Autism - Conceptual Planning for a Charter Campus Prototype

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  • 1. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment) DRAFT V1.0 – Autism Awareness Month – 04/09/2013 1
  • 2. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)INDEX OF MATERIALS: Defining Autism & The Spectrum Government Response  Current Federal Initiatives  State Initiatives (ARICA) The Campus Concept – Four Key Attributes Prospective Collaborators Suggested Next Actions DRAFT V1.0 – Autism Awareness Month – 04/09/2013 2
  • 3. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Defining Autism…Autism is defined by the presence of difficulties in threeareas: social deficits; communication problems; and Social Deficitsrepetitive or restricted behaviors with an onset in at leastone area by age three.It is estimated that one in every 110 children is diagnosedwith autism (and one in every 70 boys), making it more Repetitive Communicationcommon than childhood cancer; juvenile diabetes; and Behavior Problemspediatric AIDS combined. An estimated 1.5 millionindividuals in the U.S. and tens of millions worldwideare affected by autism. Source: http://www.thearc.org/page.aspx?pid=2541 DRAFT V1.0 – Autism Awareness Month – 04/09/2013 3
  • 4. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)The SpectrumEach individual with autism is unique. About 40percent have average to above average intellectualabilities. Indeed, many persons on the spectrum takedeserved pride in their distinctive abilities and “atypical”ways of viewing the world. Others with autism havesignificant disability and are unable to live independently.About 25 percent of individuals with ASD are nonverbalbut can learn to communicate using other means. Forsome, this means the development and delivery of moreeffective treatments that can address significantchallenges in communication and physical health. Forothers, it means increasing acceptance, respect andsupport.Source: http://www.autismspeaks.org/what-autism DRAFT V1.0 – Autism Awareness Month – 04/09/2013 4
  • 5. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Government Response • Less than $300 SPENDS million a year • $33 billion for COSTS services & care DRAFT V1.0 – Autism Awareness Month – 04/09/2013 5
  • 6. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Current Federal InitiativesFederal Health Care ReformThe implementation of the 2010 Patient Protection and Affordable Care Act could have profoundimplications on autism insurance reform and laws passed by a majority of states. Autism Speaks isclosely monitoring the regulatory framework being created by the U.S. Department of Health andHuman Services.The Achieving a Better Life Experience (ABLE) Act of 2011Autism Speaks is supporting the ABLE Act which would allow the creation of tax-free 529accounts for individuals with disabilities, including autism, to save for their future needs withoutlosing access to other resources.Source: http://www.autismvotes.org/site/c.frKNI3PCImE/b.3909865/k.F405/Federal_Initiatives.htm DRAFT V1.0 – Autism Awareness Month – 04/09/2013 6
  • 7. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Federal Initiatives2012 Presidential CampaignAutism Speaks is asking each of the 2012 candidates for President to sign on to its Blueprint for anAppropriate Federal Response to Autism.The Combating Autism Reauthorization Act (CARA) of 2011President Obama signed the Combating Autism Reauthorization Act of 2011 into law on September30, 2011, securing the Federal response to the national and public health emergency posed byautism spectrum disorders for another three years. Sponsored by Reps. Chris Smith (R-NJ) andMike Doyle (D-PA) in the House of Representatives, and Senators Robert Menendez (D-NJ) andMike Enzi (R-WY) in the Senate, the law authorizes $693 million in federal resources forcontinued autism research, treatment and services.Source: http://www.autismvotes.org/site/c.frKNI3PCImE/b.3909865/k.F405/Federal_Initiatives.htm DRAFT V1.0 – Autism Awareness Month – 04/09/2013 7
  • 8. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Federal Initiatives The IDEA Fairness Restoration Act (S. 613/H.R. 1208) Sponsored in the Senate by Senator Tom Harkin (IA) and in the House by Representative Chris Van Hollen (MD-8) these bills would allow parents to recover expert witness fees in an action under the Individuals with Disabilities Education Act. Military Families and Autism Advocacy Are you a member of a Military family affected by autism? Want to get more involved with issues of policy and legislation that affect children with autism in military families?Source: http://www.autismvotes.org/site/c.frKNI3PCImE/b.3909865/k.F405/Federal_Initiatives.htm DRAFT V1.0 – Autism Awareness Month – 04/09/2013 8
  • 9. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)State Initiatives : - H4935 An Act Relative to Insurance Coverage for Autism(ARICA)Massachusetts Becomes the 23rd State to Enact Autism InsuranceReform ActWhat treatments are covered under ARICA? The law covers the following care prescribed,provided, or ordered for an individual diagnosed with one of the Autism Spectrum Disorders by alicensed physician or a licensed psychologist who determines the care to be medically necessary: Rehabilitative Pharmacy Psychological Therapeutic DRAFT V1.0 – Autism Awareness Month – 04/09/2013 9
  • 10. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)H4935 An Act Relative to Insurance Coverage for Autism (ARICA)Habilitative or Rehabilitative Care – this includes professional, counseling and guidance servicesand treatment programs, including but not limited to, applied behavior analysis supervised by aboard certified behavior analyst, that are necessary to develop, maintain and restore, to themaximum extent practicable, the functioning of an individual.Pharmacy care - medications prescribed by a licensed physician and health-related services deemedmedically necessary to determine the need or effectiveness of the medications, to the same extentthat pharmacy care is provided by the insurance policy for other medical conditions. DRAFT V1.0 – Autism Awareness Month – 04/09/2013 10
  • 11. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)H4935 An Act Relative to Insurance Coverage for Autism (ARICA)Psychiatric care - direct or consultative services provided by a psychiatrist licensed in the state inwhich the psychiatrist practices.Psychological care -direct or consultative services provided by a psychologist licensed in the statein which the psychologist practices.Therapeutic care - services provided by licensed or certified speech therapists, occupationaltherapists, physical therapists or social workers. DRAFT V1.0 – Autism Awareness Month – 04/09/2013 11
  • 12. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Bill H.2710 An Act establishing a commission to study the feasibility of a charter school forstudents on the autism spectrumBy Ms. Coakley-Rivera of Springfield, a petition (accompanied by bill, House, No. 2710) of Swanand Coakley-Rivera for an investigation by a special commission (including members of theGeneral) relative to establishing a charter school for students diagnosed with Autism JointCommittee on Education.Sponsors: Cheryl A. Coakley-RiveraStatus: Referred to Joint Committee on Education DRAFT V1.0 – Autism Awareness Month – 04/09/2013 12
  • 13. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)THE CAMPUS CONCEPT – ATTRIBUTES FOR CONSIDERATION ONE THREE TWO Rooftop & FOUR Clustered Community Community Equine-Assisted Neighborhood Building/Activities Gardens Therapies Center Model Center DRAFT V1.0 – Autism Awareness Month – 04/09/2013 13
  • 14. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)PROSPECTIVE COLLABORATORSThe following slides present a summary view of organizations / programs that we haveidentified as both prospective collaborators and inspirations for key attributes of thecampus prototype that we endeavor to develop … DRAFT V1.0 – Autism Awareness Month – 04/09/2013 14
  • 15. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)THE GREEN HOUSE MODELDeveloped by Dr. William Thomas and rooted in the tradition of the Eden Alternative, a model forcultural change within nursing facilities, The Green House model is intended to de-institutionalizelong-term care by eliminating large nursing facilities and creating habilitative, social settings.A radical departure from traditional skilled nursing homes and assisted living facilities, The GreenHouse model alters facility size, interior design, staffing patterns, and methods of delivering skilledprofessional services. DRAFT V1.0 – Autism Awareness Month – 04/09/2013 15
  • 16. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Neighborhood ModelThe Concept contemplates a neighborhood ofResidential Prototypes that have been designed inorder to adapt to multiple occupancies types. DRAFT V1.0 – Autism Awareness Month – 04/09/2013 16
  • 17. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)THE GREEN HOUSE (Illustrative Photos & Rendering) DRAFT V1.0 – Autism Awareness Month – 04/09/2013 17
  • 18. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)THE GREEN HOUSE (Illustrative Photographs) DRAFT V1.0 – Autism Awareness Month – 04/09/2013 18
  • 19. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Normalization and the Silverado StoryThe principle of normalization aims to refute the idea that people who have disabilities should be keptseparate from society. Putting people with “their own kind” detracts from individuality and dignity.Based on these principles, Silverado Senior Living has created many programs and standards whichaim to provide every resident with dignity and respect.Allowing pets and children, welcoming family, and frequent interactions with the community throughour service clubs are a few ways we create a warm home-like environment for our residents. DRAFT V1.0 – Autism Awareness Month – 04/09/2013 19
  • 20. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Impact Oasis (TRAIL)Impact OASIS is a non-profit organization whose mission is topromote inclusion and acceptance of autistic individuals intotheir local communities by establishing farm centers that providemeaningful work, peaceful and healthy residences andcommunity interaction.We have been granted a ground lease, from the township ofMiddletown, on a portion of a 15 acre farm tract at Stevenson’sPark, Middletown.OASIS has agreed that this area is to be used for farming,gardening and horticultural purposes as part of our education,training and assistance programs for autistic individuals.SOURCE: http://www.impactoasis.com DRAFT V1.0 – Autism Awareness Month – 04/09/2013 20
  • 21. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Impact Oasis (TRAIL)Impact OASIS is proposing to create a Transitional Residential/Adult Independent Learning(TRAIL) Center that will provide young adults with autism a unique experience parallel to theirnon-disabled peers once they graduate from high school.After High School most young adults have a first opportunity to live on their own. Some go on tocollege; others may get a job and an apartment. Both begin to learn how to manage their own livesmore independently; from ensuring there’s food in their homes to learning how to manage theirtime and take on adult role responsibilities such as work, continuing education or other type ofcommunity role.The OASIS TRAIL Center will provide the following services to assist infacilitating the transition from the role of student to that of an adult for those served:Residential/Habilitation services/Vocational services/Recreational/Respite services/Continuing education (focus will be on language comprehension and usage and social skillstraining) SOURCE: http://www.impactoasis.com DRAFT V1.0 – Autism Awareness Month – 04/09/2013 21
  • 22. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)The Greenhouse Project, is an initiative dedicated toimproving environmental science educationin NYC public schools through the construction of on-site greenhouse laboratories, based on the Science Bargedesign, and the provision of a hands-on educationalcurriculum.The Center functions as a hands-on classroom forstudents from Kindergarten through 8th grade with anintegrated environmental science curriculum. Thefacility also serves as a teacher training center andmodel for replication at other urban schools. DRAFT V1.0 – Autism Awareness Month – 04/09/2013 22
  • 23. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)The Charles River CenterThe Charles River Center (formerly Charles River Arc) is a private, nonprofit human service agency inNeedham, Massachusetts, providing employment and job training, residential homes, therapeutic dayprograms, and recreational programs for children and adults with mental retardation and otherdevelopmental disabilities. Founded by a group of parents of children with special needs in 1956, themission of Charles River has always been to improve the quality of life by helping each individual with adevelopmental disability achieve his or her highest possible level of independence so that he or shecan fully participate, benefit, and become a contributing member of the community.The Charles River Center serves over 500 families from many communities including Needham,Wellesley, Weston, Newton, Dedham, Cambridge, Brighton, Brookline, Framingham, Natick,Westwood, Dover, Waltham, Roslindale, Hyde Park, Roxbury, Watertown, Quincy, Norwood, WestRoxbury and many more.Source: : http://www.charlesrivercenter.org/index.cfm DRAFT V1.0 – Autism Awareness Month – 04/09/2013 23
  • 24. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)The LABBB CollaborativeThe LABBB Collaborative helps students with special needsreach their full potential through high quality programs thatintegrate academic, social, recreational and vocational servicesand enable participation in the least restrictive environment.By sharing its resources with multiple school districts and socialservice agencies, its programs maintain superior quality andreasonable costs to those it serves, by meeting or exceeding statestandards, and achieving economies of scale. We are serving 60cities and delivered the following specialized services.SOURCE: http://www.labbb.com/ DRAFT V1.0 – Autism Awareness Month – 04/09/2013 24
  • 25. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Vocational development…Vocational development and real life job exploration are theprimary goals of the LABBB Vocational Program. All studentsparticipate in vocational programming that is individualized.The LABBB Vocational Program has been recognizedstatewide, nationally and internationally for excellence invocational programming. It has received numerous awards forBest Practices and quality vocational programming. TheLABBB Program continues to comply with required industrialstandards. Students do receive monthly paychecks.SOURCE: http://www.labbb.com/ DRAFT V1.0 – Autism Awareness Month – 04/09/2013 25
  • 26. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Specialized Services… Adapted Physical Education  Work preparedness Physical Therapy  Transition services Occupational Therapy  Reading Consultation Speech and Language Therapy  Vocational Training Behavioral Therapy  Assistive Technology Counseling Consultation SOURCE: http://www.labbb.com/ DRAFT V1.0 – Autism Awareness Month – 04/09/2013 26
  • 27. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Stewart Home School - KentuckyResidence Halls, Classrooms, Gymnasium, Pavilion, Fitness Center, Library,Ballfield, Riding Ring and Stables, Fishing Ponds and Grounds combine tocreate a setting for a special needs education as lovely and complete as anycollege campus. Students at our school for special needs enjoy the commonsareas as much as their own private rooms. The center of it all is the historicMain Building, where Administration Offices, the Business Office, ResidentialServices and Health Care can be found. The Main Building is also home to awomen’s residence hall. SOURCE: http://www.stewarthome.com/ DRAFT V1.0 – Autism Awareness Month – 04/09/2013 27
  • 28. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Horses have always been a part of Stewart Home Schoolsince its inception in 1893. The Equestrian Program itselfhas evolved from just a few students riding to almost half ofthe school’s population being involved with the horses.Our program is open to all interestedstudents and, depending on theirrequest, they may be riding the horsesor driving our Shetland pony. Ifnecessary, the students’ medical andphysical abilities are evaluated to placethem in the safest and most enjoyableportion of the program. DRAFT V1.0 – Autism Awareness Month – 04/09/2013 28
  • 29. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Day HabilitationAn interdisciplinary clinical team and a strongbehavioral approach are incorporated into eachday habilitation site to develop functionalskills and enjoyment of the communitiessurrounding them. Each one has its ownunique personality based on its participants.  Speech & Language Communication TherapistsOur day support professional instructors work  Occupational Therapistsclosely with our clinical staff in developing  Physical Therapistsdynamic schedules of activities to ensure that  Certified Occupational Therapy Assistantsthe person is actively involved in their daily  Certified Physical Therapist Assistantsroutines.  Behavioral Psychologist http://www.tillinc.org/index.html DRAFT V1.0 – Autism Awareness Month – 04/09/2013 29
  • 30. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)EGAEGA is an architectural design and planning firm thatwas founded 43 years ago with the commitment to offeronly the highest levels of design service to its clients.While EGA has provided architectural services for adiverse listing of project types, the firm’s primarypractice is the study and design of senior livingenvironments.This has been the foundation and focus of the practicefrom the firm’s inception. EGA is a nationally recognizedleader in the senior living field with a continuingcommitment to excellence in design and service to itsclients. DRAFT V1.0 – Autism Awareness Month – 04/09/2013 30
  • 31. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Noble HomesNoble Home, LLC was formed in 2007 based on the notionthat a modern kit house may just be the best way to helpnew homeowners build an environmentally responsible andresponsive dwelling.Noble Home is made up of a multi-disciplinary team ofdesigners, builders and philosophers. We all have a deepcommitment to sustainable development and in keeping ourenvironment safe for future generations. We are ready toexplore and tackle any high or low tech solution to livinglightly on the Earth. DRAFT V1.0 – Autism Awareness Month – 04/09/2013 31
  • 32. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)PATH InternationalPATH Intl. was founded in 1969 as the North American Ridingfor the Handicapped Association (NARHA) to promote safeand effective therapeutic horseback riding throughout theUnited States and Canada. Today, PATH Intl. has nearly 800member centers and over 6,300 individual members incountries all over the world, who help and support more than42,000 men, women and children with special needs each yearthrough a variety of equine-assisted activity and therapyprograms. DRAFT V1.0 – Autism Awareness Month – 04/09/2013 32
  • 33. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)What others are doing… Select Path Certified Centers in Massachusetts Organization Address 2 URL Blue Pony Hatchville, MA 02536 www.bluepony.org Breezy Hill Therapeutic Riding Holliston, MA 01746-1403 Dr. Franklin Perkins School Lancaster, MA 01523-2569 www.perkinschool.org Equine Partners, Inc. Hopkinton, MA 01748 www.equinepartnersonline.com Flying High Farm Lunenburg, MA 01462-2013 www.flyinghighfarm.com Forge Works Farm, LLC Rutland, MA 01543-1616 www.forgeworks.net Friends for Tomorrow, Inc. Lincoln, MA 01773 www.friendsfortomorrow.org Greener Pastures Chelmsford, MA 01824-4415 www.flyingchangestables.com Greenlock Therapeutic Riding Center Rehoboth, MA 02769 www.greenlock.org Lovelane Special Needs Horseback Riding Program Lincoln, MA 01773-3105 www.lovelane.org Nantucket Therapeutic Equestrian Center, Inc. Nantucket, MA 02554-0023 www.seaponyfarm.com DRAFT V1.0 – Autism Awareness Month – 04/09/2013 33
  • 34. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)What others are doing… Select Path Certified Centers in Massachusetts Organization Address 2 URL Pioneer Valley Therapeutic Riding Association Inc. Belchertown, MA 01007-0944 www.pioneervalleytra.org Prayers Answered Therapeutic Horsemanship Shirley, MA 01464-0175 Rehabilitative Resources Inc Brookfield, MA 01506 www.rehabrescourcesinc.org Rising Tide Therapeutic Equestrian Center, Inc. West Tisbury, MA 02575-0044 www.risingtidetec.org Tewksbury Hospital Equestrian Farm Tewksbury, MA 01876-0755 www.t-h-e-farm.org The Bina Farm Natick, MA 01760 www.binafarm.org The Bridge Center Bridgewater, MA 02324-2112 www.thebridgectr.org Therapeutic Equestrian Center, Inc www.equestriantherapy.org Wild Hearts Therapeutic Equestrian Program West Bridgewater, MA 02379 www.wildheartstherapeutic.org Windrush Farm Therapeutic Equitation, Inc. Boxford, MA 01921-2216 www.windrushfarm.org DRAFT V1.0 – Autism Awareness Month – 04/09/2013 34
  • 35. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)The Flag FoundationThe Flag Foundation stewards an international network ofsanctuary ranches that foster horse/human partnership.Activities on our ranches range from holistic horse care toequine-guided personal and professional development –universal experience accessible and beneficial to everyone.Because they possess sophisticated skills in emotional, socialand body intelligence, horses are leading us to our next level ofhuman development.Each interaction informs and transforms, one horse, oneperson, one life at a time. Each ranch preserved devotes land tothis purpose in perpetuity. DRAFT V1.0 – Autism Awareness Month – 04/09/2013 35
  • 36. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Potential Collaborators… DRAFT V1.0 – Autism Awareness Month – 04/09/2013 36
  • 37. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Other Potential Collaborators… DRAFT V1.0 – Autism Awareness Month – 04/09/2013 37
  • 38. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)Suggested Next Actions1) Survey & Consolidate our thinking Re “The Concept”2) Refine Planning Document so that it accurately depicts our intentions3) Identify Key People that we wish to prospect for collaboration4) Update & Distribute Deliverable to Identified Prospects for directional feedback5) Plan Meet and Greets / Conference Calls with interested parties6) Establish an advisory Board of Directors represented by collaborators established to further develop, guide and govern business plans.The key resources required to further develop and advance this business plan will represent a wide array ofdisciplines.These may include: Architectural & Design Specialists; Medical Professionals & Healthcare Specialists;Educational Institutions & Academia Professionals; Governmental Agencies;Corporate / Individual Sponsors DRAFT V1.0 – Autism Awareness Month – 04/09/2013 38
  • 39. The Autism Spectrum: Conceptual Planning for A Charter Campus Prototype in MA(Housing, Education & Treatment)For more information:Please contact David McCarron at dmccarron@cca-capitalcare.com“Until one is committed, there is hesitancy, the chance to draw back-- Concerning all acts of initiative(and creation), there is one elementary truth that ignorance of which kills countless ideas and splendidplans: that the moment one definitely commits oneself, then Providence moves too. Allsorts of things occur to help one that would never otherwise have occurred. A wholestream of events issues from the decision, raising in ones favor all manner ofunforeseen incidents and meetings and material assistance, which no man could havedreamed would have come his way. Whatever you can do, or dream you can do, begin it.Boldness has genius, power, and magic in it. Begin it now.” ― Johann Wolfgang von Goethe DRAFT V1.0 – Autism Awareness Month – 04/09/2013 39