Fostering Open Dialogues in Health: Disruptive Women in Health Care Genetic Alliance Webinar September 23, 2009

The Mission To serve as a platform for provocative ideas, thoughts, and solutions in the health sphere. While the focus of the blog is on encouraging the voices of women, men are welcome to share their thoughts as well. Disruptive Women is a project conceived of and owned by Amplify Public Affairs.

About Disruptive Women To serve as a platform for provocative ideas, thoughts, and solutions in the health sphere. We recognize that to accomplish this, we need to call on experts outside of the health industry. The founding Disruptive Women have audacious hopes for our blog: We’re not managing change; We’re not thriving on chaos; We’re not waiting for cures; We’re driving change; We’re creating chaos ; We’re finding cures ; … We’re disrupting the health care status quo. Our Goal is to become the “go to” health care blog -- one that is recognized as a petri dish for fresh ideas and bold solutions.

To serve as a platform for provocative ideas, thoughts, and solutions in the health sphere. We recognize that to accomplish this, we need to call on experts outside of the health industry.

The founding Disruptive Women have audacious hopes for our blog:

We’re not managing change; We’re not thriving on chaos;

We’re not waiting for cures; We’re driving change;

We’re creating chaos ; We’re finding cures ;

… We’re disrupting the health care status quo.

Our Goal is to become the “go to” health care blog -- one that is recognized as a petri dish for fresh ideas and bold solutions.

Disruptive Women Events

Guest Bloggers

Robin Strongin President & CEO – Amplify Public Affairs Creator - Disruptive Women in Health Care 202-263-2917 [email_address] www.disruptivewomen.net

Robin Strongin

President & CEO – Amplify Public Affairs

Creator - Disruptive Women in Health Care

202-263-2917

[email_address]

www.disruptivewomen.net

U.S. Healthcare Consumer Paradox We know or understand little about our healthcare system Yet, we depend on it to save our lives Ruthann Russo, PhD, MPH

We know or understand little about our healthcare system

Yet, we depend on it to save our lives

Ruthann Russo, PhD, MPH

Every Healthcare Consumer Needs ● A plan...to be accountable ● The best primary care physician ● A medical mentor ● The best clinical team ● A solid understanding of health insurance or how to finance care

● A plan...to be accountable

● The best primary care physician

● A medical mentor

● The best clinical team

● A solid understanding of health insurance or how to finance care

Healthcare Consumers Have the Right to Communication in a language we understand A second (or third…) opinion Be informed of risks, benefits & alternatives to treatment 4 . Financial resources counseling 5. Accurate and complete medical records

Communication in a language we understand

A second (or third…) opinion

Be informed of risks, benefits & alternatives to treatment

4 . Financial resources counseling

5. Accurate and complete medical records

Consumers Have the Responsibility to Choose our providers wisely Prepare for every (non-emergent) visit Provide accurate information to our physicians Provide accurate information to our health insurer Practice a healthy lifestyle (or take responsibility for an unhealthy lifestyle)

Choose our providers wisely

Prepare for every (non-emergent) visit

Provide accurate information to our physicians

Provide accurate information to our health insurer

Practice a healthy lifestyle (or take responsibility for an unhealthy lifestyle)

5 Things to Know About Your Medical Record It’s your responsibility to request your medical record 2. You can ask the doctor to explain it to you, make changes and/or re-write illegible items What you say to your doctor impacts the quality of the information in your record (and your care) Your medical record generally can’t be shared with others without your consent (numerous exceptions) 5. It’s your responsibility to make sure new doctors get copies of your old records

It’s your responsibility to request your medical record

2. You can ask the doctor to explain it to you, make changes and/or re-write illegible items

What you say to your doctor impacts the quality of the information in your record (and your care)

Your medical record generally can’t be shared with others without your consent (numerous exceptions)

5. It’s your responsibility to make sure new doctors get copies of your old records

What Patients Want from Providers 1. An individual who shows genuine caring* 2. Understandable descriptions of clinical aspects of care 3. A clear explanation of financial issues *often not a clinician

1. An individual who shows genuine caring*

2. Understandable descriptions of clinical aspects of care

3. A clear explanation of financial issues

*often not a clinician

Pat Ford-Roegner, MSW, RN, FAAN, CEO American Academy of Nursing www.aannet.org

Pat Ford-Roegner, MSW, RN, FAAN, CEO

American Academy of Nursing

www.aannet.org