Aids se dsd


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Aids se dsd

  1. 1. Denial, Stigma & Discrimination Dr. Rajesh Gopal Gujarat SACS, Ahmedabad
  2. 2. Consolidated Reply and Action Group Work by AIDS Community
  3. 3. Query Summary <ul><li>Share experiences on how members have addressed the problem of Denial, Stigma and Discrimination. </li></ul><ul><li>Requested innovative approaches, success cases, and lessons learned from programs that have created an enabling environment for People Living with HIV </li></ul>
  4. 4. Consolidated Reply – Forms of DSD <ul><li>Being denied obstetric, dental, surgical or medical treatment; </li></ul><ul><li>Being removed from employment; </li></ul><ul><li>Being ridiculed by friends and neighbours; </li></ul><ul><li>Being evicted by landlords; </li></ul><ul><li>Not allowed to use bathrooms, share food or utensils at the workplace. </li></ul><ul><li>After death, being buried unceremoniously in polythene bags </li></ul><ul><li>Confidentiality being compromised by aggressive media coverage </li></ul><ul><li>LGBTs lacked consideration in national policy discussions </li></ul>
  5. 5. Consolidated Reply – Addressing DSD <ul><li>Develop openness in discussing sexuality issues – NIPASHA+, SAHODARAN, Udaan Trust. </li></ul><ul><li>Incorporate all stakeholders, particularly family members and medical personnel, in de-stigmatization efforts — INP+, MNP+, Bengal Network of Positive people. </li></ul><ul><li>Provide constant counselling to families of HIV positive persons – INP+ </li></ul><ul><li>Train and sensitize health care workers, and ensure strict vigilance against discrimination at health facilities – DNP+, SWAM . </li></ul>
  6. 6. Consolidated Reply – Addressing DSD <ul><li>Offer greater visibility to PLHIV by encouraging them to come out in open and by enhancing their educational and technical skills – Network for Chennai People Living with HIV and AIDS, TNP+, DNP+, Heroes Project, INP+, Positive Peoples’ Foundation. </li></ul><ul><li>Sensitize media professionals – Network for Chennai People Living with HIV and AIDS, MNP+, CPK+. </li></ul><ul><li>Simplify information on HIV and AIDS, making it user friendly and avoiding fear-based messages – Positive Peoples’ Foundation, Bethesda Youth Welfare Centre, SATHII, Udaan Trust . </li></ul><ul><li>Spread awareness countering the various myths about HIV — TNP+, Bengal Network of Positive People, Bethesda Youth Welfare Centre, SAATHII </li></ul>
  7. 7. Consolidated Reply – Addressing DSD <ul><li>Give public recognition to HIV positive persons who have successfully countered stigma and discrimination. </li></ul><ul><li>Encourage NGOs and CBOs to deal with stigma and discrimination in their own organizations, including how to maintain confidentiality. </li></ul><ul><li>Advocate with Government and influential decision makers for increasing accessibility to treatment facilities and for making Anti Retroviral Therapy free or available at nominal rates. </li></ul>
  8. 8. <ul><li>Given the intimate links between stigma and discrimination, intervention on two fronts is needed: </li></ul><ul><li>Action to prevent and challenge stigma and discrimination where they occur </li></ul><ul><li>Action to monitor discriminatory acts and to provide redress for those affected </li></ul>Translating knowledge to Action
  9. 9. <ul><li>Efforts need to be taken to make good </li></ul><ul><li>Gaps in people’s understanding and awareness </li></ul><ul><li>Gaps in services and service accessibility </li></ul><ul><li>Gaps in redress for the infringement of rights </li></ul>Translating knowledge to Action <ul><li>Services Required </li></ul><ul><li>Establishment of community-based legal aid services </li></ul><ul><li>Training and support for existing legal aid institutions </li></ul><ul><li>Training for members of NGOs and CBOs in HIV and humans rights concerns </li></ul>
  10. 10. <ul><li>Beyond a Legal Response </li></ul><ul><li>Laws are ‘dead letters’ unless supported by community values and expectations </li></ul><ul><li>Efforts need to be made to challenge stigmatizing beliefs and practices </li></ul><ul><li>Limits to individual ‘enlightenment’ approaches </li></ul><ul><li>Unleashing and supporting the power of resistance </li></ul><ul><li>Supportive structural and environmental interventions </li></ul>Translating knowledge to Action
  11. 11. <ul><li>Some Research Priorities </li></ul><ul><li>Effective strategies for stigma prevention </li></ul><ul><li>Effective strategies for action where stigma persists and is acted upon </li></ul><ul><li>Effective strategies for tackling stigma induced discrimination </li></ul><ul><li>Effective strategies for the kind of community mobilization that are effective in preventing and reducing stigma </li></ul>Translating knowledge to Action
  12. 12. <ul><li>Some Action Goals </li></ul><ul><li>Prevent HIV related stigma </li></ul><ul><li>Challenge HIV related stigma and discrimination where it occurs </li></ul><ul><li>Where stigma is enacted and discrimination ensues, provide access to appropriate forms of redress </li></ul><ul><li>Work towards a transformed social climate in which HIV related discrimination is no longer tolerated. </li></ul>Translating knowledge to Action
  13. 13. <ul><li>AGM Recommendations: </li></ul><ul><li>To form a group named AAROHII. </li></ul><ul><li>AAROHII would document all the work on stigma and discrimination and update it periodically </li></ul><ul><li>The need for recognition of AAROHII and thereby credibility as the key national partnership addressing stigma and discrimination. </li></ul><ul><li>A secretariat for AAROHI to give it sustainability and a long term prospect was proposed as this would effectively address issues of stigma at the national level over time. </li></ul>Translating knowledge to Action
  14. 14. <ul><li>AAROHII Objectives: </li></ul><ul><li>To expand the base of people and organizations to address Stigma and Discrimination. </li></ul><ul><li>To influence policy and programmes to reduce Stigma and Discrimination. </li></ul><ul><li>To facilitate, support and strengthen responses that address Stigma and Discrimination. </li></ul><ul><li>To develop and strengthen the evidence base for action and advocacy. </li></ul><ul><li>To recognize new and innovative approaches that has reduced Stigma and Discrimination. </li></ul><ul><li>To organize regional and national level consultation meetings for sharing and learning </li></ul>Translating knowledge to Action
  15. 15. <ul><li>An overwhelming response to a query </li></ul><ul><li>Stigma was the biggest problem </li></ul><ul><li>Prepare a comprehensive programme </li></ul><ul><li>Action Group Meeting </li></ul><ul><li>Creation of AAROHII </li></ul><ul><li>Maximize their impact individually and collectively </li></ul><ul><li>Drawn up constitution, objectives & a vision for India </li></ul><ul><li>Project translates objectives into activities </li></ul><ul><li>Nominated itself for the first Red Ribbon Award </li></ul>Translating knowledge to Action
  16. 16. Activities and Proposed Action Group Work by Gujarat State AIDS Control Society
  17. 17. <ul><li>Utilization of existing Legal provisions (DMR-OA Act) </li></ul><ul><li>Action against HCPs for denying services to PLHIV </li></ul><ul><li>Influencing Policy to minimize Discrimination </li></ul><ul><li>Mainstreaming of HIV (SCA) </li></ul><ul><li>Advocacy and sensitization of service providers </li></ul><ul><li>Media and Police advocacy </li></ul><ul><li>Strengthening and facilitation of the activities of GSNP+ </li></ul><ul><li>More services beyond NACP II through PPP, State government and other charitable organizations. </li></ul>Initiatives in Gujurat
  18. 18. <ul><li>Facilitation of Network for PLHIV in other states </li></ul><ul><li>Advocacy with the Legal Services authority of the State </li></ul><ul><li>Formation of Human Rights Centre at the State Level </li></ul><ul><li>Sexuality and HIV Resource Centre </li></ul><ul><li>Normalization of HIV through involvement of Celebrity </li></ul><ul><li>Strengthening the service provision as an incentive for ‘coming out’ </li></ul>Replication in other States
  19. 19. Thank You AIDS Community [email_address] [email_address]