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“e-Patient Dave” deBronkart
Twitter: @ePatientDave
facebook.com/ePatientDave
LinkedIn.com/in/ePatientDave
dave@epatientdave.com
What e-Patients Want
and WhyThey Need
to Be Empowered
TEDx Maastricht, 2011
This is the year
of patients
rising.
Patient
is not
a third person
word
Lesson 1, fromTEDx Maastricht, 2011
You can tell a lot
about a futurist
by how their
predictions pan out
Lesson 2, from 40 years in business:
1969!
Equipped
Engaged
Empowered
Enabled
e-Patients are
What do we mean by
Empowered?
Empowerment
“Increasing the capacity !
of individuals or groups"
to make choices [about what they want]"
and to transform those choices !
into desired actions & outcomes”!
World Bank, 2002!
People perform better
when they’re
informed better.
Lesson 3, obvious in every industry but healthcare
It’s perverse
to keep people
in the dark
and call them ignorant
Corollary:
What e-Patients Want and Why They Need To Be Empowered
Median Survival:
24 weeks
What e-Patients Want and Why They Need To Be Empowered
How has that one panned out?
How can it be
that the most useful
and relevant and
up-to-the-minute information
can exist outside of
traditional channels?
How has this one turned out?
Closed system Open network
Transformation of Knowledge Access
What e-Patients Want and Why They Need To Be Empowered
How a kidney cancer wife
found the info she needed
•  No insurance;
no treatment.Then:
•  Three bad hospitals;
no help.Then:
•  A friend said
“I know a guy...
on Twitter”
Regina Holliday’s
Medical Mural Advocacy Project
The Walking Gallery
ReginaHolliday.blogspot.com
You know
it’s a revolution
when the artists
and musicians
show up
Lesson 4 (a culture lesson)
What e-Patients Want and Why They Need To Be Empowered
Dr. EricTopol
How’s that one turned out?
bit.ly/topolthedata
“Gimme My DaM Data”
bit.ly/gimmedataDeloitte guys get on board
“Data Liberación!”
Todd Park
Innovator
Entrepreneur
HHS Chief Technical Officer
US Chief Technical Officer
Federal government gets on board
What e-Patients Want and Why They Need To Be Empowered
When assets digitize,
things change fast.
Lesson 5 (a shocker, in any pre-digital industry)
What e-Patients Want and Why They Need To Be Empowered
Why not “Google Earth for my body”?
What e-Patients Want and Why They Need To Be Empowered
Case Study:
Hugo Campos wants his ICD data
Patient Experience
AliveCor: iPhone EKG
12/3/12:
“FDA clears iPhone heart
monitor, doctors can pre-order”
Feb 2014: OTC
Hugo Campos
@hugooc
HugoOC@gmail.com
My first year with
the AliveCor
February 8, 2013
What e-Patients Want and Why They Need To Be Empowered
We perform better
when we’re
informed better.
#WeAreNotWaiting
#NightScout
#DIYPS
(“Do-it-yourself Pancreas System”
What e-Patients Want and Why They Need To Be Empowered
Who gets to say
what’s in the
patient’s best
interest?
Patient-Clinician Partnerships
Engaged, empowered patients—
A learning health care system is
anchored on patient needs and
perspectives
and promotes the inclusion of patients,
families, and other caregivers as vital
members of the continuously learning
care team.
“How can patients participate if they don’t
have the information?” – Dr.Danny Sands
How’s this one workin’ out?
WONDERFULLY, thank you.
It’s great
to be alive.
What e-Patients Want and Why They Need To Be Empowered
Withings
Withings Wi-Fi scale
Fitness wristband & heart band
YMCA Diabetes Prevention Class
(food training & physical activity)
MyFitnessPal diet tracking app
Strong spousal support
My doctors can’t see this in their computers!
What e-Patients Want and Why They Need To Be Empowered
TEDx Maastricht, 2011
Permettez-
moi de vous
présenter…
les Mini-Me’s.
What e-Patients Want and Why They Need To Be Empowered
Half of everyone who’s
ever been 65 is alive today
Population today: ~7.0 billion
End of World War II: ~2.3 billion
MayThe Fourth
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
Let My Data Go
We perform better
when we’re
informed better.
We are
(you are)
the most
under-used
resource in
healthcare.
What e-Patients Want and Why They Need To Be Empowered
Let Patients Help.

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