Preliminary Experience in                               BackHome ProjectEloisa VargiuBarcelona Digital Technology Centerev...
   User profiling   Profiling people with functional diversity   Conclusions                                     DART 2...
   Profiling users comes from the need to    acquire information about habits,    preferences, tastes as well as demograp...
   To   study the user’s behavior   To   make market researches   To   improve the provided services   To   personaliz...
   Citizens   Shopping center consumers   Internet users   Everybody!                                DART 2012 @KDIR -...
   Demographic data   Personal information   Marriage status   Educational information   Political view   Sports   ...
   City halls   Shopping centers   Online shops   Search engines   Social networks   Everywhere!                    ...
   The user is asked to fill a given questionnaire   An automatic system learns the profile                             ...
...and if the user has health   functional diversities?                DART 2012 @KDIR - October 4, 2012
   A relevant part of the profile of people with    health diseases is their Quality of Life (QoL)                       ...
   QoL is the subjective experiences or    preferences expressed by an individual in    relation to specified aspects of ...
   People with functional diversity back home    after a discharge                                   DART 2012 @KDIR - Oc...
   To study the transition from the hospital to    the home   To learn how different BNCIs and other    assistive techno...
DART 2012 @KDIR - October 4, 2012
Smart-Nodes                                    Twitter                          GAS                            Temperature...
   Physical autonomy    ◦ To turn on/off a TV    ◦ To open/close a curtain    ◦ To set the room temperature   Social aut...
DART 2012 @KDIR - October 4, 2012
   Performing cognitive activities through    ◦ a communication system      to plan future patient activities      to p...
   The QoL assessment system will help answer    basic questions about the state of the user,    such as    ◦ “is she dep...
Quality of Life Assessment               DART 2012 @KDIR - October 4, 2012
   To assess QoL several questionnaires have    been proposed and adopted   The user is asked to answer to a predefined ...
Pervasive Quality of LifeAssessment                DART 2012 @KDIR - October 4, 2012
   To be compliant with ICF (ICF core sets)    ◦ Standardization effort   To rely on existing standard (and well-    kno...
   International Classification of Functioning,    Disability and Health (ICF) is a classification of    the health compo...
From: http://ard.bmj.com/content/63/suppl_2/ii40                     DART 2012 @KDIR - October 4, 2012
DART 2012 @KDIR - October 4, 2012
   The WHOQOL-BREF   RAND-36   SF-36   Barthel ADL index   EQ-5D   …                        DART 2012 @KDIR - Octobe...
   WHOQOL-BREF    ◦ 26 items    ◦ Domains:        Physical health        Psychological health        Social relationsh...
   RAND-36    ◦ 36 items    ◦ Health concepts:        physical functioning        role limitations caused by physical h...
   Short Form Health Survey (SF-36)    ◦ Includes the same set of items of RAND-36    ◦ Commonly used in health economics...
   Barthel ADL index    ◦ Measures performance in activities of daily living    ◦ 10 variables describing activities of d...
   EQ-5D    ◦ A standardized measure of health status    ◦ Provides a simple, generic measure of health for      clinical...
   What is of interest to assess in BackHome    ◦   Physical autonomy    ◦   Social autonomy    ◦   Cognitive rehabilitat...
   What is of interest to assess in BackHome    ◦ Physical autonomy        Daily activities        Movements        Tr...
   What is of interest to assess in BackHome    ◦ Physical autonomy    ◦ Social autonomy      Physical interactions and ...
   What is of interest to assess in BackHome    ◦ Physical autonomy    ◦ Social autonomy    ◦ Cognitive rehabilitation   ...
   What is of interest to assess in BackHome    ◦   Physical autonomy    ◦   Social autonomy    ◦   Cognitive rehabilitat...
DART 2012 @KDIR - October 4, 2012
DART 2012 @KDIR - October 4, 2012
DART 2012 @KDIR - October 4, 2012
   Monitorable data    ◦ Mobility      through location sensors    ◦ Usual Activities (housework, education and/or      ...
   Inferable data    ◦ Usual Activities (family and friends relationships)      through the support of communication sys...
   No inferable data    ◦ Self-care      in principle, also self-care activities can be monitored       by relying on su...
   Information gathering and fusion of all the    acquired data   To define suitable activities to be monitored   To de...
   Profiling people with functional diversity    ◦ QoL assessment   BackHome challenge    ◦ Pervasively assessing the Qo...
   The research leading to these results has received    funding from the European Communitys, Seventh    Framework Progr...
   BackHome website    ◦ www.Backhome-FP7.eu   Publications    ◦ E. Vargiu, F. Miralles, S. Martin and D. Markey. BackHo...
Contact:Eloisa Vargiuevargiu@bdigital.org  evargiu@bdigital.org               DART 2012 @KDIR - October 4, 2012
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Profiling People with Functional Diversity through a Smart Home Healthcare Monitoring System

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Invited talk @ DART 2012, KDIR 2012 special session - October 4, 2012

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Profiling People with Functional Diversity through a Smart Home Healthcare Monitoring System

  1. 1. Preliminary Experience in BackHome ProjectEloisa VargiuBarcelona Digital Technology Centerevargiu@bdigital.org
  2. 2.  User profiling Profiling people with functional diversity Conclusions DART 2012 @KDIR - October 4, 2012
  3. 3.  Profiling users comes from the need to acquire information about habits, preferences, tastes as well as demographic data of the users of a service or a system Profiles can be generated by directly asking users to fill a questionnaire or inferred by studying the user behavior in accessing and interacting with the service/system DART 2012 @KDIR - October 4, 2012
  4. 4.  To study the user’s behavior To make market researches To improve the provided services To personalize the provided services To make some statistics DART 2012 @KDIR - October 4, 2012
  5. 5.  Citizens Shopping center consumers Internet users Everybody! DART 2012 @KDIR - October 4, 2012
  6. 6.  Demographic data Personal information Marriage status Educational information Political view Sports Hobbies Health status Everything! DART 2012 @KDIR - October 4, 2012
  7. 7.  City halls Shopping centers Online shops Search engines Social networks Everywhere! DART 2012 @KDIR - October 4, 2012
  8. 8.  The user is asked to fill a given questionnaire An automatic system learns the profile DART 2012 @KDIR - October 4, 2012
  9. 9. ...and if the user has health functional diversities? DART 2012 @KDIR - October 4, 2012
  10. 10.  A relevant part of the profile of people with health diseases is their Quality of Life (QoL) DART 2012 @KDIR - October 4, 2012
  11. 11.  QoL is the subjective experiences or preferences expressed by an individual in relation to specified aspects of her/his life, with a particular reference to the health status DART 2012 @KDIR - October 4, 2012
  12. 12.  People with functional diversity back home after a discharge DART 2012 @KDIR - October 4, 2012
  13. 13.  To study the transition from the hospital to the home To learn how different BNCIs and other assistive technologies work together To learn how different BNCIs and other assistive technologies can help in the transition from the hospital to the home To reduce the cost and hassle of the transition from the hospital to the home DART 2012 @KDIR - October 4, 2012
  14. 14. DART 2012 @KDIR - October 4, 2012
  15. 15. Smart-Nodes Twitter GAS Temperature AmI Wearable Smart-objects Sensors EMG Robot Gyro Toys ECG AmI is the “glue” technologyproviding the intelligent baseline framework DART 2012 @KDIR - October 4, 2012
  16. 16.  Physical autonomy ◦ To turn on/off a TV ◦ To open/close a curtain ◦ To set the room temperature Social autonomy ◦ To communicate with the therapists ◦ To communicate with relatives ◦ To communicate with friends DART 2012 @KDIR - October 4, 2012
  17. 17. DART 2012 @KDIR - October 4, 2012
  18. 18.  Performing cognitive activities through ◦ a communication system  to plan future patient activities  to personalize exercises and activities ◦ sensors-based technologies  to monitor exercise execution and performance  to perform cognitive activities (e.g., Brain Painting) ◦ smart objects  to perform cognitive rehabilitation task (e.g., with a robot) DART 2012 @KDIR - October 4, 2012
  19. 19.  The QoL assessment system will help answer basic questions about the state of the user, such as ◦ “is she depressed?” ◦ “has she decreased her activity level?” ◦ “is she more engaged in social interactions?” Heterogeneousinformation collected by BackHome User the system health status DART 2012 @KDIR - October 4, 2012
  20. 20. Quality of Life Assessment DART 2012 @KDIR - October 4, 2012
  21. 21.  To assess QoL several questionnaires have been proposed and adopted The user is asked to answer to a predefined set of questions about her/his mental and psychological status and feeling It could become boring and annoying for a user to answer to them, especially if they are asked to do that very frequently DART 2012 @KDIR - October 4, 2012
  22. 22. Pervasive Quality of LifeAssessment DART 2012 @KDIR - October 4, 2012
  23. 23.  To be compliant with ICF (ICF core sets) ◦ Standardization effort To rely on existing standard (and well- known) questionnaire(s) ◦ Do not reinvent the wheel DART 2012 @KDIR - October 4, 2012
  24. 24.  International Classification of Functioning, Disability and Health (ICF) is a classification of the health components of functioning and disability In BackHome, we rely on the ICF core sets for the etiologies of neurologic origin ◦ Traumatic brain injury ◦ Multiple sclerosis ◦ Spinal cord injury DART 2012 @KDIR - October 4, 2012
  25. 25. From: http://ard.bmj.com/content/63/suppl_2/ii40 DART 2012 @KDIR - October 4, 2012
  26. 26. DART 2012 @KDIR - October 4, 2012
  27. 27.  The WHOQOL-BREF RAND-36 SF-36 Barthel ADL index EQ-5D … DART 2012 @KDIR - October 4, 2012
  28. 28.  WHOQOL-BREF ◦ 26 items ◦ Domains:  Physical health  Psychological health  Social relationships  Environment DART 2012 @KDIR - October 4, 2012
  29. 29.  RAND-36 ◦ 36 items ◦ Health concepts:  physical functioning  role limitations caused by physical health problems  role limitations caused by emotional problems  social functioning  emotional well-being  energy/fatigue  pain  general health perceptions DART 2012 @KDIR - October 4, 2012
  30. 30.  Short Form Health Survey (SF-36) ◦ Includes the same set of items of RAND-36 ◦ Commonly used in health economics as a variable in the quality-adjusted life year calculation to determine the cost-effectiveness of a health treatment DART 2012 @KDIR - October 4, 2012
  31. 31.  Barthel ADL index ◦ Measures performance in activities of daily living ◦ 10 variables describing activities of daily living and mobility:  presence or absence of faecal incontinence  presence or absence of urinary incontinence  help needed with grooming  help needed with toilet use  help needed with feeding  help needed with transfers (e.g. from chair to bed)  help needed with walking  help needed with dressing  help needed with climbing stairs  help needed with bathing DART 2012 @KDIR - October 4, 2012
  32. 32.  EQ-5D ◦ A standardized measure of health status ◦ Provides a simple, generic measure of health for clinical and economic appraisal ◦ Provides a simple descriptive profile and a single index value for health status that can be used in the clinical and economic evaluation of health care as well as in population health surveys DART 2012 @KDIR - October 4, 2012
  33. 33.  What is of interest to assess in BackHome ◦ Physical autonomy ◦ Social autonomy ◦ Cognitive rehabilitation ◦ Cognitive stimulation DART 2012 @KDIR - October 4, 2012
  34. 34.  What is of interest to assess in BackHome ◦ Physical autonomy  Daily activities  Movements  Transferring from bed to chair and vice versa  Self-care  Mood  Fatigue  Stress  Sense of pain  Anxiety / Depression / Discomfort ◦ Social autonomy ◦ Cognitive rehabilitation ◦ Cognitive stimulation DART 2012 @KDIR - October 4, 2012
  35. 35.  What is of interest to assess in BackHome ◦ Physical autonomy ◦ Social autonomy  Physical interactions and communications with relatives, friends, and therapist  Virtual interactions and communications with relatives, friends, and therapist ◦ Cognitive rehabilitation ◦ Cognitive stimulation DART 2012 @KDIR - October 4, 2012
  36. 36.  What is of interest to assess in BackHome ◦ Physical autonomy ◦ Social autonomy ◦ Cognitive rehabilitation  Performed exercises  Physical state before and after rehabilitation  Mood before and after rehabilitation ◦ Cognitive stimulation DART 2012 @KDIR - October 4, 2012
  37. 37.  What is of interest to assess in BackHome ◦ Physical autonomy ◦ Social autonomy ◦ Cognitive rehabilitation ◦ Cognitive stimulation  Painting activities  Music activities DART 2012 @KDIR - October 4, 2012
  38. 38. DART 2012 @KDIR - October 4, 2012
  39. 39. DART 2012 @KDIR - October 4, 2012
  40. 40. DART 2012 @KDIR - October 4, 2012
  41. 41.  Monitorable data ◦ Mobility  through location sensors ◦ Usual Activities (housework, education and/or leisure activities)  through the BNCI system DART 2012 @KDIR - October 4, 2012
  42. 42.  Inferable data ◦ Usual Activities (family and friends relationships)  through the support of communication system (e.g., Skype)  through the support of social network (i.e., Facebook and Twitter) ◦ Pain/Discomfort  through text mining algorithms applied on social networking and communication activities ◦ Anxiety/Depression  through text mining algorithms applied on social networking and communication activities DART 2012 @KDIR - October 4, 2012
  43. 43.  No inferable data ◦ Self-care  in principle, also self-care activities can be monitored by relying on suitable sensors  for privacy issues, we decide to not monitor such activities DART 2012 @KDIR - October 4, 2012
  44. 44.  Information gathering and fusion of all the acquired data To define suitable activities to be monitored To define suitable data and text mining algorithms to infer the user behavior … DART 2012 @KDIR - October 4, 2012
  45. 45.  Profiling people with functional diversity ◦ QoL assessment BackHome challenge ◦ Pervasively assessing the QoL automatically Preliminary proposal ◦ A smart home healthcare monitoring system ◦ EQ-5D questionnaire DART 2012 @KDIR - October 4, 2012
  46. 46.  The research leading to these results has received funding from the European Communitys, Seventh Framework Programme FP7/2007-2013, BackHome project grant agreement n° 288566 BackHome consortium DART 2012 @KDIR - October 4, 2012
  47. 47.  BackHome website ◦ www.Backhome-FP7.eu Publications ◦ E. Vargiu, F. Miralles, S. Martin and D. Markey. BackHome: Assisting and Telemonitoring People with Disabilities. RAatE 2012 - Recent Advances in Assistive Technology & Engineering, November 26, 2012. ◦ S. Martin, C. Guger, C. Hintermller, D. Markey, F. Miralles, G.R. Mller-Putz and E. Vargiu. BackHome: Brain-Neural-Computer Interfaces on Track to Home. RAatE 2012 - Recent Advances in Assistive Technology & Engineering, November 26, 2012. DART 2012 @KDIR - October 4, 2012
  48. 48. Contact:Eloisa Vargiuevargiu@bdigital.org evargiu@bdigital.org DART 2012 @KDIR - October 4, 2012

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