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Virtual Autism Conference

Virtual Autism Conference

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  • 1. Getting Started with the GFCF Diet
  • 2. QUICK: Why do you do this diet anyways?
    • 65% to 70% of ASD kids are responders
    • http://www.autism.com/treatable/form34qr.htm
    • There are plenty of studies – please read:
    • For folks who question “How could a diet change my child’s behavior/health??”
      • For some research papers (some diet, some gastro issues) please read away at www.autismndi.com/news/display.asp?content=Resources&shownews=20040721150209
      • http://gfcf-diet.talkaboutcuringautism.org/dietary-research-in-asd.htm
  • 3. What Is gluten?
    • Proteins found in plant kingdom
    • Wheat, Oats, Barley, Rye, Triticale, Spelt, Kamut
    • And all derivatives: Malt, grain starches, hydrolyzed vegetable plant proteins, textured vegetable proteins, grain vinegars, soy sauce, grain alcohols, flavorings and the binders and fillers found in vitamins and medications
  • 4. What is casein?
    • A phosphoprotein of milk, which has a molecular structure similar to gluten and includes:
    • Milk
    • Butter
    • Cheese
    • Yogurt
    • Ice cream
    • Creams
    • Caseinate
    • Pediasure
  • 5. What is Leaky Gut?
    • Many of our kids have gastrointestinal disorders believed to be caused by an insult to the immune system. Gluten and casein proteins break down and cause inflammation in the intestinal wall. Proteins go through a permeable gut wall and cross the blood/brain barrier, causing many of the behavioral symptoms.
  • 6.
    • Peptides Casomorphins Opioid
    • HEROIN
    • Clouded mental function
    • Insomnia
    • Diarrhea/constipation
    • Impaired Social Connection
    • Blocking of pain messages
    • Dilated pupils
    • Crave/opioid effect
    These proteins are made of. . .
  • 7. Remove these proteins to begin healing the gut to heal the brain
    • GF/CF diet
    • IgG Food sensitivity removal
    • Anti fungals (to treat yeast overgrowth)
    • Biomedical Treatments
    • Dietary Supplements
    • Digestive enzymes
    • FIND A GOOD DAN DOCTOR
    • http://www.autism.com/ari/
  • 8. GFCF Basics & How to Get Started
    • GFCF in 10 weeks
    • Food list: of items to buy in the store that are GFCF
    • The NOT ACCEPTABLE ingredient list on the diet
    • GFCF on a Budget or on Food Stamps
    • All this and much more stuff at http://gfcf-diet.talkaboutcuringautism.org/index.htm
  • 9. Dealing with Allergies
    • As we have all learned – not all protocols/treatments work for all kids. Bottom line – some medical testing can be very useful in the IgG, IgE, IgM areas.
    • Some great labs that do these doctor approved blood allergy and immune tests are www.gsdl.com , www.sagelabs.com , and www.greatplainslaboratory.com . 
    • Some families do these tests every 12-18 months because allergies can change.
    • Keep a daily journal www.tacanow.org under MEDICAL
  • 10. Dealing with common recipe substitutions
    • Switching flours is not a problem. Good flours are:
      • 50% quinoa and 50% tapioca flour
      • Sorghum
      • Rice Flour
      • 1/3 Corn meal & 2/3 corn flour
      • Almond flour
  • 11. Dealing with common recipe substitutions
    • Eggs substitution (1 egg =)
      • 2 tsp arrowroot / 1 tsp water
      • 2 TBLSP applesauce or pear sauce
      • 2 tsp flaxseed meal / 1 tsp water
      • Quail eggs – 4 to 1 chicken egg
      • Duck eggs – 1 to 1 chicken egg
    • Yeast substitution
      • 1 TBLSP baking powder
      • ¼ cup plain club soda (watch liquids)
  • 12. Rotation Diet Suggestions
    • IMPORTANT NOTE: I did not start a rotation diet until I had the GFCF and allergy issues related to Vico “down to a science.” Going GFCF is hard enough so give yourself some time before you embark on this step at least SIX MONTHS after starting the diet..
    • We first started by removing Casein and when we had that down we removed Gluten. Eventually we went to a rotation diet to prevent food allergies / intolerances and to identify foods that were a problem for our son.
    • In addition, some Autism Spectrum children can get in a “rut” and want to eat the same foods day in and day out. Rotation diets can serve to help both potential problems
  • 13. Sneaky ways for nutrition
    • You can hide good stuff in a cookie, muffin or meat puff
      • Fruit
      • Veggies
      • Protein & EFA powders
    • Think like Gerber Graduates in your baking and presentation of choices
      • Small foods for small hands
      • Think shapes, sizes, colors that your kid likes
      • Create GFCF versions of favorites and disguise it (ask Burger King for clean, empty nugget boxes)
    • When baking (if tolerated) add:
      • Extra eggs
      • Protein powders
      • Nut powders
      • Flaxseed meal
  • 14. Menu Suggestions - Breakfast
    • gluten-free waffles
    • cooked white or brown rice served with milk substitute with sweetener (honey, sugar, glycerine, etc.) Cream of Rice (just like Cream of Wheat)
    • gluten-free pancakes from Special Diets for Special Kids by Lisa Lewis pgs. 124-125
    • gluten-free/casein-free cold cereal (Gorilla Munch, Health Valley Rice Chex cereal are some good options)
    • gluten-free muffins (Lots of recipes in Bette Hagman’s books.  Also in Special Diets for Special Kids by Lisa Lewis, pgs. 127 and 128.)
    • rice bread toast
    • corn grits
    • gluten-free French Toast accompanied with gluten-free proteins--scrambled eggs made w/milk sub or water
    • Shelton's chicken or turkey hot dogs,
    • Fruits
    • milk substitutes – rice milk /potato milks
    • Juices (diluted with water)
  • 15. Menu Suggestions - Lunch
    • Almond butter on waffle, rice cake or bread (you can also use Cashew butter)
    • Peanut butter and jelly sandwiches on rice bread (I use Kinnikinnik bread or the recipes at gfcf-diet.tacanow.org
    • Shelton’s Hot or Shelton’s Uncured Turkey Bologna
    • Leftovers (cool Tupperware containers are available at the Container Store)
    • Accompany meals with fruits and vegetables
    • Yorkshire Chicken Nuggets www.yorkshirefarms.com/index.html and Ian's Chicken nuggets - from WHOLE FOODS MARKET YES they Are GFCF,
    • Fruit Leather from Trader Joes
    • CHIPS GFCF Chips (in potato and corn and veggie brand from Trader Joes), Glutanos Pretzels and Trader Joes Organic Tortilla chips (just corn, salt, & lime --) orTerra chips = Blues, Yukon Gold, other flavors are GF/CF and corn free too.
    • Gorilla Munch Panda Puffs cereal
    • Kiwi, Mango, Papayas slices
    • Homemade french fries
    • Scrambled eggs and Turkey bacon or Pancakes with applesauce
    • Hamburger meat with carrot sticks
    • Desert: Pamela's Ginger Cookies, Imagine Lemon or Chocolate Pudding
    • Hol-Grain Crackers = Brown Rice flavors
  • 16. Menu Suggestions - Dinner
    • Crock pot roast with potatoes, carrots
    • Pot Roast
    • Spanish Rice
    • Stir Fry (Use LaChoy Wheat-free Soy Sauce - HFS)
    • Homemade Soups
    • Bean Tostados (no cheese / corn tortillas)
    • Enchiladas (no cheese / corn tortillas)
    • Chicken Nuggets (Use recipe from Special Diets for Special Kids p. 99)
    • Tacos or Taco Salad with corn tortillas (no cheese)
    • Sloppy joes with rice rolls, crumpets or bread
    • Homemade French fries from Special Diets for Special Kids.
    • Japanese Fried Rice*, Maifun Noodles* and Ginger Pork*
    • Homemade Pizza (great GFCF crust from Miss Robens)
    • Tamale Casserole from Bette Hagman’s Gluten-free Gourmet
    • Spaghetti sauce with corn, rice or lentil pasta (HFS)
    • Chili
    • Chicken Enchilada Casserole
    • Pork Chops
    • Oven baked chicken
    • Broccoli beef
    • Meatloaf or MEAT PUFFS
    • Ham and beans
    • Turkey and rice casserole
    • Barbeque (use Lemon & Ghee with salt & pepper as a basting sauce)
    • Chicken Stew
  • 17. Snacks
    • Corn Chips
    • Popcorn—plain or with an acceptable butter substitute
    • Potato chips--Ruffles (see www.gfcfdiet.com for other brand names)
    • Pretzels (order from Miss Roben’s)
    • Fresh fruits and vegetables
    • Imagine Puddings
    • Frookie Wheat & Gluten-free Choc Chip Cookies
    • Health Valley Rice Bran Crackers
    • Dreyer’s Whole Fruit Sorbet (has lots of sugar)
    • Stretch Island Fruit Leather (HFS)
    • Lundberg rice cakes
    • Potato Flyers (available from Miss Roben’s)
    • Skinny’s potato sticks
    • Terra Sweet Potato Chips
    • Terra Stix (like those short crunchy potato sticks in a can, but better)
    • Robert's American Gourmet Potato Flyers or Veggie Booty (like cheetos in texture) or Fruity Booty
    • Pistachios, Almonds or Cashews
    • EnerG Pretzels (these have soy, though)
    • Just Fruits and Just Veggies - freeze dried everything
    • Cool Fruits Fruit Bars (fruit leather)
    • Grabber EnerG Bars - Apple Apricot, Blueberry Apricot
    • Skittles (not good for kids that need to be DYE free / coloring free)
    • KinnikKinnick Montana Choc Chip Cookies
    • Gerber Fruit Snacks (like Gummies)
    • Gorilla Munch Cereal
    • Rice and Corn Crunch ems.
  • 18. Eating on the go…
    • Best store www.containerstore.com And www.target.com
    • Some favorites
  • 19. Ideas for Traveling
    • Call ahead to hotel/family/friends of where you are visiting.
    • Have food sent in advance, waiting for you
    • Shop the day you arrive or ASAP
    • Have some staples on hand (cereal, crackers, treats, etc.)
    • Invest in various size coolers – Soft-pack coolers are wonderful for traveling!
    • Check restaurants to see if they accommodate your request to re-heat GF/CF food.
    • Some national chains / restaurants have GF/CF menu options.
  • 20. Cooking in Bulk, Freezing & Heating Suggestions
    • Quadruple baking batches or any meal
    • Freeze in individual baggies in large containers with labels
    • Reheat in glass using a toaster oven (preferred)
    • Or take out the night before in the frig to defrost for B-L or D.
    • Remember: GFCF has no preservatives so it goes bad in 1-2 days!
  • 21. Is more than just allergies: Phenols, Salicylates, Dyes &..
    • Dyes, natural flavors, phenols / salyciliates, and additives can be GFCF but brutal on our kiddos and going organic, natural foods with less complex structures is the bare minimum suggested by many and by me.
      • What to watch for in sensitivities
        • Over eating types of foods
        • Behaviors & rashes
        • Night time laughing
    • I am a big believer in feeding our kids healthy, clean foods because garbage in / garbage out (in poops, learning, behaviors and sleep.)
  • 22. Other Diets & Why
    • SCD
    • BED
    • Rotation
    • Allergy elimination
  • 23. Foods you can buy at the store
    • Over 200 items to buy in the store that are GFCF: Food lists at
    • http://gfcf-diet.talkaboutcuringautism.org/gfcf-food-list.html
    • http://www.gfcfdiet.com/NewpageDirectory6.htm
  • 24. Ideas for picky eaters
    • Picky eating can be many things. Your child can have behavioral issues or he is in a rut and or will not try new foods.
    • Read “Picky Kids, Eating and Autism” at http://gfcf-diet.talkaboutcuringautism.org/picky-kids-eating-autism.htm
    • Remember little food for little hands
    • Pay attention to shapes, smells, colors in the beginning and mix it up
  • 25. Other issues for picky eaters..
    • It could mean the child is low in minerals/vitamins that help digest proteins and other complex foods. There are medical studies that demonstrate kids low in zinc cannot tolerate proteins. If this is the case you should work with a doctor regarding supplementation until your child’s diet opens up and more variety of foods can be accepted. (This was an issue with my son.)
    • Or your child has extreme sensitivity issues.  An occupational therapists should assist you here. There are food clinics for eating issues.
  • 26. How to cook edible meals that are GFCF for all to eat
    • Cook like Grandma used to before everything came in boxes
    • Meat & Potatoes, Chicken and Rice (veggies on the side)
    • Pasta
      • Cheat (and save money) by having a pot/strainer for you and a pot/strainer for the Gluten Free pasta. Make tomato based sauces.
  • 27. Tips & tricks for success
    • Forget cheese, pizza’s and breads in the first few months
      • Try these in month 3 +
      • New cheese available now that is actually good http://www.daiyafoods.com/
    • Mixes are a beautiful thing
    • Pre-packages items are a beautiful thing too
    • Bake once you get the hang of the favorite eats and the diet itself
    • If you have tons of extra money – there are places that will deliver GFCF meals you can prepare ( www.gfmeals.com )
  • 28. What to say to family, friends teachers and therapists
    • A little bit WILL hurt so. . .
      • Educate your spouse
      • Educate family members
      • Educate everyone in regular contact with your child
      • And then. . .
      • INSIST!!
      • Do not take apathy toward GF/CF and its affects on your child lightly because you are the one to live with the consequences… (or better yet, explain to others that if they sabotage your efforts, your child can live with THEM for the next 5 days!)
  • 29. Troubleshooting – Hidden Sources of Gluten/Casein
    • Sharing same toaster, waffle iron, fryer, etc. – crumbs CAN make a difference!
    • Sharing condiments – GF/CF mayo, catsup, margarine, peanut butter, etc. – again, crumbs can ruin your efforts.
    • Lipstick / lip balm – Use Burt’s Bees lip balm
    • Sunscreen
    • Playdoh (worst reaction ever for my son)
    • Personal Care products
    • Cosmetics
    • Medicines/Antibiotics – try a compounding pharmacy
    • Ground Spices – Use McCormick’s (no fillers)
  • 30. Is GF/CF enough?  NO!
    • IgG Food Removal
    • Artificial colors and ingredients
    • GO ORGANIC AS MUCH AS POSSIBLE   
    • Eliminate refined sugar !
    • Consider Specific Carbohydrate Diet or other dietary intervention before abandoning all together.  This works better for some kids!
                        
  • 31. Some words on Organic foods
    • Arsenic in commercial grade chicken and in some packaged rice
    • Antibiotics / fillers / additives and preservatives to all meats…
    • Chemicals for fruits & veggies to kill bugs (do bad things to our kids guts.. behaviors… sleep pattern)
    • If you cannot afford a complete GFCF household – do it just for your ASD child!
    • Notes on cleaning products & personal care products
  • 32. This diet & the future…
    • It should also be noted that the diet for some families is not forever – guts do heal for some kids and they can re introduce gluten and casein or just gluten or just casein.
    • For me: I don’t want to look back – Vico eats so well now. I have him eating salad, peas, cabbage, corn, zucchini, pears, peaches – healthy meats in many varieties and other foods. This is a victory!
    • Considering he used to only eat crackers, cheese and only drink milk this is a MUCH healthier diet for him.
    • He is healthier too – no longer needs asthma medication
  • 33. Suggested Reading
    • http://gfcf-diet.talkaboutcuringautism.org/index.htm
    • http://gfcf-diet.talkaboutcuringautism.org/gfcfsf-diet-on-food-stamps.htm
    • http://gfcf-diet.talkaboutcuringautism.org/defending-gfcfsf-diet.htm
    • Special Diets for Special Kids by Lisa Lewis
    • Unraveling the Mystery of Autism and PDD by Karyn Seroussi
    • Amazon.com now has TONS of GFCF cook books
  • 34. For more help
    • Moira Giammatteo [email_address]
    • Get a TACA Mentor:
      • http://www.talkaboutcuringautism.org/about_taca/mentor.htm