Presentation to the HealthKick 2015 conference in Toronto, May 2015. Includes important definition of empowerment from the World Bank - highly applicable to how and why patients become empowered when they gain access to more information.
What e-Patients Want and Why They Need To Be Empowered
1. “e-Patient Dave” deBronkart
Twitter: @ePatientDave
facebook.com/ePatientDave
LinkedIn.com/in/ePatientDave
dave@epatientdave.com
What e-Patients Want
and WhyThey Need
to Be Empowered
9. Empowerment
“Increasing the capacity !
of individuals or groups"
to make choices [about what they want]"
and to transform those choices !
into desired actions & outcomes”!
World Bank, 2002!
20. How a kidney cancer wife
found the info she needed
• No insurance;
no treatment.Then:
• Three bad hospitals;
no help.Then:
• A friend said
“I know a guy...
on Twitter”
42. Who gets to say
what’s in the
patient’s best
interest?
43. Patient-Clinician Partnerships
Engaged, empowered patients—
A learning health care system is
anchored on patient needs and
perspectives
and promotes the inclusion of patients,
families, and other caregivers as vital
members of the continuously learning
care team.
44. “How can patients participate if they don’t
have the information?” – Dr.Danny Sands
49. Withings
Withings Wi-Fi scale
Fitness wristband & heart band
YMCA Diabetes Prevention Class
(food training & physical activity)
MyFitnessPal diet tracking app
Strong spousal support
My doctors can’t see this in their computers!