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AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
AMSA OpenNotes / Let Patients Help speech, March 2014
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AMSA OpenNotes / Let Patients Help speech, March 2014

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e-Patient Dave speech on OpenNotes / Let Patients Help at the March 2014 American Medical Students Association annual convention.

e-Patient Dave speech on OpenNotes / Let Patients Help at the March 2014 American Medical Students Association annual convention.

Published in: Health & Medicine
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Transcript

  • 1. “e-Patient Dave” deBronkart Twitter: @ePatientDave facebook.com/ePatientDave LinkedIn.com/in/ePatientDave dave@epatientdave.com Information at the point where it’s needed can save lives.
  • 2. “I want to note especially the importance of the resource that is most often under- utilized in our information systems – our patients” Charles Safran MD, Beth Israel Deaconess quoting his colleague,Warner Slack MD Testimony to the HouseWays & Means subcommittee on health, 2004
  • 3. Institute of Medicine – Sept 2012 Major New Report:“Best Care at Lower Cost”
  • 4. Yes, the IOM itself says e-patients are an essential part of tomorrow’s healthcare. Patient-Clinician Partnerships Engaged, empowered patients— A learning health care system is anchored on patient needs and perspectives and promotes the inclusion of patients, families, and other caregivers as vital members of the continuously learning care team.
  • 5. e-Patients.net founder Tom Ferguson MD 1944-2006 Equipped Engaged Empowered Enabled” Doc Tom said, “e-Patients are
  • 6. From 1972-1975 Peter Frishauf was National Correspondent for The New Physician.
  • 7. SAMA office, 1972
  • 8. He met Katharine Rice (aka K.C. Rice) there.
  • 9. The New Physician at the AMA Convention, 1974
  • 10. They’ve been rocking ever since, and they say thank you SAMA / AMSA!
  • 11. And then…
  • 12. And then…
  • 13. Frishauf founded Medscape
  • 14. “Data Liberación!” Todd Park Innovator Entrepreneur HHS Chief Technical Officer US Chief Technical Officer
  • 15. e-Patients.net founder Tom Ferguson MD 1944-2006 Equipped Engaged Empowered Enabled” Doc Tom said, “e-Patients are
  • 16. Me? An indicator of the future?? •  Who’s getting online: –  1989: Me (CompuServe sysop) –  2009: 83% of US adults (Pew) •  Who’s romancing online: –  1999: I met my wife (Match.com) –  2009: One in eight weddings in the U.S. met online –  2011: One in five couples met online
  • 17. “There’s crap on the internet. We need to get out there and balance it” Wendy Sue Swanson, MD Mother & pediatrician @SeattleMamaDoc Facebook too
  • 18. •  “The more info we push out, the better decisions they make” •  “We’ve taken a demographic group and through connected technology they’re engaged in their health” •  “Our patients tell their friends – ‘and he’s on Facebook’” An OB/Gyn on social media?? @MacObGyn
  • 19. ACOR members told me: •  This is an uncommon disease – get to a hospital that does a lot of cases •  There’s no cure, but HDIL-2 sometimes works. –  When it does, about half the time it’s permanent –  The side effects are severe. •  Don’t let them give you anything else first •  Here are four doctors in your area who do it –  And one of them was at my hospital
  • 20. People perform better when they’re informed better! Who knew??
  • 21. What if the information they give you is wrong?
  • 22. Data quality is essential. Let Patients Help.
  • 23. “Now I know why docs don’t give you scan data. I see theVirgin Mary, Jimmy Hoffa, several forks, and Saddam’s yellowcake hiding in my guts.” “And this CT scan makes my butt look big.” @Xeni Live tweeting, 12-18-2011
  • 24. “So I figure out how to open my bone scan data. I look.” “What the...” “What’s that ****-shaped ghost-shadow thing— it looks like I have a penis!” “I call a hacker pal.‘That, Xeni, is a ****.’” “I look at metadata more carefully. THEY GAVE ME THE WRONG DATA. SOME OTHER DUDE’S SCANS.” @Xeni Next day: 12-19-2011
  • 25. Pre-op:“At least you won’t be lopsided.” “What do you mean?” “You’re getting a bilateral mastectomy.” “No I’m not!” “That’s what came to us on this paper.”
  • 26. VA’sVeterans eHealth University, 2012 – audience response: Have you looked in your medical record? Do you know if it has mistakes?
  • 27. Big data? Whose data?
  • 28. Physician adoption of new practices years after discovery The “17 years” thing From A. Balas, Institute of Medicine, inYearbook of Medical Informatics 2000 Flu vaccine, year 32: 55% doing it, 45% still not Beta blockers, year 18: 62% doing it, 38% still not Diabetic foot care, year 7: 20% doing it, 80% still not Cholesterol, year 16: 65% doing it, 35% still not Creative Commons Attribution / Share-Alike May be distributed with this license included
  • 29. Scurvy 264

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