Energy Conservation In MS During the Holidays - Julie Huerbin, OTR/L, MSCS

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Energy Conservation In MS During the Holidays - Presented by Julie Huerbin, OTR/L, MSCS of the Shepherd Center in Atlanta, GA.

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Energy Conservation In MS During the Holidays - Julie Huerbin, OTR/L, MSCS

  1. 1. Energy Conservation in MS during the Holidays Julie Huerbin, OTR/L, MSCS Shepherd Center Atlanta GA
  2. 2. MS Symptoms • Fatigue *** • • • • • • • • • Heat Intolerance Cognition Impairment Visual Deficits Bowel and Bladder Dysfunction Visual Disturbances Muscle Weakness Spasticity/ Spasms Pain Difficulty with Walking
  3. 3. Fatigue • Most Common Symptom- 80% • True “MS Fatigue” vs. “Tiredness” – MS Fatigue: Unexpected, overwhelming whole body tiredness not relieved by sleep- usually worsens as day goes on – Tiredness: Expected feeling after certain activities or at end of day • Cause- Unknown? • Can be Controlled!
  4. 4. Factors That Impact Fatigue • • • • • • • • Deconditioned/ Sedentary Medications Depression Interrupted Sleep Lack of Nutrition Life style issues Workplace Demands Stress (+ or -) • HEAT***
  5. 5. Managing Heat Intolerance • • • • • • • • • Cooling equipment (vests, headbands, wrist bands, etc.) Fans Ambient Temperature Settings Time of Day Slushy drinks Clothing Rest Breaks out of heat Cool Showers Exercise- Breaks
  6. 6. Energy Conservation • Definition: Refers to the reduction in the amount of energy consumed by persons achieved through rational/ practical use. • Monitor your energy (Money Bank=Energy Bank) – Deposits/ withdrawals made throughout day – Don’t use up all of the money (energy)! – Reserve money (energy) for activities you enjoy
  7. 7. Tips for Managing your Energy * The 5 P’s: (Money Bank) 1. Planning: – – – – Make a schedule Organize proper rest periods Spread out errands throughout week BE REALISTIC! 2. Prioritize: – – – – What tasks HAVE to be done? What is most important to you? Make list DELEGATE!
  8. 8. 3. Pacing: – – – – The 5 P’s continued.... Balance activity/ rest Time of day for more difficult tasks Do not rush! Try to complete a task before starting another 4. Position/ Posture: – – – – Use good posture Ergonomics Avoid staying in one position Sit while working 5. Power/ Labor Saving Devices: * Also called “Adaptive Devices” (see pictures of examples)
  9. 9. Adaptive Devices • Refers to all of the tools, products and devices that can make functioning easier: – – – – – Mobility Dressing Grooming/ Bathing Self Feeding/ Meal Prep Communication
  10. 10. Mobility • Shower/ Tub Chair • Grab Bars • Power or electric Wheelchair/ Scooter • Wheeled Walker/ Rollator/Cane • Orthotics
  11. 11. • Sock Aide Dressing • Dressing Stick • Reacher • Long Handled Shoe Horn • Button Hook • Elastic Laces/ Velcro
  12. 12. Grooming – Long handled sponge – Bath mit – Long handled comb/ brush – Adaptive toothbrush – Pill boxes
  13. 13. Feeding • Plate Guard • Built up handled utensils • U-cuff • Sippy cup/ long straw • Dycem • Electric can/ jar opener
  14. 14. Communication • Adaptive writing utensils • Wanchik • U-cuff w/ right angle pocket • Typing aide • Voice Activated Systems
  15. 15. Energy Conservation during the Holidays! • • • • • Shopping Decorating Family Visits Meal Prep Traveling
  16. 16. Shopping • • • • • • • • Use lists Shop during less busy hrs. Shop in familiar stores Use assistive device or scooter Bring someone along Most stores have option of free wrapping Ask store employee to assist with carrying items to car Online shopping?
  17. 17. Decorating • • • • • • Start early enough Do a little at a time Get help Lightweight decoration Artificial tree Organize decorations
  18. 18. Meal Preparation • • • • • • • • • • • Plan ahead Make list Pre-made ingredients Prep night before Gather all supplies first Get help Electric kitchen appliances Lightweight dishes Rolling cart Timer! Set table night before
  19. 19. Family Visits • Have family contribute to meal by bringing dish (potluck) • Plan ahead and increase space in your home as much as possible: – Push furniture to the walls – Designate “walking traffic” area – Designate space for gifts, food, etc. • • • • Don’t get OVERWHELMED! Take a “time out” Don’t overschedule visits- prioritize Watch alcohol consumption and food intake
  20. 20. • • • • • • • • Traveling Make lists Pack ahead of time Carry on! If traveling by air, make prior accomodations to get assistance navigating through airport Get to airport early enough! Consider taxi to airport If traveling by land, plan short/quick rest stops OR overnight stays if needed Rolling/ lightweight suitcase
  21. 21. Thank You! Have a Safe and Energy Conserving Holiday Season !!

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