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Profiling People with Functional Diversity through a Smart Home Healthcare Monitoring System
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Profiling People with Functional Diversity through a Smart Home Healthcare Monitoring System

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Invited talk @ DART 2012, KDIR 2012 special session - October 4, 2012

Invited talk @ DART 2012, KDIR 2012 special session - October 4, 2012

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  • 1. Preliminary Experience in BackHome ProjectEloisa VargiuBarcelona Digital Technology Centerevargiu@bdigital.org
  • 2.  User profiling Profiling people with functional diversity Conclusions DART 2012 @KDIR - October 4, 2012
  • 3.  Profiling users comes from the need to acquire information about habits, preferences, tastes as well as demographic data of the users of a service or a system Profiles can be generated by directly asking users to fill a questionnaire or inferred by studying the user behavior in accessing and interacting with the service/system DART 2012 @KDIR - October 4, 2012
  • 4.  To study the user’s behavior To make market researches To improve the provided services To personalize the provided services To make some statistics DART 2012 @KDIR - October 4, 2012
  • 5.  Citizens Shopping center consumers Internet users Everybody! DART 2012 @KDIR - October 4, 2012
  • 6.  Demographic data Personal information Marriage status Educational information Political view Sports Hobbies Health status Everything! DART 2012 @KDIR - October 4, 2012
  • 7.  City halls Shopping centers Online shops Search engines Social networks Everywhere! DART 2012 @KDIR - October 4, 2012
  • 8.  The user is asked to fill a given questionnaire An automatic system learns the profile DART 2012 @KDIR - October 4, 2012
  • 9. ...and if the user has health functional diversities? DART 2012 @KDIR - October 4, 2012
  • 10.  A relevant part of the profile of people with health diseases is their Quality of Life (QoL) DART 2012 @KDIR - October 4, 2012
  • 11.  QoL is the subjective experiences or preferences expressed by an individual in relation to specified aspects of her/his life, with a particular reference to the health status DART 2012 @KDIR - October 4, 2012
  • 12.  People with functional diversity back home after a discharge DART 2012 @KDIR - October 4, 2012
  • 13.  To study the transition from the hospital to the home To learn how different BNCIs and other assistive technologies work together To learn how different BNCIs and other assistive technologies can help in the transition from the hospital to the home To reduce the cost and hassle of the transition from the hospital to the home DART 2012 @KDIR - October 4, 2012
  • 14. DART 2012 @KDIR - October 4, 2012
  • 15. Smart-Nodes Twitter GAS Temperature AmI Wearable Smart-objects Sensors EMG Robot Gyro Toys ECG AmI is the “glue” technologyproviding the intelligent baseline framework DART 2012 @KDIR - October 4, 2012
  • 16.  Physical autonomy ◦ To turn on/off a TV ◦ To open/close a curtain ◦ To set the room temperature Social autonomy ◦ To communicate with the therapists ◦ To communicate with relatives ◦ To communicate with friends DART 2012 @KDIR - October 4, 2012
  • 17. DART 2012 @KDIR - October 4, 2012
  • 18.  Performing cognitive activities through ◦ a communication system  to plan future patient activities  to personalize exercises and activities ◦ sensors-based technologies  to monitor exercise execution and performance  to perform cognitive activities (e.g., Brain Painting) ◦ smart objects  to perform cognitive rehabilitation task (e.g., with a robot) DART 2012 @KDIR - October 4, 2012
  • 19.  The QoL assessment system will help answer basic questions about the state of the user, such as ◦ “is she depressed?” ◦ “has she decreased her activity level?” ◦ “is she more engaged in social interactions?” Heterogeneousinformation collected by BackHome User the system health status DART 2012 @KDIR - October 4, 2012
  • 20. Quality of Life Assessment DART 2012 @KDIR - October 4, 2012
  • 21.  To assess QoL several questionnaires have been proposed and adopted The user is asked to answer to a predefined set of questions about her/his mental and psychological status and feeling It could become boring and annoying for a user to answer to them, especially if they are asked to do that very frequently DART 2012 @KDIR - October 4, 2012
  • 22. Pervasive Quality of LifeAssessment DART 2012 @KDIR - October 4, 2012
  • 23.  To be compliant with ICF (ICF core sets) ◦ Standardization effort To rely on existing standard (and well- known) questionnaire(s) ◦ Do not reinvent the wheel DART 2012 @KDIR - October 4, 2012
  • 24.  International Classification of Functioning, Disability and Health (ICF) is a classification of the health components of functioning and disability In BackHome, we rely on the ICF core sets for the etiologies of neurologic origin ◦ Traumatic brain injury ◦ Multiple sclerosis ◦ Spinal cord injury DART 2012 @KDIR - October 4, 2012
  • 25. From: http://ard.bmj.com/content/63/suppl_2/ii40 DART 2012 @KDIR - October 4, 2012
  • 26. DART 2012 @KDIR - October 4, 2012
  • 27.  The WHOQOL-BREF RAND-36 SF-36 Barthel ADL index EQ-5D … DART 2012 @KDIR - October 4, 2012
  • 28.  WHOQOL-BREF ◦ 26 items ◦ Domains:  Physical health  Psychological health  Social relationships  Environment DART 2012 @KDIR - October 4, 2012
  • 29.  RAND-36 ◦ 36 items ◦ Health concepts:  physical functioning  role limitations caused by physical health problems  role limitations caused by emotional problems  social functioning  emotional well-being  energy/fatigue  pain  general health perceptions DART 2012 @KDIR - October 4, 2012
  • 30.  Short Form Health Survey (SF-36) ◦ Includes the same set of items of RAND-36 ◦ Commonly used in health economics as a variable in the quality-adjusted life year calculation to determine the cost-effectiveness of a health treatment DART 2012 @KDIR - October 4, 2012
  • 31.  Barthel ADL index ◦ Measures performance in activities of daily living ◦ 10 variables describing activities of daily living and mobility:  presence or absence of faecal incontinence  presence or absence of urinary incontinence  help needed with grooming  help needed with toilet use  help needed with feeding  help needed with transfers (e.g. from chair to bed)  help needed with walking  help needed with dressing  help needed with climbing stairs  help needed with bathing DART 2012 @KDIR - October 4, 2012
  • 32.  EQ-5D ◦ A standardized measure of health status ◦ Provides a simple, generic measure of health for clinical and economic appraisal ◦ Provides a simple descriptive profile and a single index value for health status that can be used in the clinical and economic evaluation of health care as well as in population health surveys DART 2012 @KDIR - October 4, 2012
  • 33.  What is of interest to assess in BackHome ◦ Physical autonomy ◦ Social autonomy ◦ Cognitive rehabilitation ◦ Cognitive stimulation DART 2012 @KDIR - October 4, 2012
  • 34.  What is of interest to assess in BackHome ◦ Physical autonomy  Daily activities  Movements  Transferring from bed to chair and vice versa  Self-care  Mood  Fatigue  Stress  Sense of pain  Anxiety / Depression / Discomfort ◦ Social autonomy ◦ Cognitive rehabilitation ◦ Cognitive stimulation DART 2012 @KDIR - October 4, 2012
  • 35.  What is of interest to assess in BackHome ◦ Physical autonomy ◦ Social autonomy  Physical interactions and communications with relatives, friends, and therapist  Virtual interactions and communications with relatives, friends, and therapist ◦ Cognitive rehabilitation ◦ Cognitive stimulation DART 2012 @KDIR - October 4, 2012
  • 36.  What is of interest to assess in BackHome ◦ Physical autonomy ◦ Social autonomy ◦ Cognitive rehabilitation  Performed exercises  Physical state before and after rehabilitation  Mood before and after rehabilitation ◦ Cognitive stimulation DART 2012 @KDIR - October 4, 2012
  • 37.  What is of interest to assess in BackHome ◦ Physical autonomy ◦ Social autonomy ◦ Cognitive rehabilitation ◦ Cognitive stimulation  Painting activities  Music activities DART 2012 @KDIR - October 4, 2012
  • 38. DART 2012 @KDIR - October 4, 2012
  • 39. DART 2012 @KDIR - October 4, 2012
  • 40. DART 2012 @KDIR - October 4, 2012
  • 41.  Monitorable data ◦ Mobility  through location sensors ◦ Usual Activities (housework, education and/or leisure activities)  through the BNCI system DART 2012 @KDIR - October 4, 2012
  • 42.  Inferable data ◦ Usual Activities (family and friends relationships)  through the support of communication system (e.g., Skype)  through the support of social network (i.e., Facebook and Twitter) ◦ Pain/Discomfort  through text mining algorithms applied on social networking and communication activities ◦ Anxiety/Depression  through text mining algorithms applied on social networking and communication activities DART 2012 @KDIR - October 4, 2012
  • 43.  No inferable data ◦ Self-care  in principle, also self-care activities can be monitored by relying on suitable sensors  for privacy issues, we decide to not monitor such activities DART 2012 @KDIR - October 4, 2012
  • 44.  Information gathering and fusion of all the acquired data To define suitable activities to be monitored To define suitable data and text mining algorithms to infer the user behavior … DART 2012 @KDIR - October 4, 2012
  • 45.  Profiling people with functional diversity ◦ QoL assessment BackHome challenge ◦ Pervasively assessing the QoL automatically Preliminary proposal ◦ A smart home healthcare monitoring system ◦ EQ-5D questionnaire DART 2012 @KDIR - October 4, 2012
  • 46.  The research leading to these results has received funding from the European Communitys, Seventh Framework Programme FP7/2007-2013, BackHome project grant agreement n° 288566 BackHome consortium DART 2012 @KDIR - October 4, 2012
  • 47.  BackHome website ◦ www.Backhome-FP7.eu Publications ◦ E. Vargiu, F. Miralles, S. Martin and D. Markey. BackHome: Assisting and Telemonitoring People with Disabilities. RAatE 2012 - Recent Advances in Assistive Technology & Engineering, November 26, 2012. ◦ S. Martin, C. Guger, C. Hintermller, D. Markey, F. Miralles, G.R. Mller-Putz and E. Vargiu. BackHome: Brain-Neural-Computer Interfaces on Track to Home. RAatE 2012 - Recent Advances in Assistive Technology & Engineering, November 26, 2012. DART 2012 @KDIR - October 4, 2012
  • 48. Contact:Eloisa Vargiuevargiu@bdigital.org evargiu@bdigital.org DART 2012 @KDIR - October 4, 2012