Lewis Harris, M.D. Chief of Staff David Nickels, M.D. Vice Chief of Staff Lise Christensen, M.D. Secretary Chiefs of Services John Buchheit, M.D. Chief of Medicine Alan Anderson, M.D. Chief of Surgery Administration Bob Koppel President Paul Bates Vice President for Human Resources Joe Childs, M.D. Vice President for Medical Services Rudy McKinley Vice President for Operations Jim Pruitt Vice President for Finance Laura Barnes, R.N., M.S.N., C.N.A.A.,B.C. Vice President for Patient Care A quarterly publication of East Tennessee Children’s Hospital, It’s About Children is designed to inform the East Tennessee community about the hospital and the patients we serve. Children’s Hospital is a private, independent, not-for-profit pediatric medical center that has served the East Tennessee region for almost 70 years and is certified by the state of Tennessee as a Comprehensive Regional Pediatric Center. Ellen Liston Director of Community Relations David Rule Director of Development Wendy Hames Editor Neil Crosby Cover/Contributing Photographer “Because Children are Special…” ...they deserve the best possible health care given in a positive, child/family-centered atmosphere of friendliness, cooperation, and support - regardless of race, religion, or ability to pay.” ...their medical needs are closely related to their emotional and informational needs; therefore, the total child must be considered in treating any illness or injury.” ...their health care requires family involvement, special understanding, special equipment, and specially trained personnel who recognize that children are not miniature adults.” ...their health care can best be provided by a facility with a well-trained medical and hospital staff whose only interests and concerns are with the total health and well-being of infants, children, and adolescents.” Statement of Philosophy East Tennessee Children’s Hospital www.etch.com 2 February 13, 2006 Dear Children’s Hospital, I wrote Children’s back in September about the care of my son who was admitted in August and diagnosed with staphylococcus scaled skin syndrome. Since then I have given birth to another boy on November 24, 2005. He was also admitted to Children’s with RSV. His first night was in the PICU, and the staff took very good care of him and monitored him very well. Thankfully, the next day he was sent to the floor. He was doing much better. I just want to thank the nurses, doctors, respiratory techs and Child Life for taking such good care of both my sons and especially to Child Life for keeping them entertained with toys and music. I also want to thank the nurses for making our stay as comfortable as possible. Thanks to the doctors for explaining everything so thoroughly, and thanks to respiratory for helping my son breathe better. Thanks so much to Children’s Hospital, and God bless you for your help and support. Sincerely, Tamara Twitchell Morristown “DearChildren’s”“DearChildren’s”1 On the cover: Annie and Elizabeth Smith. Read Annie’s story on pages 4-6. Dear Children’s Hospital, On Monday, December 5, our 3-year-old daughter fell and cut her forehead open. We brought her in to your wonderful hospital to be stitched up. Everyone that we came in contact with during our visit was extremely helpful and made us feel welcome, even though the waiting room was packed that night. When we made it to our room in the Emergency Department, the Child Life specialist was great by showing our daughter the different tools the doctor would use to make her better. Then, Heather Broome, a physician assistant, came in and had more numbing gel applied to be sure no pain was felt. She later came back and, according to Dr. Ronald Rimer at Knoxville Pediatric Associates, did a fabulous job of sewing up the cut with six stitches. We received good follow-up instructions on how to care for the wound, and though we didn’t finally leave until after midnight, we left knowing that Children’s Hospital is the place to go in a time of need. This wasn’t our first trip to your Emergency Department, and with two small children at home, I’m sure it wasn’t our last. We just wanted to let you know how much we appreciate the service you provide and how well you provide it. We’re sorry if we left anyone out who helped care for our daughter or got any names wrong, but if you were working that night or any night, we thank you very much. Sincerely, Bobby and Beverly Medders Knoxville January 2, 2006 Dear Children’s Hospital, My name is Heather Shipley, I am the mother of an 8-year-old patient who has recently been released from Children’s Hospital after a 31-day stay. I brought my daughter, Emily Parker, to the Emergency Department on the last day of November 2005 at approximately 6 p.m., and she was admitted into the Pediatric Intensive Care Unit at 2:30 the following morning. She was brought in an EXTREMELY sick child. The Emergency Department staff took one look at her, brought her straight in and hooked her to an IV for fluids. Thirty-one days later we were released. After a couple of days in the PICU, the doctors were able to determine her condition. She had a pseudomonas infection, thrombotic thrombocytopenic purpura and leukemia. I CANNOT express in any words in my vocabulary how extraordinary the staff is at Children’s Hospital. From the oncologists, specialists, right down to housekeeping, everyone made you feel as if you were the only family in that hospital. Her doctors were not only knowledgeable in their practice but were sincere and caring. Dr. Kevin Brinkmann, in particular, treated her as if she was his child. It was overwhelming to a mother to see the man in whom your child’s care lies to be that passionate. I am nothing short of pleased with our whole experience at Children’s Hospital; we could not have asked for better, and I don’t think we could have gotten any better. I know that God was looking after my little girl, and I know that he was guiding the precious hands of the doctors who have healed her. My heart goes out to them, and I can’t thank them enough. God bless everyone at Children’s Hospital. Thank you for doing what you do, and going the extra mile at doing what you do; it makes a difference to a family! Heather Shipley Corryton
  • 2. 3 “O, Christmas Treats” will be the delicious holiday theme for this fall’s 22nd annual Fantasy of Trees. Co-chairs Linda Redmond and Stephanie Jeffreys and assistant co-chair Sarah Beth Carlon are busy planning this year’s event, set for November 22-26 at the Knoxville Convention Center. Thousands of volunteers will contribute more than 140,000 hours of their time throughout 2006 to make this year’s Fantasy of Trees a reality for families in East Tennessee. This year’s event is sure to sweeten the season with decorations and designs that celebrate visions of sugarplums, Christmas confections, candy canes, gumdrops, cookies and other candied surprises awaiting young and old during the holiday season. In addition, new children’s activities and shops will also reflect this year’s tasty theme. 2005 was a record-breaking year for the Fantasy of Trees with proceeds totaling more than $322,000 and attendance of 62,556. For more information about the 2006 Fantasy of Trees, contact the Children’s Hospital Volunteer Services and Resources Department at (865) 541-8385 or send an email to fot@etch.com. by Clair Cowley, student intern BulletinBoard V 2006 Fantasy of Trees Assistant Co-Chair Sarah Beth Carlon and Co-Chairs Linda Redmond and Stephanie Jeffreys (left to right) V Children’s Hospital is now offering an innovative new servicefor the families it serves who have children with chronic or seriousillnesses and injuries. Called CarePages, the Internet-basedcommunications system offers an opportunity for families to createsimple web pages about a sick or injured relative who is a patientat Children’s Hospital. CarePages offers patient web pages that deliver emotionalsupport to Children’s Hospital patients and families by making iteasy for them to stay in touch during a hospital stay or any time thechild is receiving medical care. The service provides patient familieswith an easier way to update relatives and friends without the needfor repeated phone calls or e-mails. CarePages also makes it possiblefor relatives and friends to send messages of encouragement, givingthe patient and family much needed emotional support. A patient’sCarePage can be updated as often as the family chooses, and gueststo the page can see the updates about the patient any time theyaccess the family’s web page. CarePages also makes it possible for families to help the hospitalin return. Through CarePages, patients and families can recognizestaff members who have provided superior levels of care.Children’s Hospital’s CarePages can be accessed through computersin the hospital’s Family Resource Center, in a patient family’s home orfrom any computer by visiting www.etch.com. CarePages are password- protected, secure, and comply with all patient privacy regulations. Over500 facilities in North America now offer CarePages with new hospitalsadding the service each month. The service is offered free to Children’s Hospital patient families,thanks to funds raised by the annual Star 102.1 Radiothon.“We are really excited about offering this new service to ourpatients and their families,” said Mary Pegler, Director of Child Lifeat Children’s Hospital. “A child’s hospitalization, particularly when itis for a serious accident or when the child has just been diagnosedwith a chronic condition, is very stressful for the entire family. Bysetting up a CarePage, families will be able to provide friends andrelatives with information about their child’s condition but not haveto repeat what could be difficult news over and over and over again.Hopefully, this will alleviate some anxieties about making sure othersknow what is happening and give parents more time to concentrateon their child.” Families say CarePages give them greater control over the flowof information during and after hospitalization, since they can shareupdates at a time that is right for them. Relatives and friends call lessoften because they are automatically notified via e-mail wheneverCarePages are updated. For more information on CarePages, call the Children’s HospitalCommunity Relations Office at (865) 541-8165. V FFaannttaassyy ooff TTrreeeess names co-chairs, sets theme NEW CAREPAGES SERVICE AT CHILDREN’SHOSPITAL OFFERS EASY WAY FOR PATIENTS,FAMILIES TO STAY IN TOUCH WITH FRIENDS& FAMILY THROUGH THEIR OWN WEB PAGE
  • 3. 4 Annie DDuring the summer of 1997, Kyle Smith was a stay-at-home mother of a toddler and was anxiously awaiting the birth of her second child. Elizabeth, Kyle’s three-year-old daughter, was a healthy and happy girl who couldn’t wait for her little sister to arrive. The excitement, however, turned to nervous anticipation in June when Kyle received the results of an amniocentesis, a procedure where amniotic fluid is drawn from the uterus and analyzed to detect genetic abnormalities. The test indicated that her unborn baby had Down syndrome. Annie
  • 4. 5 Not fully understanding what Down syndrome was, Kyle decided to immerse herself in every bit of information she could find. She wanted to make sure she felt educated enough to be the best parent possible for a child with this condition. “My first reaction was, I don’t want this; I didn’t want my child to have Down syndrome,” Kyle said. “But I quickly realized the only thing I could do was make sure I was ready and that this baby would have everything she needed.” To understand Down syndrome, you have to understand a little about chromosomes. A person is supposed to have 23 pairs of chromosomes, for a total of 46. But a person with Down syndrome has an extra chromosome or one chromosome has an extra part. This extra genetic material causes problems with development. About one of every 800 babies is born with Down syndrome, and it happens regardless of the parent’s race or nationality. Doctors aren’t sure why this chromosome problem happens to some babies and not to others, but they do know it’s nothing the mother or father did before the child was born. As the birth of her new daughter approached, Kyle felt she was as prepared to parent her new child as possible, but the fear was still there. “It was scary. Both of my pregnancies made me nervous, but this one especially.” The big day came in December 1997. Annie was born on December 5 and spent eight days in the Neonatal Intensive Care Unit (NICU) at Children’s Hospital. This wasn’t the Smith family’s first experience in the NICU; Annie’s older sister Elizabeth spent five days there for respiratory distress when she was born three years earlier. Kyle said, “Dr. Louden Nalle (a neonatologist at Children’s) attended Annie’s birth and was very supportive. The entire NICU staff was wonderful.” Now eight years old, Annie is a bright, healthy and very active little girl who plays soccer and attends dance lessons. “She can do anything other children her age can do. She might do things at a different pace, but she can run and play just the same,” Kyle said. Annie attends Brickey-McCloud Elementary School and is a typical first grader. “Her classmates love her. She has such an outgoing and larger-than-life personality that people can’t help but be drawn to her,” Kyle said. The family has not been without moments of worry, however. Infants with Down syndrome tend to develop more slowly than other babies do. About half are born with heart defects, and some can experience eye or ear problems, among other difficulties. Annie has had tubes placed in her ears three times and eye surgery at Children’s Hospital to correct problems relating to her condition. More seriously, Annie underwent heart surgery in Atlanta during the winter of 1998. The operation was to correct Tetrology of Fallot (a complex combination of four birth defects in the heart) and an Atrioventricular Canal (another congenital heart defect). “It’s a pretty rare combination of defects, but the combination kept Annie from having to have immediate surgery. I felt very fortunate to have been able to wait until she was older,” Kyle said. “From her activity level now, you would never know that she ever had heart surgery.” Through it all, one thing has remained constant: the special relationship between Annie and Elizabeth. The bond between the sisters has been growing since Annie was born. Kyle said she has always been honest with Elizabeth about Annie and about what it means to be a big sister to a child with Down syndrome. Elizabeth went with Annie to developmental therapy and continued working with her at home. Kyle said Elizabeth is most proud of teaching Annie how to sing “Twinkle, Twinkle Little Star” and encouraging her to crawl, stand and eventually walk. “Annie will do things for Elizabeth when no one else can get her to do them,” Kyle said. “At dance lessons, Elizabeth is Annie’s ‘helper,’ which is Annie’s choice. Of course, Annie also will go into Elizabeth’s room and get into her stuff and make Elizabeth so mad, just like any other sisterly relationship.” One way the girls express their love for one another that is especially touching for their mother is the way they share music. “Elizabeth is very good at sharing her things with Annie. She has an adaptor for her iPod so they can both listen to it at the same time,” the proud mother said. When Annie was in the NICU, Kyle made a decision that would change her life. While admiring the work of the nurses around her, Kyle decided she knew that the work they were doing is what she needed to be doing herself. Continued on page 6 WhatisDownsyndrome?Down syndrome is a chromosomal abnormality that occurs in one out of every 800-1,000 births. For unexplained reasons, an error in cell development occurs at the time of conception that results in 47 chromosomes rather than 46. This extra chromosome can affect an individual’s health, muscle development, body development and mental capabilities. About 5,000 babies with Down syndrome are born in the United States each year. Contrary to popular belief, about 80 percent of babies with Down syndrome are born to mothers UNDER the age of 35. While the extra chromosome in individuals with Down syndrome does affect body and brain development, individuals with Down syndrome are more similar to typically developing individuals than they are different. Just as with typically developing individuals, there is a great diversity within individuals of Down syndrome in terms of personality, learning styles, intelligence, appearance, compliance, humor, compassion and attitude. Tenthingsyouneverknew aboutDownsyndrome (and the people who have it) 1. Down syndrome is the most commonly occurring genetic disorder. 2. People with Down syndrome typically finish high school, have jobs and do volunteer work. 3. People with Down syndrome often live independently or semi-independently in adulthood. 4. Their average life span is 55 years, with many living into their sixties and seventies. 5. In one recent year, individuals with Down syndrome addressed the delegates at the Republican Convention, became Eagle Scouts, appeared on prime-time television, illustrated a children’s book and testified before Congress. 6. The vast majority of people with Down syndrome have only mild to moderate mental retardation. 7. People with Down syndrome have married and owned homes. 8. Children with Down syndrome learn to sit, walk, talk and play only somewhat later than their peers. 9. Although incidence of Down syndrome increases with maternal age, 80 percent of babies with Down syndrome are born to mothers less than 35 years old. 10. A woman with Down syndrome ran for the Texas State Board of Education. To learn more about Down syndrome, visit the web site for the National Down Syndrome Society at www.ndss.org or call (800) 221-4602. (Source: the National Down Syndrome Society, www.ndss.org) Pictured here are Annie with her sister, Elizabeth, and her mother, Kyle.
  • 5. 6 “I thought it was the greatest job,” Kyle said. Soon after Annie was discharged and settled in at home, Kyle enrolled in nursing school, and in 2002, she became an NICU nurse at Children’s Hospital. “My decision was very personal,” Kyle said. “I had to go back to work, and I wanted to have a job I loved. At the same time, I also knew that I would have something unique to offer parents, especially those that have babies with Down syndrome.” Kyle continued, “I truly understand what it feels like to not be able to take your baby home. I don’t share my experiences with every parent, but if someone is having an especially hard time, I can reassure them that I understand, and it will get better.” Without the help of people like pediatric cardiologist Dr. Jeffory Jennings, pediatric ophthalmologist Dr. Gary Gitschlag, pediatric otolaryngologist Dr. Michael Belmont and the entire NICU and radiology staff, “Annie would not be in the great condition she is in today,” Kyle said. Kyle has shown her appreciation to them and to Children’s Hospital by being a dedicated and valued staff member in the Haslam Family NICU. Through perseverance and help from those at Children’s Hospital, Annie has lived a happy and healthy life to this point. She is an inspiration for anyone who doesn’t understand that people with Down syndrome can do anything anybody else can do. She also has been an inspiration to her mother, in more ways than Annie herself even knows. By Jake Resler, Public Relations Specialist Did you know that expectant and new parents are some of the most frequent users of the Internet? KidsHealth has launched a Pregnancy & Newborn Center as a valued resource that new and expectant parents will want to visit regularly. Featured on the Children’s Hospital website, the Pregnancy & Newborn Center includes hundreds of articles for expectant and new parents as well as quick links to the most popular features, such as the week-by-week pregnancy calendar (available in English and Spanish), an easy-to-read immunization chart, recipes for pregnant and nursing women, research news and much more. Visit the Children’s Hospital website at www.etch.com, and click on Pregnancy & Newborn Center in the “In The News” box. Children’s Hospital is a KidsHealth Educational Partner. KidsHealth is a project of the Nemours Foundation’s Center for Children’s Health Media. In February, the Food and Drug Administration announced the approval of RotaTeq, a live, oral vaccine for use in preventing rotavirus gastroenteritis in infants. The Advisory Committee on Immunization Practices, which advises the Centers for Disease Control and Prevention, has recommended that the vaccine be added to the schedule of immunizations for infants and young children. RotaTeq is the only vaccine approved in the United States that can help protect against rotavirus, a viral infection that can cause diarrhea, vomiting, fever and dehydration. Infection with rotavirus is a leading cause of severe diarrhea in infants and young children in the United States and worldwide. The Centers for Disease Control and Prevention has estimated that rotavirus infection results in approximately 55,000 hospitalizations annually of infants and young children in this country. Studies of the new vaccine show RotaTeq prevented 74 percent of all rotavirus gastroenteritis cases and 98 percent of the severe cases. In addition, RotaTeq prevented about 96 percent of hospitalizations due to rotavirus gastroenteritis. In 1998, FDA approved a different live vaccine against rotavirus that was later withdrawn from the market because of its association with an increased risk of intussusception, a rare, life-threatening type of blockage or twisting of the intestine. Intussusception occurs spontaneously in approximately 1 in 2,000 healthy young infants and children per year, but occurred at an increased rate during the first week or two following vaccination with the previous rotavirus vaccine. Studies showed no similar problem with RotaTeq, a liquid vaccine that is given by mouth in three doses between the ages of 6 and 32 weeks. Sources: MedScape from WebMD (www.medscape.com) and the U.S. Food and Drug Administration (www.fda.gov) TheDownSyndrome AwarenessGroupof EastTennessee The Down Syndrome Awareness Group of East Tennessee (DSAG) is a parent-initiated organization developed to provide information and support to families of individuals with Down syndrome and to raise awareness within the community about the abilities of individuals with Down syndrome and the benefits of their inclusion into society. DSAG is a non-profit organization that works to educate and link individuals with Down syndrome and their families within a 17-county area in East Tennessee. Support meetings called Coffee and Crayons take place monthly; packets of information, called Down Comfort Kits, are presented to new parents of babies with Down syndrome; social events are conducted throughout the year to bring families together; a bi-monthly newsletter with current information relating to Down syndrome is provided for members; and informational meetings and conferences on topics relevant to Down syndrome are periodically presented. DSAG is available to parents and professionals 24 hours a day to provide general information about Down syndrome and area resources. For more information, call (865) 905-2968 or send an e-mail to dsagtn@hotmail.com. Annie Smith playing the piano Annie continued from page 5 New rotavirus vaccine available KidsHealth adds new feature for expectant and new parents
  • 6. Carol L. Fowler, M.D. B.S. (Biology) and B.A. (Chemistry) — Emory University, 1975 M.D. - Louisiana State University Medical Center, New Orleans, 1979 Residency (Pediatrics) - Medical College of Virginia, Richmond, 1979-80 Residencies (General Surgery) — Louisiana State University Medical Center Associated Hospitals, New Orleans, 1980- 84; and University of South Dakota Associated Hospitals, Yankton, 1984-86 Fellowship (Surgery Trauma Research) — Louisiana State University Medical Center, 1982 Fellowship (Pediatric Surgery) — Texas Children’s Hospital, 1986-87 Fellowship (Pediatric Surgery Research) - Children’s Hospital of Buffalo, N.Y., 1987-89 Residency (Pediatric Surgery) —Texas Children’s Hospital, Baylor College of Medicine, Houston, 1989-91 Additional education — Summer research fellowships at Children’s Memorial Hospital, Chicago, 1976 and 1977; summer research fellowship at Louisiana State University, 1978; and associate resident in pediatric surgery, Children’s Hospital Los Angeles, 1983 Husband — Jeffery Turek, Ph.D. Personal interests — digital photography/ editing and outdoor activities such as hiking, canoeing and scuba diving. Pediatric surgeon grew up wanting to be a doctor Growing up in New Orleans, Carol Fowler, M.D., had a clear and consistent career goal. As the daughter of the head of pediatrics at Louisiana State University, Dr. Fowler always knew she, too, wanted to be a pediatrician. Early on, she had a specific interest in genetics and birth defects, and during her medical training she completed three summer research fellowships in this area. When she began her surgery rotation, however, she found a new but related interest. In genetics, a physician diagnoses congenital (birth) defects and counsels parents, but does not treat or repair the problem. Conversely, a surgeon has the training and knowledge to do something about the defect. Dr. Fowler was drawn to that more “hands-on” approach to the genetic problems she found so interesting. She decided to redirect her interests in pediatrics, genetics and surgery into a pediatric surgery residency. Following her training, she went into an academic and research position at the University of Kentucky in Lexington, Ky. While living in Lexington, Dr. Fowler met her husband, Jeffery Turek, Ph.D., then a nuclear engineer in Oak Ridge. Dr. Fowler and Dr. Turek moved to Savannah in 2002 for Dr. Fowler to join Savannah Pediatric Surgery, a private surgical practice with a surgery residency teaching affiliation. But the couple discovered they missed this part of the country, particularly the rural areas. In Savannah, Dr. Fowler was affiliated with a “hospital within a hospital,” a concept where the children’s hospital is a small component of a larger hospital setting. Because of its small size, the children’s hospital in Savannah had a small number of pediatric subspecialties. This limited the hospital’s ability to handle complicated cases; instead, children requiring more complicated care were sent to other, larger hospitals. Dr. Fowler wished to return to a freestanding children’s hospital setting and found East Tennessee Children’s Hospital to be conducive to her interests for several reasons in addition to its geographic location. One, the hospital is able to provide care for children with more complicated needs because Children’s has 28 pediatric subspecialties. Two, a teaching appointment at the University of Tennessee training general surgical residents also was appealing to Dr. Fowler, who enjoyed a similar role in Savannah. In May, Dr. Fowler is joining the East Tennessee Pediatric Surgery Group, P.L.L.C., at Children’s Hospital to help serve the surgical needs of this region’s children. Dr. Fowler joins pediatric surgeons Alan E. Anderson, M.D., Gus Papadakis, M.D., and Alfred P. Kennedy Jr., M.D., in the surgical group. Pediatric surgeons perform common procedures such as appendix removals and hernia repairs. More complicated cases include children with various congenital anomalies, obstructions of the gastrointestinal tract, urological surgical cases (such as circumcision, undescended testes and kidney obstructions), trauma, lung cysts and infections, and tumors. As a surgeon, Dr. Fowler has maintained her longtime interest in congenital defects and also has a tremendous interest in neuroblastoma, a form of cancer usually found in infants and young children. She researched this type of cancer through several grants, including one from the National Institutes of Health. Clinical research and publishing are especially important to Dr. Fowler, who enjoys studying a problem thoroughly and then publishing her findings. Among her studies were a description and treatment of conjoined twins and a study of a patient with a rare variant of split notochord syndrome. This child had multiple complex problems, including a split spine, a triplicated (three-part) colon, a partial third leg in the abdomen, a tethered spinal cord and a teratoma (a type of tumor). As a researcher, Dr. Fowler looks at the embryology - how the problem happened and how to explain it. As a teacher, she likes to stress to her residents the importance of research. “It’s important for them to learn how to investigate the literature to see if a problem has been described before,” she explained. “It’s also valuable for them to learn how to use the medical library, not just the Internet.” Since Dr. Fowler began practicing medicine, some significant changes have improved and enhanced care for patients and also improved the practice for physicians. Laparoscopy offers patients the benefits of less invasive surgery and a quicker recovery time. Electronic records, especially the electronic storage of radiology films (X-rays as well as CT and MRI images), has made it easier and faster for physicians to review their patients’ test results, radiology studies and other information. As she prepares to become an East Tennessean, Dr. Fowler doesn’t plan to start wearing a lot of orange. In fact, because of her 11 years spent in Kentucky, she is certain she’ll remain a Kentucky men’s basketball fan. “But I have followed the Lady Vols for years,” she added, noting that prior to this interview, she had watched Pat Summitt win her 900th game as the Lady Vols’ head coach. In conjunction with her colleagues at East Tennessee Pediatric Surgery Group, P.L.L.C., Dr. Fowler will help to provide the best in pediatric surgical services to the children of this region. Subspecialist Profile 7
  • 7. There is no such thing as a “typical” day in a hospital. Day in and day out, patients enter our doors for care, but each child is unique and each experience is different. However, within each day at Children’s Hospital, there are some common threads. One common thread is the training and experience of the hospital’s staff – no matter what situation arises, our staff is skilled and prepared to meet the challenge. For the next several issues of It’s About Children, we’ll profile some of our staff and highlight all our clinical areas. We hope it will give you a glimpse into life at Children’s Hospital. CRITICAL CARE SERVICES At Children’s Hospital, Critical Care Services encompasses several major departments and services – the Goody’s Pediatric Intensive Care Unit, the Haslam Family Neonatal Intensive Care Unit, the Scott M. Niswonger Emergency Department, the Pediatric and Neonatal Transport Teams and the After Hours Program. These are the departments and services that care for the most seriously or most urgently sick and injured patients we see. GOODY’S PEDIATRIC INTENSIVE CARE UNIT The hospital’s Goody’s Pediatric Intensive Care Unit (PICU) provides sophisticated, 24-hour-a-day treatment for critically ill and injured children. The PICU is staffed with critical care physicians, physician assistants, nurse practitioners, R.N.s and clinical practice specialists specifically trained and experienced in the care of critically ill children. Patients in the PICU receive a high level of monitoring and/or treatment until they are well enough to be transferred to a patient room on one of the general medical/surgical units or discharged home. The Pediatric Intensive Care Unit admitted 662 patients during the most recently completed fiscal year, 2004-05. HASLAM FAMILY NEONATAL INTENSIVE CARE UNIT In the Haslam Family Neonatal Intensive Care Unit (NICU), tiny and fragile infants born prematurely or facing life-threatening illnesses receive treatment from a team of board-certified neonatologists, with valuable assistance from specially trained nurses, respiratory therapists, clinical practice specialists, lactation consultants and other medical professionals. The NICU treated 628 newborns during the 2004-05 fiscal year. Although these babies are critically ill, each year about 97 percent of the babies go home. SCOTT M. NISWONGER EMERGENCY DEPARTMENT The Scott M. Niswonger Emergency Department (ED) is staffed with emergency medicine specialists, nurse practitioners, R.N.s, technicians and other staff to provide treatment for all types of emergencies 24 hours a day, seven days a week. The department provides evaluation and treatment for patients up to 21 years of age with varying levels of illness and injury, from minor to life threatening. Each patient is first triaged to determine the severity of the illness or injury. After being treated and stabilized in the Emergency Department, patients are either admitted to the hospital if needed or discharged home with follow-up instructions. Patients made 62,594 visits to the ED in the 2004-05 fiscal year. PEDIATRIC AND NEONATAL TRANSPORT SERVICES As a regional referral center for East Tennessee, Children’s Hospital offers neonatal and pediatric transport from outlying hospitals in LIFELINE, a mobile intensive care unit specially designed to maintain the same quality of care during transport as patients receive in the hospital’s critical care units. Lifeline carries almost 1,000 supplies to administer care to patients – ranging from the tiniest premature infant to adult-sized teens – during transport to the hospital. In addition to the special equipment, the Lifeline transport team may include, depending on the condition of the patient, a neonatologist, neonatal nurse practitioner, pediatric/neonatal R.N., respiratory therapist and an EMT. The hospital’s two Lifeline vehicles travel tens of thousands of miles each year to dozens of different hospitals in Tennessee and surrounding states, transporting hundreds of pediatric patients to Children’s Hospital. If it is known in advance that transport to Children’s will be necessary, the Neonatal Transport Team will attend the delivery at any hospital to immediately stabilize the baby before the transport. AFTER HOURS PROGRAM For more than 10 years, Children’s Hospital has provided a service to area pediatricians called the After Hours Program. After Hours is a medical call center for patient concerns “after hours” – evenings, weekends and holidays. When a parent has a concern about a child, the parent can call the child’s pediatrician’s office number and leave a message for the call center. The parent will be asked such questions as the child’s name, date of birth and reason for the call. The message is routed to the After Hours Program, where a nurse returns the parent’s call. After Hours nurses ask additional questions and make a recommendation to the parent based on physician-approved protocols. Depending on the severity of the child’s problem, the nurse may provide home instructions to follow, suggest the child be seen the following day by the pediatrician, tell the parent to bring the child to the nearest Emergency Department or, in the most serious scenario, tell the parent to call 911. After Hours nurses rely on the physician-approved protocols but also depend on experience to help them determine a child’s needs by phone – without seeing the child in person. 8 life BILL CHESNEY Bill Chesney, R.N., B.S.N., has served for several years as the nurse manager of the Pediatric Intensive Care Unit and the Pediatric Critical Care Transport Service at Children’s Hospital. Recently he made the decision to return to a patient care setting, and he is preparing to transfer to the hospital’s Home Health Care department. In his eight years at Children’s, he has also worked as a PICU staff nurse and as a Transport Team leader. Chesney entered nursing because of the influence of his wife, Lucreta, who is an R.N. “I saw the contribution she made by her service to the sick and the value it has for them – how she was able to change lives for the better.” Chesney earned an associate degree in nursing from Roane State and began working as a staff RN on an adult pulmonary unit at a hospital. Later he returned to school to complete a bachelor of science in nursing. A chance meeting with the daughter of a patient resulted in a move to Children’s Hospital. “One day, while taking care of an elderly man in the last stages of his life, his daughter and I were talking about our jobs,” Chesney said. “It turned out that she and her husband were physicians at Children’s Hospital. She encouraged me to apply for a PICU R.N. job.” A day in the of Children’s Hospital Beth Hilbelink’s two-and-a-half- year-old triplets, Heather, Dustin and Ashley (right)
  • 8. 9 BETH HILBELINK For some individuals, a career path is extremely clear from a young age. Such was the case for Beth Hilbelink, R.N., a nurse in the Haslam Family Neonatal Intensive Care Unit at Children’s. “I always knew I wanted to work with babies,” she said. While in college to study nursing, Hilbelink completed a clinical rotation at Children’s Hospital, and from that point on, her career path was even clearer – “I knew Children’s was where I wanted to be. I think it is the best. It is where I would take my own kids. I am sure we will be using the hospital’s services over the years!” Hilbelink came to Children’s Hospital as a new graduate nurse hired into the NICU, and she has never worked anywhere else. In addition to her nursing duties, she serves on the NICU’s Service Excellence Committee and Palliative Care Committee. Her best memory of working in the NICU has happened more than once and often occurs after her patients are discharged. “I form relationships with the families while they are here. Then I can watch the children who ‘graduate’ from the NICU return for visits after they have grown.” Seeing her former patients, now bigger and healthier, gives her great satisfaction in her work: “My life has been touched by so many families I have come in contact with over the years here. I feel blessed to have a job that I truly love.” Not long ago Hilbelink had the opportunity to develop a unique link to some of the NICU’s patient families. She had a successful triplet pregnancy, giving birth to three babies who were so healthy that they did not even need care in the Children’s Hospital NICU. During their four-day hospital stay, the babies were seen daily by Children’s neonatologists, who also attended the birth. After that short hospitalization, the babies were discharged home. Now Hilbelink is often assigned to be a nurse for “multiples” — twins, triplets, quadruplets or even quintuplets. As a “triplet mom,” she is uniquely able to bond with these families and help them learn what to expect from life with a house full of babies. Chesney says nursing is a journey, with nursing school just the beginning. After “an excellent nursing education,” Chesney plunged into his first nursing job as a new graduate nurse with little orientation and a large number of patients to care for. Later when he began working in the PICU at Children’s, he found a much different situation: “I was nearly overwhelmed by the number of education requirements and the opportunities available. I had a variety of classroom and practicum experiences, but the most valuable to me were the one-to-one experiences working with another nurse. Whenever some procedure or condition I had not experienced happened in the PICU, someone was always quick to come and get me to see and to do it.” One experience stands out as the most personally transforming and meaningful for Chesney: “It was the second night I had been taking care of a little girl suffering from meningitis. The previous night had been rough, and she had nearly died. During the day, the family learned that their child had suffered an irreversible injury to her brain, and she was never going to recover. As I recall, they received the news just around shift change and, as is required, we had notified Tennessee Donor Services of her death. I guess it was 1 or 2 in the morning when her mom asked if she could hold her. You have to realize the equipment that was involved with keeping her little body going. About all the mother could do at this time was to hold her hand or touch her foot. With the help of the other nurses in the PICU, we got her into her mother’s lap. The image I will always see is that mother rocking her child and singing Amazing Grace to her. This little girl eventually was the means to life for several people through her organ donation. Why does this image stay with me? I have not seen this family again nor am I likely to, but I will hopefully never forget her example of what love is.“ Bill Chesney CHRISTY COOPER Christy Cooper, R.N., B.S.N., C.E.N., is the Emergency Department staff educator, a position she recently moved into after a four- year stint as an assistant nurse manager in the ED. She also has served as a Transport Team leader, nursing coordinator, staff nurse in the Emergency Department and an Emergency Department technician. Her interest in Children’s Hospital began at an early age: “I remember always wanting to be a nurse, even as a small child. After spending my high school summers at Children’s Hospital as a Junior Volunteer, I knew that pediatrics was the nursing specialty for me. Getting a job as an ED tech while I was in nursing school helped me make my home in the ED.” Cooper holds a bachelor of science in nursing from Carson-Newman College and a paramedic certificate from Roane State Community College. She also is certified by the Board of Certification in Emergency Nursing as a CEN (Certified Emergency Nurse). Certification is a personal choice that demonstrates a nurse has attained a certain level of skill and competence in the chosen specialty. For Cooper, it demonstrates how important she thinks education is: “I regularly attend continuing education conferences and classes to keep my knowledge and skill set up-to-date with always- changing technology and standards. I also spend time teaching in the classroom and clinical setting to allow me to keep up with current trends in nursing education.” She also has worked on an ambulance and on UT Medical Center’s LIFESTAR helicopter to gain trauma and more critical care experience. While no one memory of her career stands out, Cooper says what keeps her motivated is the resilience of her young patients: “It seems that no matter what happens, every day a child – usually one who I have just performed a painful procedure on – will look up and say ‘thank you’ and be sincere about it. That is what keeps me coming back for more.” Christy Cooper Beth Hilbelink (right)
  • 9. 10 Children’s Hospital announces $10 million the Children’s Miracle Network Telethon and as an Underwriter of Center Stage. A benevolent supporter of health care, education and community improvement, Niswonger has made a commitment of $1 million to the campaign. The new and expanded Emergency Department, which treats more than 60,000 children each year, has been named the Scott M. Niswonger Emergency Department in his honor. Plaques honoring the generosity of each of these major donors have been placed in the respective patient care areas recognizing these philanthropic contributions to Children’s Hospital. The plaques were unveiled March 21 during a tour of the pediatric medical center with the families. The Goodfriend, Haslam and Niswonger families were also recognized at a private luncheon at the hospital, which was attended by members of the Children’s Hospital Board of Directors, Medical Staff, Administration and the Capital Campaign Executive Committee. Children’s Hospital also announced that its medical and hospital staffs have already made significant contributions to the Capital Campaign. Hospital employee have contributed $233,300 to help fund the new Atrium in the Second and Third Floor Inpatient areas, as well as the hospital’s new Family Resource Center, which provides patients’ families with a variety of resources to help them learn about their child’s medical condition. The Medical/Dental Staff at Children’s Hospital has pledged an additional $791,200 to the campaign’s recently begun Physician Division, which will continue through the remainder of 2006. Specific hospital areas will be named for physicians contributing to the campaign at the end of the year. Goodfriend, Haslam, Niswonger families lead campaign with pledges totaling $5 million A capital funds campaign to support Children’s Hospital was announced March 21. Funds will primarily be dedicated to Children’s Hospital’s recently completed three-year, $31.8 million construction/renovation project. Some funds also will be used to increase the hospital’s endowment. Highlights of the announcement were the lead gifts to the campaign, totaling $5 million pledged from three well-known and generous area families. Bob and Wendy Goodfriend have been staunch supporters of Children’s Hospital since 1983. The Goodfriends and Goody’s Family Clothing, Inc., have been the largest donors to the Children’s Miracle Network Telethon every year since its establishment 24 years ago. They were the first Platinum Sponsor of the Fantasy of Trees and were the Founders and Founding Underwriters of the hospital’s annual Center Stage Celebrity Gala, which they continue to chair. Bob also served on the hospital Board from 1989 to 2005, including several terms as treasurer. Bob and Wendy Goodfriend have committed $3 million to the capital campaign. Because of this gift and their long history of thoughtful support, the hospital’s Board of Directors honored multiple generations of their family by naming the new Children’s Hospital 7-story patient facility the Goodfriend Tower. The Haslam family name has become virtually synonymous with philanthropy in East Tennessee. The Haslams and their company, Pilot Corp., have also been supporters of Children’s Hospital for many years. Jim Haslam served on the hospital Board from 1963 to 1973. Pilot has supported the Children’s Miracle Network Telethon since its inception in 1983 and has generously supported the Fantasy of Trees since its beginning in 1985. The Haslam family and Pilot were also founding Underwriters of the Center Stage event and continue their support of this major event for Children’s Hospital. The Haslam Family has pledged $1 million to the capital funds campaign. To honor this unselfish history of support, the hospital’s expanded Neonatal Intensive Care Unit, which serves premature and critically ill newborns from throughout East Tennessee, Southwest Virginia, Southeastern Kentucky and Western North Carolina, has been named the Haslam Family Neonatal Intensive Care Unit. Scott M. Niswonger of Greeneville, Tenn., is the founder of Landair Transport, Inc., and Forward Air Transport, Inc. He has been involved with Children’s Hospital as a donor to Bob and Wendy Goodfriend outside the newly-named Goodfriend Tower at Children’s Hospital.
  • 10. Executive Committee and the Campaign Steering Committee for their hard work as well as their unselfish ongoing efforts toward achieving our goal.” The Campaign Executive Committee includes Jim Bush, Bob Goodfriend, Wendy Goodfriend, David Martin, Dugan McLaughlin, Dennis Ragsdale and Laurens Tullock. The Campaign Steering Committee includes Dick Anderson, Bill Carroll, Sam Furrow, Jim Haslam, Jimmy Haslam, Jon Lawler, Alvin Nance, Don Parnell, Ed Pershing, Knox County Mayor Mike Ragsdale, Dr. Bill Terry, Danni Varlan and Bill Williams. “We will need strong support from the remainder of the community to meet our $10 million goal. We have additional naming opportunities for interested donors including patient rooms and other patient care and clinical areas,” Bush added. “We will need gifts from our current supporters as well as from businesses and individuals who have yet to support our efforts to care for the area’s sick and injured children.” For more information about the Children’s Hospital Capital Funds Campaign, contact David Rule, Director of Development at Children’s Hospital, at (865) 541-8244. 11 capital/endowment campaign “The completion of our construction/ renovation project and the announcement of this capital funds campaign marks one of the most significant moments in our 69-year history,” said Bob Koppel, president/CEO of Children’s Hospital. “We are delighted with our new and expanded facilities to care for the children of East Tennessee and are very grateful for the tremendous support of our generous lead donors, hospital staff and physicians. They have all set a tremendous example of thoughtful philanthropy.” “There are meaningful opportunities for anyone in East Tennessee who is interested in the future of our children to participate in our capital funds campaign,” Koppel noted. “Children’s Hospital is committed to providing excellent health care to all children entrusted to our care. Private gifts continue to be a vitally important link that helps make our mission a reality. It cannot be stressed enough that the hospital welcomes and appreciates the generous support from our community.” The public phase of the capital funds campaign will be a region-wide initiative reaching out to individuals, companies, associations and organizations to pledge their financial support. Pledges can be paid over three to five years and donors can give cash, stock, land or other assets of value. It is also possible for donors to make planned gifts that could provide a life income to a donor. “We are fortunate to be able to make our first public announcement with over $6.9 million of our goal already pledged,” said Jim Bush, chairman of Children’s Hospital’s Board of Directors. “We are grateful to the Campaign Steve Bailey, Dee Haslam, Whitney Haslam, Knoxville Mayor Bill Haslam, Natalie Haslam, Ann Bailey and Jim Haslam in the Haslam Family Neonatal Intensive Care Unit at Children’s Hospital. Scott and Nicki Niswonger with the plaque that has been placed in the Scott M. Niswonger Emergency Department at Children’s Hospital.
  • 11. CCAALLEENNDDAARR OOFF EEVVEENNTTSS HOPE-A-THON Children’s Hospital will again partner with WATE-TV Channel 6 to raise money to benefit Camp Cure, but the event is moving to a summer date. Hope-a-thon will take place Sunday, July 16 from 7-8 p.m. and will be broadcast live following Children’s Hospital’s week-long diabetes camp, Camp Cure. WATE anchors Lori Tucker, Gene Patterson and Matt Hinkin will revisit camp experiences during the hour-long broadcast with patients and their families, who will also share their stories about living with diabetes and their hope for a cure. Last year’s Hope-a-thon raised more than $26,000. For more information, call (865) 541-8437. TENNESSEE RIVER 600 Water enthusiasts from all over East Tennessee can take their personal watercrafts on a seven-day, 600-mile excursion down the Tennessee River to benefit four Children’s Miracle Network hospitals and the Tennessee Wildlife Resources Agency. The trip will start July 23 at Knoxville’s Volunteer Landing and end July 29 at Pickwick Landing near Memphis. Participants collect donations for the Children’s Miracle Network hospitals along the route, including East Tennessee Children’s Hospital. Last year’s trek raised more than $24,000 for the five charitable organizations. For registration information, go to www.tennesseeriver600.com or call Dennis Beckley at (865) 898-3101. BOOMSDAY This Labor Day holiday will again host an East Tennessee tradition. Boomsday, sponsored by the Knoxville Tourism and Sports Corporation, bids summer goodbye and welcomes fall with an extravaganza of fireworks and music on Sunday, September 3, at the Knoxville riverfront. Boomsday also benefits Children’s Hospital; a portion of the proceeds from the Children’s Activity Area at the event are donated to the hospital. The free event starts at noon, with the fireworks show as the grand finale at 9 p.m. The finale’s musical soundtrack can be heard on the four Journal Broadcast Group stations: Star 102.1, The Point 93.1, Hot 104.5, and The Ticket 1040 AM. The show also will be broadcast on WBIR-TV Channel 10. Boomsday draws more than 250,000 people annually to the Knoxville riverfront. by Clair Cowley, student intern U P C O M I N G E V E N T S T O B E N E F I T C H I L D R E N ’ S Mark your calendars now for several upcoming events to entertain families and benefit Children's Hospital. Thanks to the generous people of East Tennessee who host and participate in these events, Children's Hospital can continue to provide the best pediatric health care to the children of this region. CCAALLEENNDDAARR OOFF EEVVEENNTTSS 12 Estate Planning... Children’s joins LEAVE A LEGACY ® Please send the free brochure titled “How to Make a Will That Works.” Name______________________________ Address__________________________________________ City___________________________ State_______ Zip_____________ Phone( )______________ Please call me at the phone number below for a free confidential consultation concerning planned giving. Please send me more information about deferred giving. I have already included Children’s Hospital in my estate plan in the following way: __________________________________________________________________________ Please send me information about the ABC Club. Children’s Hospital Development Office • (865) 541-8441 The LEAVE A LEGACY® program is an effort underway throughout North America to promote increased public awareness of the importance of bequests to charitable organizations. Currently there are LEAVE A LEGACY“ programs in 63 U.S. and 24 Canadian communities. Children’s Hospital joins forces with 11 other local charitable organizations in establishing a program in Knoxville. The goal of the LEAVE A LEGACY® program is to help the community better understand that we all have the ability to “make a difference in the lives that follow” by leaving a charitable legacy. Children’s Hospital has long enjoyed the support of generous individuals who make gifts through their wills. In the hospital’s early years, such gifts helped keep the doors open. Today, these gifts allow Children’s to expand its services, provide care to ever increasing (New York, N.Y.), Hugh Sanford (Knox County), Emile Seilaz (Knox County), Rev. Vertrue Sharp (Blount County), Pauline Stamps (Hawkins County), Flossie Broome Walker (Knox County), Eugenia Williams (Knox County) and hundreds of others have made gifts large and small to ensure that Children’s Hospital continues its mission into the future. Won’t you join them by leaving your own charitable legacy? All gifts are important, and all are gratefully appreciated. For our complimentary booklet titled “How to Make a Will that Works,” please contact Teresa Goddard, Senior Development Officer or David Rule, Director of Development, at (865) 541-8441. We will be delighted to work with you and your advisors on a gift that will be meaningful to you and helpful to future generations. numbers of area children, and keep the Open Door policy in effect. Friends like Alwayne Allison (Knox County), Elizabeth Ann Buda (Sevier County), Mr. and Mrs. Woodrow Catherman (Sevier County), Bernice Clabo (Sevier County), Dr. Harold Cloogman (Blount County), Sam Essary (Knox County), Esther Groeniger (Omaha, Neb.), Donald M. Gally (Knox County), Joe Kyker (Monroe County), Velma Latham (Knox County), C. Clark Lotspeich (Knox County), Wallace Miller (Jefferson County), Peter More Dates to Remember JUNE Jordanne Clabo Fight Against Crohn’s Golf Tournament June 10 AUGUST Sons of Thunder Motorcycle Fun Ride Date to be announced For more information about any of these events, call (865) 541-8441 or visit our Web site at www.etch.com and click on “Coming Attractions.”
  • 12. In the fall of 2003, Children’s Hospital and WBIR-TV began a program to recognize children from throughout East Tennessee who have done something out of the ordinary – whether through extraordinary volunteer work or an amazing talent or by impressive service to their community. “We were looking for outstanding youngsters who had done something amazing: overcome an incredible physical or emotional situation, demonstrated outstanding talent and achievement through their art, or exhibited a passion for helping to make life better for others,” said Jeff Lee, WBIR’s General Manager. From that desire to recognize area children, 10 Amazing Kids was created; the first group was honored in the spring of 2004, and another group was honored in April 2005. In December 2005, announcements on WBIR-TV asked viewers to nominate a child they know who has done something exceptional – for their family, friends, school, city, place of worship or the community. Dozens of entries were received featuring children who truly have done a variety of amazing things, and the selection process was extremely difficult. The 2006 10 Amazing Kids are: Anne Calkins, age 17, Sevier County High School – This valedictorian of her senior class has a perfect 4.0 average. Anne has excelled in a wide array of activities, including serving as drum major of the band, and has held many positions of leadership and responsibility. While these accomplishments would be impressive for any teenager, consider that Anne also had to take care of her mother for several years during a battle with cancer; when her mother died last year, she had to face the grief and care for her younger sister as a minor. Her senior counselor said, “She is the most amazing student with whom I have worked in 19+ years of counseling more than 6,000 students. I have never said that before, and it is the highest compliment I could give a student.” Matthew Gibbs, age 12, Alcoa Middle School – Following Hurricane Katrina, Matthew began collecting money for the relief effort at school. From that grew his family’s idea to purchase bicycles for children in the Gulf Coast area for Christmas. He involved his church members by placing a bike order form in the Sunday bulletin, and his enthusiasm for the project became infectious. Seventy five people gave over $10,000 to buy more than 150 bikes, helmets, Bibles and candy. In addition to his philanthropic efforts, Matthew is an honor student, plays football and is a member of the band. He is a member of the Destination Imagination Team and is involved in drama and music programs at his church, First Alcoa United Methodist Church. Shawn Lynn Hilton, Jr., age 9, Dandridge Elementary School – A serious illness at a young age left this elementary student with no hands or feet. While he receives assistance from a teaching assistant, Shawn functions mostly on his own – completing assignments, participating in school activities and playing on the playground. He has overcome tremendous obstacles in his young life but enjoys being like any other child – swinging, sliding and climbing around his school playground. His art instructor said his positive attitude and winning smile make him an inspiration to students and school staff. Emily Hollingsworth, age 16, Gatlinburg Pittman High School – When the devastation of Hurricane Katrina hit the Gulf Coast last fall, this high school junior wanted to help the children she saw on television, and the Books for Katrina Kids project was born. With the assistance of her family, UPS (through the donation of boxes), local schools, media and a chain of local Christian bookstores, Emily has been able to collect nearly 10,000 books. The first 2,500 books went to St. Bernard Parish in Louisiana to start a children’s library. This Sevier County student is also active in many school organizations, is on the varsity swim team and was selected as a member of Smoky Mountain Youth Leadership. Monte Hubbard-Greenhalgh, age 11, Jones Cove School – This amazing kid believes that by having the will, there is always a way. Although he has cerebral palsy, a condition that could easily discourage him, Monte has a positive attitude, a refusal to accept limitations and puts others’ needs before his own. Last fall, he asked his school’s principal if he could raise money to purchase a “stander” for his grandfather, a paraplegic. Monte raised the more than $2,000, allowing his grandfather to stand for the first time in four years with the device’s assistance. Brittany Marie Lejeune, age 18, Jefferson County High School – Though she is small in stature at only 4 feet, 4 inches, this extraordinary teen is big on accomplishments and on having the respect of her peers with seemingly little effort. She is an upperclassman mentor and is particularly adept at making new students feel welcome. Brittany sings and dances with the Patriot Singers and has been a four-year participant in her high school’s show honoring local veterans. Her volunteer efforts raised over $2,500 to help families in need during the holidays, and she currently is the catalyst for finding the perfect prom date for several classmates! One of her teachers said Brittany can “find silver linings in even the darkest of skies.” Byrgundy Mallory, age 12, Gresham Middle School – When she was only seven years old, this special child started a club called the Disney Debutantes. This group has touched the lives of the girls and their mothers who are members, by encouraging each person to spend time participating in community service projects and helping make club members community leaders. A member of her church said Byrgundy has “endless compassion for others and pushes them to strive for excellence. She is a role model, because she is not only introducing others to new adventures but introducing them to life skills.” Byrgundy is also active in 4-H and dance and represented Knox County in the math bowl. Blaze Manning, age 13, Cedar Bluff Middle School – This amazing kid took a personal family tragedy and turned it into a positive for her community. In April 2005, Blaze’s older brother was the impaired driver in an accident that killed a teenage passenger. While searching for a way to keep a similar tragedy from happening again, Blaze learned about SADD – Students Against Destructive Decisions, which works to encourage new laws that insist on more adult accountability in underage drinking. She founded the SADD chapter at Cedar Bluff Middle School and has spoken to local, state and national government officials on SADD’s mission. With her determination and positive spirit, this teen is making a difference. She also is active in her church and was chosen Miss Tennessee Preteen 2005. Josh Powell, age 13, Karns Middle School – A diagnosis of childhood cancer when he was eight years old led this amazing child to want to help those who helped him through his illness. He faced his own fears by writing poems for his family, for other patients and for his doctors. After going into remission, Josh did not forget what he went through and how others had helped him and his family. He gives back to the community by raising money for childhood cancer research through a national “lemonade stand” program. Josh also encourages others to donate aluminum cans and drink tabs to the Ronald McDonald House, a program dear to his heart since he and his mom stayed in the houses in Nashville and New York while he underwent cancer treatment. Katherine Thomason, age 17, Maryville High School – Building houses may not sound like an activity that a teenage girl would be involved in, but Katherine is president of Maryville High School’s Habitat for Humanity chapter. She has been selected for three years as a member of the Speakers Bureau for the Positive Role Model Club and is a high academic achiever with membership in several honor societies. Katherine also is a tireless volunteer for many causes; in addition to Habitat for Humanity, she has volunteered for the Hispanic Ministry, Toys for Tots, the Good Samaritan Clinic and many other organizations. Each of the 10 Amazing Kids’ stories was featured on “Live at 5” on WBIR-TV each weekday from April 10-21. Applications for next year’s 10 Amazing Kids will be accepted beginning in December 2006. Watch WBIR-TV this fall for information on the 2007 selection process. 10 Amazing Kids recognized by WBIR-TV 10, Children’s Hospital Anne Matthew Shawn Emily Monte Brittany Byrgundy Blaze Josh Katherine 13
  • 13. 14 From chicken pox to fitness to germs to sunscreen, keeping your child safe and healthy is of primary concern to you and to Children’s Hospital. Here, Lise Christensen, M.D., Director of the Pediatric Emergency Department at Children’s Hospital, discusses the ABCs of kids’ health and safety. AA iiss ffoorr AAlllleerrggiieess Allergies cause a variety of irritating symptoms ranging from sneezing to hives, and they account for nearly two million lost school days each year among students in the United States. Some types of allergies, such as those to bees and peanuts, can be life threatening. An allergy is an overreaction of a person’s immune system to a substance the body treats as an invader. Some of the substances children can be allergic to include dust mites, pollen, molds, certain foods, pets and cockroaches. Although there is no cure for allergies, parents can help relieve symptoms by educating children about the cause of their allergies. Allergy shots can help children build up resistance to allergens, and both prescription and over-the counter drugs can help relieve symptoms. BB iiss ffoorr BBiikkee ssaaffeettyy Riding a bike can be one of the most enjoyable activities of childhood, and it’s a great way to get exercise. But each year in the United States, about 250 children die in bicycle-related accidents, and another half million children are injured in bike accidents. This number could be significantly reduced if more children wore bicycle helmets regularly while cycling. It is a law to wear helmets in most states, including Tennessee. Parents can help keep bike riding a favorite activity for children as well as a safe activity by making sure their children wear a helmet every time they peddle. CC iiss ffoorr CChhiicckkeenn ppooxx Since 1995, doctors have been vaccinating adults and children older than 12 months against the highly contagious chicken pox virus. The varicella vaccine is 70-85 percent effective in preventing a mild infection and more than 95 percent effective in preventing moderate or severe disease. If someone does develop chicken pox after TThhee AA ttoo ZZ gguuiiddee ttoo cchhiillddrreenn’’ss hheeaalltthh ((PPaarrtt 11 ooff 22)) being vaccinated, he or she is more likely to have milder symptoms with fewer skin blisters and a faster recovery. The red, itchy rash first pops up on the stomach, back or face and is accompanied by a fever and abdominal pain. Children generally have chicken pox for about seven to 10 days. Oatmeal baths, wet compresses, calamine lotion and children’s acetaminophen are a few home treatments that can ease the uncomfortable symptoms associated with chicken pox. DD iiss ffoorr DDeehhyyddrraattiioonn Parents should not judge dehydration by a child’s level of thirst. Children with vomiting and/or diarrhea can quickly become dehydrated, as can active children who lose fluid by sweating. By the time a child feels thirsty, he or she may already be dehydrated. So offer drinks frequently, especially when a child is more likely to become dehydrated. Children can replace lost fluids by drinking lots of water, Pedialyte if they are sick, or a sports drink such as Gatorade or Powerade if they are physically active (especially on hot days). Children who are becoming dehydrated may display some of the following symptoms: dry or sticky mouth; few or no tears when crying; eyes that look sunken into the head; a soft spot (fontanelle) on top of a baby’s head that looks sunken; lack of urine or wet diapers for 6-8 hours in an infant (or only a very small amount of dark yellow urine); lack of urine for 12 hours in an older child (or only a very small amount of dark yellow urine); dry, cool skin; lethargy or irritability; and fatigue or dizziness in an older child. EE iiss ffoorr EEaarr iinnffeeccttiioonnss Ear infections are the second most common illness for children, following the common cold. Children two to four years of age are more likely to develop an ear infection since their immune systems are still developing. Their immune systems will not fully develop until they are about seven years old. To reduce the risk of ear infections, avoid putting children to bed with a bottle or exposing them to cigarette smoke. If your children have recurring ear infections, avoid sending babies and toddlers to childcare programs or other group settings if possible. Children who are breastfed have fewer ear infections, so it’s helpful to breastfeed your baby as long as possible. FF iiss ffoorr FFiittnneessss The average child spends about five and a half hours daily watching or playing with some form of technology, such as TV, computer or video games and the Internet. Incorporate a variety of fun, physical activities into your child’s daily routine to get him or her up and moving. Studies show that children need at least 60 minutes of moderate to vigorous exercise each day. Schedule a set amount of time each day in your child’s activities to make staying fit a daily habit. GG iiss ffoorr GGeerrmmss Bacteria and viruses are the two most common microbes in our environment that cause diseases. Humans catch illnesses in a variety of ways, depending on the germ. Respiratory infections are often spread by coughs and sneezes, while gastrointestinal viruses are spread when a person touches a contaminated surface, and then touches his or her mouth. Parents should instruct their children not to share food or drinks with others as this increases the likelihood of catching germs, such as strep throat, meningitis and mononucleosis. Children should also “cough in their elbow,” which decreases the number of germs on their hands. HH iiss ffoorr HHaannddwwaasshhiinngg Notorious for causing illness, germs thrive in almost every environment. The best defense against sickness from germs is proper handwashing. Wash your hands before eating or touching foods, after using the bathroom, after blowing your nose or coughing, after playing outside, after spending time in a public place and after visiting a sick friend. Hand sanitizers are also useful in germ prevention when soap and water are not readily available. II iiss ffoorr IImmmmuunniizzaattiioonnss Many once-common childhood illnesses can be prevented by immunizations or vaccinations. Immunizations use small amounts of a dead or weakened microorganism that causes a certain illness. As a result, the child’s immune system is better able to fight the illness later. Parents should remember to take children to the doctor for their regularly scheduled immunizations. It’s also an excellent idea to have children older than six months vaccinated yearly against the flu. Lise Christensen, M.D.
  • 14. JJ iiss ffoorr JJuuiiccee One hundred percent fruit juice is an easy way to increase the amount of nutrients your child consumes. However, too much juice can lead to tooth decay, abdominal pain, diarrhea and weight gain. The American Academy of Pediatrics recommends that infants six months and older, toddlers and preschoolers consume no more than four to six ounces of juice daily. While juice is OK, be sure children also drink plenty of milk and water. KK iiss ffoorr KKiiddnneeyyss Kidneys help maintain our body’s balance by flushing out the by-products of our body’s metabolism. However, children using the restroom in an unfamiliar place may feel uncomfortable, and many choose to wait until they get home. Children can also become engrossed in play and other activities and forget about using the restroom. These actions prevent our bodies from flushing out waste products and often lead to urinary tract infections. By five years of age, about eight percent of girls and two percent of boys have had at least one urinary tract infection. Children should drink eight to 10 glasses of water and other fluids a day, take a multivitamin, wear cotton underwear, use the bathroom frequently and practice proper wiping techniques to decrease the risk of an infection. It is also important for parents to remind their children about using the restroom frequently. LL iiss ffoorr LLuunncchh School lunches give children an opportunity to select their own meal, but this new independence can sometimes be overwhelming. Parents should encourage their children to pick fruits, vegetables, lean meats and whole grains. They should also stress the importance of healthy food choices, which enable proper development and growth. When packing a school lunch, include wheat bread, baked chips, fresh fruit and other healthy food choices. Use a frozen ice pack to keep perishables cold until lunchtime; these are available in a variety of shapes and characters that are appealing to children. MM iiss ffoorr MMeenniinnggiittiiss Meningitis is an inflammation of the membranes surrounding the brain and spinal cord. It generally occurs with an infection somewhere else in the body and spreads through the blood into the cerebrospinal fluid. It is most common in children under five and in young adults. The symptoms for viral and bacterial meningitis include stiff neck, severe headache, sensitivity to light, vomiting, nausea, extreme sleepiness, confusion and seizures. This infection may be prevented through a routine immunization; doctors suggest children 11 years and older be immunized for meningococcal disease, which can lead to one form of meningitis. Compiled by Jessica Presley and Melissa Molgaard, student interns 15 Making Healthy Choices Time: 6:30 p.m. Dates: June 14, July 18 and August 10 Because food habits often are family- centered, it is important to recognize unhealthy habits and take steps to correct them. A registered dietitian will discuss how to make appropriate healthy food choices, provide substitutes for foods that promote weight gain and suggest methods for increasing daily activity. This course is free. Safe Sitter Time: 9 a.m. to 3 p.m. Date: August 12 Safe Sitter is a national organization that teaches young adolescents safe and nurturing babysitting techniques and the rescue skills needed to respond appropriately to medical emergencies. Instructors are certified through Safe Sitter nationally. Participants must be ages 11-14. This course is $18 per person. Infant and Child CPR Time: 6:30-9 p.m. Dates: June 12, July 10 and August 14 This class will teach caregivers cardiopulmonary resuscitation and choking maneuvers for children ages eight and younger. This class also gives general home safety advice and tips. This course is $18 per person. Class size is limited, so preregistration is required. All classes are offered in the Koppel Plaza at Children’s Hospital, unless otherwise noted. For more information or to register for any of these classes or to receive our free Healthy Kids parenting newsletter, call (865) 541-8262. Announcements about upcoming classes can be seen on WBIR-TV 10 and heard on area radio stations. Or visit our Web site at www.etch.com and click on “Healthy Kids Education and News.” Children’s Hospital’s Healthy Kids Campaign, sponsored by WBIR-TV Channel 10 and Chick-Fil-A, is a community education initiative of the hospital’s Community Relations Department to help parents keep their children healthy. Upcoming Community Education Classes New recommendations for hepatitis A vaccination The Advisory Committee on Immunization Practices (ACIP) recently made a recommendation regarding the universal hepatitis A vaccination. ACIP, a committee of the Centers for Disease Control and Prevention, voted unanimously to recommend that all children in the United States receive hepatitis A vaccination. The previous recommendation called for universal vaccination only in states with the highest rates of hepatitis A. Now about two-thirds of all reported hepatitis A cases are from states without the universal vaccination. The new recommendation is for children to receive the first dose of a two-dose series of hepatitis A vaccine at age one (12 months to 23 months). The second dose should be administered at least six months after the first dose. This vaccine should become a part of the routine childhood vaccination schedule. Hepatitis A is a liver disease caused by the hepatitis A virus. It can occur in isolated cases or in widespread epidemic and can affect all ages. Good personal hygiene and proper sanitation can help prevent the hepatitis A virus. The ACIP continues to recommend hepatitis A immunization for previously unvaccinated adults who are at high risk, such as travelers to countries with a high occurrence of hepatitis A or persons with chronic liver disease. by Meghan Alcorn, student intern
  • 15. Children’s Hospital 2018 Clinch Ave. • P.O. Box 15010 Knoxville, Tennessee 37901-5010 We always try to stay current with friends of the hospital. If for any reason you should receive a duplicate issue, please notify the hospital at (865) 541-8257. NON-PROFIT ORGANIZATION U.S. POSTAGE PA I D PERMIT 433 KNOXVILLE, TN The 24th annual Children’s Miracle Network Telethon was again a great success for Children’s Hospital. Although it was broadcast earlier in the year and featured a new format, the telethon raised more than $1.8 million through pledges and corporate donations. Traditionally a two-day event the weekend after Memorial Day, the 2006 telethon took place Sunday, March 12, and aired live on WBIR-TV 10 from 3-11:30 p.m. The telethon’s success reflects the outstanding support of many generous volunteers, individuals and corporate sponsors including Goody’s, Wal-Mart, Sam’s Club, Star 102.1 and other community organizations. Children’s Hospital was a charter member of the Children’s Miracle Network in 1983, becoming one of only 22 hospitals nationally to participate in the first telethon, which was broadcast locally on WBIR-TV 10. Since that first telecast, the hospital has raised more than $23 million to meet the health care needs of area children who make more than 140,000 visits to Children’s Hospital each year. Proceeds from this year’s telethon will buy new and replacement equipment for many areas of the hospital so that each patient can receive the best care possible. Children’s Hospital extends its sincere gratitude to all who participated in this year’s telethon, including WBIR-TV for its 24 years of dedication to making a difference in the lives of East Tennessee’s children. by Meghan Alcorn, student intern 24th annual telethon raises $1.8 million

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