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Information sheet for self-funders
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Information sheet for self-funders

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  • 1. St James House Vicar Lane Sheffield S1 2EX Tel: 0845 644 5407 Email: sheffield@ekosgen.co.ukThe workforce implications of adults and older people whoself-fund and employ their own care and support workersInformation about the researchWe would like to invite you to take part in our research study.Before you decide we would like you to understand why theresearch is being undertaken and what it would involve for you.One of our research team will go through this information sheetwith you and answer any questions you have. Please contact ususing the details below if anything is not clear.Why is the research taking place?The research is needed to gather information about how peoplepay for their care and the types of care and support services theyreceive. We’re interested in finding out what support you’ve had todate and how you have found it. We are also interested in whetherpeople who pay for their own care think they would benefit frommore assistance or guidance in their role as an employer.Why have I been invited to take part?We would like to speak with people who pay for all or part of theircare using their own money or savings.Do I have to take part?It is up to you to decide to take part in the research. We willdescribe the study and go through this information sheet with you.If you agree to take part, we will then ask you to sign a consentform. Taking part will not affect the care or support you receive. 1Information about the research
  • 2. What is involved in taking part?We are speaking with participants through one of the followingthree different ways: a one-to-one interview on the telephone orface-to-face, a focus group discussion and a survey, either onpaper or via the internet. You will only need to participate in one ofthese.How will my information be recorded?A researcher will take a note of your comments during theinterview or focus group. These may be recoded with yourpermission. If you complete a survey online or on paper, theresponses will be stored in electronic format. All informationcollected will be stored securely.What will happen if I don’t want to carry on with the study?You are free to withdraw at any time, without giving a reason.Please contact the research team using the details below towithdraw from the study. If you choose to withdraw, none of theinformation you have provided will be used in the research.Will my taking part in this study be kept confidential?By confidential we mean that we will not tell anyone that you havetaken part in the study. Everything you say as part of the researchis confidential unless you tell us something that indicates you orsomeone else are at risk of harm. We would discuss this with youbefore telling anyone else.What will happen to the findings?The findings will be written up into a research report that will bepublished on Skills for Care website and available through localorganisations.Who is funding the study?This study is being funded by Skills for Care. Skills for Care is anindependent registered charity working to develop the skills andknowledge of workers providing care and support. 2Information about the research
  • 3. Who has reviewed the study?This study has been reviewed and given a favourable opinion bythe Social Care Research Ethics Committee. A Research EthicsCommittee is a group of independent people who review researchto protect the dignity, rights, safety and well-being of participantsand researchers.Further information and contact detailsFor further information please contact:Elaine AstleyBreakthrough UK LtdBEVCAked CloseManchesterM12 4ANTel: 0161 273 5412Email: e.astley@breakthrough-uk.co.ukorTim AllanSt James HouseVicar LaneSheffieldS1 2EXTel: 0845 644 5407Email: tim.allan@ekosgen.co.uk 3Information about the research
  • 4. If you would like to make a complaint about the study pleasecontact:Susan StaianoCommercial Directorekosgen4th Floor137 Sauchiehall StreetGlasgowG2 3EWTel: 0845 120 6244Email: susan.staiano@ekosgen.co.ukThank you for considering our research project.We are also interest in speaking with those you or others employto provide care and support. Please feel free to pass thisinformation sheet on as appropriate. 4Information about the research

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