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What do patients need
What do patients need
What do patients need
What do patients need
What do patients need
What do patients need
What do patients need
What do patients need
What do patients need
What do patients need
What do patients need
What do patients need
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What do patients need

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Published in: Health & Medicine, Education
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  • 1. What do patients need patients 2.0 Patient Needs WG
  • 2. GOAL is same
  • 3. How do we achieve this goal?Healthy people Sick people• access your health data • research in• add to your health data o biomarkers• diet § genetic• exercise § proteomic o education on which exercise § other platforms are good for them o systemic understanding o gym/exercise plans o diagnostics o money for gym/plans o prognostics o time for gym/plans o treatments o community based on § side effects exercise goals § efficacy • education • community/support • resources
  • 4. e(mpowered)-Patient• Education o content (i.e., genetics education, diet/nutrition education, treatment education, diagnostic education, disease/ ailment education) o delivery• Legislative and political empowerment (e.g., the Abigail Alliance, American Cancer Society) o access to experimental therapies o access your entire medical staffs contact information• Financial, entrepreneurial, and stakeholder empowerment o Communities (e.g., Crohnology.com, ACOR.org, Caringbridge.org, PatientsLikeMe.com) o Research (e.g., PXE International, Addi and Cassi Fund) o Culture shifts § Collaborative care / shared-decision making § Access and ownership of health data

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