Biological Domains - The Internet of Human Beings as the New Big Data

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Describes how patient genetic data will cause health records to evolve into biological domains. Suggests genomes could disrupt current information flows on the web - with human beings moving from …

Describes how patient genetic data will cause health records to evolve into biological domains. Suggests genomes could disrupt current information flows on the web - with human beings moving from user accounts to nodes on the network with real time consent.

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  • 1. The Internet of Human Beings July 30, 2013 | California Biological Domains & Big Data Alice Rathjen, CEO, Founder DNA Guide Alice Rathjen © 2013 - How Genetic Data Will Force Health Records To Evolve
  • 2. 20232013 Research Institutes Government IDs / Passports Electronic Health Records Biometric Access/ E-Commerce Ancestry Online Identity Services Citizen Science Patient Advocacy Sites Non-Govt. Health Organizations Disaster Response / Epidemics Gaming (DNA avatars) 2 Billion Genomes in 10 Years Will Transform Information Flows of the Web Estimates by Alice Rathjen © 2013 - Potential Sources for Biological Domain Registrars
  • 3. The Current Web The Future Web Mobile Internet of Things Search E Commerce Social Biological Network - Internet of Human Beings The Old Web Solving Health Care IT for the Future Web Health Records Evolve Into Biological Domains Exponential Growth in Data from the Body Alice Rathjen © 2013 -
  • 4. What Happens Once Genetic Data is Added to a Health Record? Health Record Genetic Dataset “Sticky” Universal Health Record Alice Rathjen © 2013 -
  • 5. Health Data Becomes Identifiable Big Data = Big Liability Health Record Genetic Dataset De- identified Data De-Identified Data Alice Rathjen © 2013 -
  • 6. Solution : Health IT Network = Biological Domain Registrar Health Record Genetic Dataset Portable Patient Health Record (patient picks trusted registrar) Alice Rathjen © 2013 - Real Time Consent
  • 7. Future Health Record Human = Node On The Network Biometric Map of the Body Map of the Genome Lifestyle, Environment Patient Centric Bi-Directional Information Flow Alice Rathjen © 2013 -
  • 8. Mobile/Visual Maps of Body & Genome  Information Organized by Location & Time  Patient Raw Data Stored Separately  Dynamic Interpretation & Reports  Easy Adoption  Needs to be able to Scale Indefinitely Alice Rathjen © 2013 -
  • 9. Dynamic Health Information Quality Rating Quality of Science Medical Utility Viewing Risk (Graded) A,B,C,D,F W = Withdrawn , I = Incomplete(by Scientific Community) (by Health Care Providers/ Payers) E = Everyone PG = Physician Guidance R = Restricted (Medical Ethics, Counselor) Category Rating (Five Star Rating) (i.e.Movie Rating) Alice Rathjen © 2013 -
  • 10. Exponential Growth Patient Data • Imaging • Remote Sensors • Cancer Tumor Analysis • Drug Response • Disease Risk • Carrier Testing • Life Style • Environment Alice Rathjen © 2013 -
  • 11. User Accounts Biological Domains Old Big Data vs. New Big Data just data JUST DATA Alice Rathjen © 2013 -
  • 12. The Internet of Human Beings July 30, 2013 | Sebastopol, California Biological Domains & Big Data Alice Rathjen, CEO, Founder DNA Guide Patient Health Information with Real Time Consent Alice Rathjen © 2013 -